Starting Chemo June 2013!?!?!

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  • rachel22
    rachel22 Member Posts: 54
    edited September 2013

    Aaoaao - congrats on good news! Glad to hear it went well!



    Congrats to those on their final treatments! So exciting and I can't wait to join you all on the other side of this.

  • KatiAK
    KatiAK Member Posts: 138
    edited September 2013

    I think we all have a melt down at some point.  I had mine right before the first Taxol and my onc was kind enough to add the Ativan to my cocktail every time which makes it oh so much easier to face - and sleep through.  I was still a sobbing mess on Monday before my Tuesday treatment and Ocean - I haven't had the extreme side effects you've had.  It's amazing how hard it is to face all this and yet we want to do it to increase our chances of survival - how dare they try to take that away from us because we're emotional!  And yes, I believe it's the chemicals that make us SO emotional!  That and being forever the pillar of strength; for our neighbors, friends, family, employers, our children, our husbands.  Then, this week as I sit in the chair I ask the lady who started her treatment the same day as me how's she's handled her side effects and she gives me this questioning look and says "I haven't had any".  She did lose her hair but I couldn't relate to her beyond that.  Really?  NO se's?  Made me feel weak.

    Congratulations Ocean and dlm on your final round - go in strong.  You got this!  I get my last one in 2 weeks and it's almost surreal.  It's become a nasty routine (I won't miss it).  On Thanksgiving we'll all give thanks that it's over and we're still here!  By Christmas we'll be looking forward to a new year!

    I'm still coming off the steroids (I hate them!) so no pain yet, it should hit tonight and I'm a single mom for the weekend with 3 kids needing to be in 3 different places at once. 

    Hope everything goes well for everybody!

  • kayezzy66
    kayezzy66 Member Posts: 116
    edited September 2013

    Yes the steroids make me jittery,hungry,and most of the things you get with it...each taxol,i take 3 am 3 ,pm,then next day 2,am,2 pm,and next day 1 am ,1 pm...then next week start again,damn pills ...but no pain..tg..i dont know how you do it with kids..you are very strong...i can hardly take care of myself..but somehow we get strength from above,and have to keep going...take care..and have a good weekend...

  • AryaS
    AryaS Member Posts: 131
    edited September 2013

    I am glad you made it through ok, Ocean. Big hugs to you.

  • Angstapp
    Angstapp Member Posts: 121
    edited September 2013

    Congratulations ladies on getting to your last chemo, bloody awesome!!  I have one to go and feeling so apprehensive, my last taxo has put a rash of burnt skin around my hands and across my knuckles - sore as a bugger but they just told me to put some cream on and to call if it turns black - god help me if my hands turn black i am never going back for more chemo!

  • VAL1966
    VAL1966 Member Posts: 37
    edited September 2013

    Congrats Ocean on your last chemo!! I am so excited for you.. Now wishing you no SE !! My last chemo is in 6 days... Count down is on !! Wishing everyone a great weekend

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    Had my last taxol yesterday and for those who care its.by far the hardest one as far as the.muscle aches my tissue.expanders are killing me, my tastebuds aren't working, my ear is hurting and I have no energy what so ever. I'm so uncomfortable in my own skin. Hole everyone has a great weekend. I'm so depressed...I just want this last sickness to go away.

  • KatiAK
    KatiAK Member Posts: 138
    edited September 2013

    Dlm it's the LAST one! NO more! It's gonna get better better better! I hope you feel better soon. I'm sorry you're hurting so much. :(

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited September 2013

    First Taxol down, hopefully no SE's. I felt nauseous before we started, by the end I almost puked but managed to get home and take some Ativan. Feeling better now. Not sure what that was all about...

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    Katiak thanks for always listening..I hear you loud and clear. Always have similar stories

  • Netter
    Netter Member Posts: 107
    edited September 2013

    So happy for you that are finished or nearing chemo finish.  Get healed and then rads.  I am just done with #7, 31 to go.  Nipple is sore and some itching.  Other than the hour and a half drive one way, it is a piece of cake compared to chemo. So far................. 

