The Hermit Club

camillegal

Hi Lily--I don't read the other threads anymore but when I did, there were disagreements and some people would just go after other people about their opinions or how they looked at life--it could be very touchy sometimes and people would report people to the moderators???  I really never understood all that except for personalities clashing I guess.

It's quiet here and in a few other threads, I don't like drams in my life and when I come here I'm interested in what's going on with everyone not who can argue with who, like the lighter side of all this misery. LOL

Jazzygirl

Hi hermits! I like being part of this thread because the women here are very supportive and I have never really felt much drama. I personally hate drama stuff, and try to keep those people far away from me in life, no matter what the venue is. Thank you for all being so supportive and kind here.

Markat-yes, I am being sarcastic about some of the comments. When people ask if you are all better yet, it's like you had the flu, not just gone through cancer treatment. I know I will feel fatigued and will be moving at a slower pace for awhile.

Started off the day yesterday good, but lost energy in the afternoon. Felt a bit mentally fuzzy too. I think it could be the Arimidex, so I continue to adjust and let my body settle into this. Went over my latest dexa scan with the doctors office and she said I should probably have annual scans to be sure the meds don't make the osteopenia any worse.

Hope everyone is hanging in there. Snow still coming in some areas despite it being spring now.

camillegal

Good Morning jazzy--I hope u'r day goes well.

S N O W---no, no, no not on my body. LOL

Lily55

Thanks and i agree - ionly had one Bone scan to check for spread and nothing elsehas been mentioned......stiffness on getting up and sore joints is worse

Lily55

Thanks and i agree - ionly had one Bone scan to check for spread and nothing elsehas been mentioned......stiffness on getting up and sore joints is worse

camillegal

Lily, I think putting the chemo, rads, operations and meds all in one big pot and mix them up we are all feeling miserable alot. hahaha

bgirl

I think, like in life, there are always a few (like my MIL) who feel they have the right to say whatever they want.  I think most just want to offer support and friendship, but it only takes one to stir the pot sometimes.  Kind of like it is with men, women often just want to be heard, listened to, and hugged. But, some feel they have to fix others problems and tell them what to do.  There is definitely no one right way to do this journey!

What now? What am I supposed to do now?  Sick of SEs & pain.  That kind of funk.  Been a lot of changes in my life in the last year; BC (treatment & diagnosis), living with my parents for 2 months and doing palliative care for my dad, becoming an empty nester and thinking of returning to work which seems like a daunting task after so many years and wondering if I am ready.  I survived, but what is next?

Teka

Lily55,

Welcome!

Jazzygirl

Bgirl- you have much on your plate with your own health, eldercare responsibilities, and thinking of returning to work. So much change. It is hard to think of the future after going through all we go through.

Be patient and kind with yourself. We are here for you.

Teka

Today in the mail, I received a brochure to attend a free program for Stage 4 Forever: Living with Metastatic Cancer.   Not Stage 4!!! 

So, I called the MO nurse at the cancer center, and suggested a more selective mailing list.   I am sure some BC patients went into panic mode.

curveball

@bgirl, I have a thought about getting back to work. Would it be possible for you to sign on with a temporary agency? Then you could accept assignments that match your energy level, and turn down the others. I'll be retiring very shortly and I think temping is the only way I would ever consider going back to work. I hope I never have to think about work again!

blondiex46

Lily55 welcome!!!

Bgirl {{{{{HUGS}}}}}}}}}}}}}

Thinking about all of you.....hope you have a wonderful day!!

Jinkala

I've been feeling pretty good lately being just on the Herceptin now.  It's like night and day compared to the chemo last year.  If it weren't for the blisters that keep appearing on my one foot, I would feel almost back to my normal self.  Of course having only one boob is kind of a strong reminder that I'll never be back to my old normal but even that I'm learning to deal with. :P

MUGA scan today.  I'm pretty sure it will come back normal as usual but I guess they are required to do them every so often because of the Herceptin.  I think I'm due for a mammo on my existing breast too and I know she wants me to have an MRI soon too.  Bleh - I hate the MRI and I hate having to take drugs to deal with my claustrophobia but I'm not sure I can handle it without the drugs.  The other scans haven't been that hard for me but the machines are a bit more open and I'm lying on my back.  The face down thing with the MRI and having to hold still in an awkward position for a long time set my anxieties off.

