May 2013 surgeries
Comments
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sorry Run.. your not the only one.. I'm gonna rant to.. but off topic. DH's company was bought out by another company over a year ago. Things have been going down hill ever since, and I had been warning him, that they will close down, just you wait. Well today we get the memo that he has to switch locations! WTF?!?!?!? He walks to work.. we both walk to work. Now he's going on the other freaken side of the city to work! I'm stamping my feet like a 2 year old in a temper tantrum right now! We so don't need this! We only have 1 vehicle and then we have to find a sitter for after when school starts. It's all spiralling down hill and I DON'T LIKE IT! I down right hate it! I HATE CANCER, I HATE I LOST MY GIRLS, I HATE MY PORT HURTS, I HATE THAT DH HAS TO MOVE LOCATIONS. I'm so sorry for the pity party, but I am not sure how I am keeping myself sane!
Ok, rant over.. do I feel better.. not really, but my negativity is out and gone. Back on the positive track of life!
Whoo hoo on the sleep CK... that's awesome
happy dance!Go.. good luck with rads today
I'm sorry if i missed anyone, my brain is just not computing what I'm reading for the most part.
Healing hugs to all
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Oh and another thing.... I went yesterday to get my second fill and mentioned to the nurse that my left expander seemed lumpy. She said I may have a leak or my skin stretched out and is loose.....and I have to tell you I was in such a fog It didn't even register. I asked what does that mean and she said... they can't really do anything until I'm done with chemo. She did fill me up some more and I don't notice the left one looking smaller but it is still wavy. The doctor was in surgery so I didn't get to see him. Any suggestions on what I should do? Of course my husband says call and go back in and I know I should but I also am afraid to hear I have something else wrong. The nurse did say that it is saline and will just absorb into the body.
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Run4Us, it's possible, not probable. My nails are still holding on, just feel funny and are a bit lifted. I'm hoping to baby them til the lifting grows out. So far so good. Eyelashes are returning thick, just short right now. Eyebrows are coming back, I had to use hair remover cream on my "mustache" for the first time since January, and I'm shaving my armpits and legs daily once again.
Remember, most of this crap is temporary. Just need to get through these crappy months. (((HUGS)))
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Melissa- Hugs, I am so sorry that you guys have to deal with that now.
Run- If I had kept my nails painted with clear nail polish I dont think I would have lost that nail. I know plenty of women who make it through without losing any nails so think psitively!
It really is overwhelming for us all isnt it? I tried to go to the bank today but there was such a long line and I couldnt stand in it so I just left. So frustrqting to feel so weak!
Good news is that I was able to do a lap around the double cul de sac last night which is huge for me. First we fight for our lives and then we fight to get our world back in order. Crazy stuff indeed! -
Melanie-I had to look to know what you are talking about. When I filled out bio, I had just learned I had this and didn't know what half the stuff meant. Just copied from my path report. Now, looking at that I have no idea what it means by mets. Can you enlighten me on what mets is? I feel extremely ignorant at this moment..lol.
Lisa-I was the same way when I found out you lose ALL your hair on your body! It had never occured to me!!! I was like NOT MY EYEBROWS OR EYELASHES! ..wonder can you ice your face!
..I know some use that Bryan Joseph (if I am saying that right) and say it works..but too expensive for me on a maybe.**Well happy day
!!! Stitches are out and I didn't feel anything//tugging or anything. This whole no nerve endings working at MX site has its advantages. Also, --and this is main happy thing-- I get to start to work on Monday..yeaaaa! and starting chemo on time..7/25...kinda yeaaa...I just want to get done! I know, I know..Ive said and thought all this before, but unless my remaining breasts decides to fall off...I think all is well! I keep telling people..."Im starting chemo on June 25th..and they are like "you mean, JULY"...and I say.."Look..I had 2 surgeries in June with infection and was on drugs entire month..I lost that month!"..Lisa good question in ref to ice in mouth with fingers/toes in ice. lol
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Hey, just got in from 3rd fill and I can proudly say I look 12! WooHoo
Chemo 3 tomorrow so I'm doing my "laps" from the family room to the bathroom since I'm drinking water like crazy! My bladder was never strong to begin with LOL!
CK- love you sense of humor!
Run4Us, I chuckled about your sharing your experience with your Mom. This has happened with me a couple if times when ppl visit my house.
Melissa, I'm thinking about you. You have EVERY right to have pity party - you are going through a rough time. Stay strong, sister, you can do this.
