Charleston Bound, part 2

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  • 5andcounting
    5andcounting Member Posts: 232
    edited July 2013

    Do any of you get a tight, full sensation in the tummy area? I notice it most after chemo when gastric motility is down. Like the food is sitting there. It's a strange feeling.

    Cannot wait to buy new bras after stage 2. These frankenflaps are not pretty!

    Will be down in late October, would love to see anyone who is there

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2013

    lbrewer - not sure of your budget, but I think you will like these.  Are you staying on the islands or in Mt. P?

    The Boathouse is on IOP at the Breach Inlet (the inlet between IOP and Sullivan's Island).  It has beautiful views of the intracoastal waterway.  

    Morgan Creek Grill is towards the other end of the island on 41st Avenue at the Isle of Palms Marina.  You can eat white table service on the main level or much, much more casually on the upper deck.

    Coda del Pecce is a new restaurant on front beach on Isle of Palms.  It is pricey with entres in the $20s, but the chef is very well known and very good.  I haven't heard anything bad just that it is $$$$.

    You can kick it down to ultra casual, there is the One Eyed Parrot at front beach on IOP.  Good for the view, but not a place I would run to.

    There are several good restaurants on Sullivan's Island, but none are beachfront or on the water.  Poe's is great for burgers.  Home Team is excellent barbeque.  Salt at Station 22 is new, but one owner is also the owner of The Boathouse.

    And then, of course, you could eat in the historic district or Seaside Farms.  Because your surgery is in late July, we will be at a tourist height with school around the corner.  This can make it challenging to park at front beach or on Sullivan's.  I sent Pink to Morgan's Creek for dinner and took Diedre and Catie for lunch.  I think they enjoyed it.  Hope this helps.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2013

    Yes, I think we both enjoyed it as Diedre even suggested it to go to lunch with Pink last week. Can't believe it was only last Tuesday - yikes - when at home CHS seems so long ago!



    Marty how do you stay slim with all the foodie places there???



  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    TE expander out and 0pa0cking for trip.  Can't find my fat pants!

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2013

    Congrats, lbrewer, that much closer to the other side!!! Hoping all goes well.



    Hugs



    Catie

  • Baileygirl11
    Baileygirl11 Member Posts: 5
    edited July 2013

    Hi Ladies!

    I'm new here. Just had a consult Monday with Baron and Craigie. Will most likely be having a bilateral mx and SGAP reconstruction in September. So glad I found this thread! Lots of great information. I am kind of worried about the length of the surgery. Dr Craigie said it would be about 8.5-9 hours. I am thinking that is quite a long time to be under. I've had several surgeries in the past and it seems like every one is a little rougher on my body.

    I was also told I will most likely be in the hospital (if things go as planned) for four days and have to stay in town til my 7-day post op. Wondering if my husband will be allowed to stay in my room. Didn't know if they have accommodations for that or if he will have to get a hotel room during that time.

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    hospital lets hubby stay and hotels around have special medical rates.  My SGAP is next week with Dr. Kline.  There is also a Hope Lodge but they give preferecne to chemo/rad patients so they are often full.  It is a long surgery but they do it routinely.   My DIEP was that long but really the major problem I had was constipation!

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    i was reading Urban Spoon reviews on the Boathouse and most of them seemed negative.  Any personal opinions?

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2013

    Sorry LBrewer, haven't been there in quite some time.  Went to Morgan Creek Grill last night to sit on the upper deck.  Very, very casual up there, but great crab cakes.  Wish we had better options beachfront or on the water.  This is the height of the tourist season and everything seems a bit off and rushed to keep up with the crush.

  • slh_tn
    slh_tn Member Posts: 61
    edited July 2013

    lbrewer- wishing you the best this week with your surgery!

    Baileygirl1- this is a great place to get information.  I had a unilateral SGAP back in December.    There is a chair in the room that will recline and the nurses will supply pillows and a blanket for your husband.   My husband stayed the night of my surgery but we had a room in a local hotel.  He is one who needs his sleep so it was better for him to be comfortable in a real bed for the other 3 nights.  The nurses are also checking your flaps and taking vitals frequently throughout the night.  As lbrewer said, the local hotels offer some great medical rates.   East Cooper Medical Center has a list on their website and Dr. Craigie/Dr. Kline's office will provide also.  

    Pinkheart, Catie2013, and sewaneegirl- Hope your recovery is going well!   4 weeks out from my stage 2 yesterday.   I'm feeling really good but wonder when these fishing line stitches will dissolve.  

