I say yes, you say no, OR People are Strange
Comments
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So will this be the POTUS's fault too? When this happens 1/2 around the world - it always is.
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No, I haven't. There is no point, as I can't compromise on the issue. Lupron was a disaster, and I ain't parting with my ovaries unless one of them gets cancer, so no point in getting the BRCA test.
NBC Live Stream here:
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Here we seem to be going again. I too fear it is local and wonder what ( how many hundreds of things ) could have produced a reason to do something so horrid. Of course, there is no good reason. I just feel a bit deflated at the moment and feeling quite sad and angry at the same time.
Jackie
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Kam - forgot to mention: I was only 10 percent er-pos and 1 percent pr-pos. I am probably luminol B, which is said to derive less benefit from hormonal therapy anyway.
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For Boston.
Big hugs
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This is Patriot's day in Boston - if only everyone would behave as one and coalesce.
ETA: Thank you, Alyson!
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Just say a news brief that there was a third blast at the JFK Library in Boston. Incredible, and horrible.
Jackie
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That report has turned out to be false, thank goodness.
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Thank goodness...enough is enough.
Jackie
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Athena - if you also had a Ki67 > 12%, then lum B. I am classic lum B myself, but no one suggested I shouldn't use AIs or atleast told me they might be useless. IHC was 90% for ER, but the oncotype had me in ER middling, PR almost neg, Ki67 60%.
I heard one of the two fatalities was an 8 year old girl. Also, there was a Sandy Hook victim contingent near the finishing line, but they were spared.
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I heard that Adam's mother was going to have him involuntarily committed, AFTER she went on a vacation. She obviously was unaware of his extremely violent tendencies or she would not have kept a virtual arsenal of weapons for him to use. IMO, if his mother had not been able to obtain semi-automatic weapons, it would have been much less likely that Adam would have caused such incredible and tragic carnage. Yes, I'm for a ban against assault weapons!
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All the children being killed by maniacs! I am so broken hearted right now.

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I did not have a Ki-67 test, or if I did it isn't in my path report. I didn't have an oncotype test because I was considered a shoo-in for chemo due to my tumor grade and nodes (and I refused chemo - haha!)
AIs, like Tamox and othe cancer meds are completely useless for some people. For others, they may cause disease to spread and for others still, they will be beneficial. It is entirely possible that Tam was of benefit to me. I had to assume it was before making the honest decision to discontinue.
As far as I know, there is still dispute among researchers over how to classify luminol A and B. The literature I have read is quite confusing.
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Chris Matthews is an idiot. Can't stay away from the politics.
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Athena - no chemo and grade 3? You are a rebel. To be honest, I wish I had your hutzpah. When my mother had BC, 45 years ago, I honestly thought there would be cure "when I got it." (I did think it was my destiny given our family history, until I got past my mother's age, and then I relaxed about it - just about the time I skipped my yearly mammogram.) They say treatments have changed a lot - that's not my observation. Still extraction, radiation, chemicals.
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Exactly - and the age-and population-adjusted death rate from breast cancer has moved just five or so percent from the pre-chemo 50s. So much for the War On Cancer. The history of chemo on large organ cancers is abysmal. I think Stage IV bc is the only time I would justify using it, as it may shrink tumors for some women.
Today the NYT reports that a task force of bozos are recommending Tamox. for high risk women of a certain age group. I wrote a looooong comment to that story. Hope it gets published. No wonder we haven't found a cure.
ETA: And the comment I wrote had nothing to do with my situation.
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Kam~~How did things go with your mother when she had BC?
My favorite aunt, who I referred to as AJ for Aunt June had breast cancer in 1993. Instead of getting chemo like we do, she went to the hospital everyday including Christmas for an injection. She lost her hair from it. She was 67.
I was living in Florida while she was dealing with it. She was cancer free until she died in my home this past June at age 86. She died 2 weeks before I found there was a problem with my mammo.
I never knew what type she had (I doubt if she knew) but I do know she took tamoxifen for 5 years. I assume they didn't have arimidex for post-menopausal women at that time.
Paula -
Oh how terrible - some of the injured are getting amputations because of injuries....:(
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Yes, I just heard the explosions had ball bearing in them which decimated peoples limbs. Plus the bombs were on the ground.

