Starting Chemo June 2013!?!?!

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  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    I hope I'm as brave as you Ingrid I should have first chemo June 13. I put it off long enough I feel like I'm going in kicking and screaming. I don't want to do!!!!!!.wahhhh

    Dx 3/22/2013, IDC, 2cm, Stage IIa, Grade 3, 1/15 nodes, ER+/PR+, HER2-Surgery 04/26/2013 Mastectomy both breasts cancer in left
  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited June 2013

    Hello Junebugs,

    Tomorrow, Thursday June 6th is my day to start chemo.  Doing 8 rounds of AC 2 weeks apart.  Had chemo teach yesterday.  Lots of info.  Been trying to take it realy easy today and NOT think about anything medical.

    I'm ready with my chemo bag of pills and water etc. to take with me and have stocked up on some things I think I may like to eat like watermellon and some apple sauce cups, crackers.  Also have a clipboard for me & DH to keep all the contact #'s and things to watch for.  Hey wait, so much for not thinking about things medical, lol - hard not to at this point I guess.

    Wishing everyone well and I'll check in with you soon.

  • kmurphy
    kmurphy Member Posts: 55
    edited June 2013

    I am scheduled to start chemo June 20.  I am a restaurant manager and work 50 plus hours a week.  I am hoping that I will be able to keep it up during treatment.  I really need my job so I need to do my best to try, but I am concerned that may not be realistic.  I am on my feet alot and the days are 10 or more hours long.  does anyone else have a similar demanding job and making it work.  I will be doing 8 rounds 2 weeks apart.  Then 7 weeks of rads. 

  • Jojogal123
    Jojogal123 Member Posts: 11
    edited June 2013

    Starting tomorrow. Really haven't been stressing too, too much. I know that everyone's side effects are different and I hope they won't be too bad. Doing CMF and I've heard that it's "not horrible." Not sure exactly what that means. Taking off Friday and plan to work all days except day after chemo. 8 rounds every two weeks with a booster shot the following day. Just happy to start it. The sooner I start, the sooner I finish. I'll be thinking of you, Ocean Warrior...day 1 tomorrow!

  • IngridJ
    IngridJ Member Posts: 121
    edited June 2013

    Dim425, Ocean Warrior and Jojogal 123; you will all be fine..

    The anticipation is def the worst part. The actual event is ok, so far, for me, at post the first few days at least the se's have been tolerable and minimal really..

    Just take it day by day and be kind to yourselves.. It's a lot to take in, mentally as well as physically, and really a time to baby yourself... Lots of fluids and comfort food. I got wig today, pretty pleased with it- really looks like my own hair and not too 'wiggy'... Would prefer my own, boo hoo, but thems the breaks..

    Hope all goes well to everyone else starting this week..!!

  • raindeer1217
    raindeer1217 Member Posts: 90
    edited June 2013

    Good morning ladies! Today is the day. Start chemo. I was stressing last night because I've been so busy (selling my business, starting a new career, moving out of my house, closing and moving out of my business) have not had a moment to be sick let alone worry about cancer. As of last night I hadn't even gotten a chemo bag made! Yeah that busy. My best friend surprised me with it this morning. God I love that girl!



    So fellow warriors rock it out today!



    I'll be sending out vibes to those who go into today and all of you who are handling the days after your 1st treatments.



    Rain

  • kmurphy
    kmurphy Member Posts: 55
    edited June 2013

    @IngridJ and Rain--a few of your earlier posts reminded me so much of myself.  My kids are grown but I still look after many things for them, my husband, and then work, work, work.  I rarely get sick and if I do I would just barrel through it because there are just too many things to do.  I never did anything to look out for myself.  When I first found out I had cancer I thought, I don't have time for all this!

    This weekend I am going to try to get myself all organized and write down everyone's tips and a schedule of when to use them to keep myself as healthy as possible so I can keep working.  It's been a challenge, but so far I have been able to go to doctor appts, surgery, and testing and still work a full schedule.  I am trying to save all my vacation time to use when I really have to.   The good thing is that being so busy gives you little time to have all this BC stuff weigh on your mind and drive you crazy.

    I will be thinking of all of you that are starting chemo today!!  Good luck and hope you all get through it well.  I'm happy to see a lot of positive women here..my doctor says that is 75% of getting there!!

  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Good luck today ladies!!!!!! You are so brave and will be great!!!!! Keep is posted!!! Sending love your way!!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Best Wishes to all who started or are starting chemo this week.



    kmurphy~~I think all those hours will prove to be too much. The fatigue from AC is awful. I got AC every 3 weeks, and it wiped me out. I came home from church one day, and after my husband went into the house I sat in the van for almost 30 minutes just trying to muster up the strength to walk from the van to the front door. It was probably 30 feet. My house got so messy I was afraid I'd end up on an episode of Hoarders. It wasn't a sleepy tiredness. Just bone weary. I know everyone is different, but I got out of breath really easily, and standing more than a couple of minutes made me faint. Many keep working during AC, but you will rarely find anyone who works fulltime.



    Do you have anyone who can fill in for some of your time? Be good to yourself.



    Blessings

    Paula

  • Netter
    Netter Member Posts: 107
    edited June 2013

    1st chemo over and wasn't too bad.  Feeling like something happened yesterday.  Nothing sounds good to eat.  Very tired. Found out my Oncotype DX report shows me as triple negative.  Hopspital report said I was ER positive.................so something else to resolve.  MO said we need to concentrate on 1 thing at a time, right now that is getting through chemo.  But I can't get this out of my head.  Having some loose stools.  BTW, I was told to flush twice and if it is possible to make it your bathroom and others use another one.  Take care all and I am anxious to hear how all of you are getting along.  Prayers!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Netter~~They usually say, Flush 2X with the toilet lid closed.

