May 2013 surgeries

I will.  Three weeks from today I head to CT to my friends house.  She's got twin 6 year olds who adore my 15 year old.  They spend a lot of time playing mario on the wii.    

Then we all head to my mom's summer house.  It's in the woods in NH near the lake.  The kids can swim, play outside, we plan to take them to the arcade, and to the go karts and laser tag center.  They've never been there before and my parents are looking forward to having them up too.  My friend and I love to cook, so we plan to be the chefs that week.  

When we leave there, we are going to the casino in CT for two nights with the kids.  They have an arcade and a a nice pool, and the pizza and burger restaurants there are good.  Of course my friend and I plan to sneak out to the casino and play a bit, but my son is awesome with the kids, and if he needs a break, there is a childcare play center for the little ones.

Then I go back to CT for a few days to just hang out before heading back to NH with just my son.  We have about 60 family members up that weekend for a family bbq.  Looking forward to seeing everyone.

Then back to CT for a few days before coming home.  

Not so much restful but will be glad for all the changes in scenery after sitting around the house here for months.

if any of ya'll are on facebook, send me a PM and I'll add you.    

Janet, your trip sounds wonderful. I love having something to look forward to.



Annie, I hope you have a much better night!

Good Morning All!

Janet-That sounds like the best ever fun! Celebration to almost over half a year of hell is past you now!..not much longer on rads right?  I've only been able to get a day here and there..where I didn't think of my situation at all...and when you look back on the day..thats when you realize how stressed you are from trying to hold everything in and thinking about this non stop. Cause it feels sooooo good!  Janet, Here's a little ditty for you..

http://www.youtube.com/watch?v=mW1dbiD_zDk             Everybodys dancing and they are dancing for ..you!

 Cyndy-Are ya'll in Myrtle Beach or Garden City or somewhere else?  Wherever, I know you are loving it..Nothing..NOTHING..better than sitting out watching the waves, drinking cup of coffee snuggled in house coat as sun comes up in the morning...Soothes the Soul.

Aww Annie--You sound like me..!  Thats how I normally respond to middle of the night crisis!  I told my surgeon..I've never been much with curse words..just every now and then..toe stomping moments..etc..This has been HUGE TOE STOMPING!..I have said more cuss words in the past 2 months then my whole life!..One day, honest to goodness, I had this horrible STRONG urge to just stand in my den and say two or three sentences with nothing but curse words in it..frustration and anger is all it is.  Did you sleep well last night? I sincerely hope so! You may need muscle relaxers. Soma is one I take..its light and with pm..generally good night sleep.

WOOHOOO Cyndie.  I think that will need to be my ringtone that week I leave!    And i do beleive I already have that in my itunes account from a few summers ago.  It was on my "pool party" playlist.  Twice a summer we used to rent the clubs pool after hours for a pool party with just about 30 of our closest friends.  It was a total blast because we got to break all the rules like going down the slide headfirst (which was more fun than going down feet first).  My son's swim coach would put a lounge chair in the bottom of the deep end for the life guards to find the next morning (most of them were his swimmers).  one year we took a pic of him 12 feet down sitting in a chair using my waterproof camera.  

I'm still jealous thinking of Cyndie at the beach.  I'm hoping that my skin holds up well enough that I feel like going to the ocean while I'm in new england, but I"m not sure what will happen.  Maybe we can do the beach in CT at the end of my trip. 

Hope you slept better last night Annie.  

Cyndy-You are in my heaven!!  I'm so happy you have the chance to be there..no better place, in my mind!

Janet-No need to be jealous...we are all going to be sooo jealous of you! It tires me just thinking of all you are going to be doing!  Your parties sound so much fun!! I may just have to crash one one day.

Ann-Im really excited about the get away and meeting all of you guys!  I think May will be a great time..1 year anniversary..and hopefully we will all be done or just about done by then. Plus have time for financials to settle down.

Melanie, does Amelia Ave and that area have blue water?  The water at the beaches in SC is grey..would be nice to see some blue....and by the way, are you ok?  Haven't heard from you in a bit.

Well Im off to take a nap. My husband is working 12 hours today (his day off) to help with bills, etc..and Im so lazy and sleepy (didnt sleep long enough)..that I should feel guilty.  But too tired to...lol.