Melanie, Heather and Janet, thanks for the nail tips!
Another night last night of restless arm - my PS said its probably over active nerves due to the surgery and I should try 800 ml of ibuprofen. Wish me luck!
My brother came up from St Louis to take me to Chemo #3 tomorrow. I'm so excited to see him!
Ok, need to pee.....AGAIN....
Love and hugs to all! -
"My mom came over and I forgot to tell her that I shaved my head". Lisa, I don't know why, but I found this hilarious! I can only imagine my mother's face if I did something like that!!
You guys really need to be careful when you're talking about donuts and then you switch the topic to icing. I was trying to figure out why you would put frosting on your fingers and toes!
Melissa, so sorry about the job issues with your husband. I know how frustrating that must be. I am so so glad that my kids are no longer doing daycare! Hey, maybe I'll quit my stressful job, and come work for you. After all, doing daycare has to be less stressful than working in a political office, right?!?
Lisa, I don't know much about tissue expanders, but I have heard that the waviness is normal. At least until they're completely full.
Cyndie, "mets" Means metastasized. This is a big deal. Reread your pathology report and see if it says that you do have mets or not, and if so where they are. Definitely get back with us! And if you don't understand your pathology report, talk to a doctor tomorrow! I'm not trying to scare you, but this really is a big deal. I'm sure your doctors are aware of it. But you need to know for yourself exactly what you're dealing with.
Okay. I met with the gynecologist today. She did a uterine biopsy today. Said there would be some cramping, yeah like there's some pain! I swear, I think the cramping was worse than any of the other pains I've dealt with! Of course, I'm blessed with short-term memory when it comes to pain. LOL. This probably didn't hurt as badly as some of the other things, but he don't remember the other things as well as I remember what happened today!
Once we have the biopsy results, we can decide how we're going to move forward. My GYN will talk to my oncologist and also to my plastic surgeon. The GYN says that we can wait on the surgery if the biopsy comes back normal. The plastic surgeon wants to wait on surgery until I've completely healed from my tram flap procedure. The oncologist is anxious to get things going. For now, I'm back to waiting on test results.
Did I mention that when I met with my plastic surgeon yesterday he wants me to start wearing a bra? Yuck!
And then there's work. I plan on going back full time starting Monday, but I asked the plastic surgeon to specify in my "return to work" notice that I cannot work overtime until I have a follow-up with him. They've been really good about my needs, and my health. But being short staffed at work (I don't just mean me) Is putting a lot of stress on my coworkers, and I'm feeling guilty about it. I already have two nighttime meetings next week, so I'll be going in late those days to make sure I don't do any overtime. I want to be extra careful that I don't overdo it. At least not until I've completely beaten this breast-cancer beast!
In the spirit of doughnuts and icing, I've decided to have McDonald's for dinner, complete with three chocolate chip cookies! My dinner is arriving now, so I will sign off until later! -
Run if you keep your nails polished it will help. And it was hard to manage ice in my mouth and on my nails. lol. I also dont remember having a dent in my tissue expanders. However the bothered me so bad Im sure I wouldnt have noticed it.
Ck you probably read either macrometastesis or micrometastesis to a lymphnode. That doesnt count as metastatic disease. Metastatic disease is when it goes to bone , brain, or other organs and it is considered to be stage 4 then.
Annie, just to suggest something. I had bad bone pain and neuropathy from the taxotere that I was on so maybe the taxol is giving you that restless arm sensation.
Steph good luck on biopsy results.
Melissa Im sorry you are having such a rough time.
Healing hugs
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I've actually had my fingers painted constantlly since my diagnosis. The day after I found out it was cancer I went, I think I went 3 times during chemo, and once a few weeks ago. I will go again just before my vacation. I like my salon that my nails are done in, and they've been really good about doing just minimal work on my hands since I'm worried about them falling off. I do, however, get the works for my pedicure, including paraffin and hot rock massage.
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Ok...yes, (and Im glad you advised of the differences..as I was beginning to hyperventilate..yes that would be a VERY big deal)...no, it was lymph and surgeon did explain all this after MX..that seems soooo long ago!..and he said that it was seriously walking the line between micrometastesis and macrometastesis..that the pathologist even had conversation and said he didn't know which one to put..so he went with worst case..doing the macro. This will be taken off.
Steph-I know just what you mean about biopsy hurting..Ive had one on my cervix and uterus about 15 years ago and is still EXTREMELY VIVID in my mind. Not to mention I was at teaching hospital so there was a GROUP of young wanna be doctors staring..
