Starting Chemo February 2013

Melody: congrats!!!! We all can't wait to be you!!!

Rdrunner: I have been thinking and praying for you. I hope they figure this out. Hang in there.

Rdrunner thinking of you and hope you are feeling better. Thanks for keeping us updated-we are all concerned and with you in spirit.

Yesterday was #4 for me. Usually the fatigue doesn't kick in until Saturday night. Today was rough...it was only 1 day. I kept dozing off in the waiting room while waiting for my Neulsta shot. I managed to finish my work day but soo wished I could just sleep on my desk instead of driving home. Not sure what to expect the next few days but from the looks of day 1 post chemo it's going to be a rough weekend.

Rdrunner - you have been in my thoughts. I hope everything turns out well.



My first taxol treatment was Friday. Yep, they used Taxol and not Abraxane. Then put me on a tapering off of steroids to avoid the sudden crash that sent me down the dark hole. No allergic reaction during infusion but I hated the way the benadryl made me feel. I couldnt stop shaking until I finally fell asleep. Thankfully they said they will half the dose next time. I did some very light garden work yesterday and ended up with some blood blisters on my hands. So the skin is thinner than I thought.



I know what you guys mean about losing lashes and brows. I have some latisse, but do i bother to put it on now or wait until treatment is over? I guess I could try it now and see what happens. One taxol down three to go. It is definitely easier than AC so far...no nausea but I am waiting for the muscle aches. Hopefully they wont show up.



Much love to all of you.

Hey ladies. Day 3 here after round 5 of TCH. Doing OK. Could do without the insomnia, though. Yesterday, I went for a 10 mile bike ride with my son. Prior to surgery, would have been no problem. While it felt awesome to be out and moving in the nice weather. It was also a bit disheartening to realize how much muscle tone I've lost and how just out of shape I've become with the decreased activity. Any hint of an incline, I had to use baby gear on my bike or my quads were absolutely screaming. I know everybody is different, I just wish I knew when I'll be back to where I was before all of this fun started. Something tells me it will take longer to regain than it did to lose it.

Bright side is, I only have one more round to go. And hopefully the side effects from rads will not be so severe and allow me to increase my activity level somewhat.

Hope you all are having a nice weekend. Take Care!

Wildlyshel, that video is great, thank-you! Perfect timing for me as I only have a few eyelashes left and picked up some eyeliner, but I have never worn eyeliner before and wasnt sure the best way to apply. Now I can have some fun trying it out.

DIZZYMom, I'm so impressed. I can't even walk a block without getting out of breath. I just have to remind myself "this too shall pass"

Hope everyone is enjoying their weekend!

Wildy: Thanks for posting that link. I just watched it. Amazing. Going out and buying some liquid liner and black eye shadow. I hope I can make it look as good as hers!!!!

Ladies you are all do reallly good. Im able to walk again not very far but Im getting out. Still super tired even on 40mg of prednisone. Going for another CT scan this week, although there is some confusion as to if they are doing a CT guided biopsy to confirm Sarcoidosis. Super nervous about re starting chemo on the 3rd, worried it will make what ever is going on worse again.

You guys are certainly welcome in regards to the video. I liked the hints she gave in regards to fake lashes and how it was important to curl them. I would have never thought of that.



Dizz - congrats on the bike ride even though you are frustrated at the decline...you are ou there! And only one to go. Hurray!!!!



I was out doing some gardening yesterday. I was surprised. Never would have been out there this soon on AC. The shooting pains came to visit in the middle of the night last night like little gremlins. They aren't so bad now but not so fun either.



Rdrunner - good luck with this next round.
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Kkmom we are on about the same schedule. my 5th is Friday. I cant wait either, The week can not go fast enough.Although I feel so good today it is a bummer thinking about how I will feel next week! Do you have ANY hair?? I have been using redken intrafource and nioxin. I'm just going to keep doing that.

Well its definate.. no more chemo for me. The way sarcoidosis effects the lungs its too dangerous with taxol and the risk of ending up on a ventilator is too high MO says. So starting on tamoxifen. It also could scratch radiation but rad onc wants to wait for biopsy and the other ct results to decide.

Just in case anyone is worrying.. this is not something chemo caused, it was something that was pre existing that we didnt know about and chemo brought it to the forefront. The next week or so is going to be rough as they have to take me off the steroids prednisone cold turkey to get the biopsy so they said my symptoms are going to return most likely.. heres to 104 fevers and rigors for hours on end (:

Rdrunner so sorry. Please keep us all posted. Prayers to you!!

Rdrunner - so sorry you are going through all this..

Rdrunner- what a crappy thing to have happen to you. I hope they get it settled down so you can feel decent again.

Shasha, there are swim caps from 4women.com that look cute, I haven't tried them, but have several of their scarves and think they are well made. Just not sure if they would slip off your head (at least mine being so smooth!) I know their regular scarves are lined in a soft cotton that stays on.