May 2013 surgeries
Comments
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Ann, I wept after reading your description of the Relay Survivors walk. What a beautiful and profound experience. Thank you for sharing it and thank you for carrying us with you on that lap.
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You are welcome Annie. We are in this journey together, and this group especially, has a very close bond.
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Honeybunny Melissa, you will kick chemo ass like a warrior. You are a strong, awesome woman and this will be behind you before you know it.
I'm on Day 3 after my second treatment. My own experience has been that following instructions given by my chemo nurse and oncology pharmacist has been key.
Hydration in the days before, during and after helps to flush the chemo meds out quickly. I can't stress that enough.
Tasking the anti nausea pills exactly when they instructed me to has kept me feeling no nausea.
They suggest Clariton with the Neulasta shot. I've taken it with the shot and for the next 3 days and have had no joint pain.
Even though I never get heartburn, I got it the day after my first chemo. So, I now take an antacid pill the day before and for several days after, and no heartburn.
Eating smaller meals frequently throughout the day versus 3 meals has helped me. I call it grazing.
Even though I have been rinsing my mouth 3 or 4 times a day with antacid, I still got a bunch of cankers when I had my fever a few weeks ago. I think I caused it myself because I went nuts in drinking OJ and that always causes me to get a canker. They gave me a prescription for "Magic Mouthwash" at my chemo treatment in Thursday. Trust me, it was magic. Cankers gone the next morning with one rinse.
Hair: I had a really intimate hair cutting gathering with my daughters and my best friend. My hair dresser has her own studio at her house so we had music going and some wine. My daughter, her daughter and my friend hit some pink highlights! Having my hair buzzed right after the first treatment hit me used to scarves and turbans before the hair started coming out and for some reason that helped me prepare for what I'd happening now, after my second treatment. I can just gently tug on it and it comes out now and it's a buzz cut so it's not so emotional. I'm rather thrilled at not having to shave or wax for the next several months! Oh, and your beautiful face will be that much more noticeable to everyone without all that hair shielding it!
There is no window dressing chemo. It sucks to go through it but it has a job to do in helping rid us of any rogue cancer cells.
We will help you through it. You can do this and we will be there every step of the way.
xoxoAnnie </p>
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For some reason I typed "hit" instead of "got" in the hair cutting description. Maybe that's a little chemo brain going on!
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Chemo brain story: My husband was putting a cooleroo blind up on our new gazebo yesterday. It wasn't quite the length of the side. He was trying to measure out where to hang it so it was in the middle of that side. We were going about calculating it in different ways and I go so confused. LMAO. I think I was right, but couldn't express how I got the calculations.
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Katie sent my email, too.
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Hi all. Just got back from movie. Was good. However, I know now, will not be going to any movies when I start chemo. 2 people coughing (not covering their mouth) and congested sounding in front of us and kid behind us threw up..LOUDLY..(not sure I want to go back without chemo!!>lol). We went early so theater didn't have but about 7 families in it.
In ref to chemo brain. If I get that I will be sitting in a corner drooling, as I can barely remember my name as it is.
Thanks for the tips Annie. I've heard that magic mouthwash is great. What is a oncologist pharmacist? I don't believe I have one. I hope you continue to have an easy time of it. I've bought sleep caps, scarves and a kick ass wig..I plan on being CHEMO FABULOUS!..lol..that is if I can ever get to it!!
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Ckmoss you will be the ultimate chemo diva!
At DanaFarber, they have you meet with a pharmacologist who went over in great detail every medication connected with the chemo, including the chemo drugs themselves. She discussed side affects and answered all my questions. Then she met with me before chemo #2 to see how things went and to see if we needed to make any adjustments. She was fabulous and helped me greatly.
Glad you got out to the movies! -
That sounds great! I'm willing to bet they've never heard of that here. To be a fairly good size city, it is very behind times. I will def ask though. I've learned helps to be as educated as you can.
