Tampa area BCO sisters get togethers

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  • Lee7
    Lee7 Member Posts: 657
    edited April 2013

    firework,

    Tamoxifen will cause a thickening of the endometrium, not arimidex.   Tamoxifen blocks the ER receptors on cells from using any estrogen floating around in your body. After menopause there's not much left, so the AI's work to stop your body from converting other hormones(androgens) in your body's tissue into estrogen and that keeps levelsow.

    I'd talk to your onc about what's happening with your gyn, and what he said, and maybe even get a second opinion before you have that surgery.  You deserve better explainations.    (((hugs)))  

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  • kira1234
    kira1234 Member Posts: 3,091
    edited April 2013

    It sure sounds like he isn't quite so up to date on the difference between the Als and Tomoxifen. I'm on Tomoxifn for the very reason it doesn't remove all the estogen which my body seems to need for me to stay healthy. While on the Al's my body was very sick from the lack of estrogen.

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  • kira1234
    kira1234 Member Posts: 3,091
    edited April 2013

    Also need to say my friend can't come. I feel sorry for her with all the problems she has had over the last 4 years, but she just doesn't seem to know how to turn for others for support!

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited April 2013

    Lorraine, I'm having an ultrasound on Friday to check the same thing.  I do know if the lining has thickened, sometimes they take a small biopsy.  It can still be nothing.  It's just with us BC sisters, they are extra careful when it comes to things like that.

    I am 42, early menopause this year, and had two days of light spotting, so my PCP ordered this US immediately.  She said she's not taking any chances.

    Keep in touch.  XXX B.

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  • firework1068
    firework1068 Member Posts: 160
    edited April 2013

    MondaysChild,

    I think so too. Tamoxifen is usually prescribed to those who were prior to menopause while Arimidex typically prescribed to post menopause. At one point, my onc's PA suggested I switch because of the SE's I was having. Why would she suggest Tamix when we believe it is either prohibiting estrogen receptors and the other is to block them!

    Will keep you updated....

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  • firework1068
    firework1068 Member Posts: 160
    edited April 2013

    Thanks all for your recommendations and experience with this matter. I'm grateful to have the wisdom so readily available.

    L

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  • ameron
    ameron Member Posts: 98
    edited April 2013

    Hi Girls, Just checking in here!  Firework so sorry to hear what is going on with you....I'm close too if you need anything!  Really close, so please shout out if you need anything at all!!!!

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  • kira1234
    kira1234 Member Posts: 3,091
    edited April 2013

    firework1068 I was also changed from the Al's to Tomox. For me it was a chose of it or nothing. I broke out with Axum from all 3 Al's.

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited May 2013

    firework, what is going on with you now?  Please give us an update. I have been thinking about you and am worrying now.

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  • ameron
    ameron Member Posts: 98
    edited May 2013

    Yes Firework, I'm with Mondays Child and worried as well!  I've had my head burried working on Mother's Day stuff, but saw a FB post about Moffit and have been thinking about you too!  Checked in here hoping to see how you were!  Will check back soon!

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    Thank you for your concern. Went in for third reconstruction, just suppose to be a correction on left side instead she redid both sides.....lots of pain, lots



    I'm still on Arimidex. GYN keeps thinking Arimidex is just like Tamoxifen and that's where the estrogen is coming from and causing my endometrium strip to thicken. Cells are changing, as we all know, that's never good. So I've had the D&C with scope at St Petersburg General Hospital (my new favorite) and am waiting for pathology.



    Again, thanks for all the support.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2013

    firework - glad you posted - sorry you are having pain - hopeully you will be feeling better soon!  As always, if you need anything, let us know and keep us updated.  Thinking of you!

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  • Galsal
    Galsal Member Posts: 1,886
    edited May 2013

    Good thoughts sent your way Firework!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    Sorry you're having pain Firework! Hope you feel better very soon!

