Rethinking reconstruction
At first, I was hoping for a lumpectomy because I did not want to have surgery. My ultrasound showed 2 areas. Biopsy showed DCIS of both areas. Surgeon said they would have to remove too much tissue to get a clear margin and the team suggested a right mastectomy. The mammogram did not show anything in the left breast. Surgeon stated that I would be very deformed on the right. She suggested a breast MRI to make sure that the left breast was clear. The left breast was clear; however, the right breast was found to have more "suspicious" areas. I could opt for more biopsies. I did not want to go through that. So, It was a done deal that the right would be removed. I went to see the PS. Since my breasts were so large (42DD), I would have to have a reduction and lift on the left to try to match the new breast on the right if I opted for reconstruction. Since I was going to have to have surgery on the the breast, I opted for a bilateral mastectomy. My breasts were part of me being a woman, but they were not a part of my identity. I really wasn't sure I w anted "new" ones. Everything was happening so fast. I decided to have the expanders put in just in case I decided that I would want reconstruction. I am very, very comfortable not having breasts, but I had some concerns. I have not been breast less before as an adult. I wasn't sure how I would feel about it. I am single and not currently in a relationship, but hope to be again someday. I was concerned that w/o breasts the guy would feel weird about being intimate with a woman w/o breasts. Breasts are a part of foreplay and pleasure for most men. And to be honest, I got pleasure using my breasts as part of the intimacy ritual. I hate the reconstruction process! The scars are very ugly, but I don't feel that being flat chested is ugly. I feel free! I am seriously thinking of stopping the expansion process. For those of you that have opted for no reconstruction, how has this affected your sex life? If you were single, how did your post-mastectomy partner handle you not having breasts? Was it awkward? Did it make a difference? Thank and bless you
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Comments
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Tough questions, cancer changes us. And it all comes down to a very personal lever, what is your own comfort zone? I am not in the dating scene, married for 40 years, but yes, breasts are important for many of the reasons you mentioned. My choice is to remain flat. My question however is *if* a man would be turned on by fake breasts that give you no pleasure, and in fact, may give you trouble?
The 3 women I know who had reconstruction all say their husbands don't bother with them anymore.
I think the very bottom line is how do YOU feel? Do you need breasts to feel a woman? And it is OK if your answer is yes. if you need breasts to feel sexy, then that is your answer. As you will read through these boards, it is quite different living with no breasts...
I hope more people respond...
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I share many of the views Crystal expressed - it really is a very individual choice and ultimately you have to decide what you're comfortable with. However, unlike Crystal, I don't find it so different living without breasts. I choose to wear breast forms (prostheses) and you would never know looking at me that I don't have breasts. I mostly wear lightweight non-silicone forms and generally forget I have them on. I can wear virtually anything I would have worn before (I didn't throw away any of my pre-mastectomy clothes or change my style of dressing in fitted tee shirts).
Like Crystal, I've been married for a long time (41 years), so obviously not the same as your situation, but FWIW, since my surgery almost seven years ago, my sex life has been as good as ever. My mother-in-law had a bilateral mastectomy with no reconstruction and (after my father-in-law died) wondered if she'd ever find someone else (she was only 64 when he died). She did meet and marry a wonderful, handsome man. There are many stories like that.
Some women who opt for no reconstruction prefer to go flat, others wear breast forms only sometimes, others always wear forms. I wear small (A cup) breast forms when I go out, but at home I often go flat. If you do decide to continue the expansion process, you can still decide later to have the implants removed. If you decide to remove the expanders now, you could still have reconstruction down the road, should you decide you want it.
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I had my breasts removed in January, and I feel so free being flat and not having reconstruction. I am more comfortable being the real me than I have felt in 50 years. Did having breasts hold me back from being myself? I didn't think so when I had breasts, but now I wonder if there was a flat woman inside me waiting to get out.
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I'm a bilat flattie, having chosen not to reconstruct. I am married but will share the story of my great aunt. She had one breast removed due to cancer when she was in her 30's(this must have been sometime in the 1960's). No reconstruction. It probably wasn't available. She met a man who who she married. Went on to have 2 kids(the 1st one @ 40yr). Hopefully someone will come by with a more recent story. Best of luck with the decision process.
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Thank you for sharing your stories. I do not feel I need breasts to feel sexy. Once they were removed, I was amazed at how free I felt. It is like having a new lease on life! From a couple of expansion sessions, I do have little buds ( I feel like I'm going thru puberty and menopause at the same time
). I have an appt Monday with the PS. At that time, I plan on deciding whether to have implants with the size I have expanded to now or having expanders removed. Either way, I do not want to continue with the expansion.
