Implants removal with no Reconstructions- Scared

Options

Hi Ladies

I am having my saline implants removed in two weeks. They have been so uncomfortable since my BMX last year.  I am not having any new ones put in. So I will be "caved in" according to my PS.  I am not sure how to take her words.  I know I will be flat and I want that.  I will have two drains.  Not too sure how long they will last. This is my second round with drains.  I am one year cancer free.  I am  looking for a bit of support from women who are comfortable living without reconstruction.   Please let me know what I can expect being flat instead of "caved in".

«134

Comments

  • PiperPete
    PiperPete Member Posts: 2
    edited July 2013

    Hello,

    I started reconstruction after my BMX in December 2011, but had complications and had the tissue expanders removed in March 2012 without any further reconstruction. I do have the "caved in" appearance because the area of my chest above the surgery has a normal layer of body fat and tissue. The area of the surgery has none of that and the skin is flat against my ribs without any "cushioning." That causes the "caved in" look. It doesn't particularly bother me. If I wear loose shirts, they fall from the area with the body fat so that the caved in look isn't noticeable. There are photos on this website of others who have chosen not to have reconstruction. That should give you a better idea of what to expect. http://community.breastcancer.org/forum/82/topic/610613

  • PiperPete
    PiperPete Member Posts: 2
    edited July 2013

    Also, check out the photos on this website: http://www.breastfree.org/

  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2013

    I never reconstructed. After my BMX, I had a concave appearance but then I flattened out. It just seems that a PS could give you a flat chest. I would ask why s/he can't(?) make you flat. Aren't plastic surgeons  suppose to be good at altering the body?

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    Lezza, I am not sure why you would end up concave. When I was first DXed, a friend told me I would need forms or recon, because I would be concave. It turns out that this friend has another friend with BC, and that is what the PS said and that was why this friend chose recon.

    Some women DO end up looking concave, but most commonly in cases of advanced cancer where part of the chest wall is removed.

    Also, women who carry a bit of extra weight often complain that their bellies look more prominent without boobs to balance it out.

    However, if you look concave because of extra fat above and below the breast line, then diet and exercise can fix an awful lot of that, if it really bothers you. Still, I have seen a lot of pictures at this point, and most women look just fine. I don't have a picture of myself handy, but the woman in this link looks very similar to how I look: http://www.breastfree.org/photos.php?ref=10

    What I would insist on with the PS is that she make the scar as neat and flat as possible. Sometimes surgeons get rather sloppy, for reasons I do not understand, and leave extra skin, lumps and bumps. Show her pictures of how you want to look, discuss with her etc.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited July 2013

    I am concave ...the surgeon took my skin right to the ribs, so you can see the raised ridge around the breast, then ribs in the center. It never filled in (3 years).

    But I don't think it is a big deal. I am cancer free, pain free if I don't wear foobs, and I am set on enjoying life. I think only Angelina Jolie is going to come out of these surgeries looking perfect, that is just a jaded guess.

    You are uncomfortable with the implants, so you are looking for a better way of living, I admire you. I personally choose interesting ways to dress...or i just am ok with being flat...this is who I am now.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2013

    My ribs are prominent. I joke that you can play them like guitars strings(not really). I think what bothers me(not very much) is the way the ribs appear right under my colar bones. I'm not sure they were even visible prior to BMX.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    Hi Ladies

    Thanks for all your answers.

    PiperPete:  I have checked out the website and have seen the pictures.  That has given me the idea and I know I am not alone by any means with my decision.  I do like the website and I appreciate your comments

    coraleliz:  She said she could not make me totally flat.  I am pretty concave now with the AA fake implants.  I suppose the rest should not matter.

    crystalphm: thanks for the comments. I think that is what has happened to me. I cover my implants now and I can see not having them. I agree being cancer free and pain free is most important and no more mammograms. I will just have to accept who I am.  Pain fee is my motivator, getting used to my "new" me will take a bit of time

    Momine- I chose recon because of the way she said I would look.  I am pretty concave now since I went from a DD to AA in implants.  Lots of chest wall was removed with the tumor but that is the good news.  I will just have to get used to being flat and live with it just like everyone else. The positive is that I want to be pain free and not care about fake breasts or any recon jobs.  I can always wear those foobs but I doubt I will. Thanks for the imput

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    Lezza, yes, reading Crystal's explanation, I see how the concave thing can happen. I have almost no meat on my entire front. All the docs commented on my freakily thin muscle cover. So that probably explains why I am just plain flat (and why I have a terrible back).

    But I think you have the exact right idea. #1 is feeling well, functioning and hopefully being pain-free. As you say, if the esthetics bother you, foobs can help. I wear tiny foobs most of the time. Just enough to make a small bump. You will find a way that works for you.

