Informal Poll - Where were you treated and what was your chemo?
Comments
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Johns Hopkins in Baltimore for surgery and reconstruction, Chemo in Bethesda MD w/Dr. Carolyn Hendricks. 4 dose dense tx of A/C followed by 4 dose dense of Taxol. 6 weeks of rads 5 days a week at Montgomery General Hospital in Olney MD. Currently on Tamoxifen.
Sharon
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bump
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bump
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I was treated at RMCC in Denver, CO
Bilat with TE (and eventually silicone implants), TAC chemo x 6, Rads (25), AI's and ooph.....
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I'm in Florida, I had TCH. 6 doses. Then had a mastectomy, will continue herceptin for a year plus tamoxifen for 5.. They will be doing 37 radiation treatments.
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dx in june, bilat in july chemo began in sept FEC+T was treated in augusta, georgia
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Hi,
I have Stage IIIa IDC. Tumor in right breast 1.8 cm, extensive cancer in lymphatic & vascular system, 5/12 nodes positive, 4 extranodal - spilling out to surrounding tissue. Only 1 not extranodal was the one felt at time of ultrasound after suspicious mammogram which 2 FNA and 1 core biopsy weren't able to get read on, surgeon at first didn't get clean margin but went in and took it to chest wall muscle.
Partial Mastectomy Providence Cancer Center Portland Oregon. Chemotherapy Providence St Vincents Portland Oregon-- oncologist works Thursdays there so more convenient for driving. Chemo: Dose dense Adriamycin and Cytoxin / 4 treatments over 8 weeks. Nuelasta shot day after. To be followed by dose dense Taxol and if still needed, Neulasta shots. -
I was stage IIIc at DX a year and a half ago. I had dose dense AC + T, followed by 36 rads and Tamoxifen. Also every six months Zometa, but only because I asked for it. And Lupron shots to shut down ovaries.
Since relocated to Texas and seeing new onc who has put me back into treatment, which I am happy about. I never felt I had enough treatment to stay healthy in the long term and he strongly agreed.
First we tried a round of a four-chemo cocktail called FUMEP but it was too hard on me -- my bone marrow production is shot and after one round I had to have platelets transfusion and blood transfusion. So we stopped that. (He's super careful not to make people sicker via chemo that may not even been necessary.)
Meanwhile he ran a Caris report (genetics report) on my tumor sample and the results came back with suggested treatments.
Now I am on one year more of light chemo:
- Abraxane (because Caris report suggested it as potentially the best treatment for my tumor)
- CPT-11 (also recommended by Caris report, 50% dose because 100% is too hard on me)
- Herceptin (due to equivocal HER2 in lymph node tumor)
- Everolimus (because Caris report found that I have the fairly common PIK3CA gene mutuation that seems to make Hercpetin fail - unless you take Everolimus concurrently in which case Herceptin works -- this research is still ongoing but he doesn't want to take any chances of the Herceptin failing so he wants me on Everolimus as long as I am on Herceptin)
His theory is you hit any residual disease as long and hard as you reasonably can when it is as small as possible and you try to confuse/stun/annoy/harrass it into quiescence -- and if you can keep it that way for long enough you increase the chance that it will eventually die off. It's a bit of a slog but I'm happy to be doing it all. If you're in Texas or you want to go to Texas for a while for serious treatment, feel free to p.m. me for details.
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Mary Bird Perkins Cancer Center, Baton Rouge LA , starting 11/2010 6 rounds taxotare, carboplatin, hereceptin, 33 rads, continue hereceptin every 3 weeks, falsodex every 4, 15 more rads in March 2013, +++idc lllc
So many different combinations! But it gets curiousier and curiousier when you look at the 3 factors, when they are the same and treatment is different.....Hey but I'm still here!!!! Thank you Jesus!
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Private breast surgeon/oncologist/radiologist all fellowships at Roswell Park. Lumpectomy (had I known it was so big I'd had mastectomy) 4dd ac followed by 12 taxol 33 rads arimidex for 2 weeks stopped because it made my heart race. Now on femara. Night sweats hard but doable. So far so good
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I was treated at Mayo Clinic, Rochester, MN.
