DIEP 2013

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    I love it when it's cold here!  It so makes me miss my Denver home!  Sometimes the kids even shiver a little on their way to the neighborhood pool.  

    I'll probably never sleep either, but I'm goin' in.  Good night, dear friend!

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    yawn......me too....soon as I lube up the tummy, the foob, the lifted boob, polysporin the recent facial "addition"...then I'm SLIDING INTO BED!

    PS....I'll remember that dig when it hits -30 something next winter.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited June 2013

    This is such a fun thread! Glowing boobs! There should be some perks, after all. I'm learning a lot, too.



    Yay for you Janet!



    I have LE in both arms. My noncancerous side where 5 sentinel nodes were taken got it first. It's under control with decorative sleeves/gauntlets from Lymphedivas and manual lymph drainage massage. I did everything, and I mean everything, to prevent it but it just happened. I get bp on my leg and have had IV/blood draw in my foot (ouch!). I don't know what they'll do next month during DIEP. I have the pink bracelets but maybe I should get the sleeves. I admit I'm worried about LE during surgery and recovery and also pain control since I react badly to a lot of pain killers. I have my three month checkup Monday where I'll have another blood draw in my foot.



    Being a native Californian, I love Washington time! Added bonus--it stays light outside until ten in the summer. Which doesn't help with sleep. Hmmmm.

  • LyndaMarie
    LyndaMarie Member Posts: 92
    edited June 2013

    Seriously, three pages of glowing foobs talk to catch up on. I am tucked into bed so will check the glow quality of my news girls a different day.



    kuka - keep resting that knee. I hope it is better soon



    Bailey - I had SIEA also. Do you notice a tingly but somewhat numb sensation on your inner thighs. My PS said that was normal with SIEA. It is weird. one drain to go! You can hang in there, like you have a choice. you've got this!



    Janet - sounds like you are doing great. congrats! keep resting.



    Good night fellow flappers. I wish I could fall asleep for all of you because as soon as I put my phone down, I know I am going to crash. hard.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited June 2013

    Okay, I haven't even made it to the last page....I confess I turned out all the lights and showed hubby my glowing foobs.....he was not in the least impressed.....and.....wait for it, wait for it.......he's an accountant!!!!!!! :)



    I am frantically waving my hand in the air..."choose me! OMG! CHOOSE ME!!!!!!! I have balls........I will sacrifice my credibility as a post-DIEP patient and ask my PS.....then he can think he is completely and totally justified in thinking I am off my rocker, and a taco short of a combination as well! ". ROFLMAO...... :P



    Namaste and God bless - Jackie



    SBElizabeth.....I have a penchant for Scottish men......I may try to find a couple of Scottish hounds to bathe next.......... :)

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    I confess....still up....haven't lubed the body yet.

    Movie....I CANNOT believe your hubby is an accountant too! We are defo "sisters"!!!!!!!!

    My recommendation is to skip the hounds, go straight for a couple of "Newfies"! Lovely hairy beasts, they are! Likely they'll have some celtic blood in them. They may even let you have a swallow of screech after you kiss the codfish!!!!! (Canadians will get this, if no one else does).

    Seriously .....I have got to go to bed....this thread is just too awesome, but I am tooooooo tired to keep playing,

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

     I'm still awake too. Came home a while ago from dinner with friends, and not sleepy at all. Going to find a flashlight now to see if my boob also glows in the dark - wonder what DH's reaction will be - lol. Wishing everybody a good night with lots of sleep!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited June 2013

    I've joined the insomnia club. Wide awake at 2:25! Seattle time.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    I passed out and missed all the fun it seems! Now it's only 4:30 and in wide awake.

    I feel so guilty about eating that icecream. If I didn't have my son in bed with me, I would get up and start doing my elliptical. But no worries, I'm going to be a good girl this weekend and let my knee rest.

    So........,everybody went to sleep?

  • SheChirple
    SheChirple Member Posts: 954
    edited June 2013

    3:10 am in California. I'm awake.

    Confession:  in my sleepless state I cannot find this originating comment about glow in the dark foobs.  Help me out here.  Something about foobs and flashlights?

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Haha! Shechirple. Go to a dark room and the flashlight against your boobs. They glow!! I knew about this years ago when my friend showed me on her implants. I tried to do it to my normal boobs back then and nothing. But last night I tried on the new girls and it worked! I now have glowing foobs!😄

    Do y'all think if I tell my ps about it he'll think I'm too crazy to do stage 2? Hehehe

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited June 2013

    Crap, my foobs are defective, they don't glow! I am going to ask for my money bcak from my ps! or maybe I need a real powerful flashlight, kuka?

