STFU (Shut the F*** UP)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Im up. the stupid phone keeps ringing. Onc is going to put me on Xeloda.

    Veggytimeforthebiggirlpanties

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2013

    Veggy will these do? HHHHHHHUUUUUUUGGGGGGSSSSSS  - I'm here for you anytime!!!

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited August 2013

    Oh Veggy  Hugs from here. So glad MO has a plan for you. When do you start? Hope these make you smile at least.

    big girl panties photo: Big girl panties Biggirlpanties.jpg

    big girl panties photo: big girl panties biggirlpanties.jpg

    big girl panties photo: big girl panties 432032_153862544731212_774718132_n.jpg

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Veggieblend, I take Xeloda along with Ixempra . You probably know about the Xeloda threads on bco. Let me know if you want to talk about Zelda and copay support or SEs. Several others here also have taken it. I hope it treats you well!



    Phillyness

  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    That sounds like a good call. I was on Xeloda for a while and it worked well, with little side effects for me, which turned out to be hand and foot. I wish I could have kept taking it. I know its supposed to be good.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    i've been following the "All ABout Xeloda" thread since my onc talked about it being my next chemo if ever needed. I don't have a port neither do I want one so she wants to leave my veins alone and give them a rest.

    I think the company that makes xeloda has some type of program that helps with the co-pay. I'm trying to keep busy so I don't get too down in the dumps. I still haven't found my big girl panties yet. Where did I put them???

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    veggy - here is another linkfor Zelda with help for SE's.  http://community.breastcancer.org/topic_post?forum_id=8&id=781957&page=1  Just remember you won't have them all! 

    Yes, Genentech has the co-pay program.  Your onc's office should have info, but mine did not.  However, the specialty pharmacy they use to mail you the drug did have the info, so if they ask you if you need financial support, tell them yes. That way they handle it for you.  OR you can just go online at the Xeloda site and sign up for the copay card and their support program.  They will send the copay card and their 'getting started' pouch with info in it.

    My SEs seem to be amplified by the Ixempra.  Many of the SEs are the same so it's difficult to separate them.  However, I think the Evil Ixempra is the worst of the two for SEs. 

    p.s.  Forget the big girl panties and just go commando.

  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    Veggy, I'm thinking of you and holding you close in my prayers. I'm so sorry you have to go through all of this again. Please let us know what information you need and how you are doing so that we can hold your hand and fill your pockets with noisy misbehaving hooligans. Just don't wear any panties if you can't find yours, yet. We love you, Vegette.

    http://news.cancerconnect.com/hand-foot-syndrome-palmar-plantar-erythrodysesthesia/#a4 http://www.xeloda.com/treatment/side-effects/nausea

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013

    Veggy, these gals know a lot more about what you are going through than I do..... I can just offer you a shoulder to cry on, and a hand to hold... xoxoxoxoxo

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2013

    Veggy, I'm sure it was as hard to tell your family as it was to hear it yourself. Crying all round is totally appropriate. Hoping the new chemo kicks it to the curb and stomps on it. We'll be with you the whole way. xoxo

  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    Chevette - the situation sucks big time. My DH has fallen off the wagon twice since the big incident in June. Both were one nighters and he stayed away from me, deeply regretting the lapse the next day. Last one was 2 nights ago.  All I can say is that the disease is a terrible one, especially for the family. Horrible, really, because it's self-inflicted. 

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013

    Thanks Shells....  I didn't think your DH would go back to it....     Thinking of you Shells..... xoxox

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    I want to quit cancer.

  • juliaanna
    juliaanna Member Posts: 1,043
    edited August 2013

    Veggy, don't we all? Sending lots of hugs your way.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Veg, it sure ain't for sissies is it?

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited August 2013

    I can tolerate most anything.......not drinking or a drunk.......lived with it.....watched it destroy lives, kill my father, and ruin my mother's life..........would never live with it if I had a choice, and we all have a choice in life.........talking from experience, not out my a--........,.sorry been there.....lived that.....

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Veggy--I'm so sorry u know that--wear or don't wear u'r big girls panties-it's u'r call but whoever took my big girl panties and put them on this thread--no names mentioned--(luvmygoats) had better bring them back to me. Veggy I'm glad they have a "plan" for u and u'r a fighter so just kick it's A$$, damn cancer.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Shell I'm sorry about all this, I thought everything was going so well, now u have t be on patrol to ffigure out what's going on, I hat that for u. U've come so far just so he doesn't do any stopping u that's what is going to count now. Chevy I agree with u but if insurance helps u call it whatever they want. It's so sad cuz it's not just the single person that goes thru it--it's everyone in it's path with the family being the very first. Chit

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    I'm having myself a pity party for a couple days. I'm allowed. Then I'll pick myself up and deal with it like a fighter. Maybe we should have the traveling Big Girl Panties. They can be sent to whoever needs them. Joking People!

