I've hit a wall.
My baby girl recently just turned one. Basically her entire life so far, I've been fighting cancer. I've finished chemo, I'm almost done radiation now and I'm half way through Herceptin, but I'm more scared than I've ever been.
I'm 34, stage IIIc, ER/PR+ and HER2+. I had 17/17 positive nodes. I'm terrified of recurrence, I've been trying to understand this disease and all I've discovered is that the odds are stacked against me. I'm having anxiety/panic attacks more frequently and they're almost too painful. It's overwhelming. I wake up crying at night and then my mind just gets flooded with the most awful thoughts. I can't even begin to list all of the reasons I'm scared, but the main reason is not being here for my daughter.
I don't even know why I'm typing this, I'm just really scared. Is there anyone with a diagnoses like mine, current or 5 yrs+ out, on here? I have no one to talk to, there's barely a soul who knows what's going on. I can't bring myself to talk about it most of the time. I'm tired. I'm tired of hospitals, specialists, appointments, you name it. I feel like a zombie most days. I feel like a terrible mother and wife because I just can't pull myself out of my head. I'm letting my self go in so many ways. One day I'm so confident and happy, planning for the future and then BAM, morbid crippling depressing days. The happy days are coming farther and fewer between, it feels like drowning. I stress and jump at every little thing. Also, selfishly, I want to be able to have another child in the years to come and I'm just afraid now that it'll never happen due to my DX being what it is.
I've hit a wall.
Comments
-
Mirmirpanda, we're so sorry you're feeling this way! Other members will post with their advice and personal experiences, likely including some medications and strategies to help you get through this. You might also want to read the section on Depression at the main Breastcancer.org site.
In the meantime, there's a thread right here on this forum, called Stage III Cancer Survivors...Five+ Years and Out that's filled with inspiring stories!
• The Mods
-
Mirmirpanda! Mods were right! My doctor Had prescribed clonazepam, for anxiety, pretty quick acting, and you dont have to take them everyday. But your fears are understandable, especially with a child, and i think you are stronger than you think, as i cant imagine how that would have affected me. Do you have a good and stable partner? Actuall friend to go n have lunch n talk with? someone who can make you laugh even if you dont want to? hope you took mods advice, i think i will go check it myself, you can pm me, my surgeon told me i was curable, i'd like to believe her, but even many women withstage 4, can live longer n longer, with pretty reasonable quality of life. i know, just havin cancer suggs, how it affects our thinking. blessings, tomorrow 1st day of autumn.
-
I have a similar diagnosis, but am older. I'm two years out. I'm writing even though I don't know what to say because I was in my 40's and my son was in college when this happened to me. I can only say that it is completely horrible and unfair to have had this happen to you at this stage in your life. I can also say that being on the other side of treatment, I feel stronger each and every day. There have been many days where I felt that I could not plan for what I saw as an uncertain future, but as time passes, I'm beginning to feel better about that. I also have worked with a therapist since I finished treatment who specializes in therapy for those living with chronic illness. She has worked with me on mindfulness and meditation to help me to keep my thoughts in the present, and not the past or the future. I also still rely on Ativan that I used a bit during treatment. I find that it really helps me to sleep more soundly, as well as to either not have or not remember the crazy dreams that Femara gives me. I have taken an antidepressant since diagnosis as well.
Concentrate on the fact that you are nearly done with treatment and that you will start to feel better and better every day. You will take your life back from the appointments, doctors, procedures etc. and spend it with your child instead. I hope you can find someone to talk to. I wasn't sure what you meant by "barely anyone knows what's going on." I don't know if that means you can't find anyone to confide in or they don't understand. We get it here. -
-
HI there,
I was diagnosed with stage 3 er/pr positive while pregnant with my 4th child. I was 36 years old. I had 17 out of 26 nodes positive. I was devastated when I was first diagnosed. I was paralyed with fear. I could hardly function. I cried daily, hardly slept, had daily panick attacks. It was horrible. I started taking xanax and that did help. It wasn't until this past year that I finally got talked into taking celexa and that changed my life. THis crap is HARD. TAKE something to help you!
