December 2012 chemo group

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  • Sandra60
    Sandra60 Member Posts: 201
    edited March 2013

    Hey Lee - you are getting very close to the end - woo hoo !! Yes the leg stiffness and soreness is my major complaint but working though it - u will too !



    Gwen - I had a Mani-Pedi last week and had a French gel treatment done on my nails - they look so much better now ! I would highly suggest it !

  • Bren58
    Bren58 Member Posts: 1,048
    edited March 2013

    Runner, I am only 2 weeks PFC so no sign of hair yet for me. Glad you are half way done with RADS though. I have no idea when I will be doing RADS. I still have to meet with the BS & RO. They want me to have ALND surgery first. Not sure I want to do that.

    Sandra, glad you were spared the watery eyes. It is one of the most annoying side effects.

    Lee, only one more to go! Hang in there, you will get there.

    Gwen, glad you have your kitty to keep you company and help keep your mind somewhat off of the Chemo SE's.

    It looks like spring may finally be here! I am hoping to get out and enjoy some warmer weather this weekend.

  • donster
    donster Member Posts: 39
    edited March 2013

    Good morning ladies.  It has been a long time since I've read and posted here.  It is great to know that you are all finished or near the finish line with your chemo and many of you, like me, have started radiation. 

    I finished chemo the end of February and I have finished 8 of 33 rounds of radiation to date.  

    Sandra60 I started taking Tamoxifen about 2 weeks ago.  For me starting rads and starting hormone therapy  together just seemed easier then waiting to start yet another chapter on the road to recovery.  The side effects of the Tamoxifen have been minimal.  Mostly leg pain which of course is blurred with the residual leg pain from the chemo... 

     I am back to work part time, going to the hospital daily for radiation and managing to stay awake later than my 3 kids.  I understand from many of the posts that fatigue will set in but it has not been a major factor yet.  My RO suggested getting back in to an exercise program but warned of any exercise that would cause friction under the arm.  The radiation to the nodes will cause redness and soreness and he mentioned that friction will make it hurt even more.  

    For any who are looking for remedies during radiation I have found baby powder under the arm to work well for the friction. For the chest area I really like Calendula Cream (by California Baby)  during the day (not at all greasy) and Aquaphor at night (very greasy) but works really well. 

    The hair thing, yeah, that truly stinks. The weather is getting warmer and my hair is growing in really slowly too.  I am super bummed about that.   I was hoping for my 50th birthday in July to have a cute Halle Berry haircut :(  

    Wow, this was a long post.  Wishing you all a great day today.  

  • Sandra60
    Sandra60 Member Posts: 201
    edited March 2013

    Donster - it was very nice to see your post !

    I am glad the rads and tamox are going well for you and that you are making good progress toward the next finish line.

    Thank you for the tips on the creams and baby powder/

    I start rads tomarrow - 4/1 and may join you in doing the tamox at same time too.  I just wanted to get in a bit better shape before starting the tamox because I know it can cause some joint pain etc  - but I hate waiting too .  I have not decided yet but it is good news that you are not feeling  to many SE's .  Are you on the 20 MG pill?   What time of day do you take it ?   PM me if you like. We have a very simlar diagnosis and treatment plan  - it would be good to " compare notes"  .

    I am still expericing fatigue in my legs and stiffness as well.  I've been trying to exercise every day - either walking , the health club or biking and I do seem to be getting a tad stronger but that chemo really did a number on  my muscles ! My eye lid twitching seems to have ceased - thank goodness.  

    Hair growth is painfully slow :( .....

    Hope all you ladies are enjoying a nice Easter -  it is a bit cloudy here in Northern CA  -but enough sun is peaking through that we are going to BBQ that pork roast instead of roasting it !  I am looking forward to my 2nd glass of wine ( a Pinot Noir )  since Chemo with dinner !

  • Nicole503
    Nicole503 Member Posts: 295
    edited April 2013

    donster ~ Thanks for posting your experience with Tamoxifen.  I have my last Taxol this Thursday and then my MO would like me to start Tamoxifen within a week or two. 

  • Bren58
    Bren58 Member Posts: 1,048
    edited April 2013

    Love your new picture Nicole! Wish I was bold enough to post one of me bald.

  • jenjenl
    jenjenl Member Posts: 948
    edited April 2013

    Last chemo tomorrow....awesome!  I can not wait to finish this crap. Radiation starts the end of april.  Been having some back and hit pain which has me nervous.  Also some pain below my incision.  I am scared of any pain I have. 

  • FriendGwen
    FriendGwen Member Posts: 177
    edited April 2013

    We have all managed to get through much of our treatment and it's finally April! Started this process with the diagnosis in September. My mammogram was September 11th! Clearly that was poor scheduling! Nonetheless, I feel great relief in coming this far and am ready to get my strength back. Am planning to hit the gym this week and to get groovin' on the Mediterranean diet. Granted I still have lots of side effects but am hoping there won't be any new ones. My weight has fluctuated by about five pounds over the ten days since my final chemo and unfortunately the high number was this morning. Oh well, all the more motivation to get moving and eating right.