  • Janet_M
    Janet_M Member Posts: 1,068
    edited June 2013

    Good morning ladies. What's with all the glowing boobs and chewing on elbows? There seems to be a lot happening along different time zones.



    Meanwhile, up in Toronto, I'm loving my catheter! I was squeamish about the whole thing at the beginning, but the luxury of not getting out of bed is fantastic. I got hauled into chair yesterday, then went for a little walk - but I'm happiest in bed with my toys and my juice.



    My nurses have promised ( threatened) that there would be more walking today , but right now I'm just staring out the window and drinking cranberry juice. Lots of tummy pain - but i think that's normal.



    Want to hear something weird? My BS didn't show up for the operation. I've been with this guy for two years ! And he's the one who got the whole ball rolling. But I was admitted for surgery, met with the ps, got my markings, and was put under a general, but my surgeon who was supposed to be there was out of the country. It was a giant f*ck up, so my ps's office got two other surgeons to drop everything and perform the mastectomy.



    So yesterday, I was sitting in my my morphine haze, and a strange doctor came in, introduced himself, and told me he'd performed the MX. I was pretty confused, and just stared at him. Later my nurse said that he felt really bad - I guess he was expecting a tthank you. But all I could think of was, WHAT THE F*CK!!!!



    In the end, it all turned out well, and more surgeons made everything go faster. But still, I really trusted the guy.



    Today I'll probably have some solid foods, and catch up on a few movies. Or, I might just eat my jello.

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited June 2013

    OMG, Janet_M I can't believe it! Glad it turned out well for you and you sound like you are doing very well.

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    Okaaaaaaay, so, I'm up. Been awake since about 5:30 here, couldn't stand laying in bed any longer. 

    Janet...you are doing amazing!!! Incredible about the surgeon gone AWOL....thank the stars they didn't cancel your surgery outright!!!! Sounds like somebody screwed up, big time....but....the main thing is everything got sorted out well. Believe your nurses when they say "walkies", but it likely won't be far....

    Tammy..hysterical....defective foobs....I'd still be keeping them though.

    Kuka... you absolutely ARE crazy, but that has no bearing on Stage 2. I swear, I'm gonna come down there and dismantle that elliptical, to remove all temptation!

    Jeannie....what the heck??? I think we're all just to amusing for our own good. Too many of us are now in the "late night club". 

    sbellllllizabeth......we're still waiting for the explanation of elbow chewing...not letting you off the hook on that one!

    Movie....you were first to volunteer...let us know what the PS says about the foob "phenomena". 

    Bailey....hope that drain decides to stop being so juicy over the weekend. 

    Goldie....have you picked your PS team yet?

    Coffee is now perked....dripped....whatever....catch you all later.

  • jlbloom
    jlbloom Member Posts: 228
    edited June 2013

    Wow!  I didn't read this thread for one evening and I was SO behind.  This thread could actually be the script for the next best comedy show ever.  It is so entertaining.  It is great to know that the sense of humor last longer than any of the major SEs.

    I can't wait to join the DIEP/SIEA club.  Not sure if it will be this year or next.  The oncotype number should be back by my MO appointment next Thursday.  If not, do any of you live close enough to the Genomic Health lab to go over there and kick some butt?  Otherwise MO goes on vacation and I get to spend another two weeks in the land of OZ.

    I'm not sure how some of you manage to speak to each person by name in your posts.  I would be dizzy from paging up and down.

    Janet, how in the world did they manage to schedule your surgery and the BS was not there!  That is unbelievable.  So great that it turned out so well.  We know there was a reason that will work out in your favor.  I don't believe it was a coincidence.

    It is also great to know we can come and complain and cry and scream here.  So wonderful to have friends that truly understand what you are going through.

    Everyone, have a blessed day.  I can't wait to come back later and see more of the posts.  It is definitely better than any of my favorite TV shows!  ...Julie

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited June 2013

    I hope I can find my "place" again reading the last day or two, but laughing so much I had to "reply" now to be able to concentrate!



    LOL! Katy's glow in the dark cast!!! I hate the dang tv little blue light that stays on all night CANNOT IMAGINE having my arm glow in the dark ! Too funny !



    Now to get into my very dark walk in closet to tell you DIEP ladies if SGAPS and PAPS glow too - also gotta find the flashlight!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Yes Tammy I have thigh numbness but it's not inner, just right on the top for a couple of inches.



