Side Effect Free Chemo. AMAZING RESULTS! This might be it.

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3littlegirls
3littlegirls Member Posts: 853
edited April 2017 in Stage IV/Metastatic Breast Cancer ONLY

This link will explain it all.  They are getting remissions in Stage 4 Breast Cancer patients.  Longest remission so far is 7 years and counting.  Patient had liver mets.  I am so excited I just have to get in this trial.  I hope we can all have a shot at it one day.  Hope this lifts you up.

https://cancer-institute.com/index.php

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  • FridayGirl
    FridayGirl Member Posts: 173
    edited August 2013

    This is really wonderful news, thanks for passing it on.

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  • reader123
    reader123 Member Posts: 242
    edited August 2013

    The link appeared to be an advertisement.  Once I saw that they were promising something that may or may not be true, I stopped looking.  You may consider me close-minded, I  consider these types of ads unethical and preying on vulnerable cancer patients.  I have no problem with properly vetted clinical trials or up and coming new treatments, but I don't believe in providing people false hope.

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  • HLB
    HLB Member Posts: 1,760
    edited August 2013

    It looks really promising. I wonder what the cost is or if its covered by insurance.

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  • Skream
    Skream Member Posts: 170
    edited August 2013

    I am with Reader123. Giant warning beeping lights in all directions. Preying on vulnerable people. A Phase II study with seven consecutive patients? Super misleading.

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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2013

    Seriously?????! 

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  • Latte
    Latte Member Posts: 1,072
    edited August 2013

    I think that I would endure any side effects of chemo if it was going to cure me. So the thought of side-effect free chemo that just extends my life a bit isn't the breakthrough I am waiting for, sorry.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    I googled the doctor, clinic and parent foundation (Alin Foundation) and found very little, except for their own web sites. They have tx for many other diseases such as diabetes and AIDS. They are located in my neck of the woods but I haven't run across anyone who has experience with them. I'm skeptical.

    Caryn

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  • 3littlegirls
    3littlegirls Member Posts: 853
    edited August 2013

    The info was passed on to me by my Naturopathic Oncologist.  He was directly received this info from the Naturopathic Oncologist in Toronto that is part of the study.   I guess I am more trusting then most and got super excited.  I will keep you posted as I am looking into trying it.  If there are no side effects except a bit of mild nausea and I have the potential to kill these tumours inside me I am willing to look into it more.  I hope it really is the real deal and helps save our butts. I have that optimistic view that it will happen.  

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    I always hope that new approaches are the real deal and share your optimism. I just sprinkle mine with a good shake of skepticism. Wishing you the best and let us know how it goes.

    Caryn

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    This is a quote from the web site referenced in the op;





    "With SAFE Chemo®, I estimate 90% of oncologists will no longer be needed. I worked hard to create a `one size fits all' cancer therapy that works on all cancers, so that it can be used even in poor rural areas without specialists. With SAFE Chemo®, there is no need for oncologists with years of training to decide what drugs to use for different cancers."



    The second sentence is where my skeptic antenna gets raised. One size fits all that works on all cancers? That's a red flag for me. Wish that weren't the case.

    Caryn

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited August 2013

    RED FLAGS....RED FLAGS.....RED FLAGS.......

    If they put it on the Internet, it has to be true right?

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited August 2013

    It seems to me that this Safe Chemo is ADDED to conventional chemo to improve the outcomes and reduce SEs, but is not in and of itself a cancer treatment.

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited August 2013

    3littlegirls, let me apologize for my flippancy. I know you meant well and are trying to help us all. That is always appreciated.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Yes, linda, that's what it appears to be. Still sounds like it's too good to be true... I have my doubts about "clinical trials" that involve minuscule groups of patients and are available only through this one medical "foundation". It is sometimes very hard, particularly at stage IV, to separate hope from desperation. It can be a fine line.

    Caryn

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  • stagefree
    stagefree Member Posts: 2,780
    edited August 2013

    Michelle hope is an important part of our treatment, thanx for sharing such a post... Evokes the feeling that even if not this one, someday some treatment / cure will be found.

    Hugs Ebru

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited August 2013

    This looks awesome indeed!  3littlegirls, I hope it's oK - I'm posting the link on the other 2 forums I belong to.  Hopefully many people will benefit!  Thank you so very, very much for bringing this to our attention!