...Good luck with that and I will be praying for good result!Annie-Good luck to a easy chemo tomorrow!..and how great your brother came up! Is he your only sibling? OH-question,,are you able to drive after getting chemo treatment? Ive heard the meds they give you for side effects make you drunky acting...(Is drunky a word?lol)
Heather-Awesome news about the lap!! If I'd have been there I'd have played http://www.youtube.com/watch?v=btPJPFnesV4 for you!! I'm sooo happy for you!
Annie and Lisa -Make sure you are using those condoms! The first 48 hours is crucial....LOL>
I hope everyone is doing well tonight and I hope everyone has a good night sleep.
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test to make sure mets is gone
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I want to say thank you to all of you. You make me laugh so much and I sure do wish we had a like button!
I had a ok sleep last night. So much better than I have had in over a week. Only woke up about 4 times. Pretty good for me right now. The nerve is finally settled down today so I am going to take some ibuprofen pm tonight again and see if it will be even better tonight.
Funny tonight, Shila (my shih tzu) decided she just had to go potty. Of course we have had rain every day for over a month now and tonight it was pouring down sheets of rain. Shila can't decide if she wants to go out that bad, so she keeps heading to the steps to get off our front porch and the rain is pouring out of the gutters it is raining so hard and fast, so she keeps backing up then trying to get through the rain and changes her mind at the last minute. She finally gives it up and takes off at a hard run down the 3 steps, trips on the last flips, gets up and looks as me like I did it, shakes and takes off again to go to the side of the yard. She was a soaked puppy by the time she got done. I was laughing at her so hard I had to sit on the porch swing. She rolled around all over the house even though I had my son dry her off with a towel. Of course if she would have just waited 10 more minutes, it was done raining by then. Now she is doing her snoring thing. My sister when she came to stay with me a week after the mx, Mary said Shila snored louder than her husband even.... Lol -
CK: LOL LOL LOL HAHAHA
I am dying laughing about your condom advice. I haven't been in a date in 3 years. Should I what, make balloon animals?
The first treatment, I think I could have driven. The second, I kept nodding off (I was a passenger not the driver) and talking out loud while I was half asleep. The interesting thing was that nothing I was saying had anything to do with the actual conversation taking place.
CK, thanks for your well wishes for tomorrow. -
Oh, Annie where at in St. Louis? I am from a little town right outside of St.Louis on the IL side. How wonderful he could come for a visit.
My prayers for today is for all of us to have a hug even a cyber one and a good laugh. -
Balloon animals would be fun, just hang them from the ceiling of your bedroom so you will have company. You don't need a man to make you happy! That is what a vibrator is for just condom it... Lol
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Jerrie, how funny! My goldens could care less about the rain, but your description is so vivid I can see it!
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Yes Annie have a uneventful chemo. I used the time to sleep. Prayers sent that you wont be ill.
Ck I was able to drive but I think it was because i ate peanut butter crackers and slept. I carried a picnic with me lol. Peanut butter and jelly sandwiches , many bottles of water, popsicles and ice. I carried a blanket and meditation music. I just brought a party and would nap once I was full and comfortable. -
I brought my kindle to chemo. That was it. There are volunteers there that bring you warm blankets if you want them. They also have a kitchen stocked with a kerig machine, soda, juice, water, and crackers/cookies. I was too busy socializing with the nurses to ever listen to my ipod or watch tv.
Hope you have an uneventful chemo Annie and enjoy your brother's visit.
I never drove myself to chemo because I got wiped out from the IV benedryl they gave me. My husband drove me to most of them, but a few I went with friends/family.
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Annie, I'll be thinking of you tomorrow....you got this!!! Looks like our schedules are close together....I had my 2nd fill yesterday...feeling pretty good today - not very sore. I'm saying a prayer that I don't have a leak because I don't want to have to prolong any of the treatments. My 3rd chemo is next week, so we are back to back. I know you mentioned but how many treatments are you having? I'm having 8 total.
Melissa....We all have our days of stress.... you are dealing with a lot and job issues are a lot of stress. Sometimes when I think of the amount of money we need to come up with for these medical bills I want to eat a donut or 12!!!
Steph.... Good luck with your biopsy. I had my uterus out about 4 years ago because while I was on Tamoxifen ...my uterus started to thicken so they decided to take it. I still have my ovaries but it looks like when I'm finished with chemo those will be coming out too. With this BC being a recurrence they want to shut as much estrogen down in my body that they can.
