Question about < 1% ER +

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slv58
slv58 Member Posts: 1,216
edited June 2014 in Triple-Negative Breast Cancer

I am going through rads right now and since I have read my pathology report this has been bugging me a bit. I will be seeing my MO in a couple of weeks and will discuss it with her then, but has anyone been offered hormone treatment with a very small (less than 1%) ER+? I'm just wondering if this may help prevent recurrence.

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  • sheila63
    sheila63 Member Posts: 38
    edited August 2013

    I had the same results except mine was less than 1% for Her2.  When I saw my pathology report after visiting the doctor I thought wow they made a mistake, and I am not actually TN so I can take a hormone treatment.  I called my doctor's office the very next day, and unfortunately found out that being that low I was still considered TN. 

    I still think about this at times especially the comment beside it read slightly favorable.

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  • bak94
    bak94 Member Posts: 1,846
    edited August 2013

    I am 3 percent er positive and my doc believes in hormone therapy for any percentage. I have tried and did not tolerate it well. My doc retired and now I see my new doc for the first time tomorrow and will ask her what she thinks. I may have to try it again. Also, I read somewhere and I am sorry I don't remember where, but some believe anti hormone therapy can benefit triple neg as well. I had a horrible time on aromasin and tamoxifen, so I am not sure I will try it again without solid proof that it helps.

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  • slv58
    slv58 Member Posts: 1,216
    edited August 2013

    Thanks ladies, I'm already pretty sure my MO will say that because its so low-no hormonal therapy, but I can't help thinking if there is even a slight chance being on something that may prevent recurrence (with such an aggressive C) isn't it worth it or are SE that bad that it ruins quality of life.

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  • carolpr56
    carolpr56 Member Posts: 241
    edited August 2013

    Depends on which SE' s you get! I took tamoxifen for 4 years - the worst was the leg cramps during the night, but the vaginal discharge was also annoying. Not deal breakers.



    Now I'm only 2% ER+ and my MO says TN. That was quite a surprise to me...

    Tamoxifen can have very serious se's, though. Uterine cancer being a biggie. In the past 4 years, my gyn has done 2 culposcopies and a uterine biopsy on me due to "unusual cells" on my Pap smears. All very unpleasant experiences. Serious consultation with your drs is in order.

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  • AlishaCatherine
    AlishaCatherine Member Posts: 56
    edited August 2013

    I am a bit confused about my mom's diagnosis and if she is triple negative or not. Her HER2 came back at a 1.8 which is not negative or positive. But from what I read, she won't qualify for Herceptin. Is she considered trip neg then?

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