Did anyone make it through radiation with their skin okay?

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  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    Thanks everyone- you girls are the best!



    Graceforme the emu oil is also from Amazon- the thunder ridge brand in small blue bottles.



    Good luck to you!



    :)

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2013

    Although the oncology people never mentioned it, my GP insisted that I get a shingles and pneumonia vaccination even though I was 'under age'.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2013

    Ruth, good move on the shingles shot!  I was delaying mine and planned on having it after my b day....bad idea, bad idea. Shingles ain't fun and I got them while on a sailing vacation....off the coast of Maine.......yuke but the passenger list did included a couple of nurses who told me nothing bad would happen if I waited till I got home to see the docs.

    they are no fun, get the shot folks if you can!

  • Paddle
    Paddle Member Posts: 11
    edited August 2013

    Sciencegal-I have been reading through the Summer Rads 2013 boards (lurking) and wanted to thank you in advance for all your helpful posts. I feel I may have a chance of making it through with some skin left! I start rads 9-3-13...seriously NOT looking forward to it! It does seem to go rather quickly, so everyone says. Can't wait to get started so I can get this behind me. :) Thanks again!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    Thanks Paddle- I think I was more scared than it turned out that I needed to be. My skin actually did great until the second - to-last rads appointment, where I really turned red and then got some peeling and small blisters, just under my arm and under the breast, where the skin rubs.



    But it is not getting worse and is just a bit sore. I had been afraid the skin would just open up but it is just one layer peeling. This I can handle.



    I hope your skin does well too!!



    :)

  • Paddle
    Paddle Member Posts: 11
    edited August 2013

    Thanks Sciencegal. I hope so, too. I am so glad you did so well. I know that you mentioned that you had followed Heart and Lin...wow they had the works. It is nice that it heals so quickly once we are all done!

    Congrats!  Be well. Paddle

  • FilterLady
    FilterLady Member Posts: 407
    edited August 2013

    I had 28 regular "zaps" and 7 boosts and my skin held up very well.  My RO gave me Radiagel to use after treatment and before bedtime.  When I got to the boosts, my skin started to peel and itch....just like after a sunburn.  But I kept using the Radigel and my skin held up fine.  The itching was the worst thing.  I told my RO that once my skin healed completely, I was gonna scratch even if I didn't itch, rofl.

    The blessing after rads is that I don't have any hair under my left arm or sweat glands, so my deoderant lasts 50% longer since I only need it under my right arm, lol.

    My fav was that after about treatment #20, I couldn't wear a bra....so the girls were happy with a "wife beater" t shirt under a regular shirt. 

    You'll do fine, just follow all the instructions from your RO.  I'm coming up on my 2 year cancerversary and I've "graduated" from visiting my MO and RO every 3 months to every 6 months!  What a feeling to hear NED from the doctors at each and every visit.

    God bless you,

    LaDonna

  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    LaDonna congratulations on your NED staus. Hip Hip Hooray!!!!!!



    Thank you for sharing!



    :)

  • fredntan
    fredntan Member Posts: 1,821
    edited August 2013

    i had no skin problems. only used miaderm. and i am blonde with fair skin. had TE.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    Yay- great to hear another success story- congratulations!

  • LakeGirl2
    LakeGirl2 Member Posts: 68
    edited August 2013

    For those of you who are nervous, I finished up a week ago and had no skin breakdown and very little discomfort. I used the creams supplied by my RO - Medline Remedy Skin Repair Cream during most of treatment and Aquafor at the end and now at night. The rad techs were wonderful and I had lots of opportunity to talk with women waiting for their rad appointments. You can do this!

  • Anmano
    Anmano Member Posts: 9
    edited August 2013

    Hi there ladies,

    I also made it through radiation, 20 treatments, without major problems. Skin under the arm and around the breast got kind of tanned but thanks to twice daily plus straight after treatment moisturising with E45 lotion it wasn't even red. When the rads were finished a friend who works in a chemist gave me some special moisturiser from LaRoche-Posay which was brilliant stuff they usually recommend for after laser treatment.

