The Hermit Club
Comments
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Cammie I stick at Macy's and they stick with me, probably should quit but want to hang on as long as they will have me and I can do it....only work my week off, but no hours this time so many next month....
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Blondie I'm glad u can work it's wonderful and u get a discount and sales --tht's a good place to be.
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Oh Lori - that totally sucks. And document everything. I am having a time at my work too. I'm in a union and our contract says you have to work 1200 hours in the calendar year to get ANY sick time the preceding year - sooooo I am not getting any sick time until January 2014 - even though I went back to work in February. I am still getting treatments - so they use vacation time for those. The person who does the payroll told me that she wouldn't take time for 4 hrs or less - but she took 4 hrs for a time I was off 3- ugh@#$#^
Anyway - I am just trying to let it go and believe in Karma. Just sometimes I want to catch a break - you know? Hell - I've been through cancer and am back to work and trying to leave all the drama behind me - all I'm asking for is a little kindness.
Laurie - take good care and rest A LOT!!!! If not now - when?
All of you in Oklahoma - I wish there was something I could do. Take good care.

Marilyn
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Lori - get legal advice and sue them for discrimination, breach of law and everything, there was another thread on here about this and someone got great advice - sorry i am not american so cant remember name of advice organisation
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Laurieparr, Hugs to you my dear hermit!! Oh, your doctor sounded like an angel, himself. Gosh, can't find many men that is as caring and as sensitive--especially not a doctor. My surgery mirrored yours without your lovely compassionate doctor. I had a huge long scar--but clear margins. It's on my right side and I am a right handed teacher--so no writing on the board for a while. I took two months off anyway. Everyone in my family and work knew I had clear margins before I did. LOL!! I found out when one of my comrades called and told me that my director announced it to the entire school on all bulletin email that my margins and nodes were clear. My doctor told me the next day. Nice doctor but not much in the communication department. Maybe he thought I was still too drowsy after surgery so he told the family instead of me So happy for you! Keep on, keeping on!!!
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so hermits, speaking of disabiliities, I went on temporary disability after my surgery March 26th. Well 6th years ago when my hubby left--divorced, he filed Ch 13, so I followed suit --so I wouldn't have to pay the bills myself. The Ch 13 included Sallie Mae who financed my student loan. Okay paid the entire $40,000 off I owed (including Sallie Mae) in the 5 year plan. Got back on my feet financially before I even completed the program. I had used all my sick leave so the disability was really needed. Well, today,(the first check I was to recieve) I recieved a letter in the mail stating they took every cent of my first disabliltiy check of $3200 for a student loan default, I wasn't aware. Although Sallie Mae was paid, the State of Il is making me pay the interest on the loan. Is this legal??? Claim they could not find me to let me know I had to pay the interest of $3500. Now I can' talk to them until Monday, but I think it will be a lost cause. Dangit, I needed that money to pay my bills and mortgage. Now I am going to have to dip in my small savings. UGH!!!
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Dear Lori,
My heart hurts for you. Blondie is right...document EVERYTHING. I can't imagine how hard this must be on you on top of the BC too. It is a terrible tragedy what some women do to each other. You are being tortured and that is not right. I pray that God removes you from that toxic environment and opens a new door for you full of peace and light. We are here to listen and love you. Your ragdoll sounds amazing. How wonderful to have her love.
Skittle-how scary to be amidst the storms. Thinking of you every day. When I watch my hummingbirds feed outside I think of all of you and smile.
Camille-what horrible things people say to each other. They come up with their own conclusions about things and that is so sad. Good for you for "showing" them! Poopy faces. Ugh.
Jazzy-You always seem to find the right words. I exhaled when you said, "There is sort of an emotional letdown after surgery." It seems so wrong to feel that way, but it is true. I can't seem to put my finger on it. It's as if the surgery was Christmas and now it is the day after when you are left with a mess and bills. I have so many mixed emotions...grateful, yet sad and lost at the very same time. What a blessing to feel so understood by all of you.
Teka, Markat, Michelle, and all of the rest....love and gentle hugs.
XOXOXO
Laurie
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Hi everyone I hope u'r all doing OK--I always say OK cuz fine to, is not the word for now anyway,
Laurie U sound good and u have a wonderful attitude, I hope u'r not to uncomfrtable.