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Cyndie will be a total chemo diva! :-)
I actually made it to the front porch for a cup of coffee with DH. We sat and watched the rain, it strikes me how lucky I am to be able to do that today! -
Cyndy, thanks for the compliment, but I had help on the prayer from Melanie. I figured if I posted it, then when each of you read it it will be sent to Heaven again.
Heather, we are all lucky. We've survived our first battle (surgery) and have each other. Coffee on the porch with dh is an added blessing!
I think I may have overdone it today. I went to work for 3 1/2 hours and am exhausted. Who knew that sitting in a chair in front of a computer could be so tiring? -
I sat like a slug in front of the tv and watched mindless shows this afternoon. Resting up before the week begins again with rads and swim everyday, and we're hosting a BBQ on Thursday, so in between, I'll be prepping and cooking.
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Funny, things I blindly took for granted I'm finding myself appreciating. This cancer fight is making me realize that I've been blasting through life to raise my kids and pay the mortgage, etc. but not taking the time to enjoy it. That is going to change. Uhhh, huhh.
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Janet..so what time do you want us all there?? LOL.. I love the slug description!
Well, tomorrow..drains come out. Another 5 seconds in hell. Well, I have two drains..so 10 seconds in hell. I plan on drugging up. My problem is not the 10 seconds of pain..its the nervousness leading up to it..Percocet and ativan all around!
Sweetpickle-that sounds great! I am glad you could do that. I love doing that at the end of the day with mine.
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Steph, I hear ya.. I sit on a chair at a computer.. and wow.. yeah it's exhausting work. I also didn't realize how much I used my arms and lifted things and reached for them. This for sure helps with the rehab and range of motion.
Took the family to the science centre today. Since my DX, I have been just taking things in stride. Letting the kids be kids and do what ever. We went at opening. I almost told my mom and dh to walk home if they were bored as the kids were having fun. I was just fine sitting there watching them play and be kids. Ohhh to have no care in the world. Learning to keep the little things closer to my heart.
So.. is anyone on facebook here too? I'd love to connect there as well? if someone wants to connect just pm me
it helps to message me too, so I know who/where your from
Ahh tired now after that time playing with kids.. what's for dinner???
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Cyndie, I still have one drain from surgery. I was hoping to get it out tomorrow since I'm going to make the drive to see BS, but my PS won't pull it until its 25 cc's or less. I'm still at 40. I swore that I wasn't going to complain about it unless I have major issues like some of you, but it's really starting to bug me. It hurts where the drain enters my body, and is getting red and slightly inflamed.
I've done more research on the Oncotype DX test, and feel more confident that I can rely on the test results to make my decision about chemo.
My husband is out of town working. When I spoke to him on the phone last night, he said he wished that I didn't have to go back to work. He likes how calm and relaxed I am since I haven't been working. One of my two bosses quit recently. This is going to make work much more difficult in the weeks to come. It will be quite a struggle to keep myself from over stressing. But I know that I have to do it. I can't afford the repercussions on my health if I start to stress out. -
I honestly don't know how you ladies work. I don't think I could do it. Stopping to appreciate the little things is great. I actually learned to do that about 9 years ago after the death of my brother. Bless you ladies with drains still. And CK, I only felt them take one side out if that helps you.
BBQ is at 2:00. Come on by!
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Steph-Don't push getting the drains out. He took my one out at 30 (he had said 30 was limit) saying anything after 2 or 2 1/2 weeks risk infection. I don't know if that is what caused the seroma, but makes one think. All I know, is when you have fluid coming out your incision site..you miss the hell out of drains!
Gowith= Don't be surprised if a whole group of flat chested or one boobed women pile out at your doorstep! We will all hide behind the 3 or so that have cleavage now! lol..
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Oh! Do any of ya'll look at Grumpy Cat? It has a pic of him/her today on its back on couch..caption "I love my couch..it understands me!"....that would be me lately!
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ROTFL!!! Exactly^^^^^^^^
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Ya'll don't have to hide behind the cleavage.
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I'm at the point now where I don't care what ppl think about how my chest looks. The surgical bra is still too uncomfortable to wear over the TEs so I've been going shot gun and wearing the Velcro front camisole with a button down shirt over it that I don't button. It's cool in the heat and my chest is fairly comfy.