    Only the nipple was quite sore though and any rubbing of bra agonising so I stuffed a smooth cotton hanky into bra and was fine. The side effects of fatigue started in week 3 and are only gradually fading off. I still often feel like if I do not lie down immediately I end up in total brain fog. What I really wasn't expecting was the pains within the breast, particularly under the scar building up only to cumulate in the weeks after the rads were finished. But even they were manageable with the odd painkiller.

    The only thing that really worries me are the changes in the moles I had on the breast. The used to be flat smooth brown and are now raised lumpy and black. Of course a little voice in my head is whispering "melanoma". Doea any body have experience with moles under radiation?

  • lbrewer
    lbrewer Member Posts: 766
    edited August 2013

    My radiologist had no issue with me wearing a bra during treatment  Never even had so much as a "sunburn.  Had 33 rads and 8 boosts.  Was glad to get rid of the bra tho because it ended up with stains from the markers!

    Used lots of aloe and a cream called Miaderm.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    Hi Anmano,



    Funny you should ask, I had a small raised mole that I was already worried about in the radiation field, and the rads killed it! weird. It literally shrivelled and then peeled off with the skin I lost.



    If you are at all worried I would have your doc look at it, they can quite easily freeze them off. My hubby has that done all the time.

    Good Luck!
  • sciencegal
    sciencegal Member Posts: 1,120
    edited August 2013

    Bumping up for Kay, fellow capper who will start rads soon.



    GOOD LUCK!!!!!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Bumping up for Julie.

    Happy Sunday to all!

  • Chrisesta67
    Chrisesta67 Member Posts: 46
    edited September 2013

    A few days ago, when I was awake and stressed in the middle of the night, I posted a query about exreme anxiety related to beginning radiation soon. When I received no more than one reply, I thought that my faers and my questions were stupid. Shortly thereafter, I saw this discussion thread generated by someone expressing the same anxiety over radiation skin issues. Her post has generated more than 130 responses. I no longer feel stupid but I do wonder about the seemingly arbitrary nature of discussion in this online community. In any case, I appreciate the chance to benefit from this thread as it addresses the very question I asked in an earlier post.



    My worry about skin issues isn't limited to compromised or lost skin all by itself. I'm concerned about how the tightening of burned skin may affect mobility in that area. I'll navigate this site a bit to see if mobility issues are addressed in relation to the burning effects of radiation. And I'll share my concerns with my radiation oncologist.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2013

    Sorry Christa, it is hard to get the hang of the boards in the beginning, specially when stressed.

    So I did rads, had one BIG blister under my DD boobie but all else was a mild sun tan.  It passed and do not feel any dif regarding the skin.  You do want to have someone help or advise you regarding exercising and stretching after all is done.  they told me to do range of motion stetches after all over, I did but do think I should have done more as that arm is tight

    Best of luck and sorry you felt slighted

  • GenaP
    GenaP Member Posts: 1
    edited September 2013

    I'm having a cycle of 30 breast radiations. Just finished no. 23.  After having no. 17 I started having some irritation on my breast and armpit, but it's not very bad. From the very beginning I started using an Aloe Vera gel (without alcohol) and later on I alternated this with a prescription gel containing Aloe Vera and hyaluronic acid. You can ask your radiotherapist to prescribe it. Hope everything goes well with you!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Hi Chrisesta,



    I am so sorry that no one had replied to your blog. The girls on these boards are usually better about that, if a sister warrior is in need.



    It just depends on who happens to be surfing the new posts on the day it is on the ffront page, otherwise I think people dont really see it.



    I would certainly have written to you if I had seen it, but now that I am done with rads it is back to my normal frantic schedule and I am only on the boards once a week or so.



    You can always add a new entry to your post and that puts it back on the front page, to get noticed.

    Anyway, it is just random, you should not feel hurt.



    I was also SO worried about contracture but it didnt happen thank goodness. Keep moisturizing and keep doing your range of motion exercises (although they do hurt a bit when/if you have blisters).



    Some of the other girls on here and I used emu oil and it seems to be magic. Our ROs said no but we did it "under the table" at night. I just made sure it was showered off in the morning.



    Miaderm is great, a non-greasy lotion, and made by ROs. You can use it up to an hour before your appointment.



    These two things got me through fine, THANK you to all the advice on these boards. Also at least 8 cups of water a day, rest, and high protein, around 60 grams a day.



