what screening after chemo and rads?

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Romanticrose
Romanticrose Member Posts: 16
edited June 2014 in Stage III Breast Cancer

Had modified Radical mast, I have 4 more chemos then that will be done ,then onto the 6.5 weeks of rads... havent even thought of reconstruction yet. My questions is to anyone with Stage 3a node positive ...what follow up screening does your MO do after chemo and rads? Mine is saying physical exams...that scares me to death. The cancer was missed for 7 years and by the time it was caught I had three types cancer in both breats ILC DCIS and iDC...not wanting anything else missed.

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2013

    Hi, Romanticrose.  You're making progress--good for you!  Hang in there and keep putting one foot in front of the other, and before you know it, you'll be on the other side of this enormous speed bumb.  I'm about to have the 2nd surgery of my DIEP reconstruction and am doing well. 

    Since you're hormone positive, when you're finished with rads you'll start either tamoxifen or an aromatase inhibitor.  They help a lot with keeping fuel OFF the fire for us ER+ girls.

    My MO figures out how to get my insurance to cover a PET scan every year for the first 5 years.  I see her every three months (for now, at least) and she draws blood work that includes tumor markers. 

    Blessings as you walk down this path!

  • karen1956
    karen1956 Member Posts: 6,503
    edited August 2013

    bilat, chemo, rads....my onc does physical each visit as well as history (questions) and labs including tumor markers....he only does scans if patient is symtomatic.....for me, I'm okay with this....

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited August 2013

    Hang in there girl, the end of tx is in site!  I had a hard time relaxing after chemo and rads were over that I wasn't "actively" doing anything, but many reassured me the tx is a cummulative affect.  My onc is a watch and see kind of person, which me being IIIc I find a bit disconserting.  No blood work, no scans unless I'm symptomatic.  I've learned to go with it, but at times like right now (having issues under arm where nodes were positive), it's hard to not get some sort of reassurance.  Each doc is different.

    Take care, and keep on fighting!
    Sharon

  • antonia1
    antonia1 Member Posts: 135
    edited September 2013

    My onc. does blood work, including markers every 6 months, now. I only get scans if I have a specific complaint, and even then refers me first to a specialist.

  • fredntan
    fredntan Member Posts: 1,821
    edited September 2013

    Mine just takes my 30 bucks. Seeing new one next week. Seems docs on east coast dont believe in TM or pet scans.

    I have things I do that make me feel better about reaccurance. If I do them my anxiety is lower.

    I am vegan or near as I can be, am trying to exercise, i take metformin, and all those other supplements.

    I rarely drink now. Have maybe couple lite beers week. Drink green tea.

  • peacestrength
    peacestrength Member Posts: 690
    edited April 2015

    This is very helpful information since I'm getting close to surgery and rads. I had neoadjuvant chemo first.



    Has anyone taken tamoxifen during rads? I was told by my mo that tamoxifen and rads work against each other. I want to take systemic hormonal therapy as soon after surgery as I can.



    Thanks, Ladies.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited September 2013

    Hi, peacestrength.  My RO told me that IN THEORY, taking a hormonal supressant like tamoxifen or an AI during rads would put the cancer cells to sleep so that radiation would be ineffective on them.  Then after rads, they might wake up and would not have had the benefit of being roasted into oblivion. I know I've stated this in a completely unscientific way, but that was pretty much the deal.

    He also said, though, that it was just the traditional way of thinking and not supported by evidence; just the way rads were usually managed.  He waited until rads were finished to advise beginning my femara, mostly so that I would have to deal with rads effects AND femara effects at the same time.  

  • Texas357
    Texas357 Member Posts: 1,552
    edited September 2013

    I switched medical oncologists earlier this year. Both of mine have done labs every 6 months and chest x-rays annually. I see my oncologist next month and will ask her if I can stop having the x-rays. I'm just not comfortable with the extra radiation.