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I am single, never married, and had a unilateral mx. My breasts have always been a major part of my sex life. I didn't worry about whether a man would like them, I loved them. I am still waiting for recon, 5 yrs with a TE and counting.. I am tired of wating and wish that I had my recon finished. I have had sex since the mx, and I will say that having one good one left made a difference to me, and having two for him to hold onto made a difference to him. He did say that he wasn't sure if he could handle just having one and trying to figure out what to do. HE said it might have been easier with none. . could be because the TE is such a hard rock on my chest. I don't know. Is he the love of my life? No, but we have been off and on for over 15 yrs, since before BC. I know he was relieved when he first saw the expander in place. I think it was more for me though. I think he was afraid that I would have more issue with it than him, especially since he knew that they had been so important to ME. I will say that even without a nipple, my breast is still important to me. Just slightly less than my natural one, maybe because I still have feeling all over my chest? I still enjoy him touching it. Nevertheless, it is a personal decision and you need to be comfortable with it. If you are comfortable then he will be. If he isn't... well... NEXT!
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I've never heard of having a TE for 5 years -- about a year is the most and that was considered extremely long. They are not meant to be permanent. I hope you can have your exchange very soon.
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Well.. I never expected to have it in for 5 years either and it truly is a pain... My first PS delayed and delayed until I had no insurance. Not to mention constantly upping the fills until the TE was almost twice the size of my natural breast. PS argued with me that I would love to have bigger breasts and he could easily fix the natural to match. I have a new PS, now but I still don't have the money for the recon. Insurance now will cover but not 100%. So I am responsible for the rest and it must be paid upfront. Both of them are at least 2hrs from here and I live alone with no other resources. Welcome to my world...
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cmharris...I do understand. Everyone told me "oh, but breast cancer surgeries are covered by insurance" but I am still in the hole because I had 2 mastectomies, and the one with cancer was $6000 out of pocket for me total (all tests, surgeries and such) and the second mastectomy was $4000 because I did not have a few tests done. This stuff is darn expensive, my insurance pays 80% after I meet my deductible...
So I sure do understand. And finances were a concern of mine about getting reconstruction...as I mentioned 3 of my friends are having reconstruction problems after 5 years, and they too have to save up money because insurance won't pay for it all.
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Thank God! Finally someone that understands where I am! I am disabled now from chemo induced disability. I have had more important thing to spend money on unfortunately... food, scrips, home repairs to keep it from falling down around me, paying off debt that came with disability. Believe me I wish my breasts could have come first. But recon wasn't that important to my docs or my creditors. I am so tired of hearing people tell me that insurance covers it. Not all of us have great health insurance that pays 100%, or a husband that can pay the bills and take care of us while we recover. I am on Medicare and it definitely won't cover the surgery 100%. The insurance I had at the time of my diagnosis would have paid 100% but my surgeons delayed due to my s/e issues until I lost the insurance. I am hoping that I can get it done before next summer... honestly, won't surprise me if I hit the 10 yr mark with this horrid ugly painful TE!
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I had very small silicone implants put in 6 years ago, looking forward to having them REMOVED. Waited until I finished 5 years on Arimidex,ready to be completely PAIN FREE. No one told me how uncomfortable even a very small implant could feel under the pec muscle. There is no sensation, as there probably isn't being flat, but at least being flat doesn't FEEEEEEL stange. Every move, lifting anything, most Yoga positions, I notice, and do not like the feeling of these increasingly hard feeling LUMPS under the pec muscle.
I don't think Medicare covers anything 100% - why most people on Medicare also have a private supplemtal insurance.
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This is good info. I see my PS on Monday. I had been thinking about having implants put in for small size that I have expanded to. I already have hard lumps on the right. I can feel the sac of the TE rubbing against the inside of my skin. It causes irritation and pain. I had heard that the implants feel different. So I am so glad you posted you experience. I also have been doing some research. I have found out that there can be numerous complications with implants. In addition, MRIs are suggested every 3 years at least. And the implants will have to eventually removed and new ones implanted. Being FLAT is not an issue for me! Ready to have the TEs removed!
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Sunflowers: Yes, some people on Medicare get supplemental privae insurance to cover those other costs. HOwever, I have found that since I am under 65, disabled, and on Medicare I am not elegible for any supplemental insurance. I have called them all and talked with Medicare reps. As soon as I say I under 65, they tell me too bad.
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OUCH - I didn't know that - so sorry to hear of your experience - thinking there must be something that can be done at the state level, but then, I'm in MA - and I know many people who are covered by health insurance who wouldn't be if they lived in other states. Wonder if the American Cancer Society might be of help giving you advice?
BTW- Love your dorothy parker quote, she was one of my favorite authors.
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Thanks! I sometimes wish I lived in a different state. I know Maine has some great state agencies, too. Unfortunately, here in the South, there are a lot of people that think people on state or federal aid are deadbeats and looking for a handout. Also, living in a rural county, there are few organizations with local resources, ACS is one of those. They were very sorry that they couldn't help me with any aspect of my treatment, or so they said. sigh... But, hey, what hasn't killed me has made me mroe cynical... oh wait... did I need any more of that? LOL
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I love Dorothy Parker too!!! When I saw this quote, I thought yep! that's me! lol
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