Starting Chemo February 2013

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  • tangles
    tangles Member Posts: 508
    edited June 2013

    laLady dont feel bad my last fill HURT like heck and still does. I called the PS two times and they just said it is because you are so overfilled just keep taking pain meds and hang in there! I just keep counting down the days. 14 till I get these rocks out of my chest. I too cant do much. Still have hardly any energy and I will be 3 weeks PFC on Thursday! I cant believe how weak I still am. Ran a few errands yesterday and cleaning one bathroom, put in one load of laundry and by dinner time I was in tears! Just want my energy back, eyes to stop watering, and this chemo weight I gained to be gone! Oh did I mention hair would be nice. Its getting HOT and my head was dripping in sweat when I took my hat off! I am running out of patience!! 

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Hi Ladies I stopped in to talk to my sales rep for my salon today and asked what the BEST hair loss product was. I have been using Nioxin. She said the best was the Bosley system. I bought some and will let you all know if I see any progress! I know its a bit early as I am only 3 wks PFC but going to start on it ASAP!

  • LW0919
    LW0919 Member Posts: 196
    edited June 2013

    I have quite a bit of fuzz already, kind of feels like poodle hair. I never shaved mine, it just fell out on its on for the most part. It's really soft and fuzzy and also very grey!!! I'm 41 and can't believe it is filling in with grey hair all over. I should be happy that its growing already and can always color it but still makes me feel old. I'm 1 week out from my final chemo so it may fall out again?



    I have about 10-12 eyebrow hairs left on either side but lost a few more this morning. I think they may all be on the way out. Still have eyelashes though.



    So here's a funny story. I went to my hairdresser today so that she could trim my wig. I was getting frizzy ends and it was just so hot. As she was combing through it, the comb got stuck on a tangle and my entire wig came flying off and into her face and over her shoulder! She grabbed it, we both looked at each other with the same "Oh S***!" expression. We tried to throw it back on and got it backwards and a little sideways. We both started laughing out loud and I nearly peed my pants from laughing at how we both freaked. So I can now say I have went "topless" out in public! If I can help it though it won't happen again. I'm keeping my fingers crossed that I can keep my scarves on at the beach next week...it can get pretty windy.



    I've had horrible dry mouth with this last treatment. It's worse than ever before and the biotene us doing nothing for it. The inside of my mouth feels like leather in some places. Very irritating!



  • Heidi9256
    Heidi9256 Member Posts: 87
    edited June 2013

    Today I am 2 weeks post chemo and I noticed quite a bit of fuzz growing on my head today.  I've been taking Biotin but I  wasn't expecting any hair growth until at least 3 weeks after chemo per what my doctor had said.  I had never noticed any fuzz growing in between treatments so I'm pleasantly suprised by this new development and cautiously optimistic that I may actually have some real hair by the time school starts.  Eyebrows and eyelashes, however, are a different story.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    I am almost 8 weeks out of chemo - I have dark 5 o'clock shadow all over my head - I can feel it.. but its still too short to measure it - but it does make my wig itchy..eyebrows have looked ridiculous the last 4 weeks - I have like 6 hairs on both eyebrows..and eye lashes are still thin... I still haven't had to shave my legs so thats a plus! I saw a lady at rads who had at least an inch or more of hair growth - she had given up the wig as it was drivng her nuts - I asked how far away from chemo she was an her final chemo was 2 days before mine - she said once her hair started coming back it just seem to grow in over night - I sure was encouraged even though she had so much more than me .. but its all a start!

  • slv58
    slv58 Member Posts: 1,216
    edited June 2013

    I'm 5 weeks pfc and have more fuzz growing at the sides and back of my head-thinner on top. I'm wondering if the texture will change because it definitely doesn't feel like adult hair! Seems to be all white as well -is this really how much grey hair I had? Impossible! Nancy I'm like you in the eyebrow area-I have a few straggly hairs on each brow and just a few eyelashes. I want to start taking bamboo silica (my health food person said it is better than biotin) but I'm not sure if this will interfere with upcoming rads-just had my surgey on 7th. Just to play it safe, I think I will wait till after rads, don't want to interfere with free radicals!

    On a side note, a friend of my neighbour saw me on sat. then again yesterday and said my hair has grown! Ok, my fuzz has grown!

