The Hermit Club

grover,

Hi ladies: I am heading out to my client site but wanted to welcome Grover who is going through much right now. I wanted her to know how much I love this thread as the ladies here are super welcoming and supportive.

Whatever your particular diagnosis, treatment, emotions, you name it, we are just present with one another here. We share our good days and our not so good days. It is a great place to share feelings, ask questions, and just be with whatever is going on any particular day. We have some chuckles here too. We hope you will find this to be a good place for you.

Like Teka said you are beaten down by all this right now, and we have all been there.  It is all still very new for you right now too. 

I am glad you found us and we will be here for you as you continue to heal from your surgery and prepare for your chemo. I was told high protein helps you with surgery recovering and all the rest that follows. Comfort food helps too. Find what works for you.

welcome Washington.....

aspergers, I get that....I am a parent advocate...by profession

Jazzy what kind of work do you do, sounds stressful!!

so happy that we all found this site and this thread!!!

Happy MOnday!!

OMG Skittle ur brilliant--great idea of course it wouldn't be one that he could ever make but like I said he needs 4 ideas--I love this one. Thanks

Blondie u do alot of things u' know u'r very busy it sounds like to me. Good for u. Oh my meds are just increased pain meds--so normally bdeing loopy has now turned into being very loopy--but not as much pain. LOL

Oh I just thought about the newbies--Protein oh yes and super amount of fluids-so drink and eat and be merry. And we're here for u to tell us what's oing on.

I can't believe Lent and Easter is all over, and it's in the 40's and at least it lite later, but I'm up early and it's still dark ick--I'm such a wordsmith--ick.

OK I hope everyone can sleep good tonite. I have been lately, altho I hate to say it---it's bad luck

Oh yes markat uve been so lucky--BS--do the Drs. and nurses really think this doesn't affect our lives for a long time or maybe even forever.'OK I'm going to rant ladies so just go to the next posr if u want --I don't blame you.

At forst all I saw was Drs. and got used to it (like all of us), chemo, operations, more chemo, mor operations, mor chemo, rads and finally I was done. And I saw the Dr. every 3 months having everything under control even my scan were goo This last year I've been to more Drs. than at first with so many tests and in the ER (sometimes staying in) more han ever--never being there thru that first time) and now the Drs. send me right to ER and I feel worse now than ever. It's not my stage, it all the SE of all my chemo--etc, I know my age is against me--but for a scan to get worse in 3 months is alot. And more pain than ever. So I hate hearing from people saying oh it's been a few years now u must be fie. Why didn't u go back to work??? That grinds me so much, no one know how I feel, but like all of us we show our happy face. That's why I'm still a hermit---So rant over everyone. LOL had to get it out today. And this is the pace for me. So Sorry--I hope someone reads this anyway.

Lily I don't mean to scare u off--I just get going on something once in a while and I come here and rant and rave. Then I actually feel better. So I throw my troubles away. Lily we really do understand this hermit thing so feel free to say whatever u feel.

Hi ladies- welcome too Washington. I missed your post when I was catching up from my weekend away. I hope you find this a good place to be along with the rest of us.

Markat- don't those comments just irk you to no end? I think people sometimes try to be positive with us and what comes out is ridiculous. I hope all your scans come out with good results. 

Cami- we love your ranting and your humor!

Lili-I think this whole thing we go through is a very lonely place. It is part of my reason for finding this site and also finding this wonderful support thread. I only have a handful of people that can be present with all of this. I hope you can find some comfort and support here amongst us fellow hermits.

Blondie- I am a consulting project manager. The project/client I am working for is a very difficult situation, and there is a lot of stress, but all this stuff I have gone through has made me detach from a lot of the BS that goes on, and just do what I can to help. Work to live, not live to work and all that jazz. They basically begged me to come help them late last year and the money is good, but I have to keep up very strict boundaries with them. 

I am going to go to my first yoga class at the gym tonight. I need to get my body moving more. Yoga will help my stiff joints and also my osteopenia.

In the 70s here and so beautiful! Spring continues to bloom (ah choo!)

Hoping all you fellow hermits are starting off with a good week and the new month. Blessings to you all.

I had my herceptin treatment on Friday - it went fine though the nurse had to try about 4 times before she got a good vein.  She was very nice (as all of them there seem to be) but she's a bit 'heavy handed' when it comes to doing the stick for the IV. 

My weekend was quieter than usual.  I didn't go out to visit family on Sunday because they all did their get together stuff on Saturday this week instead.  I don't like to go out there on Saturdays because my boyfriend works that day and I don't like taking an hour+ drive by myself.

It's nice now not having so many appointments and stuff going on.  I feel like I'm getting back into a more regular routine.

ah Jazzy thanks, and good luck with yoga, wish I could get into it, did it once....

Jink 1 down....

