Drinking alcohol, statistics and recurrence

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Ikari
Ikari Member Posts: 40

I am interested in what advice others have been told by their MOs re drinking alcohol and what the statistics from all these studies that can be googled mean.

My MO did not tell me not to drink and it was only when I asked I received a response along the lines of "well there are studies showing it is a risk factor and seeing you have already had breast cancer it may be wise to avoid it but it also comes down to quality of life".

I do not want to risk a recurrence by drinking yet so much of my lifestyle pre BC was dining out and catching up with friends for a drink (didnt drink everyday - dont feel the need).  I would hate to recur and think I had "caused" it. 

I see so many people with BC and people who know someone who has "had" BC who drink alcohol and they are oblivious to all these studies that float around re the risks. 

Are you less likely to recur with an earlier stage diagnosis? 

What do the statistics really mean - ie if a study says something increases your risk by say 25% how does that work?  If I already have a 30% chance of recurrance (I am making these figures up by the way) then what is my chance of recurrance?

I would really appreciate any input into the above including personal decisions that you have made on whether to drink or not.

Many thanks 

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    Hi Shikari,

    Not to confuse you even more Smile but while you wait for others' advice, you may be interested in reading up on the Research News stories from the main Breastcancer.org site that focus on Alcohol and Risk. Our Research News team comprised of medical writers and experts strive to translate research in to understandable, relatable information.

    We hope this helps, and we're sure there will be many others coming by shortly to offer their insight!

    --The Mods

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    Thanks Mods I'll take a look.

    I would really appreciate some personal viewpoints, experiences and recounts of others MO's on this.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited July 2013

    Dear Shikari.....there is still too much dubious information out there.  I am so sorry as a lot of BC patients are scared out of their wits needlessly.  I am saying this after a marvelous dinner of chicken francese, fresh vegetables, and wine.

    The two articles you should read are:

    http://www.cbsnews.com/8301-204_162-57579167/moderate-drinking-may-increase-breast-cancer-survival-rates/

    http://www.telegraph.co.uk/health/healthnews/9659168/Glass-of-wine-a-day-fights-breast-cancer.html

    Even with the 2009 study, overall survival was unchanged, drinkers vs non drinkers.  Since wine is a life-giving force in my life, I decided to continue enjoying one of life's great pleasures.

    The earlier studies didn't segment the data correctly (in my opinion) nor were there enough ER+ women taking anti-hormonals.

    BTW - if all this were true, there would be alarming recurrence rates among women in Italy, Germany, France, Greece, and Spain.  This just isn't the case.

    Anyway, I have created major havoc by giving my breast surgeon a splendid bottle of wine each Christmas.  (None of her colleagues rate this way.)  And by hanging out at the wine bar, I started running.  Both good things.

    Good luck, and do try some amazing wine.  The lesson in all this is drink QUALITY and forget the rest.

    Focus on the important things.....such as exercise.  Good luck and salut! - Claire

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    Thanks Claire_in_Seattle...

    Read the articles thankyou.  Have read similar to these and i sway towards it being Ok for a few drinks then I see something completely the opposite and paranoia sets in.

    Why are there hundreds of conflicting studies? - it is crazy!  I understand it is very difficult to undertake a study on BC/alcohol/recurrence especially taking into account the many risk factors and that a truly accurate one would need to be conducted over a long period of time.  Im peeved at these researchers who conduct inaccurate/inconclusive/flawed studies and then published/promote the results scaring the wits out of us who already have enough to be worried about! 

    Its a shame that all the funding for these "small" studies couldnt be "pooled" so one foolproof, conclusive study could be done.  If the results showed that ther was a high risk I would be OK with abstinence.  I just dont want to give up something I enjoy if I dont have to Smile.

  • Racy
    Racy Member Posts: 2,651
    edited July 2013

    Firstly, alcohol is most associated with ILC which I have but you do not.  Secondly, my onc does not encourage me to be teetotal. (He is very experienced). Thirdly, hormone treatments counteracts the effects of alcohol in elevating estrogen.

    I hope this advice helps you to take a reasonable approach.

  • gonegirl
    gonegirl Member Posts: 1,871
    edited July 2013

    I'll give anecdotal evidence.



    I worry I caused my own cancer with drinking. I am a recovering alcoholic.



    But here's the timeline.



