Here's what cheezed me off today

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2013

    UN Fricken believable !

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

     Life is very mucked up right now. Thyroid picked up as abnormal during yearly scans. Biopsy in July. Re-exam scan scheduled for November. Started with unusual pain 3 weeks ago. Ent ordered f/u ultrasound.

    Last week had yearly Head to Toe dermatology exam. A yearly exam is standard in Florida, but vulva and butt aren't standardly examined. She was done and I asked for the vulva to be done. Derm doc found a very suspicious are on the vulva. She kept talking melanoma.

    No answers yet. Vulva bx was on thursday. I''ll try and pick the results up monday. Cape canaveral gave me a problem the last time several years ago when I tried to pick up record. They were not complying with the law. So I anticipate a battle. But I have a plan. Which is sitting in the CEO's office until they comply with the law.

    The thyroid ultrasound was done friday @ Parrish. I'll pick that up monday morning before I go to Cape Canaveral. Parrish always complies with the law. There will be no problem. The request is made. Picture ID shown and form signed. Pleasantries exchanged. Done.

    This is dejavu Jan23 2009. I was dx'd with BC and told I had a brain tumor the same day. Except on Jan 23rd I told my boss of the brain tumor. I was relieved of duty. I never worked after that. So, two tumors and career loss in one day is some kind of record. Bizarre. Hard to believe it true. Honesty is not the best policy. I was very naive.

    I can sit. The local injection for the bx is as bad as the tracer injection under the nipple. White knuckles.

    Lesson learned(UGH always lessons). I had a ARNP gyn exam in Jan. 6th. I went b/c of pigment changes. She noted the pigment changes, but apparently didn't recognize the significance of the pigment changes. Told me to follow up if I had any problems. No imperative aroused by ARNP, so I didn't worry.The Derm doc. immediately said a biopsy was needed. So, lesson is __Have a vulva and butt exam as part of yearly dermatology head to toe. Seems it's a logical thing now, but was done only by request this time

  • RealityCheck
    RealityCheck Member Posts: 57
    edited September 2013

    Hi Cheezers!

    Hope everyone is having a great Saturday evening.

    rohanna - LMAO LOVED your post about what cheezed you off!

    sasi - Big Hugzz to you!!

  • Rockym
    Rockym Member Posts: 1,261
    edited September 2013

    Rohanna, OMG!! and I don't say that often.  What an effed up question.  Knowing me, I may have lifted my shirt and said, "Yep... their all mine!" (always was a bit of an exhibitionist ;-)).

    So....... back to my cheeze... my trigger fingers that have been with me since last November... well guess who gets to have surgery in a couple of weeks?  Yep, me.  What is up with BC and our bodies getting all screwed up afterwards?  Is it the instant menopause, lack of estrogen... who knows.  Before BC I never had anything physical go wrong and now it seems like one thing after another.  I know lots of you understand that one.

    Anyway, I told my hand doc that you'd think after BC, surgery, chemo and rads that nothing would scare me.  Well, wrong.  I do hope when all is said and done, I will be back to my old self.  So, here is just a tad more cheeze to wizz on top.  I was working in my yard today and I climbed the ladder to survey what I needed to do and dumbshit me was wearing flip flops.  Can ya guess?  I ended up falling off the wall I was standing on and ended up in my neighbor's backyard.  Speaking of neighbors ;-).

    I had to figure out how to get back over to my side so I did the elbow, elbow and then pulled myself up.  I can't believe I still had the strength, but I did.  Well, here's another cheeze to go with my crackers... I BROKE my toe in the fall.  So, now I can wallow in my toe pain while waiting for my hand pain to be taken care of.  Oh the joy.  I am still smiling.  So ladies who wonder if it gets better... I'm guessing if I can still laugh at all this crap, I must be doing better.  Let's hope I stay in one piece for the rest of the weekend :-).

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    ROcky omg sounds like America,s funniest home video,s if it weren't,t for the pain

    Reality, thanks it is pretty bizarre now.

  • 9911
    9911 Member Posts: 54
    edited September 2013

    Rockym ... too funny and sorry with the toe.

    Cheese plate ... please do not order that on a long flight. On my return flight after getting my 3D Tatts (they are amazing) ... the guy next to me ordered a cheese plate about 30 mins into the flight. Two hours later, someone passed gas. We had Chipotle before flight. Thinking it was my husband ... I didn't say anything and turned the air on higher. He said he didn't want to eat the beans and I made him. 30 mins passed ... more gas. I said REALLY to my husband and he said "WHAT"? THE SMELL! "What smell?"  It was the guy next to me with the empty cheese plate! He got up 3 times to use the WC. It was a 5 hour flight! In the future ... I will sit next to the window and let my husband have the middle seat. Or I will hit your "cancel" button if you order the cheese plate on the tv screen.