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  • MondaysChild
    MondaysChild Member Posts: 591
    edited May 2013

    nbnotes, I heard your good news! NED! <happy dance>

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  • FLwarrior
    FLwarrior Member Posts: 977
    edited May 2013

    firework, I hope you you are feeling better and your pain level has subsided. 

    bnotes, I see in MondaysChild's post your good news!  YAY! Congrats to you!

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    nbnotes, I'm so happy for your good news!



    I'm seeing Dr tomorrow for post op. I hope all of you are doing great!

    L

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Firework, thinking of you and sending you hugs.  Hope your pain is much better.  {{{{{{{FIREWORK}}}}}}}

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    Bobogirl,

    Thank you very much for the virtual hugs! I am , in fact, healing very well! One more week of no upper body use but I can star walking.....watch out neighborhood ill be burning a path on that concrete sidewalk!!

    Again and again,

    Thanks

    L

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    firework -- Glad that you are healing well and ready to get back out walking. 

    Thanks everyone for the well wishes! I'm very happy about it, of course, and trying to make the most out of every minute that NED stays with me :)

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Hooray nb!  Hooray Firework!

    Wish I could be burning up that sidewalk with you. I have been terribly lazy.  Well, actually I am tired!

    Kisses to all.

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    nbnotes, you and NED are the perfect couple, I pray you stay together!!



    bobogirl,

    Thanks and I wish you'd been out walking with me today.......I fell down, scratched my knee and left some pride on the concrete!, LOL



    Hugs and hugs,

    L

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2013

    firework - stay upright, dangit!

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  • ameron
    ameron Member Posts: 98
    edited May 2013

    Hi Girls,

    Just checking in to say Hi and see how everyone is doing.  SpecialK I see you have a new pic, love it!   Firework, hope your still healing well, it will be over soon and you'll be looking great for summer! :)

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2013

    ameron - thanks!  I decided it was time for a post-BC pic!

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Ooh!  Firework, I don't know who falls down more, me or you.  We will have to start having a contest!  Okay.  One to zero.

    We are both in FL.  I have high hopes that we will be stumbling toward one another soon!  I am not the most coordinated of all God's creatures, I can tell you that!  :)

    XXXXXXXX

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  • Galsal
    Galsal Member Posts: 1,886
    edited May 2013

    Bobogirl, don't feel too badly.  Mother took out an accident insurance policy on me, had so many for a few years.  Medical insurance took pity on the family and said that they could all be combined since it was one person for so many accidents in a one-year period.  Each individually did not make the deductible amount.  Mother said if I died between 15 and 21 she'd know how - from an accident!  No vehicle was involved, either. 

    Have one Cousin that I think she easily out does me in terms of accidental injuries.  I'm happy to let her reign on that one.  Have a small scar on my knee from falling on it twice - 1981 and 1991.  Second one, had a bruise on the corner of the kneecap for over a year. 

    Take it safe!

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    SpecialK...love the profile pic and yes, staying upright is my new mantra for two reasons, NO more surgeries and NO more fall down just for the sake of gravity!!



    Bobogirl, This would be a great competition the " Falls down the most" contest! Which one would be winner, the one who falls down or the one who doesn't?

    Anyways, I hope we stay 1 to none and consider ourselves tied!



    GalSal,

    We should compare accident prone incidents some time. Mine can happen just from taking a breath......swallow a bee and got stung!



    Stay safe out there ladies,

    L

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  • firework1068
    firework1068 Member Posts: 160
    edited May 2013

    ameron,

    Thnx for the well wishes, I am healing very well, Thank you? Nerve pain is my only complaint and that gets better or different everyday. Any you?

    L

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Galsal, some insurance company is going to make a fortune!  Firework, our contest should be this: whoever falls down the most actually wins, because they should be more taken care of.  The prize should be lunch at Satchel's.  That's this great and v cute pizza restaurant here.  They have beer there.

    Keep it safe ladies!  That is the motto of our thread.  Special K, I will speak for the other ladies to say we are a tiny bit jealous of you, you are the prettiest one, whereas we others are all bruised up, with skinned knees :)

    XXX

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