    LW I almost peed myself reading your post! Only because I can relate (as a fear). To be honest, whenever I'm home, I'm topless-all my neighbours have seen me bald and I don't care-just don't have enough guts to go out in public, but will when I get enough real hair to not look like "fuzzy wuzzy" thanks or the sympathetic laugh you gave me-felt good!

    Nice to keep our thread going feb fighters :)

  • TMM60
    TMM60 Member Posts: 190
    edited June 2013

    Similar story here. I'm 8 weeks PFC and 24/35 Rads. Few straggly brow hairs and lashes, but I see some signs of new growth! Leg hair has started growing again, but white and fine, unlike my previous dark and coarse hair. I'm amazed at my head hair growth. I've got about 3/4 inch on top and sides. Front and back maybe a 1/4 inch. Agree with slv58- it doesn't feel like adult hair, its softer. It's salt and pepper, but mostly salt- although it seems to be getter darker- maybe because it is getting less thin and you can see less and less scalp. Hooray!

  • melody46
    melody46 Member Posts: 279
    edited June 2013

    My fuzz feels like poodle hair too but I have a pretty dark shadow of hair coming in also.  Just using Nioxin and biotin.  My rads are done next week so I'm going to start taking prenatal vitamins and see what happens.

  • tangles
    tangles Member Posts: 508
    edited June 2013

    LW I never shaved my head either. I have and have always had baby hair about an inch long all over my head. Dont get me wrong I cant go topless anywhere but home as you can see my scalp. My MO was surprised one time when I took my hat off for her and I was not shiny bald. I keep checking my scalp daily looking for any sign of new hair growth and 3 wks PFC I see NONE! My hair usually grows pretty fast so I am hoping once it starts it will take off. I am amazed 3 wks PFC how tired I am still getting. If I take it easy during the day I feel OK but if I run errands during the day I am paying for it in the evening. Guess after 18 weeks of pumping poison in my system I cant expect to be back to normal in 3 wks! UGH......

  • Shasha10
    Shasha10 Member Posts: 297
    edited June 2013

    Tangles are you doing radiation now? I'ver been so tired during the TCH, and now that's finally over; I was really hoping my energy would return, but I start radiation on June 26th. Also, My mo didn't give me the go ahead for any supplements for my hair yet. She told me ask the radiologist. I really wanted to start Latisse for my eyes and brows.

    Oh well.

    Have a nice weekend everyone!

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Shasha I am getting my TE exchange surgery in 10 days then heal up and its off to Rads end of July. I am not using any type of supplement. Just the Bosley system shampoo and treatment. Nothing oral.....

  • Shasha10
    Shasha10 Member Posts: 297
    edited June 2013

    Thx tangles will check it out. I was a little freaked out today when I realized another chunk of lashes fell out. It's my birthday and we're celebrating it next week in Fla w my son. I'm wearing false lashes. Maybe not if its hot. But I can't wait Till hair grows back.

    Dh got me the sweetest card that I got more beautiful every day. Fuzz and all. It helped

  • slv58
    slv58 Member Posts: 1,216
    edited June 2013

    Shasha I can understand how you feel, I really miss my eyebrows. Lately I've been going totally makeup free-there is just so much painting in I have to do that sometimes I catch a glimpse of myself and have to laugh-I look so fake!

    I've been walking every day trying to loose some of this chemo fat, uggggh chemo changes us so much, it's bad enough we have to worry about this disease, when all we really want is to return to the carefree days of " before cancer". I guess the challenge will be learning to live our new normal with joy and not worry. Help.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    I guess alot of us feel fat now - I lost 10 lbs after chemo (could really lose 40 to look ok) without even trying but now I think I am gaining that back - all the food that had no taste or tasted strange now is tasting good..its been 2 months since last chemo and my taste has finally returned - the only thing I can't eat anymore is peanut butter - I always tried to eat a few pb crackers when I was getting chemo and its now left me a little queasy just thinking about it...I really wanted to lose weight now before starting the anti-hormone meds but its not happening.. just sign me -fat and bald!

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Nancy I have to laugh at the fat and bald comment. I have had so many people say "oh you look good" well I just want to say really?? When you go bald and gain weight I will tell you the same lie then OK?? My hubby gets mad at me and says they are just saying for having cancer you look good... So I dont look dead?? I just dont know how to take it. Of course I say thanks and bite my tongue!!! I have only lost 2 pounds of the 14 I gained with Chemo. I am hoping I can lose this 12 before my daughters wedding Aug 10th. Trying to count calories but working out is not in my picture yet.Still having allot of joint pain and weakness. I think maybe in a few weeks!!