DWILLI I csn not believe that they took it all---they are supposed to be allowed to take a % of u living money and they just took it all? Of course u have to get ahold of someone from the loan place, now use the word CANCER every chance u get because u r to be treated with respect to u'e illness. I'm sure u can find this in u'r computer oh wait u never got a first check, I was thinking who signs those checks? I doubt if it's the comptrollor of ILL. Judy Barr Topinka (I think) Or u'r union ---find email addresses and write to them to tell them what has happened, I know it's a pain--but I had to do this a few yrs. back and got it straightened out by me aggrevating everyone nicely tho---and they took a% out instead and if u still have u'r proof that this was paid u get the fax # and faxit to everyone. and do it everyother day til someone says OK we'll help u. Believe me I feel for u, cuz I know and I'm still fighting with the state on something else and I worked for the state--so don't use my name it'll get u nithing. I wish u the best in this yet nother aggrevating thing now.
Well I took a shower and I smell luscious--it so relaxing with aroma around me, LOL
Oh Markat I've been sending prayers u'r way for strength at this time.
I'm retired--meaning yes I'm retires but this time I mean I;m RE---tired like I have to sleep again. I was up quite a bit last nite, plus my pain meds don't exactly wake me up I have 2 cups of coffe and take a nap--but at 3AM I'm up and nit tired. I don't know how often I've told everyone how horrible it is to be such a miserable typist and I did it most of my working life. LOL, but it was for the state so none knew any difference or even read my reports.
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Marilyn and Dwilli,
Thank you for your kind messages. I am SO sorry that you are having to endure these money/work issues on top of the BC. It is a horrible slap in the face. I am praying for you...I wish there was more that I could do. Thank you for sharing with all of us. I hope things get better.
XOXOXO
Laurie
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Michele--I'm your neighbor to the east--Arkansas. We get your weather about a day later. A few rural nearby communities had (small) tornado activity, but nothing like your recent F5. Our town was pretty much wiped out in the late '70's, and my "homestead"/acreage was hit four years ago, taking apart over a hundred enormous oak trees. We still have damage left from that mess. Nature heals slowly.
dwilli--right-handed teacher, too! I wrote very little those first couple of weeks back. Used more technology... :-) My kids were happy there was less on the board to respond to. Pain killers were my friend... I hope your financial burdens can straighten out in your favor. Such a tangled web.
Lori--I agree. Document, document, document. Protect yourself and arm yourself for a harrassment suit, if need be. Your local bc center might offer legal advice to protect you!!
Laurie--you are so deeply thoughtful. I had to take the remains of my hummingbird feeder down recently when winds burst through and shattered the glass on its resident willow tree. I should've thought ahead... sigh. I remember being stunned by the length of my incision, too. I guess I thought "Lumpectomy. How bad can it be?" Somehow the "ectomy" part sounded minimal. Then, like you, woke up to an incision the entire length of my breast. But--it heals into its own little expression of survival and faith... and the emotional part gets better... and for years, not just with bc, I have perfected lengthy bouts of complete denial... I guess what surprised me as for scarring has been the node scar. It must have been deeper, since the scar is still quite pronounced/deep. You are doing so very well--don't overdo. (Son's games going well? One of my teacher friends is headed for St. Louis for a Cardinals game.)
Camille--I hope the sun is shining soon for you. Anything planned for time with Joey? Summer has begun for students here.
Markat... as always, hugs and love to you and yours. Prayers for you and your little girls.
Teka, blondie, all... Have a restful Sunday ahead. hugs...
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Skittles, I am 20 miles north of Tulsa.
Just a couple of days ago I was thinking about going to eureka springs. Love love love it there. Last year some girlfriends and I rented scooters and got stopped for speeding downtown. 40 year old ladies raising hell. I do not have the strength for that now, however a stroll downtown would be perfect.
Enjoy your weekend -
Skittle u always say the right things, u write with such empathy and kindness and Lurie u'r another one there is so much sweetness to u. And I completely agree about the lumpectomy scars and healing much worse than a full masectomy, I mean u have scars bit no pain at all. So Laurie u'r doing well, it sounds like it.
(((Markat)))---Prayers for u and u'r family.
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Wow I would take my lumpectomy scar over my masectomy scar any day. I look like Frankenstein or a football. Plus I have scars from the drains. Hopefully it gives me years to live:)
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Skittle-I wish I could buy you a new hummingbird feeder and deliver it in person so I could give you a hug.( I wouldn't stay...I promise. LOL! ) Thank you for validating the scar as well. The "ectomy" part (along with the doctor's description) sounded so minimal. Like maybe a laparoscopy type of incision. It was quite a shock to see this one. Also, today as I got undressed I noticed a large (the size of my palm) area under my underarm and to the side of my scar that is very weird. It looks like a giant ringworm area with red in the middle. It is very painful. It was not there yesterday. I'm guessing maybe that is were the sentinal was? Not sure. My husband says it looks like bruising, but I don't think so. We are going to watch it.
