TRIPLE POSITIVE GROUP

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  • camillegal
    camillegal Member Posts: 16,882
    edited September 2013

    Art I just have to pop in to say what a Dear Husband u are.

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  • ChickaD
    ChickaD Member Posts: 1,025
    edited September 2013

    Welcome Mr Art.....you will find valuable info here and cudos for helping out your family with info!

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    Art - sounds like your wife had FISH testing done to determine Her2neu status.  Here is the breakdown of FISH results.  If her result was 3.83, she was clearly positive on FISH, which is considered to be the more sensitive test as compared to IHC:

    Ratio of HER-2/neu:CEP 17          

    <1.8 =           negative for HER-2/neu amplification

    1.8 to 2.2           = equivocal

    >2.2 =           positive for HER-2/neu amplification

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  • momx2
    momx2 Member Posts: 109
    edited September 2013

    Art welcome , we are among great women with an abundance of information .

    I sent you a PM

    Wishing everyone all the best

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  • goutlaw
    goutlaw Member Posts: 283
    edited September 2013

    Women ever hear of sour sop? Kills cancer cells?

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  • NickyJ
    NickyJ Member Posts: 722
    edited September 2013

    Goutlaw,

    I'd never heard of it, so I just looked it up. Everything points to there being no evidence that it works against cancer....

    Nicky

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Nicky J,



    Maybe I missed it but did you get an answer about how long on herceptin and about perjeta?

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  • Annie54
    Annie54 Member Posts: 247
    edited September 2013

    My onc has told be twice that it's VERY fortunate that I am ER positive - as someone noted above, it means they can fight it with the hormonal drugs....more arsenal!

    Annie

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    I'm following the San Francisco Breast Cancer Symposium on twitter . Because of word limitations it is hard to understand but here are just two tweets.....



    From don Dixon Md..@karunajaggar My sentiments exactly. MT Dr Sledge asserts Her2 is "almost over" as DFS approx 92%--like testicular cancer #BCS13



    Dr Deanna Attai



    Prediction 1: "Her2/neu is almost over" - due to newer agents, other factors Dr. Sledge #BCS13

    4:58 p.m. Mon, Sep 9

    !!!!!!!!!??????

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  • NickyJ
    NickyJ Member Posts: 722
    edited September 2013

    No news yet Ashla! I'll see my onc on 24th and that's when I'll be asking. Have a PET scan first, though. On the 19th. Want to get those results first!

    Nicky

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    NickyJ,

    Guess that's just before you go home then, right? Please let us know....

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  • TwinMamaHeather
    TwinMamaHeather Member Posts: 141
    edited September 2013

    Ashla ~ I just tried to follow that conversation on Twitter. I can't figure out if those 2 doctors {the ones who tweeted} are agreeing with Dr. Sledge or if they think his statement about HER2 being almost over and "not a public health issue" is false. What is your feeling on the intent of those statements?

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Went back for another look. Got no impression they agreed or disagreed ... Merely reporting.

    That is the problem with twitter. More will come out in the next few days.

    New study recommends mammos at 40 is already making the wires.

    dr Sledge's statement albeit kind of pie in the sky follows logically what I see in my readings. Her2 pos is where the progress is. However... There is more to our cancers than her 2 and hormones.

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  • ArleneA
    ArleneA Member Posts: 1,309
    edited September 2013

    Interesting Ashla.  Wonder what they really mean by "its over"

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Arlene,

    I sure hope it is what it appears to be. I will try to follow up and let you know.

    Again...though....there's more to our tumor types and individual genetics at play here.

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Hre is a link to the ASCO page......


    http://storify.com/ASCO

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  • Art123
    Art123 Member Posts: 115
    edited September 2013

    For my wife it just started.

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Art123,

    Looking more and more that the Her 2 part is getting lots of weapons.......very, very, very complicated.

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  • ArleneA
    ArleneA Member Posts: 1,309
    edited September 2013

    Thanks Ashla!  Good find.  Looking forward to your further investigations!

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    “Hope is the thing with feathers

    That perches in the soul

    And sings the tune without the words

    And never stops at all.”

    ― Emily Dickinson

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  • TwinMamaHeather
    TwinMamaHeather Member Posts: 141
    edited September 2013

    I refer to that little poem a lot. :)

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  • ChickaD
    ChickaD Member Posts: 1,025
    edited September 2013

    Hi my friends....I have never had a PET scan....I see a lot of you have.  Do the Oncs routinely schedule these or is it just when you are having a specific complaint? 

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    chicka - I had one pre-chemo because I had LVI, a 2cm mass, and 2 positive nodes.  Also have had a one post-Herceptin, and one a year after that. Some oncs don't do them for what they consider to be early stage, but because of the positive nodes my onc felt mine was actually for staging purposes.  Some docs don't like to do them for early stage because they can turn up benign things that cause more investigation.  It is similar to the tumor marker situaton - some docs do them for information, some don't because the results can be skewed by other factors.

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  • camillegal
    camillegal Member Posts: 16,882
    edited September 2013

    Well chicki u know I'm not the one to answer that altho I've had them--pet/cat just another animal to have, but I wouldn't worry about it.

    Ashla amazing have know idea what y'all are talking about but u guys do so that's what count, besides I thought dr. Sledge was some singing group. So I can't figure why or how their tweeting about any of this.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2013

    camillegal - Sister Sledge - We are family, I got all my sisters with me......  Maybe that should be our theme song on this thread!

    http://www.youtube.com/watch?v=eBpYgpF1bqQ

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  • Eileenohio
    Eileenohio Member Posts: 460
    edited September 2013

    Dana,  I have never had an MRI or Cat Scan. I did have a breast ultrasound but that was because the mammo was not clear due to dense breast.    The only test I have now are blood work every six months and an annual mammo.

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Chicka D



    Never had a Pet scan either. Two different mo's agreed. Does leave me wondering though I try not to think about it.

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  • ashla
    ashla Member Posts: 1,581
    edited September 2013

    Camille..

    I only hope Dr Sledge knows what he is talking about

    And Special K you are right... We are family!

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  • ChickaD
    ChickaD Member Posts: 1,025
    edited September 2013

    We Are Family.......official theme song of +++ thread.....yay

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  • Shasha10
    Shasha10 Member Posts: 297
    edited September 2013

    Does anyone know where I can research if you don't have the full year of Herceptin what the odds are. I had Herceptin w chemo tch feb - June one additional Herceptin when it was suspended because of the EF w my heart My mo said I received the most important dose with chemo and if my EF doesn't improve there's nothing I can do. So I'm wondering what my odds are? Thx

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