Starting Chemo June 2013!?!?!

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  • KatiAK
    KatiAK Member Posts: 138
    edited July 2013

    Today is day 14, which means tomorrow is Round 2. I'm so dreading it. But round 1 wasn't that bad. Day 3 was defintely the worst but with day 4 it started getting easier. This week I've felt pretty normal. Wish I didn't have to give that up. Day 3 this round is the 4th of July. I plan to send my younger kids to the parade with their dad, then they'll watch my older son play baseball. I'll probably sleep. :(



    Sherry, thanks for the wealth of information! You've really done your research.



    I still have hair. I figure I'll lose that about the 4th as well. I dread that too. I can't even imagine a trip to the store once I'm bald. I live in a small town so it'll mean that many more explanations and conversations.

  • kmurphy
    kmurphy Member Posts: 55
    edited July 2013

    I'm a restaurant manager so when I start to lose my hair, I won't be able to hide it and will have to face it head on.  I have started to tell some of the more regular customers so that they will know what is going on and it won't be awkward when they come in.  I got a wig yesterday but, that will take some getting used to.

    I have a 4 day weekend coming up and I think I may say good bye to employees on Wednesday with a full head of hair, and show up on Monday bald!!  

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2013

    The hair part is by far the saddest part for me. I have felt ok, and now the baldness is just a kick down. So sad!! Some have said hair starts growing back on taxol?? That would be great!!!!!!! Feel good ladies. Xo

  • dlm425
    dlm425 Member Posts: 209
    edited July 2013

    Alibeth I feel the same way. I'm so depressed I look like a cancer patient a d don't want to leave my house. I know everyone tells me I look good but than again. What are the going g to say. Chemo sucks and I'm keepfeeling like I cant do this anymore. I'm so tired of hearing how brave and strong I am. This journey in my lifeis by far the hardest. I thpughtwhen my husband d was dx with leukemia that was and it was Bc my girls were only 4 and 7and I took care of all of them. I'm not surpose to be the patient. I'm a nurse ishoild he carie g for otherslikei love to do. Sorry I'm so sad and I don't want my family to know. Just needed to vent. :('''''''

  • Netter
    Netter Member Posts: 107
    edited July 2013

    You don't realize how important your hair is until it is gone.  It has a lot to do with how you feel about yourself, sadly..........  A friend sent this to me today and I wanted to share it with all of you.

                        HE GIVETH MORE GRACE

                             - Annie Johnson Flint

     

    He giveth more grace when the burdens grow greater,

        He sendeth more strength when the labors increase;

    To added affliction He addeth His mercy,

        To multiplied trials, His multiplied peace.

     

    When we have exhausted our store of endurance,

        When our strength has failed ere the day is half done,

    When we reach the end of our hoarded resources,

        Our Father's full giving is only begun.

     

    His love has no limit, his grace has no measure

        His power has no boundaries know unto men;

    For out of his infinite riches in Jesus

        He giveth and giveth and giveth again.
  • SherryMarshall
    SherryMarshall Member Posts: 39
    edited July 2013

    I hope everyone has a wonderful day. I think of all of you all day, hoping you are all fairing well. I check here often. {{{{{{Group Hugs}}}}}} Sherry

  • Jorman
    Jorman Member Posts: 5
    edited July 2013

    2nd Chemo tomorrow not looking forward to it.  hope eveyone else is doing ok.   I was not worried about hair loss before hand, thinking im a guy who cares, well turns out i do but now weare cool hat, i cant image what you women are going thru with it you are in my thoughts and prayers.   

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    Jorman, I think the hair loss bugs us all so much because its the most visible sign that we are sick. It screams "cancer patient!!" And we just want to feel normal and avoid the pitiful looks people throw our way. I am really hoping that it will empower me though, because I know it is temporary and I can let go of caring what other people think of me. It just doesn't matter to me anymore. I'm beautiful on the inside, I have a wonderful family who loves me and that's all I need. F*ck everyone else!! Be bald with pride!!

  • Sunnyskys
    Sunnyskys Member Posts: 12
    edited July 2013

    My second chemo is tomorrow too. I am really nervous again because my port has not been working for them to do my blood draws out of.  They are having me come in two hours early so they can put another drug in my port to try and open it up to get the blood out. If that doesn't work they won't do the chemo in my port either because they said there could be a bigger problem. So, that means chemo in my arm and I have a damn expensive port that won't do any good. I'm also getting the Neulesta shot which I didn't get the first time. I have been taking claritin for awhile now because my Oncolgist said that the Taxotere can also cause bone pain and the claritin would help with that. I hope it helps with the Neulesta shot. Last time without the shot my white blood count neutrophils (sp?) were at 0% so I'm praying the shot will help keep them up this time. I need to go back to work as I don't want to run out of FMLA.

    Last time I was in I was told the insurance changed their policy on the Neulesta shot and they could give it to me the same day as the chemo. Has anyone else heard that?