I controlled some of my fear with an ultra clean diet, and exercising daily. That gave me a sense of control over the fear of a reoccurence.
I am now four years out and doing really good. I feel better then I have ever have! I am happy-truly happy! Kilian my baby is doing amazing. And we have such a special bond.
I know how hard it is to be a mom to a baby while fighting cancer. It basically sucks. It's suppose to be a joyful time and other women are doig playdates, etc and your fighting cancer. Just no it WILL get better.
It WILL get better for you.. But you HAVE to help yourself. Talk with your doctor, get on something to help you cope..Just for now. Takl to a therapist. I feel like I lost so much of my babies first year of his life b-c I was depressed and scared and my thoughts were always running rampant.
You have hope..a LOT of hope.... BELIEVE you will beat this... You will..
If you want to PM me I am happy to give you my email, text, or phone number. I am happy to talk to you or help you in anyway.
Much Love and Blessings..Go hug your baby:)
-
Hi,
I checked in this am to report on my 8th year of NED. I too had node positive disease, a really large tumor and was er negative...so not good odds.
Statistics are just statistics....the numbers can be frightening...but some people simply defy odds.
The advice above is excellent, get some therapy, perhaps medication, find a way to be hopeful for your future. There are a lot of us surviving many years with this threat. Even if recurrent there is much to be done to control growth.
Try not to let fear control your day to day life. Returning to work helped me the most, I liked my job...it gave me a focus beyond myself and my fears. Before long I was planning my vacations and thinking about the future. I also found exercise great for reducing my stress and helping me feel better about my ravaged body. My 12,13 and 16yo children are now 20,21 and 24!! My oldest is in medical school.
Many people have many unfair things happen...the solution is to find a way forward that is happy and hopeful.
Hugs!
-
The Living Beyond Breast Cancer website has a lot of podcasts that I listen to. Lots of topics from professionals. I find these very helpful and hopeful. There is a young women's support group in my city that I attend, which I enjoy. Try connecting with a social worker at your cancer center. They can guide you toward a therapist, support groups and other resources available to you. Some people can feel finished when active treatment is finished. I am not one of them. The support I've found is not just a group sitting in a circle but include fun and therapeutic activities, lectures, speakers, field trips, yoga, cooking classes. You are your best advocate. No one can take better care of you than you. Make the time to take care of yourself now with some of the suggestions in this thread. Caring for yourself is caring for your baby. It's a tough road you are on. Big hugs.
-
Nothing much new to add. But this is normal . I criedand cried when tx was done guess i had mental breakdown.
I am two years out from my mast. I have become vegan or vegatarian .take boatload of suppements. And exercise. Am still trying to get on routine. I have heard exercise cuts risk a lot -
Im three months out since my last treatment. I remember crying every single moment, thinking that I will never make it. I had to take anti-depressants to help be get back on my feet. I refused for a long time until one day I realized that my emotions are out of control. My brothers and sisters intervened and begged me to get professional help. I stopped taking my anti-depressants one month after my last treatment. I just forgot taking them because life all of a sudden got so busy again and I try to put everything behind me. I still get scared and have panic attacks, but I try to control those moments the best I can.
I have two very young daughters, 8 and 2 years old. They are always on my mind. Im so scared that my time with them is limited that I'm trying to do so much with them. I keep telling myself to slow down because I have plenty of time.
I hardly participate on the boards, but your message reminded me of my situation a year ago. -
I can imagine, how hard it is for you with a small baby and this much hated desease. My kids are grown ups, but still hard, because I now want to see grandkids. While it may seem impossible at this moment, try to think about the future and growing your baby. Make plans, dream and pray! Don't let cancer rob the joy of motherhood. I am sending you positive thoughts and wish you lots of courage to overcome and break that wall!
-
Oh my gosh! Do I get it! Although our dx are slightly different, I too have had severe bouts like you where I go to that dark place. It truly can be debilitating! And you DO have someone to turn to-----US!