    GOOD LUCK!!!!!!

    And gentle hugs

  • AryaS
    AryaS Member Posts: 131
    edited September 2013

    I am scared too. I saw my plastic surgeon today because when I met my RO, he said my skin was tight and no more fills. Plastic surgeon agreed. I am at a full B right now so I'm a little disappointed because I was hoping for a nice C. Oh well.

    My PS also warned me that the radiated breast may not be able to handle the transfer and we may need to switch to using skin from my tummy or back. We are hoping for the best.

    My question is did your PS warn you of this. Should I be worried that things are not looking good for me? Up until now everyone has been exclaiming over how well I've healed but now I am getting nervous. My simulation is in two weeks.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Hi AryaS,



    yes I got warned about all of this, they gave me very much a worst case scenario which is partially why I was freaking out too. My skin also seemed super tight before rads but it is actually looser now, I am thinking in the future I might even be able to go a litle bit larger implant if I want to.



    maybe all the emu oil and exercises i did during rads loosened it up? also I drank TONS of water. I was really lucky to not get contracture. I hope you dont either.



    I sure wish you GOOD luck. I know it is scary.

  • AryaS
    AryaS Member Posts: 131
    edited September 2013

    I guess I better order some emu oil. Poor emus. ;)

    Thanks for the support. Truly.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Yes-I, and others, are extremely grateful to those emus. And to theThunder Valley company too!



    Good luck, please let us know how you are doing.



    Happy Saturday

  • ChelseaAshley
    ChelseaAshley Member Posts: 46
    edited September 2013

    Hi ladies,

    My mom is set to start radiation next week. We just have to make a decision on which doctor to go with!

    That's where I need your help or at least input! She had ILC, estrogen positive, 3 surgeries to remove the mass, completed 3 rounds of TC, and is now set for radiation. 1 of 4 sentinal nodes contained cancer. 2 of the four doctors want to use some radiation on 5% of her lung and the other 2 say there's no reason to. It's a 50/50 chance! I know radiation will damage her 5% of her lung if we do it in that area. What would you do?

    Have any insight on this?

    Thank you!! :)

  • Chrisesta67
    Chrisesta67 Member Posts: 46
    edited September 2013

    Your kind words and suggestions are much appreciated, Sciencegal and Everyone! I will indeed look up info on Emu Oil.



    I actually start radiation tomorrow (had a "trial run"session today when radiologists took some xrays and made sure the machine was positioned correctly for me). I'm still a bit nervous... but not as upset as I was. I very grateful to this online support community!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Good luck Chrisesta!



    Chelsea I was also told my left lung would be damaged (I had a nine cm tumor so there was a huge area to be radiated) and I was super freaking out because I already have severe asthma.



    But it was fine. I had a little bit of cough for a few days and now it seems to be all healed.



    I hope your mom has a similar experience. The main thing is to make sure the cancer cells are killed. We need to give ourselves the best possible chance against this beast.



    You are a really great daughter for helping her.



    Hugs

  • cp418
    cp418 Member Posts: 7,079
    edited September 2013

    I used PURE Aloe gel at the first day of rads and did not wait for skin issues to occur.  I carried the bottle and applied in the dressing room after treatment and again at bedtime.  Of course, washed off prior to each treatment.  I believe it helped my fair skin last as long as it did before the last week when I had some minor burn/peel issues occur.  Then it was over.

  • Chickenpants
    Chickenpants Member Posts: 132
    edited September 2013

    I too am fair haired and light skinned. I took treatment to both breasts for five weeks plus one week of boosts to left breast. Redness and hive-like itchiness during and for two weeks following treatment, but skin is perfect one year post treatment. Only four tiny tattoo dots are reminders. Nipples are softer and tend to crease in a bit causing smelly belly button syndrome... For lack of better description. Nipples took the worst of it, but I can live with the residual affects. I keep them clean and apply cream as needed.



  • Momine
    Momine Member Posts: 7,859
    edited September 2013

    I had some pretty bad blisters towards the end, but I got some of those gel plasters, which healed it very fast. It may have been icky for a few weeks, but no trouble since. Has ot be said that I have not had recon.

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