    And one more ... I finally got a new car. I listed my old minivan on Craigslist. This lady keep asking us questions that we already answered with the listing. After 18 emails in 3 days ... without see the minivan she asked if we can lower the price more. (I guess my pics were great!) I wasn't asking alot ... it was a fair price. We told her someone else is coming by to look at the minivan ... would you like to see it? No answer. I sold it to the guy that came by. He texted us later that evening and said his kids love the minivan. Next day ... email 19  ... ask how much I sold it for? Like it matters!

  • Rockym
    Rockym Member Posts: 1,261
    edited September 2013

    9911, thanks, my toe is feeling a bit better, but I do keep seeing myself hanging from the wall with a WTF look on my face :-).  Well, at least all the yard work got done before the toe turned purple!

    Your plane story was way too funny.  I would have died if someone was passing gas near me and I couldn't get out.  I always bring earplugs with me on a flight in case there are kids or babies.  I suppose I could stick them up my nose if need be.  I'll remember that if someone orders the cheese plate next time.

    Sorry about the car experience.  Maybe you could send a reply that says you decided to sell it for less then what she offered because the family was just so damn sweet and really deserved a break... tee hee.

  • lovewins
    lovewins Member Posts: 881
    edited September 2013

    thanks for the laughs 9911 and rockym...feels so good to laugh. 

     Maybe you could send a reply that says you decided to sell it for less then what she offered because the family was just so damn sweet and really deserved a break... tee hee.

    too funny!

  • GraceB1
    GraceB1 Member Posts: 213
    edited September 2013

    I'm ticked off today. Twice this week I've gotten phone calls from medical charities asking for money. I very politely told them that I was in treatment for BC and all my money would be going to medical exp. and BC charities this year. Then they tried to guilt me into "saving a child's life". Now I will never give a dime to them. All they had to say was " I'm sorry. We'll call again next year." I realize that they're working from a script but really! Just hit me the wrong way. I just want to work on saving my life first. 

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2013

    Caller ID is a good thing. If I don't know the number, voice mail gets it.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    GracieB1---was it the Childrens Wish Network? They are really rude. They just don't get a personal experience. I asked to be placed on their do not call list. Response "We are a non-profit, non profits are not subject to the rules of the do not call rules." Me "I don't want you to call me again" Her "Sorry we can if we want". Bizarre.

    I have several charities that I give too. The Childrens Wish Network is a bullying organisation.

  • chabba
    chabba Member Posts: 5,065
    edited September 2013

    I'm afraid my response would have been Well I keep a do not donate list and you just went on it!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    Chabba_Hi--yes that's what I've done since. Brings back an earlier memory when one of these contacts became aggressive even after I said it wasn't a good time.  She said "How can you not have enough to give to children that have cancer" My response' You have know idea what my circumstance is". "Whether or not I'm able to make a donation is none of your business, put me on your no call list. hang up. They are the most aggressive group. I have learned that those callers don't get answered or they get  "Sorry I have no money" They hang up real quick.

  • GraceB1
    GraceB1 Member Posts: 213
    edited September 2013

    I have to answer all phone calls because of my husband's business Frown. The phone number was blocked. I wish I had been thinking faster and used what a friend of mine did. She told them that she would have to get her bankrupcy lawyer to approve all donations. They usually hung up on her. No it wasn't the Children's Wish Network (that was last month), it was childhood lymphomia and MS.

  • 9911
    9911 Member Posts: 54
    edited September 2013

    Rockym & Lovewins ...

    I replied with "sold for asking price" ... the guy asked if I would go lower ... I did.

    Ahh ... the call for $$$. My husband donated to Komen & American Cancer Society ... back in Dec '11. End of the year stuff. WHY? I don't & did't know. I started geting phone calls in '12 ... asking for more $$$. I personally wouldn't donate to any big organization ... I would go local. Anyway, they just keep calling. Finally ... I was feeling real good. Would I like to donate? Well, I donated my breast cancer tumor to science in 1999. I was in a clinical trial for 10 years. I had a new primary BC again. I had BMX. I don't know what else I can donate. We are done with all phone calls.

    Today ... check-in with my MO. WHY DO I GO? Why do I go to see any of my doctors? I should just do labs and call it DONE. Anyway, I lost 6+ lbs over the last 3 months ... by doing nothing. I didn't lose that much with my flap surgery. I'm under 110 lb. My docs are ok with that because my labs are good ... all with-in the norm. I have been around 120+ lbs for the last 25+ years. I don't know what to think. Being TN ... my MO have nothing to do for me.


    I just want to do this ... not the Theraphy part.

