Did anyone make it through radiation with their skin okay?

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  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013
    Bumping up for Celine, who is as scared as I was before starting.


    Deeep breaths- there are some nice success stories on here to balance the others that scare our pants off Celine.


    We will be wishing you the very best when you start on Tuesday!!!!


    Hugs

  • CLYDAY
    CLYDAY Member Posts: 81
    edited July 2013

    Thank you Science gal! Hope your treatments go by fast with minimal SE!!

  • SafiAnnie
    SafiAnnie Member Posts: 18
    edited July 2013

    Well lades I have been following this thread, and felt very smug that I would breeze the rads. i started on Monday and a friend brought me, though I was sure I'd be fine alone, she insisted. It's a 70 minute drive to treatment. I told everyone I would be fine this week to go by myself, so I set off by myself for no 2 yesterday. Well, I had to rethink the whole thing! I was totally beat, and barely made it home. I think I have been suppressing the anxiety or something, I can hardly be exhausted from the treatment! So, I rang around my willing support team and have got lifts organised for the rest of the week, and am making a rota for next week. After that I will be staying near the treatment hospital in a lodge run by the local cancer charity.



    Moral of my story is, accept the help that is offered and don't try to be a hero! It's been the hardest thing for me to admit that I do need help.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    I agree!!!! I have rads at the end of the day then go home and drop (luckily no kids) then get back up after a nap to do some work. I am also early - on treatment eight, and I think it is mostly the stress of it all.



    I am so glad you are accepting help so you won"t fall asleep at the wheel. very smart!



    And I bet your friends are happy to rally. Helping out with things like food and rides are so much more concrete than flowers!



    Good luck!!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2013

    Safi....yeap, you need someone to give you a ride!  It is very exhausting, after all, it took a bunch of surgeries and such for you to get to this point!

    Accept the help, I personally offered lunch to my drivers although, was glad on a few days when folks said no thanks!

    but after all the other stuff, you on on the mend and on the road to completion

    good luck

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    I agree, I wonder if rads would still be so tiring if we were not already beaten up by chemo and surgery????

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    I would think not sciencegal.  i have 2 or 3 good days a week where I don't need a nap and have energy to shop or do whatever I feel like.  I haven't had that many good days a week since this journey started.  I make up for those days by sleeping away the next day, but it's still better to take advantage then nap it off, than it is to sit around looking at these four walls another day.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2013

    I remember one of my treatments, my pal Julie (a docs wife) drove me to what I think now was one of the lumpies...anyway, when it was over, she insisted I come back to her place for a while.  Guess I looked pale and whatever.  Spent the afternoon with her and her pets and think it was restorative? whatever

    accept all help that makes the journey easier

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    I agree, I have sure learned to accept help. Can't get everything done without it any longer!



    Part of my "new normal", at least for now. And thank goodness for those kind souls who help us.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    Asking for, or accepting help has been difficult for me.  But I've reached out for it many times during this journey.  I was always the one helping others, and I remember how good that made me feel about myself.  That helped me in asking for assistance when needed.

  • eberner
    eberner Member Posts: 2
    edited July 2013

    Yes!  No burns!  Did rads last year 11-12.  Took curcumin as an anti-inflammatory.  I only had the 17 day treatment because I am small breasted.  Hey, it had to pay off some day!

    Good luck to you, from what I understand, after everything you have been through, rads will be the easiest.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    I"m jealous ebrener.  I'm "no breasted" and my RO is still making me do 28.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thanks Eberner! I lived in STL for five years and worked at Wash U. Great medical school!



    I appreciate your input. I take turmeric capsules daily as well which keeps my asthma undetectable. My RO said I could continue through rads since there was a clinical trial saying it helped the skin (and as an anti-inflammatory it doesn't mess with DNA repair, as anti-oxidants might.)



    Do you remember the curcumin dose you took by any chance? The ladies in the trial took six grams a day but I only take one gram- hope it helps!!



    Thanks for weighing in, it really helps to hear some success stories. I am nearly half of the way through my course but still very nervous about future skin breakdown.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2013

    eberner, welcome to Breastcancer.org, and thank you for letting everyone know about your good experience with rads.

    • The Mods

  • mainegirl
    mainegirl Member Posts: 62
    edited July 2013

    Sciencegal, I thought I sailed through fine, but after it was over I had 2 miserable weeks with severe blistering. My RO said she's seen bad reactions like mine when we're on Herceptin. I see you are also on Herceptin so you may want to ask about that. Used Silvadene cream (used for burns) with non stick bandages until it healed. Had to get pain meds again. I was totally unprepared for this as I assumed the worst was behind me. Hoping you do fine.

  • Stormynyte
    Stormynyte Member Posts: 650
    edited July 2013

    I was scared to death myself. I tried to find some pictures on the net to see what I should expect and all I could find were pictures of people who had horrible reactions. Did NOT help with the fear of rads! I wish we had a place here to share pictures of these things.

    I have 7 treatments left and not doing bad so far. They stopped treating one area on my neck for a few days (I'm assuming lymph nodes there) because it was starting to look kind of bad. People think I have a huge hickey! Another area under my arm is kind of purple-ish and peeling. The rest of my chest is just blotchy pink and red, but not painful at all. Unless I scratch it, then there is a little pain. 

    They gave me some gel sheets to stick on my neck and under my arm. These things are AMAZING! If you have any spots that are getting really dry or starting to hurt or itch, I highly recommend using the gel sheets.





