Starting Chemo June 2013!?!?!

Options
1252628303157

Comments

  • rachel22
    rachel22 Member Posts: 54
    edited July 2013

    Hi ladies. Need some help. Shaved my head yesterday since it was coming out like crazy. Buzzed it with the smallest clip so there's still a tiny bit of stubble. Well it's driving me crazy cause it pulls when I wear my scarf and also when I sleep on my pillow. Am I doing something wrong or do I just need to get used to the discomfort? Will the tiny stubble eventually fall out or do I need to razor it? Thanks for any help that can be offered!

  • aaoaao
    aaoaao Member Posts: 593
    edited July 2013

    I ran into the same trouble. Any stubble left behind is irritating.  It tends to feel like little needles all over.  I razored it because it bothered me too much.  I don't know if you get use to it or not.  I assume it would eventually fall out since most of the time you go completely bald...eyebrows, eyelashes, arm hair...so the fuzz would probably go too.  I was just too impatient to wait for the complete fallout.

  • aaoaao
    aaoaao Member Posts: 593
    edited July 2013

    DLM I was on Adriamycin, Cytoxan, Taxol.  I'm back on the Taxol.  I know it sounds strange to be on the same chemo I was on before.  I asked my ONC if it didn't work since my cancer came back, why do it again.  She said we don't know that it didn't work..cancer was kept at bay for over 3 years.  She believes the hormone therapy is probably what failed causing the cancer to return.  So we're trying it again..with Stage IV you try different chemos until you find the one that seems to keep cancer from progressing.  Even after being on a chemo that has worked in the past it sometimes stops working and you try another one.  Then sometimes you go back to a previous one that worked and stopped because it might work again.  It's all trial and error because cancer cells can sometimes adapt to a certain chemo.  There are a lot of chemo treatments out there so I have quite a few to try.  As a cancer expert told me, "you'll be around for a long time".

    Please try not to let a cancer dx be a death sentence, we're not a number nor are we stamped with an expiration date.  Life is what we make it and I'm not going down easily.

  • KatiAK
    KatiAK Member Posts: 138
    edited July 2013

    aaoaao - hang in there!  I like your fighting spirit!

    Day 5 after Round 2 I feel fairly "normal".  I had my mom buzz cut my hair this morning cuz my hair was falling out like a "shedding dog" (in my daughters words).  Dew rag and a baseball cap.  I don't see myself as a wig wearer.  Maybe . . . if I found the right one.  By Sept or Oct I can just throw a winter hat on and call it good.  It is Alaska.

    I did go ride horses last week.  That is my sanity.  The lady that owns the horses does rescues.  As I was leaving last week the vet brought in a young horse on the edge of death from starvation.  We really weren't sure he'd make it through the night.  He's been there a week now, I'm going to see him tomorrow and take pictures of us together.  I've decided we will walk this recovery together.  I'll take another picture in 6 months.  I think it'll be good for both of us.

    Seems I spend a lot of time making sure everyone around me is comfortable with my situation.  I keep life as normal as possible for myself and my kids (tho things are a little obvious now with no hair).  Some times I think the "fake it til you make it" attitude is good and sometimes I wonder if I'm in denial.  I like to think I'm just staying positive cuz I'm gonna beat this.  My mother-in-law beat it 14 years ago.

    My period is trying to break through too.  Really?  Who needs it??  Nothing like PMS on steroids right?  My poor family!  Smile  Glad I'm done with medicine and PMS for now.  I'm hoping the next week is good for all of us. 

  • dlm425
    dlm425 Member Posts: 209
    edited July 2013

    Good morning all aaoaao you are such a trooper. So ACT didn't work or lack of and now its on your spine. Did you remove. Your ovaries. I was told by my Gyno ask onc if removal of my ovaries and arimidex is an option. Can they remove the tumor. Your story is very inspiring.. Thank you for sharing feel good. On another note anyone having issues with bleeding out of your rectum.. Well its really bad the last 2 days. I have an ass period I know its discussing but I nervous something is really wrong. Ive always had hemorrhoids but this is ridiculous. Its Sunday and I hope I can wait till tomorrow for the doctor.

  • aaoaao
    aaoaao Member Posts: 593
    edited July 2013

    KatiAK, thanks for the complement.  Yes I'm a fighter, always have been with the background I had growing up.  I currently live on a farm and my sister stables her 2 horses here.  They are older, the female one (Ruby) doesn't like to be ridden, her favorite activity is eating.  The male one (Rowdy) likes to be ridden but has bad legs now so riding him can be painful.  I tend to them everyday, it keeps me active, and it is a calming influence.  I also have a velcro dog (she sticks to me like glue), she is a pit mix but really just a big baby.  I also try to stay positive for my family, especially my son and sister.  My son kind of knows because he once said to me "I know you're worried but you're trying to be strong for me".  It's okay to be in denial, as long as you're realistic enough to get treatments.  Denial gives us hope and the belief that we will win this fight.