    Thanks all for discussing tamoxifen. I was thinking I would begin post radiation but I'll see what the MO says. I suppose there's no point in waiting unless it's just to give my body a break by dealing with rads on its own before jumping to the final treatment. Have a great April Fools Day ladies!

  • Runnergirl2013
    Runnergirl2013 Member Posts: 83
    edited April 2013

    Hi ladies! Happy Monday...hope you had a good weekend ! Hope all is well and that you have smiles in your lives!

  • Sandra60
    Sandra60 Member Posts: 201
    edited April 2013

    Jen Jen - congrats on your last chemo - whoo hoo !!!



    I'll keep you updated on my rads - I start today . Regarding your back and hip pain it is probably chemo related but my fallback is to ask a dr if it sticks around too long . Have you tried some stretching and yoga - it really seems to help me - I still have maor stiffness post chemo although it is slowly starting to fade .



    Happy springtime to all !!



    Sandy

  • Bren58
    Bren58 Member Posts: 1,048
    edited April 2013

    jenjen, YAY for last chemo. Even though you will have deal with the side effects it will be great to be finished!!!

    Gwen, I had my surgery on 9/11. It was supposed to be to remove a cyst or scar tissue from the BMX 12 years ago. Clearly that was not the case!

  • Runnergirl2013
    Runnergirl2013 Member Posts: 83
    edited April 2013

    I have 12 more rad treatments left.  They told me today that I have 4 more treatments to my under arm and neck left and then the last 8 treatments will be to my breast only.  My sholder is the most pink so I am excited to hear only 4 more treatments int hat area.  My back is sore from me arching my back while getting the radiation.  Funny how every new treatment brings new SE's.  I will be starting Tamoxifen on 4/20.

    Ok seriously - my big obsession right now is to see more hair growth.  I am 8 weeks PFC and i have only about 50% of my hair growing in and most is white. good grief......just want to feel like me again. :)

  • duckiedee
    duckiedee Member Posts: 45
    edited April 2013

    Today was my LAST chemo treatment!!! I completed #6, and I am so happy to have this part of my treatment behind me. Laughing I still have to keep going back to the chemo room for Herceptin infusions every 3 weeks till December. But, hey, it won't have the harsh chemo side effects I have suffered through all these months, so that's OK.

    I start radiation toward the end of April. I go on April 15th for my big 2 hour appt where they plan everything out. I'll know for sure after that. I did talk to my MO today, and she said I probably won't start hormone therapy until after I finish rads. She said that they don't want to put me through MORE side effects while in the midst of radiation. And that is just fine with me! I am weary of side effects and will gladly wait till rads are done before dealing with more.

    So glad to see so many of you have already finished chemo. (I guess I'm the late bloomer... haha!) Even though I don't post too often, I read through your posts frequently and thought I would share my good news today. I like reading how you are doing PFC too. I know I have a ways to go before I am past these pesky chemo side effects. But just knowing I won't have to face those wicked chemo drugs again - not to mention those horrible steriod pills - feels pretty darn good. :-)

  • LeeA
    LeeA Member Posts: 1,660
    edited April 2013

    I just wanted to say congratulations duckiedee!  What a happy day!  

  • Bren58
    Bren58 Member Posts: 1,048
    edited April 2013

    YAY duckie!!! It's an awesome feeling to know it is the last nasty one!

  • Nicole503
    Nicole503 Member Posts: 295
    edited April 2013

    duckiedee  ~ CONGRATS on being done today !!  

    jenjenl ~ CONGRATS on being done tomorrow!!

    I've got my final Taxol infusion on Thursday.

    What a banner week!  Kiss

    Bren58 ~ the new photo is a cropped photo from yesterday's FB Easter greeting "from a happy egghead".  It the full picture I am holding up two of the eggs my 10 year old colored. It takes something like a holiday for me to dare to be bare.  Perhaps as the weather warms I will do this more but at this point I'm still 99.5% a hat and wig girl.

  • Sandra60
    Sandra60 Member Posts: 201
    edited April 2013

    Congrats Jen Jen , duckledee and Nicole on your final chemo's. !!



    I had my first rad treatment today and it was a piece of cake . I also met with the nice female radiologist Dr. And she said I can definitely wait to start on the tamoxifene . She said 90% of her patients wait to start hormone therapy until after rads . She said the hormone therapy is for long term benefit and waiting 6 weeks until I am done with rads does not make much difference .

    Runner girla my hair seems to be coming in all light and with spotty coverage too - grrrr - just want to go wigless sooner than later and with my really ugly shaped head - guess it is going to be later ! Sorry your sore from the rads - but u are really close to being all done - woo hoo !