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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2013

    I checked all over the web and could only find Alin Foundation's advertising.  Red Flag is that this was "discovered" in 2010 - apparently no one involved in oncology is touting this treatment - and it is an "additive" to conventional chemo, not a chemo.

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  • cheery
    cheery Member Posts: 311
    edited August 2013

    Thanks, Michelle. I appreciate your good intentions for sharing this, as you've been generously doing so on the other threads in BCO. 

    This concept in maintaining WBC levels to allow us to take higher doses of chemo is exactly what my TCM doc is trying to help me achieve with his herbal concoctionsSmile. 

    As this treatment looks fairly new, I'm concerned about the longer term safety but your naturopath sounds very experienced and I'm sure he'll check it out thoroughly on your behalf. 

    Warm regards and take care. 

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  • curveball
    curveball Member Posts: 3,040
    edited August 2013

    Red flags here too, bigtime. It makes sense to me that an additonal medication which reduces the side effects of chemotherapy would make it possible for patients to tolerate higher dosage and thus potentially increase the effectiveness of the treatment, even against very advanced cancers. 

    Unfortunately, along with this sensible-seeming description of the potential treatment, the linked article had a number of features that raised my suspicions: the fact that the name of the medication involved isn't mentioned anywhere (that I could find) in the website; the appeals to "big pharma" conspiracy theories; and my inability to find any such trial on clinicaltrials.gov. When I searched neutrophil+carboplatin+cancer, the only two results that sounded anything at all like what was described were done in China, not at the Alin Institute in Berkeley or in Nevis, which was mentioned as a trial site at the linked website. I got no hits either when I searched clinicaltrials.gov for Dr Matusmura as the lead researcher or as a collaborator. But I think what made me most suspicious was the Registered Trademark symbols liberally scattered around the linked page and others in the same site, which looks to me like they are more interested in selling the treatment than in demonstrating that it actually works. The phase 2 results sound hopeful, but with such a small number of patients, they could just be a fluke.

    I agree with reader123--it sounds like an advertisement to me too. I'll be more specific: it reads like one of those mass mailings for a "wealth building" seminar, long on promises but short on specifics about what is actually being offered. Compare it to this news release about Pablociclib, which clearly states the name of the drug and provides a link to the clinicatrials.gov page for the research study. Using the information in the article, you can do your own research about palbociclib, and find information about it that comse from people other than the ones trying to sell it to you. Good luck trying to do the same thing on "SAFE Chemo (R)" based on the information at the linked site.

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  • cheery
    cheery Member Posts: 311
    edited August 2013

    Hi again, Michelle

    I found this through google. Thought it might be useful for your discussion with your naturopath. Online google checks indicate that this therapy is also known as Tox free chemo and/or FAN-C therapy.

    http://www.thedcasite.com/cgi/dcboard.cgi?az=read_count&om=97&forum=DCForumID10 

    Rgds

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  • 3littlegirls
    3littlegirls Member Posts: 853
    edited August 2013

    Thanks Cheery,

    I will have a look.   I am in talks with them. I thought things would move slower so I made contact now.  They are asking for some more details.  Going to stall until I get to chat with my NO and Onc.  I know what the Onc will say.  :)  I will keep you posted.  Always seems when I think ok time to relax and look for a new avenue something jumps out at me.  Thank god I have a supportive group of friends who will fundraise for me.  None of my adventures ever seem to be cheap.  

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Michelle,

    You are always so sweet. I didn't mean to burst you bubble just hope you take this "adventure" with a grain of salt. Wishing you the best.

    Caryn

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  • MothersDaughterTNBC
    MothersDaughterTNBC Member Posts: 61
    edited August 2013

    Have you started doing this, Michelle? Just checking if you decided to go through with it?

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited August 2013

    http://www.eastbayexpress.com/oakland/the-man-with-a-plan-too-many/Content?oid=1080433

    Scroll down to last paragraph.

    The treatment seems to have been used as far back as 2006. Wish there were randomized trials already. One of the antidotes seems to be using MSG. Maybe your NO has an opinion on that? 

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  • Cooper97
    Cooper97 Member Posts: 1
    edited April 2017

    Have you heard anything more about this treatment?

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