Discoloration from Lymphedema?

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Ibethewife
Ibethewife Member Posts: 26
edited June 2014 in Lymphedema

All I thought I would see if anyone else has noticed this, as I cannot find anything definitive. My arm with the lymphedema is discolored. It is a motled red (not real dark) I at first thought it had something to do with the brace I had to wear, but it has been off for two weeks now and it has not gone away. Has anyone else had any kind of discoloration?

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  • jennifer1
    jennifer1 Member Posts: 185
    edited May 2013

    Oh thank god someone else has this.  I have trunkel LE too and got a very small redish spot above my breast.  Had dr look at it and he said it was ok but sure scared me to death.  I had a thyroid problem (hyper) and they gave me meds so I gained back the weight which problably did this.  I have to wear these large breast things but they do keep down the LE.  Gosh I hate it.  Do not let yourself dwell on this, I did and ended up on more anixety meds.  By the way when I stand up straight it almost goes away, stupid thing.  I dont mean thank god you have this just that you talked about it

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  • cookiegal
    cookiegal Member Posts: 3,296
    edited May 2013

    YES!!! We finally decided I have thin pale skin so your really see the fluid. It looks like cellulitis but it's not.

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  • Ibethewife
    Ibethewife Member Posts: 26
    edited May 2013

    I thought it might be that, it seems though everyone I notice something different I fear the worst. I have thin pale skin too so cookie gal you jennifer1 have set me at ease.

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  • Kicks
    Kicks Member Posts: 4,131
    edited May 2013

    Mottled red skin can be IBC skin mets.

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  • jennifer1
    jennifer1 Member Posts: 185
    edited May 2013

    when the doctor looked at it and felt it would he know if it were skin mets? Mine is not really motled and I would have to point it out for you to notice however skin met scared the hell out of me and I looked it up.  There is no difference in the texture either, I think I have gone insane over this.

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  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited May 2013

    Could it be Livedo reticularis ?

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  • Ibethewife
    Ibethewife Member Posts: 26
    edited May 2013

    Jennifer1 I looked it up too. I am just as scared as you. The logical part of my brain says, "You had IDC, not inflammatory breast cancer and its on the for arm not the chest" but this disease has took away my rationale. I see my oncologist next month and will ask what he thinks it is. After the scare we had in Jan. ( we thought I had Mets in the brain), I don't want to assume its nothing.

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  • jennifer1
    jennifer1 Member Posts: 185
    edited May 2013

    I was scanned less than a year ago and ok then however due to the concern I believe I will check it out.  I think I did interfer with the blood flow when I wore a bra that was way to tight, since have learned lesson.  I am also puffy in that area but was puffy before scan from the LE.  They killed my lymph system with radiation and then I had cellutitus there too.  Had a needle aspiration there too and it was air.  My goodness does this ever end.

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