Has anyone developed HBP and borderline diabetes with LE?

Options
ketch
ketch Member Posts: 157
edited June 2014 in Lymphedema

I went for my annual GYNO check up today. My urinalysis & BP were high> They did a accutest strip and my sugar level was high (145). Now, I have to go to my GP for a follow up....like I needed anythign else right now.

My LE is truncal and has given me fits. I've been fitted for a pump (should be delivered in a few weeks) and go to a PT for it. Itdoes notseem to be any better. It is very noticeable in my stomach area above my tummy tuck. I'm basically swollen from the waist up!

The GYNO  seems to think this may all be related. Has anyone else had this??

Comments

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Ketch, you bring up an interesting question, and one no one has talked about before. My guess would be that the higher-than-expected blood sugar and the high blood pressure are definitely related to each other. But there's sure no evidence I know of that LE is part of that mix.

    I'm wondering, though, about pump treatment when the therapy you've had has not been effective. Are you receiving Manual Lymph Drainage from your PT several days a week, along with some kind of well-fitted compression for your chest and tummy area? That would be the standard treatment for LE, so if that's not happening you definitely want to get that straightened out before considering (much less paying for) a pump (which is NOT part of standard treatment protocol).

    Therapists may or may not be fully trained, and even those with adequate training may or may not be experienced or willing to spend the time it takes to treat our condition well. Here's information about LE therapists and what to expect from treatment:

    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    http://www.stepup-speakout.org/treatments_for_lymphedema.htm

    http://www.stepup-speakout.org/breast_chest_trunckal_lymphedema.htm

    Let us know what you discover! Gentle hugs,
    Binney

  • ketch
    ketch Member Posts: 157
    edited June 2013

    Yes, I go to PT 3x a week. I wear compression with swell spots under my arms. My insurance will pay for the pump.

    I'm just at a loss as to what has caused the BP and the sugar & feel all this has to be related. My gyno thought so too, but she is not the one treating me for the LE. My PT seems to know her stuff. My frustrations stem from the doctors. They only care about what affect what they are treating(i.e., the onco is against any type reconstruction & passes of the LE, while the surgeon is aware of the LE as we talked about LNT. HIs main concern is reconstruction, etc.)

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2013

    Ketch, is your therapist doing MLD, or is she/he using a pump while you're there? I'm just not understanding why you're getting a pump (which is a substitute for at-home self-mld, but not a separate treatment) when your swelling has not been reduced?

    Hugs,
    Binney

  • ketch
    ketch Member Posts: 157
    edited June 2013

    Yes, she does MLD. I only got a demo on the pump from the salesperson. The thought is the pump will supplement the MLD.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited June 2013

    I was already type 2 before b/c, and my blood pressure hasn't changed during or after treatment.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited June 2013

    Sounds like you need some basic information on Diabetes and high blood pressure. Mayo Clinic has some good information on both.

    http://www.mayoclinic.com/health/type-2-diabetes/DS00585/DSECTION=causes

    http://www.mayoclinic.com/health/high-blood-pressure/DS00100

    Personally, I don't see how LE could be related to blood sugar and insulin levels or high blood pressure. But I am not a doctor.

    I hope you read the basics on both.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Ketch I don't want to hi-jack your thread but since we're on the subject of diabetes, just thought I might ask this:  Ive just been talking to someone whose had BC and is talking about taking blood sugar levels by finger pricks. What would be the recommendations in this case?  Stay away from only BC side or is it possible for these to be done in the foot?

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2013

    Musical that is a really good question I was wondering about too. Most lancets are made to prick the finger. I bought a test kit just for my knowledge of my waxing and waning sugar levels and found out after that they want you to use a finger. Really would it make a difference? Hum.... I would love to know.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Hugz  heres a thought. I remember sometime ago when my veins were REALLY getting problematic on my prophy side that I found out they could do finger pricks for most blood tests! I remember the lady who did this said she had to note it on the form that it was from a finger prick because the blood is somehow different taken from there. I've no idea exactly why this is but no doubt our medically knowledgeable ladies will have an explanation. Of course since then Ive found out from here about both arms being at risk, and more so for double MX with the possiblility of lymph nodes being inadvertantly taken on the prophy side. Now its foot draws.

  • Jwright
    Jwright Member Posts: 2
    edited September 2013

    I have lymphedema in the right arm as a result of mastectomy. A PT recommended a pump several yrs ago then ordered a more advanced pump when she couldn't get the swelling down with her massage. I began to develop many health problems, including high BP and breathing problems. After MANY doctors and tests, respiratory therapy and no answers, my last resort was to go to a lymphedema clinic where a new PT told me that the pump was overloading my heart. After discontinuing use, BP is down, swelling is down, breathing problems are gone, fatigue has subsided. The manual massage and new garments were the answer. There is apparently not enough research done on the pumps. I have contacted a lawyer, 2 years of sickness and Dr bills were totally unnecessary and self inflicted!!

  • flowergrl1960
    flowergrl1960 Member Posts: 10
    edited October 2013

    I'm not sure if you're still around this thread, ketch, but today's appointment with my lymphedema therapist and your original post inspire me to make my first post.  I've been struggling with truncal LE since six months or so after my bilateral mastectomy/DIEP flap reconstruction in January 2012, including five bouts of cellulitis.  My blood pressure was low enough after the surgery to discontinue medication for hypertension (duh..bc diagnosis can elevate bp).  I'm now experiencing consistently high bp and a high pulse rate that isn't responding to basic treatment...and my LE is worsening. The light bulb went on today for my MLD therapist and I.   It makes sense to me that the heart has to work harder to pump fluid through the systems if the connections aren't working properly. And the harder it pumps, the more fluid accumulates in systems that can't drain.  Ack. I'm still working to connect the dots, but at least this hypothesis makes sense.  As an aside, my sugar is also slightly elevated as of last week for the first time ever...a fragile thread of connection.  I'll keep you posted on what I learn if you're interested.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited October 2013


    You can do the pricks for blood glucose readings anywhere on the body. If you have diabetes, doing pricks on the foot would be a bad idea, since diabetics can have foot problems (wounds not healing, lack of sensations, etc).


    If you can't do finger pricks because of node removal, you can get a special lancet from the company to do off finger site pokes. You just have to make sure you set the lancet depth to the deepest level to get enough blood.


    A place you could do blood glucose reading pricks would be on the thighs, for an example

Categories