Martha-I am from Spartanburg, SC.  Its in the upstate.  My sister lives in Summerville, though..which is close to Charleston.  Cyndy-aka Chimneymae-lives in Darlington..so she's close to Myrtle Beach..and is there now..well pretty much..lol./ Im glad they are going to redo the surgery and put your drain back in..I believe is safer that way and the only end to it..also..those demon drains do have a wonderful purpose!! I'm sorry you have had so many complications!  I can relate, as I feel I will never get to the chemo portion of my treatment!! I'm probaly the only person that is in a hurry and wants this done..I'm scared so rogue cancer cell is multiplying in me..or nesting somewhere that they can't get to it!!

Has anyone had xrays, MRI's, or the like..or that PETscan?  Should I have had those?  Do those tell if cells are somewhere else like your liver??? Also, does the blood work they do at oncologist measuring some "blocks" (?) good enough to KNOW that cells nowhere else?  Ive been so wrapped up in the whole surgical experience, I havent given much thought to my oncologist. Or that portion of it..

Janet-What did the biopsy on your femur (and what is a femur?) turn up? Was it benign?  Will your ulrasound show if all is all gone? Now, Im worried about you.  I pray all goes good!  Oh one more nosey question..did you do chemo for your thyroid or did they just take it out?

I have to take thyroid meds..matter of fact, my sister and Mom do too.  If I forget mine meds for more than 3 days..I feel like I've been hit by the flu bus..so can't imagine what all you went through!  Well, I think I need them to do some kind of xray or scan to make sure nothing is anywhere.  Onc Dr seems to think I don't need it,,,however, this is same man that said "I think MX and chemo would be overkill". I still don't understand why he didn't do chemo before he did lumpectomy.  Anywayyy..that horse has already been rode.  I wonder if they will order one if I ask?

Well, Im typing on here instead of cleaning my messy house up. Sighhh..

Janet, where did you say you were from?

good afternoon ladies.. I just dropped my oldest off at his bus for summer camp.  He's in Air Cadets and is gone for 3 full weeks.  When he gets back.. my hair might be starting to fall out due to my chemo.  He comes home the day after my second round.  I had to hold back the tears and tell him I would be the same mommy.. just bald.  *sigh* time for a nap.  I am exhausted this weekend.  

Hi, everyone. Party's over, and we had a decent turnout. My dh ended up making 8 pizzas.



It was incredibly hot. About 85* with higher than normal humidity. I thought I would melt! Sorry, girls, it was way too hot for anything but water! Around 4 the cupcakes started melting...



I did try to take it easy, but was probably more active than I should have been. Add to that the heat, and I am ready for this day to be done. Except, of course, that my dh has to go back to IN tomorrow.



Did I mention that instill have one drain? I amREALLY ready to be done with it, but I'm still at 30 cc's after 3 1/2 weeks. I wonder what the PS will say onTuesday?? He had said he probably wouldn't let it go past4 weeks, but he almost always regretted pulling drains before the output was down.

Heather, how old is your daughter? Do you have other children?

Steph- My dd is nine and my twin boys are twelve. Hubby counts as fourth child about 1/3 of the year....LOL

Hang in there Melissa! It is tough but you can do it!

Good Morning Friends! I hope everyone slept well!

Jerri-Let us know how you are doing..I hope you are painfree!

Janet-Wow with the buttons!  I  was thinking, I bet the love you up there!  You have such a great and funny plus positive attitude..I bet you are a ray of sunshine!

Heather-Im glad your trip went well! I looked just now to see if the Verizon call center in Charlotte was hiring, but they aren't. I'll keep checking.  If you would want to do something like that..I could help get you on. 1 week before all this came down, my supervisor recomended me to go on to Training Asst..so I have some clout there...lol..not sure if they remember who I am now..lol..But they start at 14 hour so if you don't mind that type of customer service..its good jobs..and great benefits! Insurance starts on your 2nd week..One thing about them is they are all about integrity and works with them too..as I  have been out of FLMA for about a month now..they could have let me go..but told me to not worry about my job would be waiting when I was able to come back.

Steph-Im glad it all went well for you!...you know its time to rest now!!  Can you see my avatar ok now? It looks fine to me, but I could put another pic in ,,if showing to ya'll as wrong..I have 3000 pics of my fur baby. I need to get hub to take pic of me..have none by myself.