I have so enjoyed reading about everyone's day today. It tells me we are all here and taking it one day at a time, trying our best.
Melissa and Steph, I can relate. For the first time in my career I am taking a step back and realizing my health must come first now. That's a hard concept for me bc I've always been a slave to the job. Lots of thinking going in in my head now about finding the right balance and possibly making some concessions.
Cyndie, good luck with the drains tomorrow. I am so happy for you!
Just filled a planter pot with flowers in my front steps as the sun went down listening to a nice Pandora station. Just enjoying that moment in time. -
speaking of cleavage and chest.. I had my first post mastectomy photo done today, and I am actually pleased with how I look. I must say.. it really made my mood go up after that today
It still hurts of course to look into a mirror when I shower.. but it will come.. I'm sure. Until now.. I'm gonna pin up that picture of me and say.. "dang.. I do look good"
Take it easy with the drains Steph.. don't want them to pull too soon.. but mention your concerns. I know when they pulled mine it was draining about 10 cc's/day or so. But some day's I'm still sore where they were sitting. I'm only starting to sleep on my side.. and WOW.. am I sleeping better now that I'm not stuck on my back. We don't have a chair I can sleep in, so it was the bed, or floor..lol
Grumpy cat is the best!! totally relate some days!
Go.. my work is my happy place. It's the one place that I find that my mood picks up. It's never a dull moment in the office that's for sure. My boss even asked me.."what do you want to do" I looked at her with big eyes and said "I wanna work if you'll have me" She is so fantastic. Just as long as I am honest with her and if I am having a bad day.. to admit it. Which.. after my MX.. for sure I won't be hiding nothing... they can read me like a book. And with the kids home all summer long, it gets me out of the house. I'm a much better parent when I work, well not only a much better parent.. a much better ME!
Hmmm.... what's the next movie my kids are gonna wanna watch tonight? Just finished watching Despicable Me.
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Going through this has made me realize that I need to go back to work and do a lot of overtime! I didn't realize how close we are to living up to our checks and how much money we blow! I need to.go back and start sockingit away..get some cards paid off..it would have been easier not having to worry and hubby working 12 hrs a day to compensate for my short checks. My denial bubble (nothing bad ever happens to us) has been burst...
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Had a good day by the pool with the grands. The day had a pretty sad ending. A young mother and possibly one of her children was killed in a car accident two doors down from my daugther's house. We could see everything from the porch. Please keep this family in prayer.
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oh my Chinneymae.. everyone will be in my thoughts and prayers.
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Like Annie, I've been going shot gun and it hasn't bothered me a bit. As I was getting ready for church this morning I decided to put on one of my old bras. I was surprised that it didn't look and feel too bad. The last TE fill really filled me out and I almost feel 'normal'.
Melissa, glad you enjoy work and have a great boss. That is so important.
Annie, I loved what you shared about enjoying a moment in time.
ckmoss, you continue to crack me up (five seconds in hell)!
Janet, I smiled when I read you watched mindless TV. I've had a few days like that.
Steph01, prayers are with you as you make your decision about chemo.
Hugs to all,
Ann -
Cyndy, that is so sad, yes prayers will go out.
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How horrible Cyndy! Prayers for everyone involved.
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Uhg! I just spent the last three hours trying to figure out my medical bills. What a mess! Oh well, I guess they'll still be there tomorrow. And I need to get some sleep, I have a doctors appointment early tomorrow.
Cyndie/ck, My doctor said he wouldn't remove the drains until they were under 25 cc's in a day. He did indicate that he might consider it if it was down under 30. Mine is still close to 40. I asked him if he ever takes them out before they get below his goal. He said he has done it in the past, but has always regretted it. He wouldn't even consider that until I get to about four weeks. His nurse did advise me to clean it after every shower with hydrogen peroxide and antibiotic ointment. After hearing the horror stories here, the last thing I want is to take the drain out too early!
Good night from northern Michigan. Love you guys! Sleep well.
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