STFU (Shut the F*** UP)

In the chemo chair........

Hi, Gardengumby. The reason I won't take tamoxifen is because it has a high chance of causing problems with clots - heart attack, stroke, DVT - and I already have a personal high risk for those things. I don't want to add 10-15% risk in addition to what I already have. I also had a baseline endometrial biopsy just on the possibility of taking tamoxifen. I will already live in fear of breast cancer for the rest of my life. I do not want to live in fear of endometrial cancer, too. The AIs have a risk of clots, but the risk is smaller.

Good morning hellions!  Oh wait, you're hooligans.  My mom used to call us kids hellions.  I'm sure it's not the same.

I mentioned a while back that I was applying for SSDI.  I applied through the legal firm that my employer uses for employees on Long Term Disability.  I completed the application questionnaire via telephone with the attorney group on July 17.  They sent me the completed forms via e-mail for my signature and I returned them via fax on July 18. They filed the application with SSA on July 30.

SSA called me on July 31 and completed a few questions and confirmed my application.  I was told at that time that my application was flagged for "quick deicision" and that I would have a decision in 30 days.  I received a call yesterday, on August 12 that my application has been approved!  In my book, that was amazingly fast. Yip, Yip, Yippee, Hooray!

Miss Phylie..I just got denied for SSDI....how did you get approved so easy?

Chickie - I really don't know, except that for me this is a recurrence.  Sorry you were denied!  Do you have an attorney that you are working with, who will help you appeal?  Unfortunately this is the extent of my SSDI knowledge!

Here is a link to the Social Security board.  There are a lot of good questions and answers there. Sorry I'm not more help!

http://community.breastcancer.org/forum/113/topic/770569?page=24#idx_701

Savvy - we had same diagnosis  within a month of each other, same grade, both have history of high risk for clotting. We chose different treatments, but can celebrate our one year anniversaries of completing treatment together. 

Dx 1/16/2013, DCIS, <1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2-

Hi April!  I bought one of those extension brushes that will reach all around the tub... so that really helps me....  It has like a scour pad, and they are replaceable.

Can you take something for the pain?  Geez, I hate to see it get so bad for you....!  Can you just ask for why you are feeling so bad?   Maybe write down when, and what hurts.....  We have to find a reason for you....

Ask if it is possible that it IS the Aromasin, because it DOES affect people differently....  See if SHE will work with YOU!  SHE ain't feelin' it, YOU are!  Okay, I'll come talk to her.... Me and Cammy..... and Phyllidon'ttakeanyshit will.  Maybe even the Shells, and oh wait!  Ducky will REALLY make her sit up and listen!  There is always Chickers and Sassy to get in on the fray! 

phyllisgotssdi - congrats. I didn't think I had a chance so didn't even try.

Savgigi - because of all this, though, I have developed a dislike of flying.  I HATE COMPRESSION!!!!

Chickieinthehotseat---How did u get declined--Supposedly Cancer is a priority-I used no lawyers and did it myself all over the phone and faxing and within 3 weeks it was OK'd--Did u reread what the Dr. said --they might have checked ONE box not correctly and that'll do it. Or wrote one sentence incorrectly. It has to be what SSDI follows and u'r Dr/s staff usually fill it out and sometimes they miss something, they used to call me to make sure is was correctly written. Yes I used to have a brain. Now I really wouldn't know but that could be a reason. Like I said cancer is a priority with them that's why Phylofelon got it so fast.

April I am so sorry for all u'r pain--Since I don't know u up close and personal, how do u explain u'r pain to u'r Dr. I'd always and still do say silly things so at first they thought I was just uncomfortable or if ur'e quiet about it and just say it hurts. They thinks it's tolerable--another thing if u've used the word pain alot they might dismiss some of this. It does make a difference to some Drs. I would say I've never been so sick in my life--when I had a cold (my sister so hangs up on me when I say that) so sometimes u have to really get u'r point of pain across with desparation. Drs. hear everything so much that sometimes they have a deaf ear. I'm not saying u are any of these types of persons but u might be more quiet about it than u think. There has to be something that wik relieve the pain or change of meds, please don't go thru this like this it's awful--I know--Always tell her the pain is 10-which makes no sense to me Pain to me has no number but to them it does--I would say it's 22 that 10 didn't even describe it--they listened more. I don't know if that helps u at all but I just thought I'd try.

chevysmartass----it took me two hrs to undo crap I was doing to my computer trying to load something in--Since u'r picture thing was easy I figured I've mastered something, well I didn't I screwed up my comp. for 2 hrs I had to undo it. All right it's my fault but u gave me false hope that I was capable of doing what I was not.

Marywithaporch so u'r going to camp out there, that's the best thing u can do with u'r GS and make smores--wait don't lite a fire in there or u'll be Marywithoutaporch. U'll have so much fun. BTW I never had a smore-homemade,see how sad my life is--I'm bridled with boring. Yep just took a pain pill, I take one then in about an hr. I take another and it works well for me. Kind of.

Hey did u notice peanut butter has all kinds of flavors now--who'd a thunk---it took so long. This was my news bulletin.

OK my boringness wil stop now--I hope I made a little sense, cuz that's about all I have anymore.

Shellshine, how cool to have an anniversary buddy!

April, I just left my oncologist’s office. When he walked in and asked how I am doing, I told him about my t-shirt and said he could choose his favorite cuss words to fill in the blanks. I listed all my symptoms including being afraid to go down stairs. I have lost enough flexibility I am afraid I will fall. I told him I was angry all the time and that a coworker calls me Sybil because my mood changes so often. And my leg was bouncing up and down – I have trouble sitting still in the afternoon. So he said take a 3 week break and then we will try Arimidex. He tried to push Tamoxifen again and I said no thanks.

Gumby, someone suggested I would have to wear compression hose on the plane if I took Tamoxifen. That’s another reason I said no. I understand how you feel. Since I fly to the west coast every other week, that would be a really big deal for me.

Chickieinthechair – hope things are going well for you today.

Thanks, Chevy. I have periodic trouble with my feet swelling whether or not I am on a plane. I may try some compression hose and see if that helps on my flight. My flights are usually 4-5 hr.

I think I'm finished pickling cukes.  Whew!  Here is a picture with Aunt Frances' pickles on the left and bread and butter pickles on the right.  I seem to have a LOT!

And since I was in the kitchen on Sunday, I also made a pot of gumbo with sausage, crawfish and shrimp. Sorry it's a little out of focus - so am I.  I am only posting this so that you guys can see that I really can do stuff other than sit in the recliner and whine.  Ca c'est bon!

Philly........looks delish..........

Chevy I didn't know that you could get something to help put them on (other than a husband;)



I've had DVT in each leg and lymph nodes removed from one arm. I don't have le and sincerely do not want it, so try to be cautious. Which means compression on both legs and one arm. We usually fly to Hawaii once a year and putting on all my compression gear when I'm already sweaty truly sucks. When I'm in Seattle going to Hawaii it's not as bad, but the airport in kona is outdoors. No ac. Yucky for putting on tight stuff

Home resting from chemo...MO reduced my dose today because of the neuropathy in my hands and feet...also my blood recovered nicely without the Neulasta shot last time..so NO shot again this round..I got really nauseated this time during chemo...that was different.

I also went to Integrated Medicine....after a very long interview digesting my side effects..I am scheduled for accupunture, reiki and mind and body psycho therapy soon.

I also met with the genetic counselor today and they also are testing me for the brca1 and 2 gene, plus determining if my ovaries need to be removed..I had a hysterectomy in 2005, but ovaries were left...now in chemopause...ugh

Love to all ♥