    I'm so sorry so many of you are having such a difficult time. For those who cannot sleep. I have two different nausea pills, one to take in the day time and Lorzipam which is like valium to take at night. It really helped me with my sleep last time so I'm hoping it will again. Also, applesauce with cinnamon was the easiest thing for me to get down. Both are good for nausea.

    Hugs to all, Sunny

  • KSil
    KSil Member Posts: 56
    edited July 2013

    I have my second treatment tomorrow too. Hoping all goes well for us. I was talking with a woman this past weekend who had node positive (about 8 or 10 nodes) she said its been so long she can't remember anymore :) the exact number. That was 19 years ago. Anyway, she had ADriamycin back then and told me her only side effects were that she was hungry all the time, and she did get tired at times. Her hair loss was the biggie, but it grew back. Anyway, I wish for all our treatments to be as smooth.

  • SC60
    SC60 Member Posts: 416
    edited July 2013

    Today is day 9. I still feel pretty awful, but I am grateful that I feel a little better. I still can't eat much and various smells bring on the nausea. While I could eat one thing yesterday, today it is intolerable. Anyone have any idea how to get my self eating and feeling better. Thanks for any and all help!

  • PegC01
    PegC01 Member Posts: 14
    edited July 2013

    Virginia, It will take time, and you will get stronger every day.   I began to feel so good around day 10.....I still get tired and still take my naps, but hey that's part of it.   My second chemo isn't until July 10, and I hope it will go smoothly.    Good luck.

  • Gingergirl1
    Gingergirl1 Member Posts: 36
    edited July 2013

    Sgc728 - i found mashed potatoes went down okay - kind of a comfort food. Everything tastes like crap for awhile. Sometimes you just have to eat what you can tolerate. Having food in your stomach keeps nausea at bay. Boost drinks and smoothies are also one way to get something in your stomach.



    Sunnyskies - I usually get Neulasta shot the day after chemo.

    I'm not sure why they would give it to you the same day.



    Hope you are both better soon!

  • KatiAK
    KatiAK Member Posts: 138
    edited July 2013

    I did my second infusion this morning.  It went well, I had them put the A in slower so the smell didn't overwhelm and I didn't get a headache right away.  I have one now tho!  This one is definitely hitting harder already so I'm a little scared of the next few days.  I feel like I weigh 1000 pounds and ran 100 miles.  I'm not moving fast.  Feeling faint and a little nauseous even with all the antinausea's they infuse.  It felt better to move around a little for awhile and I was able to eat but I'm horizontal again now.  Ugh!  I've heard the second was the hardest one.  My onc said if I feel too bad to stay hydrated to just show up at the infusion center and they would dump IV fluids in (or I work for a doc - can have it done there)  Still managing my water for now tho.  Drinking as much as I can - have that nasty tast in my mouth.

    Kmurphy - I'll probably be bald with you when I return to work on Monday and I've never been a hat person so I hate things on my head!  And I agree that it advertises your cancer to the world.

    Alibeths - I've read that your hair grows during Taxol too, but my onc told me today that what hasn't fallen out with AC will definitely go with Taxol.  Not very incouraging.

    Dim425 - I'll pray for your peace of mind.  This totally sucks and I still have days when I'm scared to death but I have to believe that after this hell we'll have at least some assurance that we get to live awhile.  Chin up girl - they say that's half the battle.

    Praying for minimal side effects for everybody!

  • IngridJ
    IngridJ Member Posts: 121
    edited July 2013

    Hi everyone,

    Day 9 of my second round today..

    Still not too bad, anyone else get a rash from CT??? Had it with first round too..

    To all those feeling unwell- hope you get a few days of reprieve before next round...:)

    Was thinking how good I felt, but just crawled back into bed and thought, am actually pretty wiped out...

    We will get through it!!!!!

    Hugs to all x

  • dlm425
    dlm425 Member Posts: 209
    edited July 2013

    Today day 7 of round two feel somewhat better than yesterday. But still feel yucky. The hair issue still has me not wanting to go outside. But I will go return my wig and get one I like better. Netter that was a. Beautiful poem. Very empowering.... I also heard hair starts to grow back with Taxeol butyour nails get really ugly and can fall off. Good thoughts and feel well to all. Anyone seen rain.

  • annika12
    annika12 Member Posts: 433
    edited July 2013

    Good luck all 2 timers today,you will be prayed for!!

    I am feeling better but batteling constipation, upset tummy and yucki mouthsores :(

    Calling my friend to take the rest of my hair off. It was waist long then donated 11 inces now going for short short til it start coming out..then buzz!!! Hang in there ladies and Jorman we can do this...yes we can !!