I had 4 * AC followed by 4 * taxol as neoadjuvant treatment was scheduled on every other week. Then Bil- mastectomy and radiation, no reconstruction. Now am on 20 mg tamoxifen.
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Acx4, Tx12, radiation, then bmx
anyone else?
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I had a UMX with full lymph node dissection at Mt Sinai in NYC. This was followed by 4DD AC and 4 DD T -then 28 radiation treaments followed by a 6 treatment chest wall boost. I'm on arimidex now.
I was treated at the Monter Cancer Center in Long Island-which was the same treatment recommended by both Memorial and Mt Sinai Hospitals in NYC.
Having another UMX-a prophylactic one with bilateral TE's on Thursday!
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Bump...this is a wonderful thread. Thanks Technoshift!
I am mainly being treated at UW Madison Hospital and Clinics - having rads at a satellite clinic.
I had neoadjuvant chemo - please see my signature line. I'm working with my mo to have ovaries removed after rads and additional chemo.
Also, I see a naturalpathic physican and taking several supplements.
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I am being treated at MD Anderson but don't see anyone else doing this in the same order as me. Hmmmm...
12 weekly Taxol first (I am on #4 this week) followed by FECx4 every three weeks, then Bmx and the 30 rads. -
Great Thread!
John Theurer Cancer Center @ the Hackensack University Medical Center
Left Mastectomy, Lymph node dissenction, immediate reconstruction free tram
Adrimycin, Cytoxin, Taxol
Rads, AI"s -
Just looking back over this thread I noticed that when I posted last year I hadn't had surgery yet. I had surgery on 10/22/12. Diagnosed stage IIIc. I had Adria/cytoxan & taxol and 30 rads. It's hard to believe it's been over a year since surgery. I was treated at the Stephanie Speilman Comprehensive Breast Center a part of OSU Medical Center.
Paula -
Warrior, we have almost the exact same DX. I had 4XFEC first, every 3 weeks, then BMX, then 4Xtaxotere, every 3 weeks as well, then rads, then hyster and femara. The order is a little different, but the treatment is very similar. What made you 'B'? In my case it was skin involvement. -
Momine~~I was dx stage IIIc. How do they determine a, b, or c?
Paula -
Soteria, as far as I remember, 3B is a tumor of a certain size, 4-9 nodes AND either skin or chest wall involvement. 3C has to do with more nodes than 9, as far as I know. -
Momine~~Thanks for the explanation. Yes, I had 13/16 nodes, but no skin involvement.
Paula -
Momine - I really don't know if I am a b or c since I haven't had surgery. 4 nodes show up on the scans and one is pretty large so that might make me a c. I am really guessing at that. My tumor is very large also, but some of it is LCIS and they don't know what is what. May never know if chemo works well since it will all be before surgery.
How was the FEC? I haven't seen too many here that have had that and I wanted to talk to someone who has actually done it. -
Warrior -
I had the EXACT same treatment as you - in the same order. The only difference is I also had herceptin, being HER2+.
The weekly taxol was not bad, very manageable. I felt the FEC was much harder, but thankfully it was only 4 doses. -
Warrior, with 4 nodes, it is very unlikely that you will end up a C or even a B (sounds like bra sizes, doesn't it).
The docs were all awed by the FEC and told me that the taxotere would be a walk in the park in comparison etc., so I was pretty scared and then it just wasn't that bad.
They put me on a strict schedule of anti-puke meds. I got emend during the infusion and for 2 days after, along with 2-3 other meds in some sort of precise rotation. It worked like a charm. I never had nausea or puking. I did get light head aches and constipation from the meds. You will most likely also get thrush. However, I quickly discovered that taking a triple-dose of probiotics daily helped hugely both with the thrush and the intestinal issues (since both are caused by the chemo stripping your system of all normal bacteria). For the thrush, a simple mouth wash of baking soda in warm water helped better than the monistat gel. Mine never got worse than a slightly woolly mouth for a few days.