  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thank you Mainegirl and Stormy - your experiences really help!

    GOOD luck to both of you as well.

    :)

  • Rockym
    Rockym Member Posts: 1,261
    edited July 2013

    33 rads and 5 extra for the lymph situation.  I used Miaderm (bought online) everyday AFTER rads.  It felt great and wasn't greasy like the other creams that some use.  To this day, I will only use lotion or cream that soaks in fast.  The Miaderm was terrific and my breast area didn't burn.  I was, however, exhausted by the last week or so since I had already done surgery and chemo.  Rads just took the last bit out of me, but a week or so after, all was well.

    My advise to you after looking at your dx and sig. info, would be to really take good care of yourself once all is done.  Our bodies and minds can be a bit fragile after all the treatment ends and this topic isn't talked about as much.  Good luck with the rest of your treatment.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thanks Rockym, that is really good advice. I am using the miaderm and I agree, it is great. If I have to put my "work clothes" back on after my afternoon appontment it is the best, does not stain them. I use emu oil at night.



    Your advice to take care of ourselves is well taken. I have slipped back into workaholic mode and some days it is just so exhausting. I think everyone at work expects me to already be better. It seems like they are thinking, "enough already". But my body does want more rest. I will do my best.



    :)

  • bennymuffins
    bennymuffins Member Posts: 412
    edited July 2013

    It sounds like you are already done your radiation treatments but I'll post just for the record. I got through 33 treatments with no skin breakdown at all. I think I had one 'almost' tiny blister about the size of a head of a glass pin. That was it. I am very fair-skinned, sickly pale LOL. Glaxal Base saved me. The worst part of rads for me is the fatigue after the fact. Glad to read you're doing okay.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thanks Bennymuffins! I am right in the middle of the rads actually, and I know a few other girls are follwing along who are about at my stage, so we do really appreciate your post.



    This is about the time when bad stuff can start happening to the skin, so I am especially glad to see your positive post. it gives me hope that one CAN get through it without major SEs.



    Are you doing okay now? Chemo?

  • slv58
    slv58 Member Posts: 1,216
    edited July 2013

    Everyone's input is so very much appreciated! Tomorrow I go for tx 7, and already my nipple is really sore. I've been using aloe vera and emu oil. I'm curious, when I'm lying on the table, it seems to me the machine positions itself 4 times as it goes from my back to front-I also hear it rumble 4 times. It seems to do this each visit, so my question is, are the same areas being treated each time or are there slight changes in the targeted area? Will my nipple get zapped each time?

    6/33

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2013

    I would ask the RO as not all are targeted the same.  I remember the rumbing but never had any issues with my nipple area

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    hi slv, for me the four zaps are targeting different areas, the first, when it is directly over head, hits my supraclav reagion, the second time it moves to my right (higher) and hits across the breast mound from that direction, then it goes to the left (lower) and does the same. Then it focuses in on my nodes under the arm.



    Yours is likely doing something similar. for me the nipple area gets hit in two of the four.



    I am sorry that is happening to you, I have had really sunburned nipples (greek beaches...) and that ws NO fun!



    Hugs

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited July 2013

    I"m not sure.  I get 6 zaps, I have fields all over my chest with sharpies in 4 different colors, I have two bolus, one is used for 4 zaps, one is used for the last zap, which also includes a plate with a cut out on it and me moving 90 degrees on the table to get the right angle. 

  • bennymuffins
    bennymuffins Member Posts: 412
    edited July 2013

    Sciencegal, I had chemo before radiation and could only get through 50% of it (it destroyed my intestines) so that's why they gave me so many radiation treatments. For the last 8 treatments I started doing gauze dressings with tons of Glaxal Base and I'm sure that helped a lot. Like I said, I was more surprised at the fatigue the rads caused. My last rads treatment was May 24 and I am still struggling with fatigue and breathlessness. My skin, however, is flawless and fine.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    (Bumping up for Sharon)



    Bennymuffins,yay for your skin- hip hip hooray, and I am so sorry about the chemo. Is your gut doing better now, I hope?

  • beachbound009
    beachbound009 Member Posts: 89
    edited July 2013

    I appreciate every one sharing their experiences.  I had my 6th of 33 treatments today and my nipple is super sore and my skin is hot as a hornets’ nest.  It’s nice to hear success stories.

    Sciencegal - I'm 17 months post chemo and in pretty good shape but after my 4th rad last week, I had to leave work early to take a 2.5 hour nap.  I'm not a napper so this is huge for me.  It's funny you wonder if it's easier having rads not coming right out of chemo....I've been thinking it would be easier right out of chemo.  It took me a while to get back up and running after chemo but I did and I’m now in the best shape of my life (well, before my recurrence last month).  I know it’s hard to be in treatment for months on end and you can’t wait to feel normal again but it pretty much stinks to feel that normalcy and then be knocked down all over again.  I guess the grass is always greener on the other side.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Gosh Beachbound I am so very sorry about your recurrence. I agree, it must be much harder to get through it all and then get hit again. How are you holding up, aside from the sore skin??

  • beachbound009
    beachbound009 Member Posts: 89
    edited July 2013

    Like every one, I have good and not so good days.  I have a better understanding of what TN is than I did the first time and I also know how to listen to my body, which is helpful.  I’ve had some annoying anxiety that keeps me up at night and I’m sure this feeds my fatigue.  I finally gave in and asked for a Rx yesterday and I’ll get it today after work.  Fingers crossed for a solid night of sleep tonight! 

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