  • Lulu22
    Lulu22 Member Posts: 175
    edited September 2013

    Went for a walk in the park today with a friend who's just had her first round of chemo. I'm a year out of treament so we were discussing the road ahead of her. Another acquaintance saw us there and joined us.

    Clueless: Hi Judy. Just wanted to tell you I'm sorry I wasn't able to help when you had your surgery [a BMX]. My mother died this summer. She had cancer and it was really horrible. 

    Judy (giving me a WTF?! eye roll over her shoulder): Uh, okay...

    Clueless: Do both of you have your parents? 

    Me: I'm really lucky, both of mine are still around and healthy.

    Judy: I lost my mom when I was 19.

    Clueless (tearing up): Oh, that's so awful! I don't think I could ever have recovered if I lost my mother that young. I don't think my life would ever be the same.

    Me (obviously and awkwardly changing the subject): So did you do anything FUN this summer? How are your kids?

    Clueless is distracted for a few minutes but then pipes up with: So, what did your mother die of?

    Judy: Breast cancer. She was 48. My aunt had it too. Ironically, they tested me and I don't have the gene. Or at least the one they tested for.

    Clueless: Well then you're going to be okay! And, you (turning to me), you're all done with this cancer thing!

    Me: Um, yeah, I'm healthy and feeling good right now. [and I spent last Friday at the oncologist getting shot up with my investigational drug and making appointments for my annual bone scan, MRI and high-tech mammo. I then have to stop to stretch out the foot cramp caused by my tamoxifen.]

    I wanted to scream at her "What the F are you thinking!? Our friend still hasn't been able to look at her chest, has cancer in her lymph nodes and is scared crazy she's going to die and leave her two boys motherless, as she and her cousin were left motherless by breast cancer. I know you're a nice person and you mean well, but THINK a little before you speak!" Yell

  • Rockym
    Rockym Member Posts: 1,261
    edited September 2013

    Lulu22, wow... what a complete and utter dipshit!  I have to commend you on not going off on her as I'm not sure I could've held my tongue.  I always love the "well you're all done" line.  Maybe next time when you see her in the park you can ask her what type of cancer her mother died of and then, just in passing, tell her your MO mentioned that is the one that goes straight from mother to daughter.  Just a thought if you're feeling pissy :-).

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited September 2013

    Lulu, the "casual cancer conversation" was a huge issue for me right after my diagnosis.  Well-meaning but clueless people would say ridiculously insensitive stuff.  "What's your prognosis, my aunt died of breast cancer and it was horrible, my neighbor's going through chemo and it's horrible, did they remove your breasts yet, are you sure the cancer's all gone" are all comments I fielded.

    I finally developed some polite but "excuse me" phrases and immediately changed the subject or walked away.  I do not have to let others put poison in my brain that will make me sad and scared all day. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Oh, Rocky, I'm so sorry about your toe. I've had a broken toe twice (same toe, 3 months apart) and I know how miserable it is. And no one is sympathetic about toes. Idiots don't realize it's STILL a broken bone and it can't be set or put in a cast. My brother bought me a huge chunk of foam and we carved out a foot-shaped space in it and I wore it like a shoe. Only way I could walk. Hope your poor toe heals quickly. If idiots keep bugging you about how you broke it, tell 'em you kicked a stupid person who asked nosy questions!

    9911, the cheese plate story cracked me up. Check back around the beginning of this thread and read about the guy who used the unisex changing rooms as a toilet. I now carry bacterial wipes and a small bottle of perfume everywhere I go. And the lady about your car? She probably just wanted someone to talk to and chose you as her victim.

    About the donation phone calls, I just tell them I'm thousands of dollars in debt and ask them to donate to me. They get pissed and hang up. I still don't know what to say to the dumbasses who ask thoughtless questions. I'm getting to the point that I just avoid people who don't know the 411. I just don't want to deal with it anymore. I think I get the most pissed at women who say they don't have it in their family so they're safe. *sigh* It just makes me tired.

    I'm still having a lot of leg and knee pains from the Anastorzole. I see the onc. on the 18th. (2 days after my birthday) I hope he has some solutions for me. If not, I may just buy a bottle of wine!

    Love ya Cheezers!

  • lovewins
    lovewins Member Posts: 881
    edited September 2013
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    Ro afew days early in case I'm not here :) Glad youget to be another year older :)

    Had a C&P pretty b-cake and candles---dropped it somewhere.

    !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!HAPPY BIRTHDAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Aw, thanks you guys. I feel blessed to have another birthday. And I looooovvve frogs! I have a huge collection, even frog earrings.

    9911, I just got it! First he ate the cheese, then he cut the cheese! Dang, I'm slow!