  • McKatherine
    McKatherine Member Posts: 300
    edited June 2013

    Glad to know I'm not the only one who flinches when people comment about how good I look. I think you're right Tangles - we don't look dead so that's good. :/

    I've gained 17 pounds since before chemo - I weigh more now than I ever have (except when I was pregnant). But my plastic surgeon said not to lose any - she wants the extra fat for contouring later. ;)



    I had my pre-op appointments last week. Did most of you get muscle relaxers to take after surgery / fills or just pain meds? I'm a little nervous about the TE. I hate the way I feel when taking pain meds . . .



  • tangles
    tangles Member Posts: 508
    edited June 2013

    Had my first solo Herceptin treatment today. Was there longer then I expected. Got to meet with my Mo today and she said eye watering and extreme fatigue can last 8 wks. UGH not what I wanted to hear. Then she said not back to normal for a full year. One week from tomorrow having my exchange surgery!!! excited and scared!!

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited June 2013

    Tangles, what kind of implants did you decide to go with? I don't even see my PS again until I'm finished with rads, but I've put zero research into it. I know there are other forums on here that I can start checking out for more info, but I know you put a lot of thought into your decision. Thanks. BTW, I didn't have any SEs from the herceptin only and my eye watering is barely an issue anymore and I'm only a week ahead of you.

  • McKatherine
    McKatherine Member Posts: 300
    edited June 2013

    Tangles - my MO said that by 6-8 weeks pfc I'd have 80% of my energy back. But yes - the rest takes about a year. :(

    But 80% sounds pretty good.

    Also- I think I have hair coming in!

  • LakeGirl2
    LakeGirl2 Member Posts: 68
    edited June 2013

    Good luck Tangles!

  • tangles
    tangles Member Posts: 508
    edited June 2013

    I have been checking for hair everyday. So far None:-( I will be 4 wks PFC on Thursday.......

    Dizzy my eye watering is getting less but still there. Yes I did a ton of research on the implant thing and choose to go with silicone rounds. The gummy style is too new. My PS felt very confident in doing them but his Secretary told me he has only done 3 as they just came out in March. He may have done more by now that was in early May I had asked her. The gummy ones are firmer and are teardrop shaped. I was afraid of the firmness and also if they would rotate. If a round slips or rotates you dont have that issue. The gummy also only come in a limited amount of sizes for each chest measurement. So lets say you measure 13 in your chest area they may come in 5 sizes. To make a long story short I would end up a B cup at best. I wanted to be a C cup. I also read many women have been disappointed in there size after their exchange surgery as they end up looking smaller then they thought they would. On the plus side they have a way less chance of rippling. I guess if I have rippling no one is going to see it beside me and my hubby so I will take that chance. Saline, the older way, is still available but not used as much. They are harder to the touch and even more chance of rippling then silicone. Also with silicone you get to have an MRI every few years to check for leaks and my Dr said that is a good thing as MRI would pick up if there is cancer anywhere around that area too!! Final decision maker for me was talking with a few others that got the silicone and LOVED them so no Turning back now for me.

    I would LOVE 80% of my energy back. I cant believe how my body is feeling after this last chemo. Every night I feel like every muscle in my body has been worked over by Jillian Michael's! LOL I remember taking a weight lifting class at the gym and feeling like this the next day, but All I am doing is average stuff and my thighs & quads and arms just burn in pain at the end of the day. I didnt even have this during chemo!!! Maybe I am just doing more and I dont realize it?? Its frustrating.....

  • melody46
    melody46 Member Posts: 279
    edited June 2013

    Tangles I had the same sensations in my muscles after chemo it went on for a few weeks and is now 90% gone.  Hang in there!  BTW Ladies I finished radiation today! very excited that the treatments are all over and I'm on the mend

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Congrats Melody!! I cant wait to say that, but it will be a long time for me!

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited June 2013

    Congratulations Melody! Good to hear about the muscle pain. The last time I attempted to run, I could go for about 2 minutes and needed to walk because my quads were so sore. So frustrating as I was running 20 miles/week before surgery. I know it's a long time before I'm back to that, but just running a mile without stopping would make me feel so much better.

