Starting Chemo February 2013

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  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited April 2013

    Ladies, with all of the lotioning you need to do after rads sessions, were any of you able to fit the session in the middle of a work day? I have visions of returning to work all greasy and yucky.

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited April 2013

    I don't think anybody on this thread has started rads yet..........

  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited April 2013

    Sorry Dizzy. I was on another thread earlier.



  • slv58
    slv58 Member Posts: 1,216
    edited April 2013

    Uggggh, 12:44 am and can't sleep. Have to get up at 5:00 am for chemo.

  • Gina925
    Gina925 Member Posts: 35
    edited April 2013

    My 4th chemo has been a tough one on me. I am running a fever longer each time I have an infusion. My highest was this morning about 5:30am-it ran 102.5. Plus a dry cough & irritated throat. Called my onco & he wants me to ride out the fever for another day or 2 unless I have some worse or new symptoms. Also he wants me to start taking a cough gel pill. I'm pretty uncomfortable!

    The fatigue & the amount of time to spring back has also increased. With 2 more to go, i am a lil worried. stay tuned!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2013

    slv58 - good luck today - Its my chemo day also..

    Gina925 - sounds like you arre having a tough time - hopefully you'll recover quick.. I think our drs hear so many side effects that they sometimes seem to act like they are nothing - I think they forget how much we actually suffer with those side effects.

  • tangles
    tangles Member Posts: 508
    edited April 2013

    congrats Nancy on your final Chemo!!!! I cant wait to say that. May 24th as long as I stay well. Hubby and son have colds so I am sanitizing like mad! I too have odd pain once in awhile in the front of the thigh?? Day 5 today and feel pretty good, but I am going to stay down today & the rest of the week. I have learned my lesson, its too early if I start doing things around the house I will be in tears by this afternoon. Even though the fatigue seems to get worse with each infusion the other side effects seem better so I am grateful for that at least.......

  • melody46
    melody46 Member Posts: 279
    edited April 2013

    YAY Nancy so happy for you to be almost done.  Tangles I had that lead leg feeling with #2 but not too bad with #3.  Just wondering what basket of goodies I'll get with #4 next week.

  • Wildlyshel
    Wildlyshel Member Posts: 48
    edited April 2013

    Rdrunner - I am really sorry to hear what you are going through. You have been in my thoughts.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2013

    Thanks ladies - glad the infusion is over - doctor said thigh pain is the taxotere.. tomorrow is Neulasta shot - and then I don't go back there again for 6 weeks --yeahh - tomorrow I have to take my paperwork to the radiologist to set up those appointments -my MO said usually you have a break of 3-4 weeks between chemo and rads..

  • LW0919
    LW0919 Member Posts: 196
    edited April 2013

    Melody46: next week is round 4 for me also. I can't wait to be that much closer to being done. Last round is the first week of June and then vacation to celebrate the 3rd week of June. I'm so ready to be done and get on to some normalcy...after 33 rad treatments that is!



    Congratulations to all of you finishing up soon!! I can't even imagine the sense of relief!! Hope you all get to do something nice for yourself and celebrate!

  • jayjayc
    jayjayc Member Posts: 69
    edited April 2013

    Hi,

    I finished my 12 weekly taxol/herceptin on tuesday two weeks ago.... which means I thought I'd have no treatments last week...one whole week off before starting rads this week..... turns out I was wrong..... When I meet with my DO last Wednesday she informs me that I have to start the Herceptin now (i.e. the one I'll get every three weeks for the year) because I'd been getting the weekly dose of Herceptin (2mg) so I needed to start the larger dose (6mg) within a week, which I did last Friday...... it's funny how upset I got over that..... I mean I want this over with ASAP...... but I really wanted that one week break....

    It's so strange right now because on the one hand I'm wanting time to fly so these treatments are over (six weeks of daily rads sounds like forever)..... but on the other hand I'm now very aware of how precious life is and want to savor it..... but maybe only after this year is over Laughing

  • Wildlyshel
    Wildlyshel Member Posts: 48
    edited April 2013

    I can't find the post and it very well may have been on another board but someone asked about the difference between taxol and abraxane. I was going to try to explain but I found this article that does it so much better. http://www.differencebetween.com/difference-between-abraxane-and-taxol/



    Basically from everything I have read and the studies I have found AND from talking to my friend at a genetics lab, Abraxane is in a nontoxic carrier and works better but is more expensive. So, unless you can't handle Taxol because of severe allergic reaction or you have mets, insurance probably won't cover it.

  • slv58
    slv58 Member Posts: 1,216
    edited April 2013

    IamNancy, congrats on being finished and for your good wishes for my treatment! It went well yesterday and quite quick! Today and tomorrow are my good days if its the same as last time. Then wham, front of thigh pain-but at least I have rx for that this time. I had a much needed realistic talk with my MO regarding my fears of rad treatment planned and she made me feel much better about it and that as agressive as it is, the way my disease presented itself this treatment plan is needed. Not what I wanted to hear, but I needed to hear :( on the other hand I now realize they are using heavy artillery on me to help me beat this, so I must get rid of my fears and be thankful for those on my side! I hope your SE are minimal and everyone is doing well.

  • caitlin61
    caitlin61 Member Posts: 214
    edited April 2013

    IamNancy, congratulations on your last chemo!



    Rdrunner, very sorry to hear about difficulties and hope everything works out well for you.



    I'm having Taxol #2 today and hoping the bone pain won't be as bad as last time. They had trouble with my port again today. This time, couldn't get a blood draw from it at all. The good news is that MO says they will take it out after last treatment - I thought they mighty leave it in, fearing risk of recurrence. It hasn't really caused me any discomfort, other than for the first few days - but I'll still be glad to be rid of it.