    June 2009 I got sober.



    November 2009 normal mammogram.



    Gynecologist dropped me down to mammogram every two years so no mammogram in 2010.



    November 2011 mammogram showed 4 cm mass and CT scan showed liver covered with spots. I am HER2+.



    I'm gonna say the cancer developed after I stopped drinking.



    Go ahead and drink that glass of wine. Life is short.

  • rozem
    rozem Member Posts: 1,375
    edited July 2013

    i have found my MO's to be non-commital on the subject.  The nutritionist at the cancer ctr told me "in moderation" and no more than a drink per day (which is way more than i would ever have).  The one thing she did tell me is that you cant combine, meaning if you didnt drink all week then its not ok to binge drink on the weekend.  Im italian, im not giving up my red wine which is basically the only thing i drink - so i limit it to a glass with dinner on the weekends

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    Racy - thankyou for your thoughts and info

    Gritgirl - thankyou for sharing your circumstances and the "irony" of your timeline

    Anyone else have any further thoughts or advice?

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited July 2013

    I've always felt it was something that I had introduced new to my environment the previous two years before my bc diagnosis.  I don't know why I picked two years as a reference point.

    In the previous two years, I had started drinking coffee, increased diet coke consumption, increased alcohol consumption, starting eating a lot of turkey meat, a lot of rice, a lot of those microwavable veggies, and had a lot of stress by taking on too many clients with my job.

    Since my bc diagnosis, I have cut out several things cold turkey:  coffee, diet coke, and no more alcohol. I thought I would have a cold beer or champagne to celebrate each milestone, but everytime one approaches, I just don't want to chance it.  I'm okay without it, even though I thought it would be a much bigger deal.  The diet coke, coffee and alcohol came as surprisingly easy to give up.  I also won't eat turkey meat anymore.  I eat only fish and chicken.  No more microwave on anything, and who knows ... it could have been those plastic bags the veggies came in.  Maybe when they get heated the bag leaches a chemical?  I only use raw fresh vegetables now, and steam them on the stove. 

    I do understand when people say "we should enjoy life", etc.  But for me, the stress of not enjoying something I was about to potentially consume outweighed the pleasure of what I would get from these items, so I haven't felt deprived at all in these areas. Some things were just simple to say 'no' to.  I didn't really even spend time researching the alcohol thing.  I just read a few posts that said it should be limited or avoided, and I did it, and just took that at face value. Even though, like Claire mentioned, if alcohol was a trigger for bc or recurrence, you would think the numbers would be even more staggering.

    The area that has been the hardest for me, is giving up sugar, sweets, etc.  Having had a TNBC diagnosis, low fat, and no sugar is a very valuable goal to have, so I do actively pursue this each day, but I do feel deprived that I can't eat the things I really want.  I have found a few things that help:

    I drink green tea during the day, and have found Trader Joe's Animal Crackers - low sugar, extremely low fat, and 15 of them is one serving.  So I sprinkle them throughout the day.  Sometimes as a treat, I'll have one square or Trader Joe's Dark Chocolate, and 12 squares are one bar.  A bar will last me about 2 weeks. To me, that is a big accomplishment.  I used to be able to eat a whole package of Oreo Cookies in a matter of 3 days!  :)

    It's naturally hard to give up things that we have been eating our whole lives.  Pick the items that you can give up easily, and get rid of those and figure out which ones you want to keep, and then keep those in moderation.  Everything else that falls in the middle, you can work on giving those up one at a time, and replacing with something healthier. 

  • rozem
    rozem Member Posts: 1,375
    edited July 2013

    dolce - why no turkey meat and coffee? 

  • Susie123
    Susie123 Member Posts: 804
    edited July 2013

    I think the truth is, nobody knows how we got it, or what will cause it to come back. I don't drink at all, but I got BC. :(

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited July 2013

    My MO said that there was nothing conclusive definitively linking alcohol with breast cancer and, if I want to enjoy a glass of wine, to go ahead and do so.  And, after reading extensively on the subject, I agreed with her.  Much of what is out there about alcohol and breast cancer (or dairy and breast cancer, or parabens and breast cancer, and sugar and breast cancer) is conflicting, contradictory and vague, and - for me, personally - just not worth stressing over. 

    So, I enjoy a glass of wine now and then, and I don't worry about it.