I think I have to start taking Zometa again, ribs are hurting and I tend to cough and break them, so have drs. appt on the 10th...my port is a PIA and only have 1 vein in my hand to get blood out of but when they try pushing in veins are blowing....

am busy week off, trying not to push myself cause I am feeling fine...working tomorrow night, @ macys getting magical training (personally I think I am magical enough, been trained 3 times already) thursday and told boss that I would or could work saturday for some hours just not 145 - 830.....love this week off and am watching...in bed all day on puter and going to make a turkey sandwhich in a few, how is everybody?

MARKAT--how come I don't remember u telling us u were having all these tests? Did u tell us? I know my memory is like my tyoing it comes and goes, mostly goes. Well as soo as u start getting results tell us, I'm waiting too.(for u)

Camille, I was supposed to have them a couple weeks ago but the whole family came down with a stomach bug. So I rescheduled during my Spring Break. I'm sure it is just the lovely side effects from Tamoxifen, chemo and life. I'm just sick of being in pain! Maybe cancer has made me a big baby, but I hate not feeling like a 31yo! Grrr. I think the MO wants to pass me off onto someone else, which is fine! I'm just sick and tired of being sick and tired I try to get it all done...life, kids, work and now school. Oh well!



Sorry, I ranted lol

You ladies crack me up.  I love seeing what everyone has to say--from rants to raves and all in between.  The electricity just flows--the energy and passion we all feel about wanting "normal" back and knowing we can never have it.  And being reluctant to vent and moan, and then knowing each hermit gets it and loves us right back anyway.  It's just so refreshing not to have to hold it all back and worry about stepping on toes or being misunderstood.  Camille--go for it!!  We all love you.  Jazzy--I wish I had the patience for yoga!  Last time I tried it, it didn't go so well.  (I blame my missing chunk of back bone, but it could've just been an enormous lack of coordination...)  and, oh, I envy your weather.  Rain, rain, rain, cold rain here.  Markat--prayers your way.  Hope the day can just be one of those glad-it's-over moments.  Lily--welcome to the best group of hermits ever.  Teka, blondie, jinkala, fl, bgirl, whaevah, all...  hugs to each.  And please excuse the "cracking up"--I've been grading essays and it's just so refreshing to read complete sentences that make sense at this point! 

Thanks ladies! I do feel a lot better than when I started posting here (I remember us watching the Olympics and craving Taco Bell). Also, I am thankful for everything I have and for you all understanding!



Teka, I sent the girls outside yesterday to pick up those little gum balls that had fallen last year and were hidden under the snow. If I didn't feel guilty cutting a tree down, that one would be gone



Skittle, thank you! I'm not sure that our grammar is much better than your kids



Camille, you all will be the first or second to know- I promise!

Markat, jazzygirl, teka & all- Thanks so much for the support. There's definitely something special here, knowing others understand...my 2 sisters are great, but I can't expect them to totally get how i feel, & the youngest is dealing w MS, so I don't want to complain to her.

Blondiex46- God bless you! I will be contacting a parent advocate soon if I don't get what my son needs for high school...so little has really been done in middle school. I work in the same district, so it's been difficult.

I'm doing a little better since Easter, not hiding anyway. I'm hurting from physical therapy & my daughter's home sick w throat infection, so not feeling positive...

Coincidentally, ladies, just got an email from my aunt who heard from my cousin that chemo these days is sooo much better than it used to be, & that a woman she knows only missed work 3 days during treatment. My aunt, however, told me to listen to my body; she thinks it's dumb to go to work even regular sick. Honestly, when I got my diagnosis, I never even considered going back this year, probably because of teaching middle school. I knew I wouldn't have mental energy, even if I did have physical energy, to do my kids justice, & I didn't think it would be fair to them or myself to be in & out, with substitutes. Plus, WAY too much germ exposure for reduced immune system! I know some don't have a choice, but when it's there, I think we have to do what we feel is best for us, and no one can tell us what that is.

Hi ladies-yoga class felt good today, although at times, I felt wobbly! My favorite yoga teacher  was there tonight and so glad to see me, wanted to know where I had been? I just said I had some health issues going on for awhile, but was better. She told me to take it easy and kept an eye on me during the class, which good yoga teachers will do when they know you are new, resuming a practice, have an injury, etc. I found I could do twists in better ways than in the past , but other poses with the stiffer joints these days were a bit more challenging. I am glad I went and may try to go again thursday evening. 

Markat- do let us know about your tests as you would like too. You have a lot going on, but seem very positive despite it all. Having to do all the tests is just a drag....

Teka- glad to hear you were outside and getting fresh air. 

Grover- I do think we have to figure out what works for us. Lots of free advice from folks who have never been through it, but at least you know here that all of us have been through something! 

Skittle- I will send you sunshine and you send me some rain! We have a very bad drought here in NM (west in general has had problems for awhile now).

Cami- I could not get my legs behind my head tonight so no dates yet (LOL!)

Time for bed. Wishing everyone a pain free day tomorrow!