We "get" it. You are still in active tx and have a new baby too. Your hormones are all wacked out and you've been to war and back. PLEASE take some of the others suggestions. It's OK if you need to ask for help and if you need an antidepressant or anxiety med. Try to think of them as supplements for your health. You are getting the Herceptin, why not another med to help you in your recovery???
There's a lady down the road from me with that was in the Herceptin trial at Johns Hopkins many years ago whom they said would probably die without it. She's still here today and doing great! I know she's at least 2 to 3 years further than me (I'm at 4 now) so, there's proof it CAN be done.
Come here anytime you feel down, we'll be here for you!!!
(((Hugs)))
Sharon
-
Hi Dear. Like Maryanne I am 8 years out. My dx was stage IIIc HER2 pos BC too, like yours. We have all written to you because we have all been there. Unfortunately, All the feelings you have go with this disease.The uncertainies, the fear, anxiety, etc. etc, etc.
Please speak with you doc. Most women dxed with BC need some anti-anxiety Rx to deal with the enormous flood of emotions that can be paralyzing. Gradually, you will get back to you and this BC crap will be a memory.
Come to these board often. It is empowering and reassuring to read about all of us that have trravled the same journey.
You will be ok. Herceptin is easily tolerated and soon you will find you'll be done.
Finally be gentle with yourself. It's hard, but you will get through this and be able to enjoy your life again.
-
-
I don't really know what to say. I don't post much but I saw your post felt I needed to respond. I just finished radiation on September 4th. The anxiety and fear have decreased quite a bit now that I'm not experiencing chemo side effects or going to radiation every day. My path report after surgery said my tumor was larger than we thought and I had 19 positive nodes. This was after chemo! I cried alot. I lost 10lbs in two weeks I couldn't eat. I thought about my children losing their only parent. I went to see a therapist and I think you should too. It really did help. Take the meds if you need them. We are suffering an assault on our bodies and minds. There's absolutely no shame in needing help. Going back to work and other distractions also helped.
-
I'm sorry your feeling down Mpanda and my hope is you're feeling better today. My stats are similar other than the Her+. I was 34 at dx, had a 3 yr old and 18 mth old. Although I'm not 5+ yet, I was 3 years in July and I'm doing great. It's not been easy but it can be done. I can relate to your feelings of ups and downs, it happened to me too. The further from dx you get things will get better, until then you may want to take something. I took Paxil after tx ended, I was in a horrible place and needed it, it helped me so much and now I'm on Effexor. Tx can add to those emotions too and you're still in the trenches right now, so take it for what it is. Before you know it you'll be feeling better and the days will turn to weeks, the weeks to months, months to years. As far as future children, I've heard of it happening, if you take steps for that now. Just a couple weeks ago the news had a report about a lady in the UK who had froze her eggs during ovarian cancer tx. They implanted the fertilized egg into her abdomen and now she is pregnant with twins. We are making so much progress, so never lose hope. Sending you hugs.
-
Mirmirpanda...I hope you feel all the warmth and encouragement from all those who have posted. I love how you state "can't pull myself out of my head". I get that. So much wisdom has been shared already, but I'll add that I thought I'd feel relieved when treatment was over and instead the battle for my mind began. It could be a sweet day, but the darkness of my mind robbed me...I truly had to fight back and reclaim my mind and what I would allow it to dwell on...very tough...but if I didn't the darkness just got darker. The fear was exhausting and I knew I simply couldn't live in it every moment! You'll find your way out of your mind..keep fighting and seek help if you need!
I also was great at numbing myself through the survival mode of treatment, but as I started to "feel" again I found fear to be so much stronger than the joy of being done with treatment. It seemed every happiness ( birthday parties, family trips and so on)that I allowed myself to start to feel was also allowing the emotions of fear to be felt. I really struggled with coming out of the numb stage. I hope this makes sense! But, I did find my way back to feeling life again and not being taken over with the fear... in time. So be careful with the up coming holidays...along with the happiness, fear will try to make its way in too!
