Starting Chemo February 2013
Comments
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Hi everyone:
Went to see my GP and was told that I have an upper respiratory infection and was put on 2 antibiotics. Seemed a lil extreme to me, but I guess they dont want it to turn into anything worse.
Got all next week to get better. Chemo #5 (out of 6) is on April 30th.
stay positive eveyone. We will get thru this together!
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Gina: I had a low grade fever right after AC#4. It was only 100 but my MO immediately put me on a five day antibiotic. He did not want to mess around for fear it would turn into something worse. It didn't, thought the cough, stuffiness, congestion hung around for weeks (even still a bit now) treatment stayed on schedule...good luck!
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That steroid crash is something else. I cry at the drop of a hat for no apparant reason and I'm constantly apologizing for being so bitchy and irritable. I have to say the chemo brain is really upsetting. I can never find the right word and often pronounce it wrong. I lose track of what I'm talking about or what I wanted to do next on a regular basis. I make little lists all the time to remind myself of things I need to do. I dont trust my mind too much and its scary I also find myself spacing out all the time. Does everyone experience this?
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melody - I have used the wrong word for things in a sentence.. or just blank on a word I know.. its crazy.. I hope when this is all over my mind will go back to its ole self..
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I find myself searching for words and to remember things that I know I can usually come up with easily. Drives me nuts. I haven't been as smooth running meetings these days and tend to finding myself getting scattered.
The thing that upsets me the most about the steroids is how they disrupt my sleep. I'm tired after chemo and physically want to sleep- but my mind is jacked up by the steroids. -
It's funny, I just did a "quick" food shopping that took me three times as long! Felt like I was in slow motion unable to decide on anything. I agree about the steroids, I have to take 2 pills twice a day before chemo and only managed to sleep half an hour which made for a very long day at the hospital. Then after the thigh pain kicks in and I can't sleep though that. Oh well, one more to go!
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The weird thing is they dont affect my sleep at all. I've noticed the last two treatments I also have pain in my breast they did the lumpectomy in. There is such a long list of se's how would you know whats wrong? it all feels wrong. I'm so happy to have my last one next week. I'll be happy to put this experience in the rearview!
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Melody: yes it all feels wrong. I have 2 more dd taxol and I wonder how I or my body will make it. I sure pray someone finds a better way to beat this. I hope you are feeling ok.
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Hello ladies. Been awhile since I've been on. Life's been crazy!!!
I've got my final AC scheduled for April 26th, then onto Taxol &Herceptin. 1/2 way point!!!! So excited. Should hopefully be finished before Hazel's first birthday, so I've got a lot to celebrate.
I think the biggest side effect that has bothered me, besides the hair loss, is the fatigue. Ugh!!! Some days it just kicks my butt. Is anyone getting Taxol weekly? And if so, how are you feeling?
A group of friends and I signed up for the Relay for Life. I'm walking for so many reasons. One of my best girlfriends has been recently diagnosed, we both lost a parent to pancreatic cancer 2 years ago. We're kicking some mega butt in the fundraising department!!! If anyone is interested at all in donating, please do. It's as much as you want or as little as you can, every dollar counts and the support is for a great cause. http://www.relaybc.ca/faf/donorReg/mobileDonorPledge.asp?ievent=1035186&lis=1&kntae1035186=44BAF3C3F3174F9DBD5417FB5465502E&supId=382128231&team=0&scWidth=320&extSiteType
I hope everyone is having a lovely spring evening -
Ywheels, I feel Ok I'm just losing steam, I'm sick and tired of being sick and tired. I feel like a whiner some of you ladies are going through so much more than me. I remember that when I feel like a baby.
MirMirpanda I have alot more fatigue than not. Somedays I just give in and rest all day; I take the advice "listen to your body" when it comes to rest
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melody - I am with you -sick and tired of being sick and tired...my breast(lumectomy one) started hurting too with this last treatment..I feel like I complain all the time - who knows if something is serious or not.. I can't even walk from kitchen to livng room without being exhasted and short of breath..and yet, I know 3-4 weeks from now I'll feel fine but going through it is awful!..
Ywheels - I hope they find a better treatment than this.. its poision.. how much can a body take?
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Melody and Nancy: it is very hard at times. I know I said this before, but I can't imagine my poor body taking two more hits of this shit...my best friend, who is a nurse, said to me, when I was whining about not being able to take more, "Dr. Kloss is going to throw everything at this now. You don't want to look back and say I should've done this or that. You want to never look back because you kicked it's ass the first time around." I know she is right but sometimes I just want to go against medical advice and quit. I am doing okay through the Taxol. But my eyelashes are getting thinner and that bums me out more than losing my hair. The stupid thrush came back a bit and that just plain ticks me off!!!
Two more, two more, two more!!!! Best to all of you!
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Melody I have complained the last two times that my chest/TE hurt after Chemo. They didn't the first few rounds. I feel like I have just gotten a fill. Its ODD. I too feel like all I do is complain. Im sure my family is sick of it. Ywehhls I got my thrush back this round too. I pretty much think I have had it every time. I just take the diflucan a few days and it clears it up. Been more constipated this round then the others too. Always something new! Ive been so stressed over how many fills I need to get yet. I will be SO HAPPY when I can say this is over with!!! 2 more Chemos to go. I just keep telling myself that. 5 more weeks until I walk through that door and say this is it this is the last one.