    Also check out the group Flat and Fabulous on facebook. It is a closed group, but we are hundreds of flat women there, and you can see lots of pics and get lots of tips.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    Momine:

    Thanks for the tips and the advice. I will check out of the Facebook website too.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Leeza

    After 6 years I just had my very small (300cc) silicone implants removed. HATED how they felt, constricted feeling when I moved with them under the pec muscles.  Still recovering from removal, so a little sore and swollen.  I too have the "concave" look, with the dog ears under each arm ( I am heavy to begin with) - that can be removed if I want them removed.  NO DRAINS, surprised you'd be given them, but guess each PS is different.  My PS removed them in her office, she preferred hospital, but was willing to do it in her office. SO glad to have done it that way.  Drove to her office, and then drove the 15 miles home. FINE.  No pain, weird feeling when the implant was finally pulled out - just weird, but no pain.  Think the local numbing injection was Lidocaine?  Only felt it a little when she wiggled the needle, kinda like when the dentist numbs your gum before drilling.

    I have a wide rib structure, with more prominent sternum, so YUP, concave.  AND HAPPY.  Feel better than I have in 6 years, honestly, that's more important to me than anything cosmetic.  Oh, meant to say, one of the silicone impants had ruptured, I didn't know it, just felt a little harder than the other one.

    I think the very THIN women I know, with a smaller rib cage, look flatter than I do.  Good luck.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited July 2013

    Sunflower: You had yours removed in the office? That is so encouraging to hear. I want mine removed because it has a tear deep inside (according to the breast MRI) I had. It is not surprising since it has been in there 31 years!  But I wasn't sure it could be done in the office. Sure would like to skip the expense of the hospital. I will try to find a PS who will do it in the office.

    Piper Pete: My friend had a double mastectomy w/o reconstruction. She went back for some additional surgery due to extra skin, bumps etc. She said she looks nice and flat now.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Yup, my PS is wonderful.  She was the one who put in the implants, after the other PS who put in the expanders and made SUCH A MESS OF IT - so she had the notes of all the work she had to do to "clean out the pocket" of the one so irritated by the expander.

    Her PREFERENCE was to do it in the hospital, but agreed to do it in her office.  I'm a pretty calm, strong person, and I think she knew I'd be ok.  She was surprised when she found one of them had ruptured - some of the silicone has "oozed" out into the pocket/capsule - and she was even prepared for that - many sterile saline syringes there for washing it all out - before stitching it up.  She made the incision in the same scar from the original implant.

    I think MOST PS's would want to do a 31 year old implant in a hospital.  A good friend of mine in her 80's had one removed, it had ruptured, and there were "lumps" all over her chest, and the same PS I use did it in the hospital.

    If your implant has not ruptured, maybe it could be done in a PS office.  Good luck.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    BTW - if the removal of an implant placed after BC tears/ruptures -I think ALL insurance has to cover it.  Check with our state to see.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited July 2013

    I'm pretty sure it would be covered--

    probably you are right - they would want to remove such an old implant in a hospital setting. Also, I'm 77, have high BP and occasional Afibs so-----it is also pretty much encapsulated so might be difficult to remove. It has moved sideways and upwards and has dimples and bumps in it - due to my weight lifting (I think).

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    I love it - 77 years young & weightlifting....I'm 68 years young - and look forward to doing the exercises I love, mostly yoga without feeling like my chest is in a vice.  My friend had her ruptured implant removed after about 30 years and as an OLD silicone, the lumps, bumps, etc. were literally all over the place.  She had it done in hospital was supposed to be an out patient, but she also has diabetes, and seems the surgery made her blood sugar go bonkers, so she had to stay overnight.  She had one of the newer silicone implants, and after a FIGHT ( we all helped her navigate & get help from her congressperson) Medicare DID cover it all.  She also was a bc survivor. The implant had been ruptured for YEARS.  She was just "too busy" to get it removed....

  • Nancy89
    Nancy89 Member Posts: 2
    edited July 2013

    I had a unilateral modified radical mastectomy and immediate reconstruction. It was a nightmare and I lived in pain for around 16 years with my reconstruction. I had it redone once hoping to alleviate some of the pain and have it be more similar in size to my healthy breast.



    The implant broke spontaneously 6 years ago. It was saline, thank goodness. I decided to have it removed only and not replaced. My plastic surgeon said he would do his best not to leave a sink hole where the implant had been. There is no hole and it is not completely flat. He used some extra skin that was there from the implant being removed and made it not bad to look at.