Being in treatment still is hard and with a lil one its even harder...but this to shall pass and you will be back to a more normal life...promise!! MD Anderson told me that exercise is SO important. That research shows that heavier woman who exercise have a lower recurrence than thin woman who don't....that's how effective exercise is...said it reduces recurrence by 40%....you and your lil one can do lots of wonderful walks!! I hope I helped a bit...we all know what hitting a wall is like..we're here to pick each other up!!!
-
Mirmirpanda, how are you doing today?
When I was closing in on the end of active treatment, I was, perversely, sort of, looking forward to "hitting the wall." Hopefour described this pretty well. I wanted to be able to be with all of those emotions and spend some time in those dark places, in order to process the experiences - something we don't get to do when we're dealing with the immediacy of a looooong slog of scary, painful treatments and the sense of privacy and autonomy that we lose as we go through them. About halfway through, I came up with an image for those emotions: a file cabinet, with drawers marked "Later."
There's only so much we can handle in a given day. You know what? There are still a few things in those drawers.
I am three years out from Stage IIIc, diagnosed at age 50, no children. Our lives are different, but also the same. Hug that little one for all of us, and yourself, too.
-
Mirmirpanda.....
I am so sorry you are going through this but if the truth be told....I was exactly where you were at this point. My children were a bit older...in elementary school. I think having young kids adds just more pressure to an already stressful situation.
It honestly just takes time.....you just need more time on your side....and ever so slowly you start to not spiral down as much.
I had at least 17 nodes positive and a HUGE tumor.....tumors in my nodes....tumor in my skin.....you name it ..... I had it.
but I am here almost 9 1/2 years out.....and now my kids are in high school and college. Seemed almost impossible in the beginning.
My only advice is to keep yourself busy with your child....go to the park....go do a mommy and me class....keep yourself busy.... pick up scrapbooking.... whatever it takes to keep your thoughts elsewhere.....over time.....days, weeks, months and years add up.
Mostly......don't let this cancer take any more from you than it already has......Fists up!
Jacqueline
-
I feel the same way. Scared, etc. I'm not stage III but was close. Last year on my one year anniv. of dx I felt great, on top of the world, etc.
Now this anniversary I'm down as down can be. Scared, fearful, every little pain makes me think....you know. Onc. appt day after tomorrow has me so anxious I can't concentrate. I'm wondering if this is some kind of delayed reaction to the whole experience?
I had surgery July 3 for bmx and immediate one step recon, and the next month I was back to work so I wonder if I'm just not processing all of this. it feels like I don't have enough time to breathe and look at everything I went through.
I have a counseling appt on Oct 1 to talk to a counselor who has helped me before, but I'm so sad and feeling so gloomy right now.
Claire
-
claire. what you have been through i cant even imagine. you can get through this too. did you do the bmx cause they found something else, or was it to stop worrying. i am getting ready to see a counseler,too she is fantastic, met her socially years ago, and am really looking forward to working on me with her. dsyfuntional family of origin issues. and stuff. besides bc, as if that wasnt enuff. cuase somedays, i just feel like crying, but i almost never let myself....dont know why not. you are in my thoughts today, and would like to see you CLEAR! as your name implies. fall coming always has this sad effect on me too, but you are in the right place. hang on.
-
Hi there! I'm not 5+ years out and really don't have any words of wisdom, but I just wanted to let you know you're not alone. My story is almost indentical to yours. I was 32 and my baby was one and a half with I was diagnosed. Mommy being sick and going to the doctor's is his norm and that breaks my heart. We wanted another baby but I know that's not likely now. What helps me is keeping busy. I spend as much time as I can with my hubby and little man. I work full time. Try to spend time with friends, etc. And there will be entire days where cancer doesn't even enter my mind! Also, when I was at my worst I got put on meds. I think they helped. We are all different and I know drugs aren't for everybody, but they did help me. Feel free to message me if you need someone to talk to. I don't have much advice, but I am dealing with the same shitty situation...Best of luck! Kelly
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team