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Horrible. Unbelievable. I don't know what to say beyond that.
So saddened for everyone impacted by this senseless crap.
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Paula - my mother was the first of 3 sisters (out of 5) to get BC. All at age 52, so one would assume peri- to menopausal, which goes along with brca2 er+. My mother had a radical UMX in July of 2007 and died in Dec of 2008. I was still young, so lived alongside it. When they realized the BC wasn't going away (by Nov 2007), she and my father headed to Standford U. to see Dr. Kaplan. He is mentioned in the book "Emperer of All Maladies" as a cancer researcher, and consequently my mother became his guinea pig. I once had this down....they knew some cancers were stimulated by estrogen/progesterone, but did not know how to test the cancer and I think this was before Tamoxifen, so to stop her estrogen (if that even mattered - which is what I face now) they removed her ovaries and adrenal glands in Feb 2008. Removing the adrenals had disastorous consequences. They do more than just produce Aromatase! She was constently on the edge of coma and the tumors (in her lungs and chest wall) continued to grow, despite this surgery (which makes me think she was probably TN or Luminal B with no hormone blocker effect). I heard "virility high" back then, i.e. aggressive. Lots of radiation with the Linear Accelerater, so we made 2 hour roundtrips everyday to Palo Alto for that. Lots of percadain and morphine....in June, I went to Disneyland with a gf. The day I left, she was saying odd things to me. I came back to my mother being held down by neighbors outside screaming. She was admitted to a mental hospital, which my father quickly got her out of to a nursing home. Mostly likely drugged for her remaining months. She recognized me, but there were no conversations for the next 6 months. Journals she had written that week I was gone exhibited extreme paranoia. I attribute it to removing her adrenals. My view of BC is pretty scarey. My other Aunt, the next one in line, just shut off communication, never talked to even her daughter, and died about a year and a half later (she was the black sheep of the family). My next Aunt, 10 years younger than my mother, but at the same age, had a huge tumor....waited months, moved from one part of Canada to another; finally had a UMX and lived til she was 80 and died of bladder cancer. I'd like to say that is Universal Health Care - but I know better.
She never had chemo. Presumably the bladder cancer came from her diabetic medication. Her daughter had BC 3 years before me. My cousin and I both have er+; all five us had left upper outer quadrant. Odd. Presumably all brca2+...atleast I am. -
Kam~~I'm so sorry for all your mother and you had to suffer. This is such an ugly, sneaky disease.
Blessings
Paula -
Patriots' Day ( yes, that's where the apostrophe is in Massachusetts)- probably doesn't mean much to folks living in 48 states, but in Massachusetts - and MAINE - which used to be a part of Massachusetts, it is a very, very special day - celebrating ( honoring) the Battle of Lexington & Concord - April 19, 1775. "The Shot heard 'round the world."
"Listen my children and you shall hear, the midnight ride of Paul Revere. On the eighteenth of April in '75, hardly a man is now alive, who remembers that famous day and year. He said to his friends, if the British march, by land or by sea from the town tonight, hang a lantern aloft in the belfry arch, of the North Churh tower as a signal light. One if by land, and two if by sea and I on the opposite shore shall be ready to ride and spread the alarm to every Middlesex village and farm for the country folk to be up and armed." ( every school child had to memorize the first few lines of that poem, well, if you went to school in New England you probably did)- and you can depend, DEPEND, on two things: the Boston Red Sox will play at Fenway Park, and there will be a Boston Marathon, the oldest marathon, and joy, and celebration on Patriots' Day in Massachusetts.
USPost Office is open, but in Massachusetts, most everything else is closed. Fenway Park, the Finish Line of the Boston Marathon, are open - crowded with people, celebratory. The bombs went off at the time when MOST of the runners would be crossing the finish line, at about the 4 hour time. Maybe, maybe Copley Square will be renamed Heartbreak Hill, but I doubt it. There is really only one Heartbreak Hill, and if you don't know where & what it is, ya need to learn more about the glorious and historic Boston Marathon.

A brief history lesson, for those who often attack the "libruls" who live and love here in Massachusetts. More for lurkers than our regular posters, and hoping many will understand the DEPTH of the significance of this day of violence against ALL OF US.
This was an act of violence, and heroism. If you watch the constant running of video tapes, you see First Responders, Race volunteers, runners, race watchers ( who all gather at the finish line to greet their friends, and stay for HOURS to honor and encourage and celebrate the LAST runner, yes, hours, and hours after eveyone else has gone home) ran TOWARD the danger, ran toward the site of the bombs, to HELP those who were injured.
May the "Shot heard 'round the world" be heard again, there WILL be another Boston Marathon in 2014, and we will continue to celebrate, while we mourn, and honor those killed, maimed for life, there will be a Boston Marathon in 2014. And we will PROUDLY stand along the route, cheer, maybe cry, and CONTINUE to celebrate Patriots' Day in Massachusetts.
April 19, 1775. The first Patriots' Day at Lexington and Concord.
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I'm suspecting domestic terror, but could be anything, I guess. Anyway, my heart goes out to the victims. Whoever did this did indeed attack liberty on Patriots' Day.
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White, 30s-40s, military experience, disgruntled.
Edited to fix spelling.
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(((((Sunnyflowers)))))
Sandy, I'm struggling to keep my opinion open. I lean that way, too, but I remember OK City and the reports that they had stopped and arrested a Middle Eastern man. I don't want to "Richard Jewell" any group.
Most of what one hears in the immediate aftermath of a disaster is wrong. For example, this morning it was reported that there were NO unexploded devices found. That is in direct contravention to multiple firm reports yesterday that there was at least one other device. The Kennedy Library incident is still unclear. So I am sure of only a few things: there were two bombs. Three people were killed. More than 100 are injured, some critically. Law enforcement officials are investigating. That's all I know for sure.
L -
Brief update -
No update yet. :-) I called my onc's office but no results. The secretary said that MRIs usually take 48 hours to read, so it looks like I'll be waiting a bit longer.
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Waiting is the hardest part! I hope you get good news in good time.
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I'm rooting for arthritis and inflammation! Go Team Arthritis!
I may have false positives because a) I threw my back out the week before the scan, and b) I was painting...A LOT...the day before the scan. That did not help my back.
If it is cancer...oh well. I'll need a biopsy since the cancer's mutated every time it's reappeared. The last time it was very weakly HER-2+ so it may be definitely HER-2+ now. And that would make it a whole different ball game.
I hate waiting. How often should I call? Is four times/hour too much?? ;-)
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