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2013

    Can anyone post that info of all the "free" stuff?? I think it was about 2 days ago someone put it here.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited July 2013

    I am slow to find this group, but hello all.  I started TC on June 20th.  Round 1 was very hard on me.  Groggy, tired beyond tired, achy, headaches, lightheaded, mouth sores, and WBC down to 1.  Day 13 I am finally turning the corner and feel like I might survive this.  A ray of light but then same day I notice my hair is now rapidly shedding.  Sigh.  

    I am not looking forward to round 2.     

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited July 2013

    Hi Alibeths - I posted about a lot of free stuff I received by attending the Look Good Feel Better program.  I believe they  have them run from all cancer agencies in the US and Canada.  They shroud have brochures at the Dr/clinic office too.  I received around $250 worth of skin care and cosmetics.  Really helps because those were not in the budget and its important to take care of your skin.  I threw out all my old pencils etc.  Started fresh.  I also got a free hat and a wig.  If you Google Look Good Feel Better and the name of your city, should get some info.

    This past week has gone too fast - I'm off for my 3rd cycle of the red devil tomorrow!!  They are going to ease off on the dosage by 20% this time as well as different nausea meds.  Crossing fingers and toes that it works.  Heading out shortly to get my blood work done then going to try to have a chill and relaxing rest of the day.   

  • rachel22
    rachel22 Member Posts: 54
    edited July 2013

    I'm also on round #2 this week. Going about the same as round #1 but feel more tired. They changed my nausea meds so thankfully I don't have the horrible headache I had last time. Hope everyone is doing well with minimal SEs and hope you all have a great 4th of July holiday!

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited July 2013

    Sunny, I believe the Neulasta shot is given 24 hours AFTER you FINISH your chemo infusion. So my infusion ended at 1pm I had to come back after 1 pm the next day.



    After my second I fusion I had to wait two days as the doctor wouldn't be around the next day ((she had the afternoon off)...so it can wait longer than 24 hours, but is not on the same day as chemo.

    At least not in my case, and based on what I have read here.

    Pat

  • Netter
    Netter Member Posts: 107
    edited July 2013

    Just got home from another hospital visit for fluids.  Thought I had turned the corner as yesterday was #6.  Pretty weak but hope it is turning around, for REAL!!!!!!  Take care all!!!!!!

  • SherryMarshall
    SherryMarshall Member Posts: 39
    edited July 2013

    So glad things are turning around Netter! Hope it continues on that path! Rest, relax, and hydrate'

    Hugs!

  • Sunnyskys
    Sunnyskys Member Posts: 12
    edited July 2013

    I got home from chemo #2 a couple hours ago. I had to go two hours early to get a drug put in my port to determine if it was working right. It worked (yeah). I also had neulesta shot this time. Same day they said one to two days after has always been because of insurance and the insurance changed the rules which saves me a trip back. I have been taking clariton for awhile so I hope it helps.



    I'm a little dizzy but so far I have cut up veggies for dinner tonight and have done a load of wash. I am trying to be proactive on the nausea so even though I'm not feeling it yet I ate a banana and took a nausea pill.



    I kept track of everything I ate, when I took all my pills, and what activities i did after my first chemo. Since I did pretty well for the most part I'm hoping to use it as guideline for this round.



    I hope those of you who did chemo today can enjoy the holiday and long weekend.



    Hugs to everyone, but especially to those that are having such a hard time. I'm thinking about you and sending good wishes.



    Sunny

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    I know this question has probably been asked before, but has anyone used the Brian Joseph's eyelash and brow product? I stopped by the ACS and got some free hats and scarves so I think I'm ready to shave my head, but then I started worrying about losing my lashes and brows. That's the part I'm seriously struggling with. I really hate drawn on brows!!
    g

  • flaviarose
    flaviarose Member Posts: 442
    edited July 2013

    I was supposed to have my 2nd TCH treatement today - they accessed my port, drew blood, and then I saw the nurse practitioner..... asked a lot of questions about side effects - do you have blood in your urine - no - do you have any rashes - no - do you have any heart symptoms... well, uh, I did feel a few palpitations..... she didn't feel comfortable having me get treatment until my primary care dr. checked me out - I had a normal EKG - will have to have a holter monitor next week... so I'm both relieve that I didn't have to have the treatment and bummed out that I didn't get to have the treatment......

  • Gingergirl1
    Gingergirl1 Member Posts: 36
    edited July 2013

    Flaviarose - I had heart palpitations or irregular heartbeats after my first infusion. I got an echo done but didn't have it in time for my second infusion. They didn't give me the Herceptin then. So we will see what happens at the third one. It's better to be safe than sorry. Hope everything turns out okay for you.



    Good thoughts going out to everyone!

  • annika12
    annika12 Member Posts: 433
    edited July 2013

    Any suggestion for horrible heartburn!!! Can't take the chalky stuff :( still have a really really hard time eating and drinking......day 6 after #1

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited July 2013

    Annika, did they give you Prilosec 24? My onc told me to take daily to avoid heartburn and acid reflux.

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