TRIPLE POSITIVE GROUP

They cancelled chemo today....they said I got a uti...ugh Now gotta see what doc says Wed

Goulaw I'm sorry cuz once u'r there u'r ready--I remember one of the times I blew my nose before and the Do came out and checked my throat and stuff and said no chemo--I felt fine, til the next day but that day I had to leave. Altho u'r a little relieved it's aggrevating to have to wait. But it's best for u.

Hi all!

Goutlaw- sorry about the cancellation, but it is best. It will be over before you know it.

Kayb- yes it is very hard to wait. I remember the feeling all too well. Have to keep reminding myself and her that the cancer didn't grow overnight! Harder done than said. No, she has Kaiser and cannot afford to go elsewhere. Just hoping that the primary can be found with MRI; another week. The neo chemo was an idea as this testing is taking so long and she does have another consult with another surgeon to be scheduled, so in all it will be about 2 months since dx before anything is done. I had neo chemo and a complete response. She is 100% ER+.

Moni

Moni - I think that because they can't locate a breast mass and have only confirmed cancer in the node that is what is determining the course of treatment - at least so far. ALND/BMX is the standard for occult BC so there doesn't seem to be as much variation for treatment regimens as if the diagnosis was more straightforward. Here's hoping they can identify a breast tumor on the MRI so more options can be explored.

Moni I had barely a 34B cup (not full) and my tumor was 6.5cm! One breast didn't look bigger than the other. At the same time her onc is recommending very typical treatment. I wasn't given choices either but I knew, at that time, what I got was one of the recommended treatments.

goutlaw , feel better !

How do doctors know if herceptin is working? So if not they can change it? or ain't there anything ye

I'm still on herceptin, but mine has spread. I had a biopsy done on my spine last week, and saw a new oncologist on tuesday. She didn't have the biopsy results yet so we assumed I was still triple positive and talked about what my treatments will be. Yesterday I had an appointment with my local oncologist and the biopsy results were back, and only estrogen receptive. Now I need to get a biopsy of my liver done to make sure that's the same. I was hopeful at first because that means the herceptin is working right? But then I read that going from her 2+ to her 2- results in a worse prognosis! I don't know what to think right now. They took me off tamoxifen and I'll end up getting my ovaries removed, they still want to do chemo, but radiation on my L4 first because the cancer fractured it.

Oh BethCon1!



Please know that there is enormous progress being made in breast cancer treatment and that we are here to support you in any way we can.

I say this meditation everyday.

"May we dwell in the heart,

May we be free from suffering,

May we be healed wherever healing is called for,

May we be at peace"

bethcon - bummer, but know that we are all sending you strength.

goutlaw - did they culture your urine sample?  I had a UTI during chemo but did not have a delay in treatment.  They did culture the sample and determined that the initial anitbiotic I was on for the first 72 hours would be ineffective against the infection, so I was switched.  This is important because you don't want to be on a useless drug that increases the chance of a spread of the UTI to your kidneys.  Your kidneys are already challenged by filtering the chemo drugs.

     ((((((Bethcon)))))))

Bethcon-sending positive energy your way. 

Ashla-that is a beautiful little prayer. i think I might adopt it.

Beth if you would have had your ovaries removed after your rads or surgery to depress the estrogen might would of not had recurrence....I'm getting mine out.....I'm taking no chances

Beth guess the tamiofen didn't suppress it enough

Big ((((((hugs))))))) Miss Beth!