    Thanks for the info on the implants, Tangles. My PS was telling me I would not be happy with Saline, but the thought of silicone leaking in my body just scares the hell out of me. I have research to do Smile

  • GIGIF
    GIGIF Member Posts: 37
    edited June 2013

    Shasha,

    I have been using Latisse for over a year and continued using in March when I started my chemo.  I did 4 treatments of TAC and just had my first of Taxotere and Herceptin.  My onc said I would probably lose all of my body hair including eyelashes and eyebrows, but I still have both.  My eyebrows got thinner, but my lashes are still long, although not quite as thick as b4.  My advice is to fill the RX and cross your fingers !

  • Gina925
    Gina925 Member Posts: 35
    edited June 2013

    I am 15 days out from my last & final chemo. Went last week to see my dermatologist & got Latisse. I am starting to see new growth in my eyebrows. Not sure if its the Latisse that is helping or is it just natural growth.

    Also- had my port removed today (it served me well) and while she had me under, she gave me a fill. Yesterday my ps gave me a fill. So now I am sore in all 3 places. They are trying to get me completely filled prior to rads starting.

    Going to go back to work next week. Im going to work from home 3 days and go into the office for 2 days. I plan to keep this schedule all through rads. I figure this will help me get stronger from chemo and hope the leg aches will get better. I'm a lil nervous about work and wearing a wig and feeling like a weirdo & also about being exhausted in general.

    Tangles-Im excited for you. Keep us posted on your final implants. I also plan to go with Silicone rounds. Do you have side boob now with your te's? Will we have side boob with the finals?

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Gina I do have a side boob now but I am overfilled 100cc so hoping for no side boob. I also think a side boob that is squishy and not hard as a baseball might not bother me as much.

    DiZzymom I have read the new silicone is high cohesive and is very thick so doesn't leak out like the old school silicone.

    Getting sick of this muscle pain. I guess I should be grateful I didnt have it the entire Chemo but OMG every night I feel like I have done nothing but lift weights and do squats and lunges all day. Its crazy. Feel pretty good in the am but by evening Im about in tears. My hubby asked what was wrong last night and I said Im sick off feeling like I have been on the biggest loser camp all day working out!! eye watering is getting much less though.

  • LW0919
    LW0919 Member Posts: 196
    edited June 2013

    I'm at the beach on vacation, now 2 weeks PFC and am frustrated at how hard it is to do anything. It's wonderful here and for the most part am pretty relaxed but just walking out to the beach through the sand is beyond exhausting. I have to stop every little bit because of the burning. I too feel like I've done 90 minutes of cardio or lunges because my muscles are all so sore from walking. Every time I get up now they ache from all the effort it takes to walk through the sand. It is frustrating to know that I should be able to do it easily but it's so much work now because of the chemo. I feel like everyone is watching me anyway because of the scarf, giant hat, sunglasses, cover up and the lilly white skin and then watching me stumble through the sand. Mentally though, it's fantastic to know that chemo is over. I'm going to keep pushing, it's got to get better!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited June 2013

    LW - enjoy the beach - I wouldn't have been able to do the beach so soon after chemo or anything physical - so I am proud of you that you are doing it.. you are right - it can only get better!

  • tangles
    tangles Member Posts: 508
    edited June 2013

    Im with Nancy I could have never done the beach 2 wks PFC. I was 4 wks PFC yesterday and had a pretty big pity party for myself. I had my bar set high I guess again. Always do;-( I thought I would have maybe a stubble or shadow of hair growing in by now but NOTHING. I also thought I would feel so much better 4 wks out. My joints and muscles hurt so so bad I can barely make it through the day. Not sure if it is a delayed reaction from Chemo or the fact I am using them more then I have been the past 6 months. My feet even ache and it hurts to walk. I have regained some energy back but cant do anything with it as my body hurts so bad. My eyes are still watering, although it is less. Really worries me going under the knife on Tuesday still feeling this crappy. Very frustrating. LV enjoy your time at the beach. We have a trip planned to Chicago on July 8th. I am worried I will be just sitting in the hotel room all day:-( UGH I need patience...........

    Oh and I told my hubby last night I am so sick of the heat and wearing hats Im about to just go topless and I dont give a crap if people stare! Ive had it!!!!

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