Anyone with Adenosquamous Breast Cancer

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sneads999
sneads999 Member Posts: 1

I've been told I'm the 36th case even known with this breast cancer.   Trying to see if anyone else has ever been diagnosed and if so what was your outcome.     I can find research on 5 known cases on the internet.  

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  • AmieCO
    AmieCO Member Posts: 1
    edited April 2013

    This is an older post, but I was also diagnosed in late 2012. Had lumpectomy and they are following it closely. No genetic mutation. 

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2013

    Amie, how are you doing?

  • MACIE40
    MACIE40 Member Posts: 1
    edited May 2014

    Hi I am Macie and I have only just found this site. I was DX with Adenosquamous cancer in Aug 2007 with ER+5/8 PR- HER - .I had WLE  with radiotherapy followed by Arimadex . Jan 2012 recurrence in sternum bone and soft tissue mass in chest wall this time ER+2PR-HER-so told it was Triple Neg and had Paclitaxol and Epirubicin which was stopped after 12 cycles owing to terrible side effects.

    I then had stereotactic RT (cyber knife ) with some success in October 2012 

    December  2013 saw progression to ribs, and now pleural mets and mediastinal lymph nodes and progression to soft tissue mass in chest while a sternum mets remain stable.

    I am currently on Xeloda and Ibandronate acid.

    I would dearly like to hear from any one who has the same as I know it is very unusual and I know this is an old site so I hope somebody picks up on it Best Wishes to all  love Macie x x

  • Jeanne55
    Jeanne55 Member Posts: 9
    edited June 2014

    Hi, Macie.  I do not know about this type of breast cancer, but I am hoping that someone who does sees your post.  I am glad to hear that you had some success with stereotactic RT in October 2012, and I am glad to hear that you are stable.  Although I hope you can make contact with someone with this diagnosis, there are many people here who would be pleased to talk with you -- including some folks who have researched breast cancer and are very knowledgeable about many things, including treatments.  Jeanne

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