Did anyone make it through radiation with their skin okay?

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited June 2013

    Breezed thru treatment... Three years later..still doing well..

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited June 2013

    The sunburn on my back where my cycling top doesn't quite meet the my padded shorts bothers me right now more than my breast skin did during and following rads.

    You will be fine.

    I did exactly what they said to with the Aloe Vera gel, and then used Bag Balm (a product for cows with sore udders/chapped teats) on my own personal udder.  It worked great.

    In fact, my side getting radiation looked much better than the other side for most of treatment.  I got the point, and now use skin cream on both sides.

    Mae West claimed she spent an hour a day rubbing skin cream into her breasts.  I do the job in a lot less time. - Claire

  • LibraryLynn
    LibraryLynn Member Posts: 83
    edited June 2013

    I am a week out of 30 rads plus 5 boosts. I have very fair and very sensitive skin (my mother insists I'm missing a layer of skin everyone else has), and I made it through just fine. I was scared, and I had dreams of my skin just rolling off of me. They kept a very close eye on me (as they do everyone), and I did just fine. I, too, am having nipple sensitivity, but I can certainly live with it. I am much redder in the boost area, but it's still not horrifyingly red. 

    I did get a bit of sloughing (their word) under my breast the last couple of days that increased after I was done, but I just kept up with the aloe and the emu oil. The nurses were impressed with my skin, and I said it was just the religious application of emu oil and the application of a green jelly from Lindi Skin (www.lindiskin.com). That was in a roll, and I'd cut a piece off and put it on if I was feeling hot or itchy.

    Don't be scared. I wasted too much energy on obsessing over it. Make sure you ask questions right away when something concerns you. Feel free to drop me a note, too, and I'll be happy to chat with you about it. It's much easier when you don't feel so alone, and you certainly won't feel that way here!

    Lynn

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Lynn, Claire, Voracious and Flannelette, thank you so much for sharing your positive experiences. I am sorry you all had to go through radiation but your survival stories really help us newbies!!



    I hope that you all have a lovely Monday.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    I had 33 rounds in June 2009, and it was, by far, the easiest part of the treatment plan for me.  I have light olive skin that burns a bit then tans well, and I can say that by the very end, the skin was super tender, kind of burned looking but it wasn't bad.  I used copious amounts of aquafor immediately after getting home, and moisturized like crazy.  I also took ibuprofen afterwards.  I worked every day through treatment, though by the end of the rounds, I was feeling fatigue.  Did notice a lot of heat in the radiated area for a long time, and it stayed burned looking and tender for a long time.  Treat the skin very kindly, and don't overdo, because it does take a lot out of you towards the end.  I was careful to stay out of the sun (was still growing in the hair from chemo anyway, so wanted to keep from burning in the South Florida sun) for a long time, and kept the skin covered.  Now, 4 years later, I have my little dot tattoos and not much else.  I did get myofacial release treatment from my massage therapist earlier this year, it really helped break up any scar tissue that was tightening up and causing pain - but you must be sure to be completely healed for this treatment as it involves a bit of pressure directly onto the scarred areas.  Good luck! 

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Thank you Chelev!

  • sundust
    sundust Member Posts: 17
    edited June 2013

    I had 16 treatments and used Boiron Calendula Lotion. This worked well -- I had only a sunburn-looking area by the end of the three weeks. (It also helped that it was only three weeks, not 6 or 7 -- I used the Canadian protocol.) It did take a long time to fade -- about a year -- but did entirely fade and everything now looks normal.

  • LeeLeeLynn
    LeeLeeLynn Member Posts: 23
    edited June 2013

    It is great to hear positive responses. At The Body Shop I found Aloe Body Butter which is fragrance free, no parabens, petroleum or mineral oil. I just finished #11 of 30 (Including 5 boosts)

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Thanks Sundust- I will try that lotion too.

    Is it super greasy like the Aquafor?

  • sundust
    sundust Member Posts: 17
    edited June 2013

    Nope, not super greasy. It felt nice. It was actually the standard at the radiation center I used (NYU). It's here on Amazon:

    http://www.amazon.com/Boiron-Homeopathic-Calendula-Irritated-6-7-Ounce/dp/B001G7QI2A/ref=sr_1_2?ie=UTF8&qid=1372221122&sr=8-2&keywords=boiron+calendula+lotion

  • hansng74
    hansng74 Member Posts: 2
    edited June 2013

    Saw this website on Cancer, hope it can help you

    http://aboutcancercure.com/

    God Bless!!! get well soon ya :)

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Thank you hansgn for the good wishes!



    Thanks Sundust, I got the calendula lotion yesterday, much appreciated. I will have afternoon appointments so needed something non-oily to put on when I get dressed for work in the AM.



    I will gently wash the breast area with mild soap and water right before the zap anyway but didnt want any oils sunk into the skin same day since that burns worse, I hear.



    Then I can slather on aquafor or emu oil (I bought both) in the dressing room after the zap and put on a soft tee shirt for the drive home.



    I do so appreciate your advice, sundust and everyone else, this "final leg of the treatment" was so stressful to me but now that there is a game plan I am feeling better. You ladies rock!!!



    Starting tomorrow.