  • Robin-Lynn
    Robin-Lynn Member Posts: 32
    edited September 2013

    Congrats Dim and Ocean for the last one! Ocean – I feel so much the same way you do. When I saw my onc in between rounds this last time I told him I only have one more in me (prob cause I only have one more lol). He was so compassionate telling me how strong I've been and how he has battered my body so much in the last few months that I started bawling. Can't take any more pains in my bones and joints and the neuropathy is worrisome. He says it's going to take a long time to recover to get to where I was when this started - Not that that was a great place. I guess we'll all have to be patient as we heal.

    So great you went out without a head covering I wish I could do that! whether I'm in my wig, scarf or hat I'm so self-conscious that people are staring at me.

    Little break before rad go have some fun, cook away...

    Feel better Dim!

  • KatiAK
    KatiAK Member Posts: 138
    edited September 2013

    The pain is definitely cumulative.  I'm 5 days out and still dealing with lots of pain.  The pain killers aren't cutting it near as much as they used to.  And my head HURTS.  I have energy but ... one more.

    How come we don't get to walk away from this battle feeling like we've won?

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    We've won this battle just have to heal our wounds.. my onc told me to start tamoxifen today just 3 days after infusion I said how would I know what side effects ill have from the tamoxifen!!! I just don't get how the doctors think sometimes... katiak I feel the same way every part of my body hurts especially my tissue expanders. I guess because they're implanted behind the muscles. My fingernails and toes hurt.. no relief yet but I hope soon. I have work tomorrow but not sure if ill make it...Enjoy your Sunday xox

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited September 2013

    Taxol #1 down and I feel good so far. Still carrying on with my 2 week period and counting... Was hoping I'd get some relief with this treatment but it seems to have just kicked it back in gear. At this rate I'm going to bleed to death! Think the steroids are keeping me propped up... Anyone else having prolonged cycles? This sucks! I have to say Taxol is far easier than AC at this point. I almost feel human! Waiting for the SE's to kick in :( I'm taking glutamine, curcumin, and Eupatorium so we'll see...

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    Katiak how are you feeling? Ocean his do you feel? Ive had very strange pains my knees hurting, ankles, with shooting pains in my chest bumps(lol) breast and no taste... Couldnt make it to work:('''' I care for a boy with cerebral palsy) I need someone to care for me...This stinks... but last one

  • KatiAK
    KatiAK Member Posts: 138
    edited September 2013

    So . . . the lymph node on the other side of my neck hurts now.  I think somebody's messing with my head.  I'm getting a cold tho so I imagine it's from that.  When I told my onc that his front desk staff had sent me to my regular doc last time, he was pissed!  So I think they go their butts chewed.  I didn't call today.  We'll see how this cold goes.  Going to bed early today.  Tired.

    I waited too long on my pain meds today.  The nurse I work with yells at me for that.  Waiting too long puts me in horrible pain and then I'm waiting for them to kick in.  But how do you know, otherwise, if you don't need them at all?  I have a couple mouth sores today.  But I'm okay.  I'm able to go to work and do stuff at home. 

    Now that I'm close to finishing chemo and starting rads I have a million questions.  I guess I better write them down cuz . . . when do I see my onc again after this?

  • kayezzy66
    kayezzy66 Member Posts: 116
    edited September 2013

    What can i take for these dern cramps in my hand....they stiffen up and it hurts so bad.....thanks  Kay...im on taxol now for 12 weeks ,1 day a week..i go tomorrow for round 2..

  • annika12
    annika12 Member Posts: 433
    edited September 2013

    Taxol #4 today!! I do great all week and monday night anxiety sets in :( my chest hurts!!! Have to shave my legs a couple of times a week but almost no eyebrows or lashes left.....my hair the little a I got left is growing :)

  • Laka
    Laka Member Posts: 31
    edited September 2013

    Ocean- I totally understand what you are going through. I cry all the time. I cry so much that I get panic attacks. I ended up in ER couple of times. My heart rate was so high they put my on high blood pressure medicine. Last time I got so emotional my onc wants me to talk to specialist. All we go through plus my mom has stage 4 breast cancer. Hope you feel better.

  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited September 2013

    Dyvgrl:

    I had an 18 day period 11 days after a 10 day period between TCH #2 and #4 but haven't had one since. I go for 6 and final TCH next Friday!  It'll be interesting to see what happens next.  Does chempause come to an end or will it remain as I still have Herceptin infusions every three weeks though June 2014.

