Flexitouch system

Hi, mom10!

I'm wondering if you've been able to do self-MLD? If not, that would be a better first step toward getting the truncal LE under control. Also, what have you tried for day and night truncal compression? A night garment from Solaris or Jovi can really help (I can't manage my truncal swelling without it), as well as a well-fitting daytime compression cami or bra. If what you're currently using isn't helping, there are LOTS of other garments to try. One other really helpful strategy for stubborn truncal LE is the Lebed exercise DVD--especially the opening section. My kids have it memorized from doing it with me, so it's fun (even if sorta nutty) and can be shared with all those ever-moving bodies grinning out of your avatar. But the point is, it really does move the fluid in the chest area--yes!

I do have a Flexitouch and, while I like it, I only use it for flares because quite frankly it's difficult to make time in the day for a full hour of captivity to a machine. (The reason I have a Flexi at all is because my LE is bilateral and when it's flaring I can't do bilateral self-MLD effectively--or at all, actually...).  I'm mom-to-nine, though most of ours are grown, but I can't even imagine trying to use a Flexi regularly with the demands of a household full of kids. You'd lose out on too much. JMHO

Gentle hugs,
Binney

I have the flexi touch system!  It is quite a contraption but it has worked wonderfully for me.  I have LE in my left arm that started 4 months from my double MX with 28 lymph nodes removed, no reconstruction.  I went to my PT for 6 weeks and only found my LE to get worse (mostly because of my bone structure-I have very small wrists so the wrappings pushed the fluid down instead of up my arm so my wrist and hand would swell miserably).  My husband finally convinced me to at least try it.  It is kind of a hassle but it feels good and for me it has been a blessing. It does take some time but I found that my husband and 3 kids were more than happy to make it an "event" of helping mom feel better.  I only have to use it when my LE flares up but it has helped me to get it under control when needed.  I think that it would be even more benificial to someone with trunctal LE.

I have LE in my left arm.  While the swelling has not been that bad, I have aches and pains especially at night.  I got my flexi-touch last week and have been using it almost every evening.  It is a crazy contraption and takes a bit to get into but once settled in, it feels so good.  It is an hour commitment but worth it.