    My cheezer of the week- DH went to the Grand Canyon without me. Yep, he won't be here on my birthday. Good news of the week-hubby's out of town for the week! Ahhh, found that silver lining!

    OK, sassy, blame it on the BC brain but, what's a C & P cake? I know after you tell me I'm gonna do a head slap.Foot in Mouth

  • Rockym
    Rockym Member Posts: 1,261
    edited September 2013

    I searched high, I searched low...

    Cheeze isn't popular as we know.

    But I did find something with birthday wishes,

    To my buddy rohanna with whom I bitchez!

    Happy to have you around another year!

  • shoppygirl
    shoppygirl Member Posts: 694
    edited September 2013

    Hi Ladies

    I don't post here very often but today something happened and I am quite upset about it.

    We have a close relationship with our neighbour but I really don't think they understand this BC thing

    The husband seems to think it is no big deal especially since his mother had it many years ago and is fine. So this morning I am sitting in my living room on the first floor enjoying my coffee. I had just got up so there I was no wig, no prosthesis and my chest burnt from just completing rads. My neighbour suddenly appears in my back yard. Then he is knocking at the back door that does not have a blind on it. I am trapped on the sofa with no way to get upstairs without him seeing me. So I call my son to tell him through the door to come to the front. I finally escape up stairs but now i am in tears at the humilation of all of this. I feel great about my appearance when I have all of my "stuff" on but am self conscious when I don't. My DH was so amazing and went outside and explained to the neighbour not to come to the back door again. I am so annoyed that I have to deal with this on top of everything else. I am sure the neighbour just thinks I am bring silly but this is a big deal to me. Anyway, thank you for letting me rant!!!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2013

    Don't beat your self to tears. You have rights to privacy in your home. But since the neighbor thinks "it's no big deal" maybe you should have let him see you without your stuff. Show him it IS a big deal!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    Shoppygirl, he's a jerk neighbor, BLESS your DH. Sorry you had to experience that sassy.

    RO :) cut&paste

    Rocky's a poet? :)

    Sbelll's sorry, sending you beautiful thoughts to fill your brain.

    Lulu "clueless" is right. Perhaps sending her a note with what you've just written. AND add this "It may seem heartless for me to send this to you. But you have no understanding of the pain you have caused to two people today. I hope you contemplate the wrongness of your words. My hope is that you never sensely hurt another person again".

    1. She may then understand and never do it again, or 2. She will be so insulted that you would write such a thing b/c she is and absolute self centered clueless bitch. If this is the case she will be hurt. If this is true then let it be.

    Either way you will be vindicated.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    9911, Not sure if you just wanted to rant. But I think you should push your doc's for an indepth look at all systems. Weight loss of unknown origin/unintentional is a serious concern. If your MO or PCP doesn't work up a plan, please seek a second opinion. If you have ever heard of diagnosis codes. "weight loss-unknown" has it's own code. You have survived along time. Whatever happens let it not be because your docs ignored the basic understanding of wieght loss implications. Bless you and good luck :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    My last bc specialist appt.  I was greeted by the dr's assistant nurse.  I explained the latest changes and my concerns - singing voice change, reoccurring sore throat, trouble swallowing food often during day, where this was happening only a few times a year( you know, it doesn't want to go down and hurts) now it was often and excruciating, swollen node pockets under both arms, unusual back pain. Edited to add that cancer nodes were by esophagus, in lung and in armpits, so was concerned at proximity. And she knew it.

    She 'decides' 1) I am experiencing allergies, and 2) I could have a narrowing of my esophagus and need to go to a specialist with a scope, and 3) I hurt my back and now I was better.......

    She didn't get to go further on the analogy.  I was shaking my head and holding my ears.  "No way, we are not going to do this. We are not going to explain all this away. I am dealing with Stage IV bc and women are supposed to be heard.  This is how the progressions happen."

    She was quite taken back BUT polite and I was given access to the specialist who did not question anything and ordered a scan.  I was ticked and pretty much ranted all the way from Indianapolis to South Bend area.

    Edited to add, I too would want to look presentable in a health issue, no matter waht people say.  And the clueless lady, they are around everyday.  One that comes to mind first, the waitress who knew I had bc and said in front of my six-yr-old granddaughter that her grandma died from cancer. bah, dealt w it but really?

  • GraceB1
    GraceB1 Member Posts: 213
    edited September 2013

    Sometimes I think that the Drs can be in denial as much as a patient. They don't want to diagnose mets so they look for something else to blame the symptoms on. They're only human and don't want to see a bad outcome. They really don't like to fail, I know we don't like it either but it's just us not the dozens of patients a week that they have to deal with.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2013

    Essa eczema on hands gone wacko, typing very little---hugs glad to see you here. Good for you telling that idiot assistant off. :) will write when I don't hurt :)

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