    DLM, thank you for the complement also.  I haven't had my ovaries removed.  I asked my MO and she thinks that with chemo it would be to risky and too much to handle.  She said there are ovary suppressants that work great.  The only reason to remove them at this point would be if I developed tumors there.  Yes, I have bleeding out of my rectum at times.  It is related to fissures down there due to the severe constipation I get.  The amount of blood is determined by the size of the fissure. I also have a good size hemorroid.  I'm pretty sure it isn't cancer because I had a full colonoscopy almost 2 years ago and everything was fine, just one polyp that wasn't cancer.  Bleeding can also be from diverticulites (not sure of the spelling).  The fissures tend to heal on their own, the hemorroids can be removed if they become a big issue, and even the diverticulites can be easily fixed during a colonscopy.  So yes ass bleeding can happen for very simple reasons.  Definitely talk to your doctor to determine your cause and plan of action.  But I wouldn't worry because my gastro doc told me that very few butt problems are actually cancer.  Also don't be embarrassed to discuss any issues, that's what we're here for, to discuss things we can't talk about with others not going through it.  Talking about it is better than stressing yourself out.  Stress weakens our bodies and we need strength at this time. 

    You both have a great chance for positive outcomes.  However, it is hard to get through things you're experiencing at this time.  Remain positive (you will win), and baby yourself as much as you can.  Cancer can be an awakening that material things aren't as important as we think they are, good family and friends reveal themselves and the ones who only wish to use you also become apparent.  I learned how much I am loved and who I can count on.  Cancer gave me the realization that I need to simplify my life (that sounds strange given all the tests/treatments I'm enduring). I don't let things bother me so much.  I use to have a problem with road rage, not quite that bad, but I was pretty irritable with other drivers.  These days I just don't care, in the scheme of things it is minor.  Cancer also give us an insight into how strong we can be.  Remember a diamond is made by the beating it takes.  Of course, I rather not have cancer but there are positives to it, at least for me. 

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited July 2013

    aaoaao – sorry you are having to go through this again.  Thank your posts, I’ve enjoyed reading them.  Your strong spirit comes shining through along with a sense of calm.  Velcro Dog, love that! 

    KaitAK – great story from your too with your horse rescue recovery buddy.  Animals can be so therapeutic.  Do take those pics.  Same as you, I’m also having my period showing up now for a 2nd time since on chemo.  Really?!  Thought that was going to be an upside – bu bye but not the case. 

    Seems like I’ve beat the nausea this round – hooray!  Still taking the ‘break through’ pills now and again if I feel the hiccups and burps come on.  Seems to be the warning sign for me.  Working on getting things moving with walking, fluids, prunes and the sennoside pills.  Will feel better when that gets back on track.  I’m really tired this round, is it the ‘accumulative fatigue’ they talked about in the chemo teach.  Probably.

    Everyone take care of yourself and let others take care of you too.   Have a good Sunday.

  • kmurphy
    kmurphy Member Posts: 55
    edited July 2013

    Got a pixie cut today.  Just taking baby steps so far.  Probably will only have a day or two with this before I have to go a step further but I guess I am dragging it out as far as I can.  Atleast this will cut down on the mess for now.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited July 2013

    Katie,

    I did the same. I tried going shorter than pixie a few days prior to when it was due to come out and the "hairdresser" kept telling me "not everyone's comes out". Did you try this remedy for cancer and i heard that works for cancer! (Was she a hairdresser or a doctor?)

    Was a little annoyed (okay annoyed!) to walk out with her worldly advice and a haircut I didn't ask for. Needless to say when it started coming out, two days later I took barber clippers to my head. Wish I had gone back for a shorter, professional cut, but I refused to pay again for what I had asked for.

    Anyhow, I still have hair, I think it is thinned out...well obviously it must be,I found a lot I in the tub drain! Lol. After that first week of falling out (after chemo round 1) it really stopped. After chemo#3 it started again, but very little at a time ...not like first hair loss. My last round is tomorrow. So I will see what hair loss is next!



    Consider not shaving to stubble, I see a lot complain that it is harder because it "hurts" and is "annoying".

    I sent you a PM...in response to yours, p,ease see if you got it? Maybe it didn't go through.