    I was amazed at how well he did that. He said he removed the implant and lots of scar tissue. He said he believed the pain would be gone or at least greatly diminished, which was the case. It took me no time to accept the removal of the implant and use a prosthesis. I have several good prosthesis. It has been a lot of trial and error in finding something comfortable.



    It does make me sweat in hot weather and I find that very uncomfortable. I am so much more comfortable without it. I feel that my quality of life would be very much improved by having my healthy breast removed but am reluctant to go through the major surgery for cosmetic reasons. It would be so wonderful to go bra free and never worry about feeling uncomfortable with a bra and/or prosthesis again. Or I could wear very small light weight foam ones. I really wish I did not have any breasts and was even on both sides.



    I can not decide whether or not to broach this question with a plastic surgeon. I do not like pain and have a very low pain threshold. Having the implant removed was totally pain free. I never needed one pain pill. I did have one or two drains ( can't remember) for one week. It was an inconvenience but not painful. Obviously he was a very skilled plastic surgeon.



    Had I known then what I know now, I would have had both breasts removed at the same time and no reconstruction. I knew nothing back then. Absolutely nothing. I had no idea the implant would be a constant source of pain. Talk about not being able to move on after breast cancer...that is exactly what reconstruction did to me.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Nancy - I am so sorry you had such a difficult experience.  I had a BLM, rather than a UNI, tho I had to work very hard to convince my surgeon to do it - kept saying "they may not pay for it" - and I insisted that I WOULD if "they" wouldn't.  Well, BCBS paid - and I had quite a bit of "suspicious" tissue in the "good breast."

    Think one of the most difficult things about bc, is it SO throws us off balance, we easily lose the connection to our INSTINCT, our GUT sense. 

    If you can afford it, talk to the PS about a mastectomy.  At least then you'll know what your OPTIONS are.  The pain is SHORT TERM, the ease, comfort, is for the rest of your we hope very long life!  You deserve it.

    I haven't gotten any prothesis yet - been told the silicone is heavy and HOT - I think I fancy a little cammi, which I cold never wear cuz my own breasts were so large - maybe with a little foam prothesis just to fill in the "concave" parts I have.  Which, may lessen, my PS says it takes about 3 to 4 months for things to "settle" - so if some of the fat moves, I may not even need a prothesis.  Will drive MILES to get to a Nordstrom.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    Hi Ladies. I would have posted sooner but I just had surgery on the 17th to remove the implants.

    Sunflower, I don't know how you were able to do it in the office.  There is no way I could have mastered that. I have two drains and am happy to be without the painful implants but I needed the recovery room support and lots of pain medicaiton.  Thank you though.  Three days out and I feel so much lighter without the implants. HAPPY is the key word. I think I will stick with cami and not silcone foobs or nothings.  My own breasts were big too so I think my old bras might work on their own. I am in my 50's and will be happyto be pain free. I appreciate all fo your comments

    dogsandjogs:  All of it should be covered. I just had to pay the hosptial my coinsurance, that was it.

    Piper Pete My PS did say she might have to fix a flap or bump in her office in a few months this surgery But she said  it is such a minor proceduce to nip and tuck.  It so nice not to feel those painful implants inside.

    Nancy:  Sorry you have had to go through with so much. I agree with sunflower. I would go for the masectomy.  To me comfort and pain free was my goal getting these implants out and I am happy with my decision.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    Hi Ladies. I would have posted sooner but I just had surgery on the 17th to remove the implants.

    Sunflower, I don't know how you were able to do it in the office.  There is no way I could have mastered that. I have two drains and am happy to be without the painful implants but I needed the recovery room support and lots of pain medicaiton.  Thank you though.  Three days out and I feel so much lighter without the implants. HAPPY is the key word. I think I will stick with cami and not silcone foobs or nothings.  My own breasts were big too so I think my old bras might work on their own. I am in my 50's and will be happyto be pain free. I appreciate all fo your comments

    dogsandjogs:  All of it should be covered. I just had to pay the hosptial my coinsurance, that was it.

    Piper Pete My PS did say she might have to fix a flap or bump in her office in a few months this surgery But she said  it is such a minor proceduce to nip and tuck.  It so nice not to feel those painful implants inside.