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited July 2013

    The studies on alcohol are all based on outcome - not actual understanding of how alcohol impacts cancer. For example, people who drink more are around smoke more. People who drink more tend to eat less healthy diets and exercise less. So, is it really the alcohol or other factors. They don't know. I'm taking the moderate perspective. I love wine. Over the weekend I had one glass of white, one glass of red, and a few sips of saki. I didn't go crazy and I have cut my consumption by more than 50% since diagnosis. I agree that if wine were a major factor than europeans would have a higher recurrence rate. I wish we knew the magic answers.

  • dancermom
    dancermom Member Posts: 53
    edited July 2013

    My MO told me in moderation. She said one drink per day wasn't going to get you into trouble, but like someone else said no saving it up for 7 on the weekend. She likened it to taking medications. While taking one pain killer or as prescribed is fine, if you save them all up and take them at one time, it's not good. I rarely drink, but when I do I limit it to one or two drinks. I sure do wish I could save up and indulge a bit more on special occasions like weddings or something.

  • septembersong
    septembersong Member Posts: 287
    edited July 2013

    My MO, whom I saw earlier this month, asked me about my alcohol consumption. I told her I usually have a glass of wine while I'm making dinner and then one with dinner. She told me to cut back to one glass per day. She said they were seeing some evidence that there was a connection between alcohol consumption and recurrence. Nothing more detailed or substantial than that. 

    Ann

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited July 2013

    Regarding why no turkey meat and coffee.  When I was diagnosed, I wondered if it was anything 'new' I had introduced into my lifestyle the previous two years.  In reflecting back, I had started drinking coffee about two years before diagnosis, and very steadily the year prior.  In California, due to Prop 65, there are signs at all Starbucks that warn consumers that coffee may be carcinogenic (much like how you see the alcohol affecting fetus signs) in restaurants across the U.S. now. Once I researched the information regarding coffee and carcinogen connection, I stopped drinking it. 

    The turkey issue, was more of an after thought.  One night while cooking dinner, I realized that I had relied heavily on turkey for homemade meals the prior couple of years as well.  I did so, because we don't eat red meat.  So because it was something new that I had been eating consistently before the diagnosis, I also cut it out.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited July 2013

    My D3 levels were seriously low, and so I've also been sure to take a D supplement.  I was at a 12, which is extremely deficient, and now I'm at 45.  But I do need to aim for natural sun more as well.

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    Rozem - thankyou for your information.  It would be more preferable to "save up" my drinks for special occasions but as your nutritionist stated that is the worst way to indulge Frown

    Inspired byDolce - I too gave up several things namely coffee, smoking, alcohol and have tried to limit red meat whilst attempting to consume organic produce as often as I can.  Prior to diagnosis we were consuming a lot of non organic chicken which I have stopped also.  When my vitamin D levels were tested they were fine however that was several months after taking supplements so Im not sure if D levels contributed.  I was however working indoors and barely saw sunlight with the exception of weekends.  I was also drinking a lot of takeout coffee when I was diagnosed also.  I believe stress was the main culprit however the turkey/chicken and coffee similarities are interesting.

    Suzie123 - It gives me hope that if I do indulge and recur it isnt necessarily from having had a couple of drinks.

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    SelenaWolf - Thankyou, I agree about all the conflicting information - I need to be happy with my decision however the conflicting information has me changing my mind quite often on the matter.

    Mariasnow - I used to do long distance running however I smoked and drank.  Now I dont smoke or drink and am overweight from treatment.  Im starting to lean towards losing the excess weight before I contemplate making a decision (could be a long wait due to how much Ive put on).  I wondered about the european drinking also (and whilst watching Game of Thrones where wine appears to be the new water).  Its not like drinking alcohol is new - there must be other factors involved.

    I struggle with this whole estrogen thing though.  On other posts people have had Tamoxifen breaks and have written that it is safe to have these breaks.  If it is the case that you can have a Tamoxifen break with circulating estrogen and it be safe, why then is it potentially dangerous to possibly increase circulating estrogen by having a couple of drinks whilst ON Tamoxifen.  Aargh! 

  • Ikari
    Ikari Member Posts: 40
    edited July 2013

    Dancermom - me too I like the "save them up" thing also

    Septembersong - it would be interesting to see these recurrence studies. 