As far as Nick's baseball game, he did great! Four innings pitched, five strike outs, no walks, one hit and no runs against him. He said he went up there and pitched for me. He also had three RBI's! When he came home I told him how proud of him I was. He smiled and ran off. He came back with a package. He gave it to me and said, "I got this for you mama." It is a breast cancer sticker for my car that is the pink ribbon with the word "survivor" across it. I couldn't believe that a 15 year old boy would do that on his own. I hugged him and said, "Thank you buddy. I love it." He looked down and looked up at me and said, "Mama? Did they get all of the cancer?" I didn't expect him to ask me that right then. I told him the truth. I reminded him that the node was clear (and I explained how important that was) and that I wouldn't know the full story until after the pathology report came back. I assured him that I would be fine even if the margins didn't come back clear. He looked sad and said, "Oh. Ok mama. I missed you at the field today." God I love that boy.
The coach and his boy stopped by a few minutes ago. I wasn't prepared for visitors, but they just swooped in with a pan of enchiladas, a lovely card and a hug. And then they were gone. I am so humbled by the kindness of everyone. It is really hard for me to receive as I prefer to give.

Camille--you are too kind. Thank you for always acknowedging me. It truly means a lot.
Michelle-I'm so sorry for your scars and drain scars. My heart is sad for you. I never mean to diminish anyone else's pain/experience in any way by venting about mine. Each individual's experience should be validated.
Lori--hope things are (somehow by a miracle) better Monday. I will keep praying for you.
Dwilli, Markat, Lily, Marilyn, Blondie, Teka and everyone else.....may you have peaceful dreams.
XXOXOXOXOXO
Laurie
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Hi ladies- I had my first frappacino today at Starbucks for the summer months. It was yummy. Little things make me happy.
Laurie- the thing that bothered me most from the surgery was the sentinel node incisions. I have one on each side and they hurt more than the breast incisions, but they cut through muscle and that is why. My breast incisions are well healed some six plus months post surgery. My sentinel node incisions were much pinker for a longer time but mostly fading now. Now that it is warm here (up to around 90), I wear a lot of sleeveless outfits, but am careful to keep my coverage over those areas so no one sees the scars. Vitamin E creme has really helped my incisions to heal well- something to try when your incisions are healed.
Teka- I like the things growing in your yard. Love wisteria.
Cami- I was thinking how I wish I were retired today! I am working to get my house paid off so I can choose some easier work next.
Hi to the newbees here too!
George Clooney is on HBO (The American) and going to go watch that and relax. Wishing all the hermits here a good sleep!
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camillegal, I was so proud of myself for paying off the $40,000 in the five years after my divorce. I thought I was debt free--who would have thought the State of Il was going to come after me for taxes on a school loan. The loan itself was paid off. I remember the night I was told I had cancer-- all I could think about is here comes more bills after I cleaned up the mess my ex left me with. You think the State of Il could have found me between August 2012 and June 1st, 2013--the day of my first disabiilty check since I've been living in the same home for more than 20 years. Yep the check came from the state controller, Judy Barr Topinka but along side the statement in my mail saying she sent it out was a letter from the State of Il (ISAC) stating they had taken the entire check. I am going to take your suggestion and complain and let them know about my Cancer and I could have made arrangements if I had been given the time and opportunity to pay those suckers--even though I did not think I owed them anything. Sallie Mae got their money--they should have paid the taxes. You know I am not going to let this get me down. There are too many other more important things going on and if they gave me the right figures--then I only owe them another $200 dollars. However, the cancer bills--not covered by my insurance are beginning to add up. I will deal with that too. Life is short--not going to let anyone still my joy away. Dammit, already dealing with the HT pills--sweating like a pig right now--trying to deal with my ups and downs--who needs manufactured problems. I just think there are too many unscrupulous people out in the world. Thanks God there are really good ones, too--like you guys!
Rest of you ladies, hang in there--hugs for all!
