Long-time Lurker, First Post

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MmeJ
MmeJ Member Posts: 167
edited June 2014 in Stage III Breast Cancer

Hello, everyone.  I was diagnosed in July 2010 with left-side Stage III lobular and right-side Stage I ductal.  I suspect I'll have to wait until I'm at work and use an updated browser to make a profile.  So many places on this forum in which I could introduce myself.  (ILC?  IDC?  Stage I?  Stage III?  Bilateral?  Hormone Therapy?  Pain?  Reconstruction?  There are others, too.)  But I thought I'd start here, as this was the first place I read just a few months after dx, in those terrified and chemo-addled days.  I was looking for others with a dx similar to mine, and who had some survival time under (well, above) their belts because in the earlier days I was convinced that I wasn't going to ... well, you know.

I am sure there are a lot of people like me who read but don't come out of the shadows.  And that's just fine.  But I'd like to hang out here at BCO sometimes to see if I might do something for someone else, even if it's just a laugh now and then.

Comments

  • mary625
    mary625 Member Posts: 1,056
    edited August 2013

    We are glad to have you here. You'll be an inspiration to us all as a 3-year survivor. Sorry you had to have BC, but glad you've come out of the shadows.

  • karen1956
    karen1956 Member Posts: 6,503
    edited August 2013

    MmeJ....welcome and glad you psoted....I'm 7 years out from Dx and finishing chemo and rads.. Right side ILC, IDC, LCIS and who knows what else with node involvement....left side was precancerous....bilat, chemo, rads, ooph and AI's.....Life does get better with time....

  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited August 2013

    MmjeJ

    I'm glad you posted. It looks like we were diagnosed around the same time. I had surgery, chemo and rads. This year I had diep reconstruction. Recently learned I had osteopenia probably from letrozole although I'm seeing an endocrinologist to r/o hyperparathyoidism I've learned a lot from these boards. Still trying to figure out how to live with fear of reccurence. That part remains hard



  • jennyboog
    jennyboog Member Posts: 1,322
    edited August 2013

    Welcome Mmej!  You have loads of inspiration and info to offer.  Thanks for coming out and not stalking us anymore :)

  • MmeJ
    MmeJ Member Posts: 167
    edited August 2013

    Ladies, thank you for the welcome!

    Mary625, I've never thought of myself as able to provide much in the way of inspiration, but I'll do what I can.  karen1956, your posts were some of those that gave me comfort and hope when I first started reading here (similar dx) and you continue to do so.  elizabeth1959, I hope the endocrinologist is able to help you; I agree, there are so many things I wouldn't have had a clue about but for this forum.  And if I am interpreting your screen name correctly, we are the same age.  jennyboog, LOL.  No more voyeurism!

  • maryannecb
    maryannecb Member Posts: 1,453
    edited August 2013
  • hopefour
    hopefour Member Posts: 459
    edited August 2013

    Mmej...from one former lurker to another..welcome! So thankful for your thoughtfulness in wanting to join in by sharing encouragement and a laugh!! Congrats on three years...that's encouraging to me!!

  • YATCOMW
    YATCOMW Member Posts: 664
    edited August 2013

    I was a lurker for several years and only jumped on when I thought perhaps I could help others.....

    I am both ILC and IDC....but thought that this was the best place to be....

    I am over 9 years out now.....big tumor and lots of nodes.....

    This is really a great group of women......welcome!!

    Jacqueline

  • kar123
    kar123 Member Posts: 273
    edited August 2013

    Welcome Mmej!  I was diagnosed around the same time as you as well!  Glad to see we are still here together hopefully until we are all little old ladies!

    Kelli

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2013

    Welcome - you may find this thread helps you as its aimed at people with mixed types but I´d love to see you on the ILC ones as I am stage 3 ILC...

    http://community.breastcancer.org/forum/132

  • MmeJ
    MmeJ Member Posts: 167
    edited August 2013

    maryannecb and YATCOMW - wow, almost eight and nine years out (and karen1956 at seven).  mary625, tomorrow it's two for you!  elizabeth1959, I understand what you wrote about how to live with the fear.  I don't know, because I don't have that down yet and maybe I never will.  But I am slowly, slowly becoming able to give it just a little less energy every day.  hopefor and kar123, we're above ground and I hope we all stay that way and out in the open for a long time! I hope we'll have to ask ourselves if the creaking we hear is our rocking chairs, or us.   lily55, I expect I'll hang out some in the ILC thread, too.

    One of the fun things about signing on:  avatars!  Pink boxing gloves!  Yeah!  Lots of animal lovers here ... lily55, is that your kitty?  I have a big fat gray tabby guy who provides excellent feline supervision.

    Since diagnosis, I have felt that I have had no sense of personal privacy - we have to talk to so many people during and after.  So many health care people, for some of us our employers, all of our various communities - about our situation.  All of them care about us and want to know how we are doing, and we have to tell them some things so we can interact with them while we go through this.  I am eternally grateful to all of these people.  Yet, it's tough to come up with normal-world descriptions and metaphors for cancer-world experiences and sensations, and dealing with others' fear of what is happening to us.  But I haven't really wanted to talk to anyone until I had enough solitude to process this experience for myself and enough mental/emotional bandwidth to express it.

    So, ladies, consider yourselves forewarned because now that I'm here, I might be talking a lotSmile

  • melmcbee
    melmcbee Member Posts: 1,119
    edited August 2013

    Welcome Mmej. Im glad you came out of shadows and I found your time above your belt an inspiration. And listening to all of our long time survivors gives me hope. Thanks

  • MmeJ
    MmeJ Member Posts: 167
    edited August 2013

    Hi, melmcbee, and thanks for the greeting.  Another Lobular Lady!  During treatment, it felt impossible to see more than about 15 minutes into the future.  I, too, so appreciate the long-termers' continued presence here.

  • mary625
    mary625 Member Posts: 1,056
    edited August 2013

    MmeJ--Thanks for noticing. Today is my 2 year mark.

  • MmeJ
    MmeJ Member Posts: 167
    edited August 2013

    mary625, congratulations!

    I have some chronic problems with pain and fatigue post-treatment, which were a tremendous surprise to my MO given the shape I was in when I was diagnosed.  That said, I feel better today than I did a year ago, when I was two years out.

    As long as the way is forward, even though it's a millimeter at a time, I can deal.

  • Lily55
    Lily55 Member Posts: 3,534
    edited August 2013

    Yes he is now fully grown, have another kitten now, 4 cats all together all rescues from the street! Same with our family of dogs, all rescues....animal welfare here is just a word.........

  • MmeJ
    MmeJ Member Posts: 167
    edited August 2013

    Good for you for taking them in. Life started out rough for them, but they won the lottery when they came to live with you!

  • Gitane
    Gitane Member Posts: 1,885
    edited August 2013

    Welcome from another ILC person.  Helps to share this whole thing, doesn't it?  I certainly can identify with your feelings.  Good to have you with us.

  • MmeJ
    MmeJ Member Posts: 167
    edited September 2013

    Thank you, Gitane. And here you are, eight years out! Congratulations.

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