    Another problem with the estrogen thing...  If tamoxifen does its job and takes the place of estrogen in the cells so they dont replicate then why does an increase in estrogen levels matter? 

  • LtotheK
    LtotheK Member Posts: 2,095
    edited July 2013

    Claire in Seattle has helped me be reasonable about this.  Here is my perspective.

    I was diagnosed young at 39.  I have extremely dense and lumpy breasts, no children, and lived on stress.  An understatement, really.  I got tenure doing it.  I drank mostly when I was working out of the country, and I enjoyed.  Sometimes 3 drinks in an evening, but not every night.  I even smoked sometimes with friends, but so does everyone there.

    The truth is, no one really knows what causes cancer.  They have a hunch.  In my case, the studies will probably show that my combination of dense breasts, growing up in the worst toxic landfill (many women got cancer, there have even been lawsuits) and a variety of other issues caused my cancer.  I personally don't buy into the stress argument.  Let's face it, all of us are under stress.  A parent dies, kids get sick, jobs are lost.  Sure, some of us are under more, but it's the modern world.  If stress caused cancer, we'd be dropping like flies. 

    Similarly, I agree, if wine were a major culprit, god help all Europeans.  My friends drink with gusto, and many of them are over 70.  However, I think that since our bodies have already exhibited the faulty genes or signals to make cancer, we can't compare ourselves to women who never had cancer to begin with.  What that actually means pends better investigation.  And it means that maybe I need to be more careful of stress as well.

    I asked my onc, what's the best way for me to stay cancer free.  She said keep the D in range, don't binge drink (in fact, this really seems to be more the issue for a lot of health issues), and exercise.

    I also think life is meant to be lived, and you better believe I had a rockin' good time at a wine tasting in the Republic of Georgia, where they make a wine seen nowhere else in the world.  There is a great propensity for cancer survivors to go all religious on diet and supplements.  We all want control.  One person made a comment to me once, "The diet won't save you." I think there is some truth in that.  Women who do everything "right" recur all the time, women who don't, don't.  If I had a dime for every chain smoking drunk I know in Europe...well, I'd be rich.  And they are 30 years older than me.

    Point being, keep it all in perspective.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited July 2013

    Oh, one other important thing to note.  It's not quite so simple as Tamox or AIs sweeping up all the estrogen-producing stuff going on.  Studies indicate that women with higher circulating estrogen have a higher chance of recurrence in ER+ environments.  We do need to keep our circulating estrogen as low as we can through exercise, sensible diet and not overdoing it on alcohol.

    Regarding the Tamox breaks, or what the real risk is, sadly, they just don't know.  They just don't know a lot about this disease.  A possibility: Tamoxifen has limits on how much it can block, so the higher the estrogen, the more the risk.  These things are obviously SO personal, because Tamox works differently in individuals.  My oncologist told me she expected 20% of women on Tamox get no benefit at all, it's not a sure fire.  There are metabolic issues, etc. etc.

    A challenge for us pre-meno women.  I am still even after chemo and suppressed periods at 98 circulating estrogen.  They like to see menopausal stats ideally in women with ER+ cancer.

  • rozem
    rozem Member Posts: 1,375
    edited July 2013

    LtotheK - great post - completely agree. If wine was the culprit all my relatives in europe would be dropping like flies, they drink at EVERY meal - and yet I was the only one going back 2 generations who got BC.  Cant say what happened 3 generations ago because the medical records are somewhat sketchy and at this point I am relying on the memory of 80 yr olds! 

    the control issue is dead on - i think a lot of women give it up cold turkey because of the element of control (and take tons of supplements/change diets etc)  I always laugh when im told that so and so did this and her cancer didnt come back...wasnt going to come back anyway in my opinion. 

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited August 2013

    I am all with the everything in moderation.   I had liver mets so much oncologist only cautioned on taxing the liver with active mets and during chemo.   However, she also said a glass of wine has other benefits as well.  Use some common sense and caution.  My naturalist said red wine is all good.   He told me beer is off limits for me personally since my body doesn't deal well with the yeast from beer.   For alcohol he advised stick with the darker rums and stay away from the others.    I am pretty much stick to red wine 3x a week or so.  And, by the way, my mets (liver and bone) resolved about 5 1/2 years ago and I have been NED since.  :-)

    Jennifer

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