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Dwilli Good luck with that I found her the easiest to work with--but blah to the rest of them--u know when I worked for the state I went out of my way all the time for people to get the right thing done for them and I did all the calling and persistent talking to Springfiled all the time. I just thought that's what we are supposed to do. But I find out now the higher up u go the less they help u and that to me is unacceptale as someone we are supposed to trust. So that's why I bother them constantly about another matter that they screwed me on. Oh what else do I have to do LOL
Laurie I loved what u said about u'r son--he sounds like u--so sweet and caring. What a wonderful feeling for u. And again u got a meal--See how much u mean to everybody. How nice. And when u see u'r Dr. always ask whatever u'r concerned about and if something is really on u'r mibd--just call the office and they can help u right away. I never really looked at snything so I can't help u on what things look like but I'm sure others have.
I hope everyone is having a good nights sleep tonite and is reated to have a good Sunday.
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I love the bed scene.

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Teka u would.

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To die for!!!

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Teka hahahaha
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Markat I hope u'r doing OK----sending love.
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Teka--you and Camille should get together for a dvd night! Lots of giggles.
Laurie--I hope your crop circle pattern disappears with no aftereffects! I don't know if I had anything like that or not... because I was the color of a deepest, darkest plum, larger than my palm, entire breast and up into node-ville. I had bruised badly from my "vacuum-assisted biopsy" (mammotome?) a week before. (Biopsy/results/surgery within a week.) Dr. was baffled, and certain I was on blood thinners--but those were the days when I took nothing but a rare Excedrin/migraine... So... the bruising would have covered any odd patterning. I hate to hear it's painful. If it persists into Monday, I'd give the dr/nurse a call and ask what's going on. And your Nick sounds like a sweetheart. Glad he's doing well on AND off the field. (and--you could stay as long as you like. The country is alive with singing frogs, buzzing crickets, bird song, and sunning turtles. The deer are hiding with their newborns, but they'll be brave by July.)
Well, hard to believe, but I'm off to pack the car for the trip down to the coast. (!!) Happy dance. Meds and sunscreen top my list. We leave first thing tomorrow! And I know I'll think of each of you--the beaches have so many, many hermit crabs. They scuttle about and yet make way for each other. They are fun to watch.
Best of luck with all the financial, legal, work, family and health struggles. Hugs to each.
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Love and blessings to you Skittle!! Have a WONDERFUL time! I smiled when you told us about the hermit crabs.

XOXOXOXXO
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Hi all , sorry I have been MIA. Taking a bit of a break to concentrate on getting healthier. Lots of new people and was having trouble keeping up.
Markat, sorry about your mom, thinking of you and your family often.
Laurie, glad your surgery went well, was trying not to scare you, so I hope it was not too much worse. First couple of weeks are the hardest. Glad it seems there was not any surprises, will keep praying for confirmation of this on your final path report.
Cami, skittle, teka and the rest of you wonderful ladies, wishing you a great week.
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Skittle- have a wonderful vacation. I was thinking about days long ago when I lived back east and we spent our summers on the beaches of RI. Miss those days this time of the year. The ocean is healing and will be a good place for you!
B-girl: good to hear from you and that you have been taking care of yourself.
Having a slow day today, as I did not sleep well/enough last night. It thundered and tried to rain here but nada. Bad fires starting up again in the forests here. Need to keep doing the rain dance.
Everyone have a good week!
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Skittle have a wonderful time and be safe--and I liked the crab mention too Laurie.
And good to see u Bgirl, I'm glad u'r taking time for u'rself but if u need or want to share how u'r feeling u know we;re here for u. Even tho we have all dealt with BC there are probaly not 2 of us that have had all the same things happen, but we all seem to understand anything that happens--it's a no rules disease that's about all we're sure of--I hope u'r healing well.
Laurie again--u'r son is a treasure---especially at that age---he'll be such a wonderful man--Of course no one will be good enough for him--you know that???
(((MARKAT)))
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CAm only get a discount if I use my prepaid charge which I don't have anymore..
Dwiii, but SAS will know and if not she will find out....
Laurie what a good kid, he loves you!! There are such sweet people in the world....
Skittle what Cam said...have a wonderful time!!
Me doing ok, just pissed my car is still not usable....hermiting today, not sure about tomorrow....but excited I don't have to go out of the house, pathetic I know but you all understand, and turned the AC off it is like 70...got sunburned at grandsons baseball game yesterday, it sort of hurts but I love it....have to shop a bit on Wednesday to get things for the weekend just in case, never know how you will feel, the mouth/tongue sores suck....ice cream helps tho, lol
Teka, Markat, Michelle, Cam, bgirl, sweet Jazzy and all of the rest hugs!!!
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Blondie a good flavor sherbert is good too.
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I ate water ice yesterday that was awesome also!!
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