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We'll all get through this because we have to. "If I have to I can do anything" I am woman
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My eyebrows and lashes are disappearing quickly! I was hoping they would hold on till after chemo-no such luck. I definitely look sick, and I think I find this more depressing than loosing my hair. I went food shopping yesterday and ran into a lady I've known for quite a few years (just casually) and I could tell she had no idea who I was! That really hurt because I realized that now cancer has taken my self image and I don't even recognize the bloated, bald, hairless reflection in the mirror.
I know this will pass and I will be stronger for it-I just pray that I will be rid of this parasitic, comfort stealing, happiness drowning, piece of s#*+.
So, in my rare moment of fear, self pity, self doubt I gave myself a much needed spring pedicure! At least one thing makes me feel pretty -
Tangles: I take the Nystatin, the diffculon (spell?) upsets my stomach and really didn't help. The Nystatin coats it so it feels a little better. I take a probiotic and grape seed extract, which is supposed to help with balancing your digestive system but the chemo is just too strong....it sucks!!!! I am right there with you walking out that door. I have exactly 24 more days until my last round....we will get there!
Slv: me too on the eyelashes. They are there but for how long? I hate that more than the hair loss. I know people don't recognize me when I wear a wig, hat or bandana. It is depressing sometimes...but we are all beautiful through this because we will beat it!
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slv58 - you wrote - I don't even recognize the bloated, bald, hairless reflection in the mirror... oh my goodness - I feel like that also..
melody really summed it up though for all of us - she said, If I have to I can do anything" I am woman!!
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I sure hope this bloated weight comes off after Chemo. I am trying hard to eat healthy, but in no way can I workout. I have to start shopping for a dress for my daughters wedding late this summer and with these giant rock hard TE I have in right now and the extra weight and no hair its just depressing to even think about that! I guess I will be getting a dress last minute!!! 31 days until I walk through the door to get my last Chemo. ( not that I am counting)!!!
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im a bit late in posting and even joining discussions. I started Chemo on Jan 30, 2013, CMF. I am 38 yo and underwent double mastectomy in December 2012. Waited for my OncoType Test before starting chemo but they were unable to get a result from that test. I just finished treatment 6 and they are getting harder to recover from. i guess thats to be expected. I had hodgkins disease when I was 16 and some how managed to block out the side effects of chemo. while i am on a less aggressive does of chem then most of you, the side effects are still no fun.
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Tangles you crack me up. My left TE is like sleeping on a piece of concrete with a heart beat. Can't wait for the silicon one in July. I am planning to switch to Abraxane for my 4th chair ride (taxol is too risky and its a first generation cancer med (meaning old school). Hoping for less SE as I have a business trip to New Mexico in May and the next week to Birmingham AL (will wear my wig) - which someone told me looked like a Brazilian blow out.
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Lalady: I've heard taxol is old school and I wonder why my MO uses it. He says it's the protocol Sloan uses, which he follows, but if it's old, why would Sloan still use it or recommend it? I'll have to ask. I have to say, the Taxol has been much easier than AC. I bounced back pretty good from tx 2. You said it was risky. Is that something you experienced with tx?
Tangles: you will look amazing. Wait until the wedding is closer. You will lose whatever weight you gained and be amazed at how quick you'll bounce back. If you're hair isnt' back yet, I am sure you will rock a beautiful scarf or a wig. Either way, you will be gorgeous!!!!
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Welcome to the board kcmanis!
I had the weirdest vision problems yesterday-everywhere I looked it was blurry close, far etc and when I looked at some things that were fairly close I had double vision. Gone today but thats the second time its happened on this chemo ride. Freaked me out!
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Last trip to the bar today. Now just to get well and "normal" Glad its done but still going to be awhile months they said. I hadn't thought about that until today. It burst my bubble. I'm supposed to start rads in 3 weeks and tamoxifen in 4. Thank you may I have another?
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Meloy46, congrats on finishing!! Hope your feeling well, I'm doing a celebration (touchdown style) dance for you! I hadn't thought about how long it takes for our bodies to recover from chemo either. I guess because I'm always feeling pretty normal by week 3, I was thinking that's about how long it takes to rid our body from the chemicals. Naive-but sometimes it gets me through!
Enjoy today, I hear rads are easier. -
Congrat Melody! I still have 4 weeks until my last chemo. I am hoping that goes fast. Then four more weeks after that to get these horrible TE out!! Then it will be four more weeks until rads. Sounds like forever, but I was just thinking it has been 5 months since I got the breast cancer diagnosis and it seems like yesterday so hopefully this time goes fast for all of us!!!
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Good for you, Melody! Do something fun for yourself to celebrate!
I have my 5th (of 6) TCH tomorrow. My youngest son is sick and has pink-eye. I'm just hoping to get through today without catching anything. I rarely catch anything from my kids, but then again, I usually am not immuno-compromised either. I do NOT want any delays in getting through these last two rounds!
Hope all you sweet ladies have a great weekend!
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Well predisone is working for the fever and sweats but still wrecked tired. They think I have sarcoidosis as CT scan showed typically abnormality in lungs for this but has to be confirmed by lung biopsy. Waiting for the appointment. Chemo is rescheduled again for the 3rd. It is also effecting my liver enezymes.. kind of scary because Im worried they are wrong and it might be mets.. but they keep saying its not mets.
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I hope you get an answer soon Rdrunner, What is mets??
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Sorry its metastasis..ie breast cancer that has spread in this case. They said no they dont think so but still worried.
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I know its hard not to worry, but I am sure they are right it is not that!!
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