    For now I found out that my  cousin had her baby, a boy, today. She was 10 days overdue. I can't wait to see what he looks like.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    OK I have an app't to see the new surgeon Aug. 12th---of course he's on vacation now. so we won't talk about this anymore OK

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited August 2013

    Okay little Cammi..... Yes, we can still talk about it though....Wink   A "surgeon" eh?  He will have all of your tests and xrays....etc?   Someone HAS to have an idea of what is going on! 

    And you too Veggy..... You are MORE than allowed to feel anyway you want....Sometimes we complain, and whine, but it all usually works out.....  I don't want to complain about my stupid  life anymore either.... It all works out.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Chevy he's connected with my Hspital that I go to and the Head Coronor--(I know) of the county gave me his name but my primary also uses him so he has access to all my records--these computers are unreal cuz they even put the picture of the scan in there. So he can look everything up--I told the nurse there I don't have my boobs or any of my female parts but I need my liver and all my organs want to move out so they better put it back where it is supposed to go--see it's got to much room to move around in there with everything gone. That's my theory.

  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    one day at a time..........

  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    Veggy, When I was on Xeloda, I didnt have insurance and genentech gave me the xeloda for free...I think you had to make less than 100,000 a year!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013
  • marywh
    marywh Member Posts: 2,280
    edited August 2013

    Well, had my best buddy, gs, Jordan over for dinner tonight. He managed to only ask where my boob was 1 time. You sure can see those little wheels turning though. My guys started laying my tile today, omg, I just love it. Even more than I thought I would. I will Have to learn how to post pictures. Its going to look like something out of Coastal Living, when db gets done with it. As much fun as Ive made of them and their old bones, they sure are creating a magic room. What a great early b-day present.

  • camillegal
    camillegal Member Posts: 16,882
    edited August 2013

    Maryonthefloor I'm so glad u'r happy with this--someone has to help u do the pictures--look who's talking. and Jordan bless his heart, see how much they notice about us. LOL That's cuz they love us.

  • Shellshine
    Shellshine Member Posts: 1,039
    edited August 2013

    Hooligan: Troublemakerdelinquent mischief-makervandalrowdyruffianyahoo.

    Rowdy:  Noisy, disorderly

    STFU:   Place of refuge

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    Chevy, understand, my situation is different with DDBF, but the same in that I don't want to kick him to the curb. Do what you need to do and we'll all be here for you to vent when you need too. L&H&P's

    Cami your right you have all the ducks lined up. So, unless you want too quack  about something, I'll wait in the duck blind quietly LOL.

    Veggy Hugs, with you all the way:)

    Chevy I have a new skin sensitivity that I had to be kicked in the head to realize it was a problem. K-yjelly. Miserable since colonoscopy couldn't sit down. Then the hands went nuts. Using all the tricks I know, butt they aren't working fast enough. It's always something.

    Picked up the pathology report from the polypectomies from tues on wed at med records office. All three polyps negative.

    Shellshiner Hugs, do what you have to do and we are here for you too.

    Just a reminder about getting that letter from Bank of America re: your mortgage that you paid off (10,000$). Most people have never heard of it. I may have the name a bit incorrect, but if memory serves me correct, it's called "Letter of Satisfaction of Mortgage". Once you get it and record it at the county clerks office, it prevents the previous mortgage lender from saying you didn't pay off the mortgage. Legally can be a big deal if mortgage company screws up their paperwork. Since Bank of America has lawsuits against them for screwing up allot, by foreclosing and selling properties that have paid off mortgages, and in one case they didn't even hold the mortgage, please, be safe and get that letter.

    I learned about it when I took my Real Estate classes (yeah, did real estate too). When I asked my mortgage holder for the letter, it took months. But I made weekly calls till it was done. They couldn't produce the deed, but they had letters of transfer that said they owned the paper. So, floating out there somewhere is my deed. BUT because of that letter and the recording, IF someone comes forward to declare they have a legal interest in my property. That letter will protect me. But even more important is, it is recorder at the County Clerks Office. Legally what this means is the letter met all the requirements of the Clerk's office to be recorded.

    Not to beat a dead horse, but when a property is sold(bought), all the sale documents are recorded, inclusive, of the deed. So, even though the mortgage lender couldn't return my original deed b/c it was recorded at time of sale, the "letter of satisfaction" closes the loop. So, when I go to sell the house and the title is searched. The title company is responsible for finding all these details and documenting them from the County record. Therefore, there will be no impediment to the sale of the property. BUT another BUT having personal "Title Insurance" which is offered at time of purchase is important. The mortgage lender requires it to approve a mortgage, but it doesn't protect the buyer, the extra cost at purchase time of personal Titile Insurance is worth it. There's more to it, but this is already more than you ever wanted to know LOL.

    EDIT: In a do over, when I paid the house off, I would have paid a title company to perform the final steps that I did independently.

    Everyone that's chemoing and radiating hope you feel better for the weekend.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited August 2013

    For all that have little girls in their lives that are into the dress up phase, I just bought some clip on earrings that were perfect to go with an Ariel costume. The little one -4 y/o was so excited. They can be found at thrift shops. I wouldn't suggest the screw on types :)

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