Now only because you mentioned Mcdonalds Steph, I must confess..... I had it yesterday for lunch. Shhh...don't tell. After I went and got the girls pumped up yesterday I drove through. I hadn't had it in ages and decided what the hell..... I actually blame you Cyndie...with all the talk of donuts you pushed me to eating junk!! ;-)
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You know, I can't remember the last time I had McDonalds. Fast food just no longer appeals to me. I have been spotted grabbing a breakfast sandwich at Sheetz once in a while though. Monday when I had time between appointments, I ate at the cafeteria at the hospital. Had Awesome Broccoli casserole. It wasn't so awesome, but that was the name of it. Next time I'm going to order the blt and fries like I did last time. That was good.
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Good Morning! I was just reading through post I missed last night..and laughed and laughed all the way to the end! What a nice way to wake up.
Janet-That was too funny! I was thinking as I was reading our cafe sucks..only good thing in it is the fries..and then you said that was the name of it!! lol
Annie-OMG..balloon animals!! lol..That would eliminate the need for condoms! Yes. Oh Oh..you could make balloon animals out of condoms! Seriously, I hope everything goes well for you today. I will be thinking of you!
Jerri-My mom has that same kind of dog and she is so cute! I pictured the whole thing while reading your posts! lol..My dog believes rain, water standing in the yard, and wet grass to be some sort of moltan lava. If we go out when its just starting to rain, every drop that hits her she winces and jerks like its fire raining down. Luckily, she is very housetrained because she will hold it till she can't stand it anymore when its rainy. I see you are changing your town. When is the big move?
Lisa-I barely mentioned donuts..all your fellow sisters in arms were the ones jonesing on here..one even snuck in "pink icing" on my facebook page..not mentioning any names...JANET..lol..bad influences! I resisted though..had a new recipe for baked tilapia and made that with corn on the cob, green beans with carrots..all from garden..except fish, of course. I'm not one for baked fish..but recipe was super easy and turned out good..my hub even liked (and he is a HUGE fan of fried food). Course he never gains hardly..not fair. If ya'll want recipe, Ill post link.
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Cyndie, thanks for providing me with your email address. I just sent you a few pictures from my party.
Ladies, I will catch up with you soon. Continued prayers for all of you.
Ann -
Melanie=I think thats a good idea..about bringing peanut butter crackers and such to snack on ...maybe keep sugar and body leveled out. I read somewhere that someone brings a bag of cheerios too. I wonder is it honey nut or plain? Probaly plain. But eats it dry. I've been really trying to research the best things to eat.
Did any of ya'll get that cookbook at your oncologist? Eating Well Through Cancer? Its for when you have chemo..its got loads of recipes and they are even in a graph in the front as what to eat for mouth sores, constipation, nausea, the day of chemo..etc...Its pretty cool. Lisa and Annie let me know if you don't have one, I'll see if I can get you one..especially McLisa needs one
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I got handouts from the nutritionist during chemo. That's where I got the idea for lemonade and pickles which carried me through chemo. The other things i remember is, avoid fresh spinach, avoid salads during the days your cell counts are low, avoid whole grains during the first 3 or 4 days, eat lots of small meals, bigger meals or empty stomach will make you nauseous.
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Ann-Just looked at your pics!! WOW..I wish I could have been there! That table was very pretty and I love boob pinata LOL..You are right no confusion on the type of party! LOL..Thanks so much for sharing those! I love that you found a way to have fun and it sounds like you have a great bunch of people surrounding you!
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Janet-did you see those pics? The pinata reminds me of something I could see you doing..lol..Course they would have buttons in place of nipples!
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when I looked on her page, it was just one pic of a bunch of pics and it was tiny. Couldn't see much.
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Send her your email in a PM and she will send them to you that way. I clicked on the tiny pic and it did a slide show
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Question-what do ya'll wear in place of breasts when you go out? Do you have prostetics? or the puff thing? My surgeon won't let me do prostetic yet..says I need to heal..I like the puff things better than just stuffing with socks or washrags..however, puffs are the worst for becoming extremely perky! I'm going today to fabric store, I read in my holy grail BC manual that a lot of people use suspenders to keep bra/camisole pulled down..or weights like they use in curtains..Im sure Ive asked this before, but brain now free of drugs and could remember.
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I would love to add you guys on Facebook, but my name is so common and that You'd have a devil of a time finding me. Any ideas?
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