  • jenjenl
    jenjenl Member Posts: 948
    edited April 2013

    it's getting hot in NC and so I am wearing ball hats (go red sox) instead of skcicaps and it is so much better and liberating.  Have treatment now, 3 more hours and I am DONE with chemo.  Congrats everyone!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2013

    I get Taxol #6 out of 12 on Friday. My hair is returning slowly, but spotty. I check it every time I go to the bathroom. Maybe I should quit checking. You know what they say...A watched pot never boils. Lol



    Paula

  • FriendGwen
    FriendGwen Member Posts: 177
    edited April 2013

    Congrats Duckie, JenJenl and Nicole! I'm 12 days post final chemo and have to say I am seriously feeling my energy and tastebuds returning! I hit the gym yesterday and am going back today. My eyes are still watery, nose runs a bit, blah blah blah but those are the minor SEs. My head is full of white peach fuzz. As a brunette I keep thinking if it stays like this I may get a glimps of what I'd look like blonde. I wish I had tried on some blond wigs! I find myself studying any woman with a short hair cut wondering at what point mine will look like that! Hang in there ladies, we are mile 20 of this marathon!

  • kslansky
    kslansky Member Posts: 142
    edited April 2013

    Congratulations to all you ladies who are finishing up chemo!I'm 3weeks PFC and have a head full of white peach fuz. Feeling some serious hair envy!I was pretty gray prior to bc but wondering if I'll be as white haired as my mom.



    Surgery on Thursday then on to rads!

  • jenjenl
    jenjenl Member Posts: 948
    edited April 2013

    Kslansky - good luck with surgery tomorrow. 

  • Zorina
    Zorina Member Posts: 103
    edited April 2013

    What my MO said today:  In two weeks you are going to be done with chemo.

    Pinch me, am I dreaming?



  • Bren58
    Bren58 Member Posts: 1,048
    edited April 2013

    klsansky, hope your surgery goes well.

    zorina, yay, only 2 weeks to go!

    Gwen, I was a blonde my whole life, then got a brunette wig. Have had so many comlpiments I may not go back to blonde Kiss

  • powermom
    powermom Member Posts: 195
    edited April 2013

    Gwen, that's great! I'm about the same distance out from last TC, and your post gives me great encouragement! I'll take white peach fuzz, even!

  • jenjenl
    jenjenl Member Posts: 948
    edited April 2013

    Last treatment done!

  • mfml
    mfml Member Posts: 77
    edited April 2013

    I feel bad posting after such a long absense from posting - but I have been reading and drawing from all of your experiences (I am just not much of a poster these days...)   Congratulations to all of you finishing up!  We are all on our way!  I have 3 more taxol left (MUCH kinder to the poor bod than AC) - and my hair is coming back.

    I have a strange "emotion" as I near the finish line that I am only beginning to understand - and I am wondering if any of you are experiencing it also.  It started as a "grumpiness" when people would give me the "yay!  nearly done! we will have a party!"  Over time I realized as much as I hate the chemo - I am scared to stop it.  I have a strange anxiety about stopping.  I feel like I am "fighting" and doing something while I'm on chemo.  What will happen when I stop?  Did I get enough?  Did it work?  What will happen if a Dr. isn't watching me every week?  Weird, right?   I never in a million years thought I would have anxiety about STOPPING chemo?!?  Am I crazy?

    Anyway - thank you all for all of your posting.  It has benefitted me and I feel rather guilty and selfish for gaining so much from your experiences and not sharing more myself.  You are all great sources of inspiration and brave, amazing women.

    Mia

  • Sandra60
    Sandra60 Member Posts: 201
    edited April 2013

    Hi Mia ,



    Don't feel bad about not posting that often - we all have ups and downs during chemo and can relate !

    I understand what you are fretting about - not being on chemo. I had a bit of that set in too but kind of decided my body was ready to feel better and fight off what ever came next . I think you will start to feel that way too soon and you will get stronger each day after your last treatment and be on the road to " normal ". Big cyber (((hugs))) to u for being such a warrior !!!

  • kslansky
    kslansky Member Posts: 142
    edited April 2013

    Mia, I felt the same way about ending chemo even though I still had surgery and rads. I share a lot of those same emotions. (BTW...surgery went well today will get path report next week. BS surgeon said that the results were really just academic because we know that I already had several nodes involved.)

  • FriendGwen
    FriendGwen Member Posts: 177
    edited April 2013

    kslansky - glad surgery went well!

    Today is tattoo and piercing day! How's that for being one bad-ass momma? It's nipple tattoos. And I had my plastic surgeon sew up my original ear piercing back in December as the hole was too droopy for my liking and she's repiercing it today. I actually had to go to Claires and buy starter earrings. So yeah, tats and piercings today. I never would have guess I'd be saying that!

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