  • Baileygirl11
    Baileygirl11 Member Posts: 5
    edited July 2013

    slh tn- thanks for the info. I'm thinking my husband will want a real bed too. Don't want to deal with this surgery AND a cranky husband! Lol



    lbrewer- hoping your surgery goes well!

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    i was looking into getting a handicap parking sticker but it looks likr it takes too long!  We got a room at the Homewodd suites for 89 a nite.  Seems like they quote different "medical rates" at different times!  I used Hilton points for a lot of it!

    Last time mu husband stayed in the room with me and the he snored so loud the nurse came in and said" They can fix that , you know!"

    Very casual sounds like us!  But maybe one fancy dinner before surgery!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2013

    The handicap sticker isn't always as helpful as imagined.  We have one for my DH.  You really won't need it.  Homewood will be perfect.  Great location with Target behind it, a Pig and great restaurants.  Opal is good for a fancy dinner and is one block from Homewood - a great little walk.  Across from Opal is Basil, an upscale Thai restaurant.  Love it!  Gilligans is also right there - fresh seafood.  Crave is right across from Homewood - I like their Sunday brunch.  Calder's Pub has good thick juicy burgers.  

    I actually didn't let my DH stay the 1st night after surgery since the nurses are in and out of the room so very frequently.  I wanted him to sleep so he could take care of me during the day.

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    I remember when we moved to Summerville I told my husband it was down the street form the Piggly Wiggly.  He thought that was a made up name.  Went by last year but its gone. :(

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2013

    DH and I had dinner at the Boathouse in February, the last night of my stay at IOP for my PAP. I wasn't thrilled. Can't remember why, but could be I was still uncomfortable sitting, the rain outside, the cold (we had such a beautiful stay until the very end) or what, but I thought the menu was a bit limited and a little pricey. But truthfully cannot put my finger on it now (could be I was medicated and memory lapse?? LOL). So, I wouldn't be good to give a good critic on the service (which was okay I think). The owner was very cordial, the rain was pouring as we pulled up and he opened the door and thanked us for coming out on such a night - but the food just wasn't memorable enough to remember it.



    Slh_Tn - I am doing fine = 2 weeks out from stage 2b and feeling good. Drove for the first time as I took myself off any pain pills earlier in the week, so about 9 or 10 days. For me that's pretty good. A little twinge now and then - but other than that no problems. I'm now anxious to get in the pool, to take the glue off the incisions, to get out and about - so pretty much back to normal. Drove 2.5 hours today shuffling cars after the return from MP (we stashed DH's car at my DD's house 2 hours away, so had to go pick it up today). I think they told me the fishing line stitches (clear) will dissolve inside and then just fall off outside. It took forever on my stage 2 to do so, but they did. I would wash with a wash cloth and then the light friction would sort of 'knock' the fishing line off. If that makes sense? But it does do just what they say. I have some that look pretty hairy on my flap incisions from this stage and looking forward to them going too. I made the mistake of cutting one last time, and got too close to the skin and actually cut the skin - so this time I know they will dissolve and waiting for them to do so on their own!



    Bailey - I didn't want my DH to room with me right after any of the surgeries. It's better for mine to sleep in a bed and come visit instead of hover 24/7. I slept, he slept - but in different places! I like to get a hotel the day before and get prepared as to what I need or think I want when I get out, that way it's all at the hotel before I get back. DH then can go and do work, watch his sports, or sleep and let me just get as much healing in before I get released. I stayed at the Homewood Suites as well, and 89 is a terrific rate - what did you say to get that rate???? I'd like to book now for my next and final stage in November!



    Lbrewer - best to you!!!



    Hugs



  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2013

    Lbrewer,



    Will be thinking of you on Wednesday surgery day and sending you strength and a smile for your recovery. Have a great pre op on Tuesday with Dr K and Chris, and be sure to spoil yourself with dinner at a nice restaurant. Can't wait to try some of the restaurants Marty suggested some day.



    Are you in town yet? I am going to church Sunday morning on Isle of Palms so will be going right by Homewood if you would like to meet.

  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited July 2013

    Lbrewer, just my opinion but I think the Boathouse is only OK, not great. Atmosphere is nice, but you can get better food elsewhere. The Boathouse that used to be downtown, however, was excellent. I haven't tried Morgan's Grille but hear excellent things about the new but pricey seafood restaurant on IOP, Coda del Pesce. We also frequently dine at Basil, the Thai restaurant in the Seaside Farms shopping center with 'The Pig'' Target, etc.