  • KatiAK
    KatiAK Member Posts: 138
    edited September 2013

    annika12 - I totally understand you having axiety the day before infusion.  I'm right there with you!  But I do it every two weeks and next week is my last.  I have NO hair growth tho so I'm a little jealous.

    Laka - I'm sorry you and your mom are both going through this.  You haven't added your diagnosis to your signature.  Are you doing chemo?  rads?  I've heard of people living with stage 4 breast cancer for years - even beating it.

    Maine - my onc told me that not only can your periods come back after chemo but it's not unheard of that perimenopause women can get pregnant.  No thanks.  I'm hoping mine's gone for good.

    I have a cold. My lymph node is still swollen.  I'm still taking pain pills for leg pain.  But overall I'm doing good. 

    Anybody else?

  • Robin-Lynn
    Robin-Lynn Member Posts: 32
    edited September 2013

    Time does pass - done with chemo and I hope forever! I know thurs thru sun will be hell but knowing its the last for that experience will help get me through.



    Am I crazy but thought I would be happy but already just thinking about next stages - rads, hormone therapy and preventing recurrence. Mapping for rads thurs.



    Good luck all.

    Robin

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    Good morning ladies ive been home in bed since Friday. Going to attempt to go to work today. Hope I can make it. I didn't know what neuropathy was until this time. My toes are numb and hurt. Both my hands go numb with pins and needles from time to time throughout the day. Ive had so much pain in my body this last time. The goodness its over. Cant wait to be normal and have some hair grow in soon. Enjoy your day ladies. Hope all is well...

  • dlm425
    dlm425 Member Posts: 209
    edited September 2013

    Maine are you doing rads. Did you have bilateral mastectomy? I have consult with rads onc on October 4. Waiting to hear what they have to say!!!'

  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited September 2013

    Dlm425,  I had my consult last Tuesday, four days out from an infusion.  Appt didn't go well, I swooned (day four is a BAD one for me but I got enough of the appt in to find ou what the plan is.  I have my rad simulation appt on 10/15.  I'm doing 25---short course as I only had a micromet in one node.  I had unimx and I'm still undecided on whether to have reconstruction or have a prophy-mx on the right.  One way or the other, I'll likely have matched sides. Wink

  • Netter
    Netter Member Posts: 107
    edited September 2013

    #10 of rads today.  Radiation doctor said I will rest for 2 weeks after #18.  I am looking forward to that!  This will all be finished by Thanksgiving:-)))

  • NisaVilla
    NisaVilla Member Posts: 574
    edited September 2013

    Hi Robyn - hope SEs are not too awful for you starting tomorrow. Your last chemo, hooray! Although I do get it that it is hard to celebrate with still more treatments ahead. Had my last chemo 3 weeks ago but did not complete my full regimen due to neuropathy. Someone wrote on another forum something about how come we don't walk away from this battle feeling like we won - thats my experience too.



    Laka - I'm sorry you and your mom are both going through this at the same time. I never heard of a family going through cancer together. Do you both carry the gene? Hope you can help each other.



    Ocean - How are you doing? Hope things are getting better for you.







  • VAL1966
    VAL1966 Member Posts: 37
    edited September 2013

    Last treatment tomorrow! Pretty excited to be done with this poison... Screw you cancer.. Don't ever come back.... I am a warrior and a survivor... Now on to rads.... Sept 30 is my mapping appt and rads begin oct 15 th... 30 treatments... Ugh.. Will this ever end ! I have to leave my family for this.. Closest Center that does rads is 4.5 hrs away.. I know I'm not the only one that has to travel so far for this.. Still feel like I'm allowed to bxxch about it... Wishing everyone a great SE free weekend and thank you for always letting me vent ! Xox

    And yes it's almost 2:30 in the morning... Can't sleep because of the hot flashes.. Or night swears.. Whatever you call them... Anyone else have them bad and is there something we can take

  • Alibeths
    Alibeths Member Posts: 656
    edited September 2013

    congrats to all you ladies DONE!!!!!!!!  When i started this board, i was terrified...Now WE ARE SURVIVIORS!!!!!!!!!!!!!!!!!   xoxoxoxoxo

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