    Nancy:  Sorry you have had to go through with so much. I agree with sunflower. I would go for the masectomy.  To me comfort and pain free was my goal getting these implants out and I am happy with my decision.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Lezza - I had VERY VERY small implants ( 300cc) just needed a small incision in the same scar used to implant, and PS pulled them out.  No drains, no pain, felt weird when she pulled it out - but no pain.  Didn't expect any, very small procedure.  She removes small ones in her office all the time.  Looks like a mini hospital room, all stuff sterilized, PS & her assistant wearing masks, gloves, me draped in sheet, towels, all sterilized. I wouldn't call myself brave as much as CHEAP.    PS needed to clean out the side where the implant had ruptured - huge sterile needles filled with sterile saline pumped in, and voila - all clean, done.  More towels neededWink - but again,no pain.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    sunflowersMA:  Glad your procedure was pain and drain free.  Mine were double A's but surrounded by lots of tissue so that is why I need the drains. They will be out in two weeks sot that is the good news.  She did say she could tigher areas that are not flat in a few months, after your experience, I believe her now. Thanks for sharing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Leeza - my PS was very clear it takes a few months for "things to settle" - that there will be changes.  I can see some just in the week since I had the implants removed.  Feels SO SO SO good to be without them.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    SunflowersMA:  thanks for letting me know it takes time for "things to settle"  I am seven days post op and want to see the results so it is great to know I need to  have some patience.  Yes, I agree:  It is so so good to be without them.  Nice to know someone that feels the same relief I do.

  • Lezza13
    Lezza13 Member Posts: 957
    edited July 2013

    Thanks to all of you ladies who answered my posts.  The drains are due to come out within seven days so I hope to be off pain meds by then. Healing will happen with time and yes, I am happy to be flat and free with a little nip and tuck later this year.

    Wishing all of you the best of everything. I shall have to change my signature.  All the best!

  • Katlebbie
    Katlebbie Member Posts: 912
    edited August 2013

    dogsandjogs Hi I'm still reading through this site trying to find someone who had a rupture in their implant when I noticed that you had yours for 31 years and you have a rupture. I also think one or both of mine are ruptured. Are there any symptoms? I have some pain that I haven't had before plus some back pain in that area. To me they don't look as full as they use too and now they have a different funny shape. I have had mine for 20 years. I saw a PS two weeks ago and she suspects the same plus she says I have capsular contracture . I am waiting for my insurance to see if it is covered which is another question I have if anyone knows the answer to it. Is the surgery to remove and replace with new ones covered? I had my mx because of fibrocystic disease and not cancer. Do you have any answers?

    Kat

  • Katlebbie
    Katlebbie Member Posts: 912
    edited August 2013

    Lezza I am happy to hear that everything is going well. Keep up the good work and I wish you a speedy recovery!

    Kat

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Katlebbie - your insurance SHOULD cover it, depending upon how your surgery was "written up" - preventative, pre cancer, etc.  Your surgeon can help with this information.  I didn't know my silicone implant had ruptured, PS felt the implant at appointment b4 removal, and she didn't think it was either.  With the newer implants, don't know if that includes yours - the leaking silicone sticks to the outside of the implant and "stays in the pocket" - the older ones could leak into the body.

    Leeza - my new MUCH LOVED flat chest is still "settling" - and if you loved your childhood days, think this will remind you of them Wink  IT FEELS SO GOOD TO BE WITHOUT IMPLANTS.LaughingKissTongue Out

  • Katlebbie
    Katlebbie Member Posts: 912
    edited August 2013

    SunflowersMa - Thank you for your reply! I hope you are right about the insurance, the surgeon sent in the information to the insurance company on the 18th of July and I still haven't heard anything. I called the PS office and they haven't heard anything yet either. The Office Manager had a few choice words about dealing with the insurance company though....Embarassed I guess she felt I was someone she could vent to! I was happy to listen! Laughing I'm not sure what type of implants I have now because it's been almost 20 years and all of her records were switched to digital and all hard copies were purged if they were older than 10 years. This is Standard in my state. I used to work in Radiology. I am amazed how easy yours were to remove and that you didn't have them removed in a hospital! Are you still happy with your decision not to replace them? I think I am going to replace, she told me they now have new implants that will not leak even if the shell is ruptured. I, until recently have never had a problem with my implants and I guess I am just used to the way they feel under the pectoral mussel. I was 37 when I had my bmx and after having all of the pain from fibrocystic lumps the tightness was way better than the pain. Anyway thanks again for your reply and I wish you an easy recovery and I hope all goes well for you.

    Kat

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2013

    I have had the contracture for many years, but didn't want to do surgery just for that. The implant is hard and is very high and almost under my armpit. But I look normal in a bra.

    I haven't seen a PS yet for removal because since the cancer diagnosis I have sustained a lot fo fractures and dealing with each of those has been my top priority.

    The RA nurse did tell me the MRi showed that the leak way way inside and shouldn't be a problem.

    When I contact a PS I will update everyone. Hoping to do it soon---

  • Katlebbie
    Katlebbie Member Posts: 912
    edited August 2013

    Dogsandjogs - thanks for the reply and the information, I will think about my options. I hope all goes better for you soon! Hang in there and here is a cyber hug for you!

    Kat

Categories