    For less expensive but good food, we like Burton's Grille in Towne Center. Have a whole gluten-free menu, which we need. There's also a PF Chang, if you like Oriental.



    Closer to the Ravenel bridge, we like Graze in the Whole Foods center and, nearer the hospital, Five Loaves' in the Crickentree shopping center.



    Hope that helps you or others.

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    We just got back from morgqan creek. ReaLly liked it. Maybe historic district for lunch.

  • lbrewer
    lbrewer Member Posts: 766
    edited July 2013

    I have to find the carved panels that are in some of the front porch railings on IOP. They would be perfect on my front porch!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2013

    LBrewer - glad you liked Morgan Creek.  Lunch - Fish is excellent and only $10 per - it is a fixed price menu.  Sit out on the water at Fleet Landing.  Have fun and enjoy your "day before".

  • MartyJ
    MartyJ Member Posts: 1,859
    edited July 2013

    I really can't believe it, but that darn chair is back in the living room.  This time set up in a very central place of honor so now when you walk in you are slammed in the face with a big chocolate brown leather recliner.  Aaarrrggghhhhh!  And, this time it has to stay there for a while.  We just learned that my DH will have to have open spinal surgery very soon to replace the hardware on 3 fusions and extend by adding 2 more.  Doc says he will be pretty out of it for 2 weeks and in total recovery for 6.  Sounds like he is having Free Flap surgery.  Now I need to go through all that prep again.  Too bad he can't wear my post-surg comfy clothes.  Just waiting for a date from the doc.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2013

    Awe Marty, so sorry to hear about your DH impending surgeries - will you both be incapacitated at the same time ? I guess the chair is certainly the least of your worries and certainly the chair is doing the three steps forward and four steps back into your living room!



    Truly hope this resolves his problem and the op goes smoothly!



    Hugs



    Catie

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited July 2013

    Marty,



    I'm also sorry to hear about your husband having surgery. Is he in a lot of pain?



    Is he able to help you during your first week of surgery and recovery?



    I haven't had chance to meet you yet, but please know I'd be very happy to help you in any way. I don't have job yet, so have plenty of free time.



    Someday that chair will go away! :)

    Take care

  • cascader
    cascader Member Posts: 599
    edited July 2013

    Hi all, I have been MIA for a couple weeks, been vacationing in my home state of Michigan. I hope all of you post surgical ladies are doing well and healing and recovering. Pink, are you in SC permanently now? 

    Baileygirl,my best advice is to be in the best shape possible before your surgery, it really helps if your lungs are strong for anesthesia, and your leg and ab muscles strong to help manuever yourself post op because you won't be able to use your arms for strength. I really believe it helped me recover from stage 1 just being in good overall health, Don't forget to up your protein and Vit C intake.  I agree with you, my body seemed to take longer and longer to bounce back with each subsuquent surgery. 

    Marty, so sorry about your husband.
    The timing certainly is not perfect but you two will get thru this. And I think the chair should stay, just not meant to be anywhere else!

    lbrewer, I have been thinking of you and I hope that your surgery went well and you are resting as comfortably as you can.Please when you feel up to it let us know how you are doing.  

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited July 2013

    Lbrewer

    Hope all went well and welcome to the other side!



    Hugs



  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited August 2013

    Has anyone been to new restaurant at Patriots Point called Charleston Harbor Fish House?



  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Haven't been there yet, Pink, but it looks to be an addition to the Charleston Harbor Resort and Marina.  Let us know how it is.

  • Downey30
    Downey30 Member Posts: 337
    edited August 2013

    Hey Marty,  so sorry to hear about hubby.  By the end of this year you two will really be ready to start a new one.  Where would you like to meet for dinner.....since it's your night before surgery.  jamie






     


     

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  • MartyJ
    MartyJ Member Posts: 1,859
    edited August 2013

    Hi Jamie!  We just learned that Chuck's surgery will be on the 7th, day after mine, so we are working out all details.  My pre-op is on Monday at 4, though Dr. M is stopping by the house tomorrow evening.  I think we will eat somewhere near the Hampton Inn on King Street - maybe Fish?  Do you have any preferences?  I am back to getting everything ready as if I were having Stage 1 since he can't bend, lift, stoop, twist or move for 6 weeks.  Ah life . . .

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited August 2013

    Marty,



    Wow two surgeries at same time! Will you both be at Roper?



    Do you have a caretaker for both of you? Can you move your surgery ahead or out to prevent overlap?



    Blessings to both of you!

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