    Looks like I slept through the party!



    The drain remain was kind of a bummer BUT logically, medically I know it was the right thing to do. I did ask the nurse if we could please change the bulb because it was looking NASTY and she held up her hand with a clean, sterile bulb in it already and said, "Yup, got it right here!". Yes. Great minds think alike. One seems so much more manageable, too. One fits in a pocket. One tube doesn't get all caught up with other tubes. And the tube entry site on this one isn't hurting me 24/7 so it has periods where it is forgettable for me. PS did say come back in a week (next Friday) to get it pulled pulled by a nurse, don't need to see PS....but if I think on Wednesday it can come out to just call and come in. Guess they trust I will do the right thing for my self and that is a good feeling.



    We have three open houses today. Two local. One an hour away (and family so I have to and want to go). Just not looking forward to two hours in the car. Not a comfortable place for me yet.



    My 17 year old is home from his camp counselor job for 24 hours....he got home very late last night and I was sound asleep. Now he is sleeping in and I want to go jump on his bed and tickle him and annoy him but am afraid of getting hurt lol! I will let him sleep for a while. So happy just to know he is in the house!



    Enjoy your Saturday!

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    Jlbloom......like Marty has wisely reminded us all.....you have a choice of how you deal with things....the humour on this thread carries all of us over the "potholes". I sometimes worry that a "newbie" might visit our postings, and feel we don't  get how "huge and scary and difficult" this all is......but we "get it", for sure. 

    I'll gladly contribute a "cyber-kick" to the lab for you...Waiting just sucks!

  • damiana9
    damiana9 Member Posts: 389
    edited June 2013

    My DIEP is scheduled for this coming wednesday. I had my preop last tuesday. He rxd baby aspirin every day, to increase blood flow,but I had to go off my celebrex because I guess that thins blood also. A week ago my foob started hurting REALLY bad. I have a TE on that side, and upon investigation, it was definately smaller than it had been! The pain is apparently from it shrinking/ the extra fluid floating around inside me- it is pretty obvious that I have a leak :( My PS woudn't do anything about it though because surgery is so soon, so I am walking around on vacation with a very painful leaky boob... at least it is almost over.

    Here are the specifics he gave me- it will be a 6hr surgery with 2 surgeons, I will probably be in the hospital for 3-4 days, he also explained that when do cuts my abdomen, he actually removes my belly button from my body, then puts it back. freaky freaky stuff!!!! I do not like morphine in the hospital- it does absolutely nothing for my pain- so they just wrote morphine allergery on my papers to make sure I get something else that will work! yeah! Also, I guess in the breast he uses some kind of new anesthetic that is long lasting (don't know if it is like a nerve block or what) but he says his patients have very little pain. Oh, and I asked about stage 2- he said he does not do lypo or fat grafting because he doesn't like the amount of necrosis that fat grafting leaves behind, requiring more surgeries to clean it out. And the really nice thing- I found out that the hospital that I am staying in has a really nice cupcake bakery- yummm!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Damiana- you are next up! Thinking of you. Glad you got more information on what to expect. You have a cupcake goal to meet! I think I can speak for several of us that we get liquid diet for a day or two after ( I was told that it was because the first 48 hours are most critical for flap and they want you able to go back to surgery....just in case). You have been down a long road....this should be your last big hurdle! You can do this!

  • damiana9
    damiana9 Member Posts: 389
    edited June 2013

    That is interesting Bailey-I will have to ask my doctor about that because I was talking to the nurse doing preop at the hosptial and told her to write on my sheet to give me some damn food when I ask for it! LOL! They usually make you start with liquids after waking from surgery in case it doesn't settle well and you get nauseated. Well, I never puke and I always wake up starving! LOL! And ever since chemo I have an extreme aversion to soup, so this could prove interesting!

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    yep....I had the nothing by mouth, not even clear fluids for 48 hours post surgery. Not fun, but the reason behind it is more important. Even with the wait to start getting something in my stomach, I was barfing for about 4 days post-surgery. But then, I've always been the one to "upchuk" post surgery.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    LOL....as we have seen over and over....we all have different "protocol" to follow depending on docs and med facility....I hope there is a damn cupcake on your tray when you wake up, honey!



    They kept bringing me beef broth (UGH! I can tolerate chicken broth but I wanted cold stuff) and yellow jello, which imho should be outlawed. I distinctly recall telling my SIL, in a synthetic heroin-induced stupor, YELLOW JELLO JUST SUCKS. They brought cold juice and soda and found red jello....I wasn't very hungry for a few days though. Third day I woke up to breakfast tray with French toast and bacon. Awesome.