  • slv58
    slv58 Member Posts: 1,216
    edited April 2013

    Caitlin61, good luck today, I hope port doesn't give you trouble and SE are minimal!

  • Rdrunner
    Rdrunner Member Posts: 309
    edited April 2013

    Well it seems prednisone is my friend big time. Fever is gone thank you very much. Only problem is now it seems to have gone in the other direction. It was 33.6 C this morning and now is 35C. Still wrecked tired and shortage of breath. Had chest CT scan this morning and have pulmonary function test this afternoon. See internist on Tuesday.

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited April 2013

    Man, I feel numb this week. Nothing to do with chemo. Just so much violence this week, it's crazy. My heart goes out to the people of West. We stop there everytime we drive to Austin and get treats from the Czech bakeries. Such a quaint, old-school small town. So sad. Happening right after Boston, it's scary.

    Ready for some good news!

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited April 2013

    I will say it's not all bad though. The amount of people rallying together to help out any way they can is awesome.

    And your news is good too Rdrunner, happy to hear you're getting better!

  • melody46
    melody46 Member Posts: 279
    edited April 2013

    LW0919 I hear that - normalcy is really needed here too.  I see that some people get 4 rounds of CT and others get 6 I wonder why? I think it might have something to do with node involvement. Anyway I too am planning a big trip to Hawaii in the fall with several family members and I cant wait!  I think I'll even have some hair.  Until then one foot in front of the other.

  • tangles
    tangles Member Posts: 508
    edited April 2013

    I want to plan a trip so bad! I think I need to get through my exchange, find out what my Rads schedule will be. I finally decided on an implant today. After much sleepless nights over these new gummy implants and a 30 Min conversation with the PS,I have decided not to go wit them. Only bad thing is it means I now have to overfill. So weather I feel Ok tomorrow or not I guess I need to get in there and get a fill. PS said I need to be done with fills 6 weeks before exchange and I don't like large fills so I need to get moving on this.

  • ywheels22
    ywheels22 Member Posts: 230
    edited April 2013

    Tangles: Go slow on your fills. It will help...I also have to wait six weeks post chemo before the exchange. Looking at end of June. I'll let you know what we pick once it's decided. good luck!

  • lalady1
    lalady1 Member Posts: 618
    edited April 2013

    Had onco visit today with hives/drug rash on arms,upper legs and back. Turns out after 3 big chair rounds I'm allergic to Taxotere. Now switching to Taxol for my 4th round + cytoxan (and then taxol weekly) until done June 10th. Does anyone know if there is a better drug than Taxol? I think its old school. Not happy to start a new drug, but open to group insight. My bloodwork is good, going to work 2 out of 3 weeks. And getting breast recon July 15th, followed by radiation. Plastics dr was concerned rads would interfere with healing. I'm happy for new boob and lift/reduction on other side.

  • tangles
    tangles Member Posts: 508
    edited April 2013

    I am also having Reconstruction before radiation. My PS said he is not concerned about doing the exchange first. He said it may takes 6 months to 2 years for the final results of what may or may not happen to your skin. He said if radiation effects that side we can go in for an easy revision. Some fat grafting or whatever. I'm trusting his opinion. He is head of the entire plastic surgery department of the major university. Plus I really want these Tissue expander's out ASAP. Sorry I know nothing about the Chemo drugs, I just do what my MO says to do........

  • Wildlyshel
    Wildlyshel Member Posts: 48
    edited April 2013

    Lalady - look at the link I posted about taxol and abraxane.



    In other news I have a friend who told me yesterday about a study that kills cancer cells (every kind) with 100% success rate. It's in preliminary studies right now but it's something as a light for our path as we finish up treatment and do everything in our power to lessen the chance of a recurrence. Just thought I would share to add a little more hope to our futures and the people we love.

    Edit...i forgot to add that it only targets cancer cells. So it leaves our own alone! .

  • kkmom
    kkmom Member Posts: 54
    edited April 2013

    @Wildyshel

    Will you repost the link about the study. 

  • Wildlyshel
    Wildlyshel Member Posts: 48
    edited April 2013

    Infusion cancelled today because hospital went on lock down. Was rescheduled for tomorrow. Then cancelled again when I told her of the bad thoughts I had. She said its a steroid crash (included more detail) but affects everyone differently. They are going to discuss a different chemo that doesn't require steroids. Meeting with MO next week. I can't say I am disappointed. I think they are going to do Abraxane.

  • Wildlyshel
    Wildlyshel Member Posts: 48
    edited April 2013

    Kkmom I will have to get a hold of him and ask about it. In case you want to do search in the meantime...the gist of it is our regular cells have a protein marker that says it belongs there. Cancer cells over produce this marker and the drug they made targets cells that have overproduced this marker.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2013

    wildlyshel... sad that boston was on lockdown, however, I really hope things work out better for you with new chemo treatment.

  • kkmom
    kkmom Member Posts: 54
    edited April 2013

    Wildyshel

    I noticed you made a reference about bad thoughts and steroid crash.  I finished my 4th chemo last Wednesday (April 10) and I have felt so cynical.   Even though I feel, I should be feeling grateful for only having 2 more chemos, it is like I can't get too excited, because I aheadd I know I will have at least 8 or 9 days after each chemo, when I feel so horrible.  I get a glance sometimes of myself I think whose is that person.  My optimistic side says hang in there, we will get through, but then my cynical side says - when, when???  And I swear, the chemo brain must be kicking in. I was telling my husband about eating - chocolate cookies - I couldn't think of the word - Teddy Grahams.  I kept calling them teddy bears, chocolate teddy bears - It was like my brain was mush. 

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