    It sounds like you have a handle on things. They do need to sort out the dx though. Diagnosis greatly affects the treatment you get. For example, if you're HER2- you'll need Herceptin. If you're ER/Pr+ you'll need tamoxifen or arimidex after treatment.



    Blessings

    Paula

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    One gets Herceptin if one is HER2 +3.  The HER2 +1 and +2 which are considered HER2 negative in the Herceptin world do not currently receive Herceptin as part of standard protocal.  I'm currently in that Herceptin B-47 clinical trial to determine if HER2 +1 and +2 should receive Herceptin.

  • VAL1966
    VAL1966 Member Posts: 37
    edited June 2013

    Hi all ..,back from my first treatment !! it was uneventful.. But it's been a couple of hours now and the nausea has hit me !! Also feel like my head is foggy!! Don't know now else to describe it !! Hope things don't get worse !! Trying to stays positive :)

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    VAL1966- Hope you get that nausea under control.  Just have to try to stay ahead of it.  If it gets worse, call in to your onco asap.  Doesn't matter what time of day it is.  There is always an onco on call to help you.

  • LakeGirl2
    LakeGirl2 Member Posts: 68
    edited June 2013

    Val1966 - I also felt foggy after chemo . The effect of all the premeds and chemo. That should pass by tomorrow.

  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited June 2013

    Starting chemo on June 14. Nervous YES but just want to get it started and done! I figure I should be done with chemo and rads by thanksgiving

  • Miasara
    Miasara Member Posts: 17
    edited June 2013

    Hello ladies. I will getting my first infusion tomorrow. I was supposed to start last week but was delayed due to a fever. I actually got there, sat in the chair and got sent home. I was in complete shock.

    Hope you are all having a good day.

    Mia

  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Netter--They may want to "figure it out"!!!!   I know you are overwhelmed, but different treatments for different types?  Im no dr, but they ARE!!  Hang in there gurl!   xoxo

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    Miasara- Make sure you hydrate today so your body will be ready tomorrow for the infusion.  You may also want to eat a light breakfast in the morning before you go to your infusion.  The infusion nurses always made sure i had eaten a little something before they gave my the IV drugs.  Those IV drugs and an empty stomach don't mix very well.  Be prepared that this first round may take a little longer than the other ones.  If it gets to be around lunch time, make sure you have your chemo buddy get your something to eat.  Wishing you the best tomorrow!!!!

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited June 2013

    Hi there,

    I'm back home now after my 1st infusion.  Similar to VAL1966 I would say - uneventful.  Things went really well and it was not at all difficult in any way.  They go out of their way to make you comfortable.

    I have the fuzzy head feeling and at this point, I'm hungry so had a snack.  Don't want to over do it and yes, I will stay on top of the anti-naseau meds.

    Going to rest and continue to hydrate.  

    So far, easy breezy.  

    Sending encouragement and support for all. 

  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Ocean warrior, great news!!!!!!! Did you go home with a ton of meds?? So happy u feel good. Keep us posted!!

  • raindeer1217
    raindeer1217 Member Posts: 90
    edited June 2013

    Uggh. Chemo done, 1st treatment. 4 hours later already throwing up? Anyone else having a problem?

  • MichelleRN78
    MichelleRN78 Member Posts: 64
    edited June 2013

    raindeer- what meds for nausea did your dr give you?  My onc said that if I was having nausea that she wasn't doing her job.  There are so many meds available.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    Rain- I don't know what anti-nausea meds you were given to take post chemo.  If you are still having the nausea and vomiting episodes, call your onco tonight.  Don't try to ride it out.  The onco can adjust your meds but you have got to let them know you are having problems.  It's okay to call this evening because there is always an onco on call.  Keep us posted..... Hope you feel better soon!!!

  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Ugh. Feel better.

  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    Hello Ladies I'm scheduled for first chemo JUNE 13. Every other week for 8 treatments. I scheduled for a Muga scan and refused to take it. The nuclear dye make you radioactive and you can not be around.small children and my dogs sleep with me. I'm now getting a echo cardiogram. Feel alittle bit better. Just want to be done and move on with Life.

  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    Alibeth glad you feel better. :)

  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited June 2013

    Hi - me again.  

    Spoke a bit too soon.  Nausea hit and I threw up once.  Maybe should not have eaten as soon as I got home? Similar to you Raindeer, about 4 hours after.  

    I have anti-nausea meds, took 1 "breakthrough" ones about an hour before getting sick.  Not any nasuea now.   Next double dose of the same 2 anti-n meds taken before infusion scheduled for 9 PM.  Taking them for sure and taking note as others have said to NOT suffer through.  I honestly think it was eating too soon that did me in (or the pain meds I took for my RA pain) but if I throw up again tonight I will phone the on call Onc.  

    Sigh..... its not so bad.  Early days, I'm not worried.  Back to resting.

  • Netter
    Netter Member Posts: 107
    edited June 2013

    Throwing up is bad stuff. I learned my lesson and take Zofran etc. at first sign. Got my Neulasta shot today. Taking Claritin so hopefully no bone pain. Not bad.  Very tired and in a fog all day.  Can't wait for day 3-5, lol.  Great friends bringing in meals.  Didn't think I was hungry until the wonderful smells came in.  Have to get a compression band for my left arm, it is swelling.  Received a wonderful little pillow, "God is holding you and he won't drop you".  Ready for bed.  All of you are in my prayers!  Nite all!

  • Miasara
    Miasara Member Posts: 17
    edited June 2013

    Melmar, thank you for the great advice. Im drinking up a storm.

    Rein & Ocean, hope you feel better with the throwing up.



    Dont think I'll get much sleep tonight...

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