They also gave me neulasta after each chemo. I never had any problem with that, except some mild aching in the hips for a day or two and only some of the times.
I used to crash the day of the FEC and for 2-3 days after. I didn't feel ill really, just massively tired. The effect is cumulative, so you will be increasingly tired with each treatment. The best antidote for the tiredness, aches and general blah is to take a shower, put on a pretty scarf or shoes that make you happy or whatever and take a walk outside. Some light, fresh air, exercise and other humans can be very helpful. I don't usually get up early, but during chemo, I used to get up at 7 and walk my dogs in the park for 45 minutes. During those walks, I would focus on the light, the trees, the dogs etc and really enjoy myself. It fortified me for the rest of the day.
Your hair will fall out after the second chemo usually, if it hasn't already dropped during taxol. I had the wig girl buzz mine right at the start. I am glad I did that, because not only was it less traumatic that way (I had a LOT of hair), but it itches like crazy when it falls out, so with the buzz cut, I could just stick my head over the tub and rub it with a dry wash cloth to get the stubble out. Oh, and I wore the crazy-expensive wig exactly once. -
Warrior~~Momine has given you excellent advice, especially concerning the mouth. I took acidophilus everyday to combat thrush, but probiotics are even better! and the baking soda/salt water rinse works wonders. I had no mouth problems at all.
Best wishes on your journey! You CAN do this!
Paula -
Hi Paula,
I got this off the BCO.org info under diagnosis.
Hi Momine, I was also given Emend in my chemo infusion and in pills to take the following 2 days. Never go t Nausea.Stage III
Stage III is divided into subcategories known as IIIA, IIIB, and IIIC.
Stage IIIA describes invasive breast cancer in which either:- no tumor is found in the breast or the tumor may be any size; cancer is found in 4 to 9 axillary lymph nodes or in the lymph nodes near the breastbone (found during imaging tests or a physical exam) OR
- the tumor is larger than 5 centimeters; small groups of breast cancer cells (larger than 0.2 millimeter but not larger than 2 millimeters) are found in the lymph nodes OR
- the tumor is larger than 5 centimeters; cancer has spread to 1 to 3 axillary lymph nodes or to the lymph nodes near the breastbone (found during a sentinel lymph node biopsy)
Stage IIIB describes invasive breast cancer in which:- the tumor may be any size and has spread to the chest wall and/or skin of the breast and caused swelling or an ulcer AND
- may have spread to up to 9 axillary lymph nodes OR
- may have spread to lymph nodes near the breastbone
Inflammatory breast cancer is considered at least stage IIIB. Typical features of inflammatory breast cancer include:- reddening of a large portion of the breast skin
- the breast feels warm and may be swollen
- cancer cells have spread to the lymph nodes and may be found in the skin
Stage IIIC describes invasive breast cancer in which:- there may be no sign of cancer in the breast or, if there is a tumor, it may be any size and may have spread to the chest wall and/or the skin of the breast AND
- the cancer has spread to 10 or more axillary lymph nodes OR
- the cancer has spread to lymph nodes above or below the collarbone OR
- the cancer has spread to axillary lymph nodes or to lymph nodes near the breastbone
Learn about what treatments you can generally expect for stage IIIA and operable IIIC in the Options by Cancer Stage: Stage IIIA and Operable IIIC page in Planning Your Treatment.
Learn about what treatments you can generally expect for stage IIIB and inoperable IIIC in the Options by Cancer Stage: Stage IIIB and Inoperable IIIC page in Planning Your Treatment. -
BlondiShana~~Thank you for the link. I always wondered what the differences were. This explains it rather well.
Paula -
Warrior - The advice from the above sisters is right on. I am stage 3a and had at least one larger node - one can have microinvasion and macroinvasion within the nodes and still be stage 3a. I was terrified of chemo but everything worked out fine - taking anti nausea meds, probiotics and L-glutamine helped me much.
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University of Michigan - Stage 3A Triple Positive - Left Mastectomy and 9/14 nodes, AC x 4,
Taxol x 12, Herceptin (had to stop after 3 months because of heart, 33 rads, now on
Arimidex.
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