    Important life lesson learned...you can learn to be happy and sad (or scared or whatever) at the same time. Feelings, emotions don't have to be mutually exclusive. My 40 year old BIL died unexpectedly on Christmas day (2008) leaving my 38 yo sister and their 7 yo son. That night my sister asked me, "How do we ever celebrate Christmas again?" I told her I didn't know, but we had a whole year to figure it out. And we did. We celebrate Christ's birth. We celebrate the fun of Christmas with the children. And we miss and mourn Jim. All at the same time. We are happy and sad at the same time. When a badass cancer invaded our lives there was plenty to be scared and sad and worried about. But I refused to ignore all the really great things happening at the same time and fully feel happiness....at the same time.



    Whatever life brings you...live it fully....even when it's the fact your noob(s) glow in the dark. That is a totally happy thing.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited June 2013

    Do TE's glow in the dark? Probably not, they feel so thick. I'm looking forward to glowing noobs. Hubby will enjoy that!



    Nihahi, throwing up for 4 days! I get sick from anesthesia and pain meds, too. I hope we can figure something out in advance to avoid that this time. I like your reminder that DIEP is big and scary...but humor is great medicine.



    Damiana9, thanks for the tutorial. My preop is in a few weeks.



    Bailey6760, what wise words you shared about being happy and sad at the same time. I will be passing them on to my mom as her sister just died on my Dad's birthday in May. Of course, my dad is 87 and we don't know how many more birthdays he'll have.



    Janet, you're so funny! I'm going to watch out for yellow jello! I'm glad to hear you're doing pretty well. I can't believe your PS was out of town!



    I hope you all enjoy the weekend!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited June 2013

    Okay, I just told my DH about glowing noobs. He said, "Gloobs! Glow in the dark Gloobs!" I knew he'd enjoy that news.

  • damiana9
    damiana9 Member Posts: 389
    edited June 2013

    After DIEP we will have Toobs- Tummy Boobs ;)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    Yay, Bailey!  What SHE said!  Like I've said before, waiting for this surgery was like waiting for Christmas morning, with a surgery anxiety overlay.  And despite all the not-so-fun-ness that goes along with big surgery such as this, it's still such a hopeful, step-forward, "screw cancer" step.  I am putting cancer in my rear-view mirror.  

    After surgery, they brought me regular diet trays, beginning with breakfast in the ICU!  I was SO not hungry, and managed to swallow a few spoonfuls of oatmeal.  Throughout my hospital stay, I had to force myself to eat a little--completely alien for me, a foodie.  I think if I were a PS doing DIEPS, I would follow the "no food" principle just in case we had to rush back to the OR, but I guess there's a balance there.  No calories = slowed healing, even for a little while.

    Nihahi, I really feel bad for you, and for others who experience the pukes after surgery.  That had to be miserable, heaving with an abdominal incision that about circles the globe.  Have they explored ALL the options to prevent it?  There are a lot of drugs available for that! 

    Well, it's Saturday.  Bike ride, shopping, ironing, call my mom... Time to get moving!

  • mammalou
    mammalou Member Posts: 823
    edited June 2013

    Hmmmm. Glow in the dark boobs. Reminds me of the time my high school friends and I whisked toilet water on Catalina Island because a tour guide told us the local water would glow. It wasnt glowing Naturally, so we figured a little whisking would help. think we had too much to drink that night.



    Speaking of the flashlight... 30 years ago I was at one of the first breast centers in LA for a biopsy. They put a flashlight under my breasts and diagnosed me as having extremely dense breasts. If only they had warned me about what that meant, I might have caught my cancer earlier. Amazing how technology has changed.



    11 more days for me!

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    Well, I did the flashlight thing last night. My DIEP breast did not glow, but my healthy breast did! !!!????? This is just too crazy. Oh, and I slept till 9.30 this morning after a late night.

    Damiana, I woke up after DIEP with zero pain. Honestly. Nurses in recovery room kept asking over and over how my pain was, and I was puzzled that I had none. Never took anything stronger than Tylenol extra strength a few times a day for about 6 days post-op. PS told me afterwards that they had 'frozen'me really well in the OR, and the only 'pain' I ever experienced was some tummy discomfort when I wanted to get up. You will be fine!

    Janet, you are doing so well - way to go, girl! Cannot believe that BS mix-up - somebody had screwed up big time, but just grateful they went ahead with your surgery.

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