    Pat

  • kmurphy
    kmurphy Member Posts: 55
    edited July 2013

    I lost MAJOR amounts of hair yesterday and today and it was a huge mess because it was shoulder length.  I went with the pixie cut for now because I had heard some people don't lose every bit and then they are sorry that they shaved.  Not sure what it will look like tomorrow, or what I will do with it but I guess I will figure it out then.

    Patty- I checked and did not have a PM response.  Must not have gone thru.

  • Sunnyskys
    Sunnyskys Member Posts: 12
    edited July 2013

    I'm going back to work tomorrow after being out for 9 weeks for various problems. I have to say I'm pretty nervous especially since I work with so many people. I'm going with the scarf look so we will see what happens. Had second chemo last Wednesday, I'm hoping nausea I'm feeling right now is just nerves.

  • IngridJ
    IngridJ Member Posts: 121
    edited July 2013

    Good luck Sunnyskys!! Sure it will be fine, they will all be fussing with their own work etc... Hope it goes ok...

    Aaooaao; you should post on the thread Comfort Dogs... Velcro dog is great!!!! I have one too, can't go to the loo without her coming too..!!

    Dlm; see your doc, hope he or she has some suggestions...

    Katie, Ocean, Patty, kmurphy, wish you all well for next few days..

    Wish everyone well..

    Am doing ok, but got cold from kids, one day feel fine, next really crappy... Taking it easy. Next one next Monday... Getting used to no hair, hard though.. Can't believe there are some cultures and religions where it is actively shaved off.. !!!

  • kmurphy
    kmurphy Member Posts: 55
    edited July 2013

    Sunny--that's a long time to be off.  Good luck tomorrow!! 

    Ocean--glad to hear things are going well for you this time.

  • KatiAK
    KatiAK Member Posts: 138
    edited July 2013

    Never made it to the barn today. Will try again Tuesday afternoon. Just so tired and run down. Did too much yesterday maybe. I did see my oldest one play ball. He has a game tomorrow I'd like to see. SO frustrating to be so tired. And my stomach's just off. Sigh . . . Maybe tomorrow will be better. I'm really not liking the bald thing. Can't find a head covering I like. My teenage son buzzed his hair tho. He's such a good kid!

    Hope everyone has a good Monday. First day at work bald ffor me.

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    Kati,

    Hope your week goes well. I meet with my PS tomorrow so hopefully this blood blister heals so I can start chemo on the 17th. I'm glad it's cooled off here so I can wear some of my warmer hats once I shave my head. 90 degrees in AK is just too much! When did you start losing your hair? Are you doing your infusions in the Valley? I'll be doing mine at Prov. in town. Kinda freaked and just want to get started. Glad ou have the horses for some comfort. Hope you found something fun to do this past weekend in this weather!

  • rachel22
    rachel22 Member Posts: 54
    edited July 2013

    Party and kmurphy - I wish I had waited to buzz my head like you guys are doing. I think it's smart. Because for me the stubble is really painful when I sleep (pulls on my pillow) and wear a wig (pulls on the netting). Mine was falling out in handfuls and was already cut short so I now wish I had just dealt with the hair falling out naturally. I don't mind my bald head but the stubble pain is really annoying for me.



    Good luck to anyone in the chair thd week!

  • KatiAK
    KatiAK Member Posts: 138
    edited July 2013

    Dyvgrl. I think the nicest thing about getting started is getting closer to being done. I'm hoping Taxol is easier. Anybody know? I liike to think I'm half way to half way. My hair started coming out on day 17 & 18. Definitely makes it real. I'm doing my treatments in the Valley but was thinking of coming to Anch for a Feel Good or Amer Cancer mtg if I can find one. I hope you get to start. No other way to put it behind you. Off to work.

  • SherryMarshall
    SherryMarshall Member Posts: 39
    edited July 2013

    Hi all!

    Hair is coming out in chunks now. Glad I cut it super short on day 12. The top of my head feels like I have been wearing tight ponytails. I wear hats called Turtle Fur, they are comfortable, thin, and have really cute colors. I also wear bandana caps that you can get cheap on the Internet. I got my free hats from Hat Box this weekend. They are homemade hats, and they are soft and comfortable. I go for Round 2 Thursday, and I hope anyone else having Rounds this week does well. Kmurphy - do you go Thursday?

    {{{{{{Group Hugs}}}}}}

    Sherry

  • sharon1953-
    sharon1953- Member Posts: 36
    edited July 2013

    I will be having my 2nd treatment tomorrow.  So far, only small amts. of hair coming out.  This is day 20!!!  Would like to know if the treatments get easier with side effects.  I did have nausea on day 3 and 4, and lots of fatigue.  I am sure everyone reacts differently.  I have tickets to a concert on Sat., and not sure if I will be able to make it.  Got tickets before I was diagnosed.