  • Lily55
    Lily55 Member Posts: 3,534
    edited September 2013

    I took FEmara during rads and can assure you all cells were zapped........rads destroys all cells inits path by stopping cell renewal, thus any cancerous ones will have been zapped too

  • Kicks
    Kicks Member Posts: 4,131
    edited September 2013

    I'm IBC, Stage IIIC, 19 pos. nodes, ER+.  I started Femara a week after starting rads.    I did 4 neoadjuvant DD A/C, followed 2 weeks later by mod. rad. mast., followed 3 weeks later with 12 weekly Taxol.  A week after last Taxol, I started rads.  That all started in Aug, 09.

    Since then, I see my PA every 6 months (she's been my PC for 17 yrs so I see her for any issues that need addressing more often IF needed) and have blood work done then.  I see my Chemo Dr every 6 months (falls 1/2 way between when I see my PA).  He does not order blood work but goes off the most recent she hads done.  I have an annual mamo.  That is the extent of all 'testing' unless something specific comes up.  I had a head MRI done in Oct 10 because of head pain but it showed nothing and the conscience of opinion was that for some strange reason a nerve had gotten 'irritated' as 2 weeks of of Dex took care of it.  I was having more back pain (from arthritis so had a bone scan to be sure it wa 'just' the arthritis which it was.  That's all I remember having had. 

    I do not want any more radiation than is actually NEEDED.  I had had radiation done to my throat when my tonsils weere taken out at 1 1/2 yrs (a fairly common practice back then in the 1940's).  I was always warned to keep my thyroid checked as the potential for thyroid cancer was a possibility - did develope but IBC did and Drs have said that radiation could be a contributing factor - so no unnecessary/unneeded radiation for me.  I have had 3 surgeries since end of TX and VA's protocol is that a chest X-ray had to be done before surgery if there has not been one done in 6 months.  I got my Drs to waive that requirement when I had the surgeries when I explained to them about the radiation as a very small child.  Two of the surgeries (2/12) were cataracts and the other for really 'messing up' my wrist last Jan by slipping on one of the dog bones in the hall. 

    So anyway, I will do what needs to be done but not a 'just because'.    

  • Kicks
    Kicks Member Posts: 4,131
    edited September 2013

    Lily 55  You're right.  Rads only work in the area the hit - Femara works in the whole body.

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited September 2013

    I am 13 years out from the first BC and almost 8 years out from the second BC. Because my second was Stage IIIC with 23/23 positive nodes I still see my oncologist every 6 months and my breast surgeon every 1 year.  I get blood work including Ca 27:29 tumor marker every 6 months and annual CT scans.  I am a strong believer that "waiting for symptoms to appear" is possibly waiting too long in some cases.  I understand the concern about radiation exposure and "false positive" results, but I also believe that treating a single small spot of local recurrence is much easier and provides better quality of life, than waiting until treatment options are limited by a widespread or distant recurrence.

    Everyone has their own approach and comfort zone when it comes to post-cancer treatment monitoring.  I am much less worried about the radiation from an annual scan than I am worried about missing an early recurrence.  The old mantra that "early detection does not change survival outcomes" may have been true 30 years ago when Stage IV was considered terminal with less than a year predicted survival, but that is certainly not the situation today. With today's detection and treatment options patients can live many years with advanced cancer as a chronic illness. 

    My oncologist had me on low dose Xeloda (oral chemo) during my 7 weeks of radiation because it was supposed to make the cancer cells more susceptible to the radiation.  I also started on Aromasin as soon as I finished chemo and prior to starting radiation.  I have been on Aromasin for 7.5 years now and will continue it indefinitely.  I also had 5 years of IV Zometa which ended in 2011.  While I know we can never guarantee that the cancer won't come back, I prefer to feel that I am doing what I can to stay on top of things.  If it comes back anyway, then at least I won't be second guessing or regretting my choices.  Again, this works for me but does not have to work for everyone else.  Each of us must make the choice that we can best live with and still put cancer on the back burner so we can get on with our lives. 

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