    Hugs

  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2013

    You'll do fine, and it is only a few weeks out of the rest of your life. Smile

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013
  • navymominohio
    navymominohio Member Posts: 24
    edited June 2013
    sciencegal-it will="" probably="" go="" a="" whole="" lot="" better="" than="" you="" think.="" i="" over-prepared.="" bought="" several="" types="" of="" cream="" and="" aloe="" cheap="" sports="" bras="" fan,="" etc.="" really="" used="" miaderm="" aloe.="" worked="" every="" day.="" wore="" my="" usual="" bras.="" burn="" quickly="" time="" am="" in="" the="" sun="" to="" wicked="" bad="" sunburn.="" radiated="" side="" is="" very="" pink="" but="" not="" hot.="" some="" blistering="" peeling.="" im="" pleased="" at="" how="" easy="" this="" was="" compared="" fears.="" had="" 25="" doses="" 5="" boosts.="" itching="" cleavage="" area="" which="" resolved="" immediately="" with="" tiny="" dose="" benedryl.="" took="" daily="" few="" days.="" no="" pain.="" ="">
  • navymominohio
    navymominohio Member Posts: 24
    edited June 2013

    Sciencegal-I finished rads this week. Over prepared and bought several creams, cheap sports bras-a bunch of stuff I saw recommended. Only used miaderm creme and chilled aloe I kept in the refrigerator. Treated side is quite pink after 30 treatments but not hot or painful. Some itching and blisters and peeling but I am used to that as I always burn in the sun. Tiny dose of benadryl helped immensely with itching. As with everything else, I felt the treatment was far easier than the anxiety in contemplation thereof. I hope that will be your experience also. Keep us posted on how it goes!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    You've received lots of reassurance which is great but I want to let you know that everyone's experience is different.  I burned very badly despite use of approved moisturizers and under my breast and under my arm my skin even broke open/was raw.  This was very painful and I didn't sleep well due to pain for the last three weeks of 35 sessions. I am now 9 months post and am just now gettignt he very very dark burned skin to fade.  I want to convey that even if you are among those that don't have a positive experience that you will get through it.

    Take care.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Thanks navymom!!

    HVV I am so sorry you went through that. I started this thread because so many of the poor girls on the summer rads thread were going through exactly what you describe and it was terrorizing me so much that I could not sleep any more.

    I had a skin-sparing mastectomy and have finished the exchange- I am just so afraid that the skin will be lost and the implant will need to be removed. So many horror stories. I understand that they have to do this to us and I will do anything to live. But I just wish it didn't have to be so awful.

  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited June 2013

    Just wanted to give you some more encouragement! I am one who gets a "sun rash" every time I am in the sun. I was terrified of rads. I had 28 rounds, with every other using a bolus (meant to intensify the rads to the skin). Scared me to death!



    Throughout, I drank plenty of water, applied aloe vera gel immediately after rads in the dressing room, used aloe vera and lubriderm for sensitive skin throughout the rest of the day, and did not wear a bra whenever possible. I went out and bought men's white Hanes tshirts in a size too big (loose) and wore those at home.



    I ended rads with red skin and a touch of peeling around the edges. You can do this! Take care of yourself and your skin better than you ever have before. Good luck!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited June 2013

    Thank you bayoubabe- I appreciate it! I am taking in all the advice I can get and trying to stay as calm and positive as possible. I am usually calm through a storm but this part of the journey has me super freaked out. So thank you!



    I see that your exchange is coming up- congrats, I bet you can't wait! That part was easy for me (i just had one side done). I had taken a week off of work but didnt need it all, in sharp contrast to the mastectomy, it was nothing like that. Good luck with yours!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Thank you all for helping me. Four down!

    :)

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    Great! Just keep crossing them off!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Yep- thanks Ruth. I am crossing off the days and lubing up with the miaderm and emu oil. Today I work in the Am then get a MUGA, herceptin AND radiation after lunch. I am SO looking forward to ringing that bell at the end of treatment, I know that day will come.



    I truly appreciate everyone's support, and sharing tips. It helps a LOT.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    I know, when I was doing all my treatments, talking with other people who had 'been there, done that', and had come out really OK, made me feel that I could too.

  • CLYDAY
    CLYDAY Member Posts: 81
    edited July 2013

    Hi ladies...I just completed 28 whole breast RADS and am so glad to get a break before doing Boost. My skin is dark in some areas and pink/peeling in other areas. Been using a combination of aloe, emu oil, and glucan pro 3000 which is super pricey! Just wondering to ladies who are done did your skin get worse after rads??

  • ruthbru
    ruthbru Member Posts: 57,235
    edited July 2013

    It stayed red and hot for two weeks & then got better.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    Congrats for coming this far Clyday! Goodluck with the boosts. Do you start those Monday?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2013

    Yes, my skin continued to get worse for two weeks and then began to slowly recover.  If you have large breasts the is great risk of damage to your skin.

  • CLYDAY
    CLYDAY Member Posts: 81
    edited July 2013

    Thanks ladies! Yes I start Boosts Monday...

  • sciencegal
    sciencegal Member Posts: 1,120
    edited July 2013

    GOOD luck Clyday. I am right there with 'ya. but regular rads not boosts.





    May the force of good skin healing be with you all.



    Happy "independence from cancer" day!

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