Dose DenseTaxol Aches-Yikes

Hi Arya,

I am also doing dose dense taxol. I just had #2 last Thursday. I know what you mean about the horrible ovary pinching. I thought I was the only one! I did take Claritin the morning after chemo and it helped a lot with the bone and joint aches this time. I take one for about 3 days after chemo. Have you had any headaches with this? I was in bed all day Saturday with a horrible migraine.



Lisa

Taxol Thursday still much pain today! First time I ever just want to quit. Tramadol for pain not helping. Hope tomorrow is better as I must work.



Lisa

Hello Ladies, 

I feel your pain. I had taxotere rather than taxol, so the side effects are similar.  There is bone pain from the nulasta, but the myalgias from the taxotere were the worst.  My muscles hurt very badly even my face muscles.  I was very sore to the touch all over so sleeping was impossible the night 3 days after infusion.  I did some research, and ended up asking my onc for Gabapentin rather than the narcotics.  They often give this for neuropathy, so he agreed to try it, and for me it was nearly a miracle.  You have to start at a lower dose and work up as it can make you a bit dizzy and sometimes sleepy, but it clearly eased the pain.  The sleepiness was good considering the steroids made it very hard to sleep.  I started with 300 mg 1x per day and worked up to 300 mg 3 x per day.  

Hope this helps...

My wife has to do DD Taxol soon. She is finishing up her last AC in a week. Does she need to get the Nulasta shot for Taxol as well?

Thanks AryaS,

Geez I was hoping we could avoid that extra trip for the shot.

Wicked glad I found this thread. Taxol dd x4 here. Was so surprised by the pain that crept up. Figured the hell I went thru on A/C this would be a breeze.



Check- Pain in my lower ovary area glad to read others are having it too.



Check - bloated full belly burp toot toot.



Check - bone pain ouchie!!! (Thinking am I just a whimp?) phew good others are enduring too



Interesting about supplements to ward off nerve damage, why didnt my dr recommend this?



Also interedting about the drug gadadepin?? For pain the narcotics don't touch the pain not to mention they make me loopy so working is hard, I've worked they surgeries and ac and hope to continue in while on taxol.



Although part of me wishes I taken more time to be sick and not prove to the world that I m strong.... Why to what point??? I should if spent last few months living life growining my heart and soul and healing my body.

Very good news to report.  The combination of Gabapentin and Prednisone has kept my agony away.  So far so good from my infusion on Thursday.  Feeling very relieved and grateful for this.  Last time was just too hard on me.  Also having a bit of an energy burst from the steroids.  Okay, I'll take it.  

This time is challenging again.  High pain levels hit last night.  I was actually whimpering at times it was so bad even though I was on my meds.

They have me on:

300 mg Gabapentin 3 x day

20 mg Prednisone 2 x day

4 mg Hydromorphone/Dilaudid every 4-6 hrs for pain

I need to be on top of all the meds to manage.  It's a lot to keep it all organized what to take and when.  Pain is primarily in the legs, but also back, arms, shoulders and there is the period like pains which feel so weird.  Legs are weak but it feels good to move around and stretch out every once in awhile.  These meds make my head a bit fuzzy too and prone to dizziness so need to be cautious navigating around and no driving or anything like that.  

Just thought I'd share and to also log for myself.  This journey sometimes just really bites.  

Hi ocean... So sorry about your pain...I'm on the same as you with gabapabtene, prednisone, but for the pain, I have codeine... Today is day 5 and just like you, the pain has started.. Mine seems to be just lower body, and I told my sister that my ovaries really really hurt!! Anyway, codeine seems to have taken the edge off 😊..

Please feel better soon..

Still struggling.  Days are manageable (with pain pills) but for some reason the nights are really hard.  High pain levels and off the roof sensitivity with finger tips and toes.  Again, really only at an unbearable level at night, daytime is okay but still a bit of a struggle and I can't go anywhere.  Will talk to the Onc about this and see what the recommendation is. 

I should only have one more day at the most of this then it will be gone.  Keep telling myself this.  This is exhausting and not getting sleep is not helping.

Ocean this sucks! Thinking of you often. Do you take a sleep aid? I take the nightquilzzzzz sleep aid for 5 days after chemo, stop then start taking it the night before chemo.

I had ovary pain and mo said same thing. I told him he should add the ovary pain to expected se 's since I spoke with lots of women who had the pain. Pains lasted about 2 days for me. Good luck to your wife.



Lisa