Jazzygirl

Hi hermits: I survived turning 53. It was a good day filled with nice surprises and time with friends in the evening. I feel blessed.

Doing okay on the Arimidex. Some SE's but able to cope with everything so far.

Finally getting some of my hung up lab claims cleared out. The insurance company is finally getting the genetic tests paid for (BRACA and Onctotype) but they are sending the checks to me vs. the labs so those folks are after me to send them the money right away. I love being the middle man!

One more day of crazy client work before I head out of town.....

Teka

Going away for Easter?

camillegal

Jazzy today's u'r birthday--I got all confused--HAPPY BIRTHDAY and it sounds like u had a good one.

Jane u sound so sad, but cirve has a great idea, I never thought of that before--I remember doing that years ago for a time and it was good cuz if I din't like it I knew I as done in a few days and it was just general work and u don't have to take the job, but it might ease u back into the work place. And it is different living with u't parents now so naurally u feel some down sides. U'll see it'll all come together.

Well Jinala u'r mugs is done and I'm glad u'r feeling better.

Teka i'd rather get the stage IV brochures than the cemetary ones I seem to be on their list LOL

Teka

I read prior post, and you're going to favorite hot springs!

Teka

camillegal,

Scavengers!

camillegal

Teka hahahahahahLOLLOLLOL

blondiex46

jazzy so happy you surived...out of town?

Jink glad you are doing better, the MRI will be over, just hang in there...

camillegal

Good morning ladies.

Jinkala I have to admit I hate MRI's but last time I asked for a towel to cover my eyes--what a difference really--U've probably done that, but I honestly never thught of that after all this time.

bgirl

ugh, breast MRI face down.  3 in last year.  Last time asked the girl to take out the little mirror thing that reflects your eyes back to you.  Really, that is supposed to make you feel better.  Would rather just look at inside of machine.  Good luck.

Thinking about expanding my own work or just going for a simple service job I think.  But, yeah the part time hours thing may be good to start.

Trying to decide if I am going to go to my mom/brother's this weekend for a couple of days. Would have to go alone, hubby has to work and my 3 girls are all away at school and busy with end of term essays/exam prep.

Jazzy, happy belated birthday.  Tell them they'll get their money when you do!

Jazzygirl

Hi ladies- thank you for the birthday wishes. It was tuesday, and it was good. I made it to 53 and glad to be done with 52. 

Cami- you get cemetary stuff? Seriously? That is aweful. The world is not always a nice place. 

Teka-yes, off to my favorite hot springs tomorrow for some restoration and the holiday weekend. 

Blessings to all of you for peaceful holiday weekend. May you be surrounded with love and grace. 

blondiex46

have never got an MRI for this...

camillegal

Bondie u'r not missing anything--it certainy isn't painful just encosing u'r body in a tube like outer space and the noises are so loud. but it doable like everything else we do.

And Jazzy yes really for cemetaries and cremation things. The cematary ones i throw away and the cremation ones I burn up.I think that's only proper.

Teka

Ever try an Open MRI?

camillegal

Teka one I ha it was totally open in the back and some kind of glass top on top with a big clouds picture that's as open as I ever ot.

Skittle

Happy travels and late birthday!

Never had mri for bc, but prior to back surgery.  What worked for me was knowing ahead that it was coming... and conditioning myself to scent.  Dd2 had bought a wonderful herbal scent on her travels, and gave it to me for a mini-spritz by my pillow before sleep...  "The brain" conditions to calming, and two weeks later, scent in mri, all went smoothly.  Just an idea.

Hope all Good Fridays are gentle to you each.  Hugs and happy Easter.  (Camille--is Joey too old for bunny/basket?  There's something cheerful about jelly beans.)

camillegal

Skittle I like the idea of scent--I believe in the calming of it so that's a good idea for MRI.

No, He still believes in the Easter Bunny (we think) but he sure talks like he does and I help him believe because I wish there was one so I tell these big stories about wonderful fairytales (of course I make them up) cuz I want him to hear original ideas and it seems to make him believe longer.???????????

Teka

I was surprised to hear on TV a wardrobe stylist say that women only like and wear 25% of their wardrobe.   I couldn't wait to tell daughter.