  • SherryMarshall
    SherryMarshall Member Posts: 39
    edited July 2013

    Sharon - sure you will make it! Positive thoughts and anti nausea meds will get you there and moving to the music! I will be thinking about you tomorrow!

    {{{{{{Group Hugs}}}}}}

    Sherry

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited July 2013

    Hi everyone,

    Thought I had round 3 under my belt.  Not the case.  All of yesterday and ALL of last night dealing with bowel issues  (now resolved) but the accumulative fatigue and associated body aches has knocked me off my feet.  Got up today at 3:00 PM, do you still say good morning when its that late - don't think so.  Super exhausted, bruised and feeling beat up.  Sure don't want to see anyone.  Guess I'm having a bit of a boo hoo, hit the wall day.  

    Tomorrow will be better.  

  • SherryMarshall
    SherryMarshall Member Posts: 39
    edited July 2013

    Ocean! I hope things get better for you. Lots of prayers and positive thoughts going up for you! Sleep well tonight and hopefully you will be better in the morning! Hugs to you!

    Sherry

  • rachel22
    rachel22 Member Posts: 54
    edited July 2013

    Ocean, so sorry that treatment didn't go better. Hugs and positive vibes coming your way!

  • Hannariggs
    Hannariggs Member Posts: 137
    edited July 2013

    Netter-do you use the brian josephs during infusion time only or continually on a daily basis?

  • Netter
    Netter Member Posts: 107
    edited July 2013

    Hanna,

    I use the brian joseph everyday.  I think it must be working because I used to have to pluck my eyebrows everyday.  Haven't plucked in 2 weeks or longer and still have my brows and eyelashes. They look like they have been waxed, so without the brian joseph my brows would be gone. The directions say to continue for 60 days after chemo. 

    Ocean,

    So sorry to hear of your problems.  I was wondering why it was taking so long to recoup after #2 and then heard of the accumulative tiredness.  Not looking forward to #3 next week................. I got the patch behind my ear and didn't have any nausea or vomiting, will use again! 

  • kmurphy
    kmurphy Member Posts: 55
    edited July 2013

    My hair started coming out day 14 a little.  Day 17 was the big day for me.  It is less now mostly because I have so little left.  But I never did have the tenderness everyone said I would have.

    Sharon--your hanging on to your hair a long time!  I think your chances of getting to the concert are very good.  For me, that was the day I felt "new" again after a rough couple days.

    Sherry--Yep, back to chemo on Thursday!  Last time I had treatment in the morning and then went to work.  I was wiped out and felt kind of foggy.  This time I am going to work in the morning and then have an afternoon treatment.  I think that will probably work out much better.

    Ocean--I hope your feeling better.  I know that "hit the wall" feeling.  Sometimes I think we just need a good cry (sometimes it's a days worth).  Then we can brush ourselves off and move forward again.  We can't be "Superwoman" all the time!!

    Hope everyone has a great day!!

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited July 2013

    Thanks for all the supportive and encouraging words.  It helps a lot.  Feeling better, breaking through the exhautsion.  Shed a few tears last night just feeling so low.  I think we just may need to do that some times.  Wishing everyone a great day. 

     

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    Netter - Keep us posted on how the Brian Joseph's is working - I'm contemplating getting some - 50$ tho - wow. I REALLY don't want to lose my brows and lashes tho. I have some stuff I got at Walgreens that is Loreal brow and eyelash healthy growth kind of stuff - was $15 but - once they go - they're gone so not sure I want to gamble. Also - has anyone here taken Garcinia Cambogia before? Did anyone take it during chemo? My hubby and I both need to lose weight - and this is supposed to be safe and natural - we'll see. I want to be down to a safe BMI before my flap surgery - and unfortunately that means losing weight during chemo and rads. My doc tells me most people gain weight during chemo - NOT what I wanted to hear!

  • Netter
    Netter Member Posts: 107
    edited July 2013

    On the expense of Brian Joseph.  I have used it for about 1 1/2 months and can't tell that any of it is gone.  It has a pad on the end of a stick and I use it for both eyes and eyebrows!  Don't have to keep putting it back in.  So really, pretty cheap!

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    Netter - maybe I'll give it a shot. Just REALLY hoping it works! Losing my hair is bad enough... When did you start using it? Prior to your first treatment? How long did it take you to get it once you ordered it?

Categories