Fuzzy's Romp Room

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Wren - no brain fog with Lyrica??? just wondering .

    I'm having another tough morning but There is an Angel amoung us - that is all I can say - Thank you for everything!!!

    This picture is for you all to enjoy this morning - Speaking of brain fog - here is another picture I call the "Fog"Fog"

  • Denise51
    Denise51 Member Posts: 65
    edited March 2013

    Love to see the mountain tops above the fog.

    Wishing you a pain-free day.

    Denise51

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2013

    YA'LL, I done lost what I just wrote.  SO annoying.  But also, I wanted to say, I apologize for writing too little, don't you think?  Hahahaha.  Ohhhhh, I'm just TOOO much of a talker.  I should hav esent that long post to Fuzzy some other way, but at the time, I didn't know if she was checking various email and PMs here, but STILL... it was a tad much.  SORY SORY SORY.

    Let's see, what I'm gonna do, instead of writing down all the ENDLESS paragraph after paragraph, with a few little ones, then a manuscript,a short story, etc., etc., is I'm a gonna write from memory, and if I miss anyone, it's okay, because (a) we're all confused and (b) we're all in pain, (c) and FORGET is my middle name.

    FOLEY, I just missed you.  Hon, I do dearly love nearly all your photos!!!  Some are just so restful, think I'll print up a couple and hang them in a likely spot for relaxation.  I think you could take some to a gallery and they would surely show them, if they haven't already.  Let's see, on the sore boob thing, I have some tips, but in the end, could be removal will be best, just ask the surgeon to make that scar straight and skin flat (except it will be puffy and sore at first), and just so you know, I did not have reconstruction, and I have to massage for lyphadema that has developed in my arm just slightly.  You massage without lotion first.  My first tip is try this:  Use your regular lotion, not the pain stuff, and then a light puffing of powder, and either just use those compression t-shirts, or those plus a comfy sports bra thing.  Also, Lyrica is something I take.  Now, I have been in brain-fogsville since I don't know when since I take many meds becuz of back problems.  I wish I could tell you a way to keep outta that town.  But I can tell you to ring your insurance, see do they cover it.  Lyrica is pregabalin, and so is a cousin to Neurontin (your gabapentin), and I liked it very much more.  But hon, while some painful twinges are to be expected with any problem with the breast, I think it's the swelling is squeezing on those nerves, so the swelliing is the way around it, which may not be possible to get rid of.  I have a little in mine, I assume forever, I have to massage, etc., all the time, too.  So, could be when you're laying around watching TV sometimes, put a cold pack (wrapped in a scarf) and lay it on there, for cold will shrink the swelling somewhat. I hope some others will pop in here and seee if they have any ideas about reducing swelling.

    DUNES, I'm still very excited and pleased with your plan of staying in Atlanta with your BRO.  Hooooraaaay!!!  But I wanted to mention that some bookstore or library,if you'll call around, may carry the Atlanta paper (or it could be classified will be online!!!) and that way you can pick out some sort of job in computers (I think that was your profession) OR even jobs doing something you ALWAYS wanted to do that don't require specific licensing or any of that jazz. 

    LILY, wanted to mention again your good tip on carrying a crystal if you're nervous about whatever. I used to collect all sorts of shells I found on beaches, bought some too, so I reckon I gotta be looking for something like that, that I wouldn't mind losing!  I am forever finding coughdrops and such after I pull stuff out of the dryer. I actually have an old shell of some kind that's millions of years old, it's from a special store in town, and i keep it in a very special box.  But maybe I'll run by there and see if something just jumps out of me, since they have ALL kinds of rocks, shells, and crystals.

    SHELLSHINE, you were talking abougt losing some cognitive ability.  Drugs are usually to blame, but ALSO indeed, as you wondered, the sheer shock of cancer will make you kind of fly away out there with the stars, that's for sure.  You are so close to death, whcih takes some getting used to, but you will; you are physically invaded; and sleep, if it doesn't come easily, is serious.  You gotta get in your naps, lots of sleep, whatever it takes to stay in the bed a lot.  Don't do anything you don't have to do right now.  Just goof off now and then. Do what you enjoy doing, and don't do the stuff you hate (or at least see how lousy a job you can do!!).  Seems like you said it was affecting your work, I'm not sure, but I think asking your doc to review any meds you're on, and realizing you just for crying out loud had breast cancer surgery!!! and also getting more rest, you should slowly pull out of this fearsome routine you're stuck in.

    SHEILA, so very, very, very nice to see your tiny flower and little hellos again!  Love you!

    GIRLS, reckon I talk too little!?!  Hahahaha.  Ohhhhh, I'm a talker.  Drives husband crazy.  When I was just a teenager, my grandfather put together on a 3x5 card (I still have it) the words from a newspaper or mag he came across that said, "You talk too much."  HAHAHA!!  Oh, I was so charmed by it.  Must be a glitch in my brain somehow, for I also like to sing and write songs, lyrics, poems, stories.  But I just had to share this one or two last things:  Drumroll...... my hairs have grown 1/2 foot now!!!  It's just past my shoulders, and I swer to you, it sort of self-styles, which I have not cut it at all since it came baack out.  And then for the confused, painfilled, ruined women out there (and men too) who really have found all this to be a struggle, and you don't know why, I shall give you my favorite quote of all time, by Ernest Heminway, from his book, "Islands of the Stream," I sometimes think of it when i reach a sort of total wreckage in life, he says, "It is all true."  SMILE, hearts and hugs, Gail

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    dogeyed, I don't have insurance of a great kind anyway - no prescription coverage except the oregon discount... That is why they put me on the gabapentin I suppose.  Darn.. Lyrica is spendy I suppose huh?  Other than that for the past 20 months, I have been doing what you have suggested, unfortunately, my pain isn't a twinge here or there its almost constant, just gets worse during any walking or exercise.  Wish it was just a twinge and with the swell, pain just gets worse.  Thank you for all you suggestions.. keep them coming - If they could do cryosurgery/therapy on that I would opt for that but unfortunately there is a big chance that could worsen the LE.

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2013

    HEY FOLEY!!!!  Amazing.  I was hunting for a picture to put for Sheila in my as-usual too-long post, and when I came back to drop it in, there was you!  Yes, Lyrica is ridiculously expensive, I recall something over $100. So, w/o some sort of drug coverage that helps with Lyrica, you cannot get it, unless you can find a foundation or institute who will help you with the cost of just that one thing.  But tell you the truth, it kills the pain the same way, just less annoying, less side-effects (tummy).  That cryo therapy sounds promising, because cold should reduce the swellling, your aim, as long as it doesn't require some big operation.  But at least you could keep your boob and also have less swelling, etc.  Might want to cmpare cost/success/risks of the two (cryo vs. surgery), AND I'd think hard before I cut my boob off, but at the same time, if you're at the point of wanting that, the pain you must feel has to be fearsome.  Check websites on breast lymphedema, see if there's one with an active forum.  Greaqt getting to chat a bit with you, fo sho!!!!!!!!!  

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Hey Dogeyed - just read you are a retired news editor - I'm a Web production assistant - editing and producing Press Releases!  We kinda have something in common Wink

  • chabba
    chabba Member Posts: 5,065
    edited March 2013

    Esther,  Your wonderful pictures make my day.  It is a wonderful way to start the day and one I look forward to every morning.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    I am soooooo tired tonight - going to bed early - long drive to the fitters, but it is worth it.. They are so nice.. Good news is my new night garment didn't have to go custom! Yay Laughing Plus I have a wonderful BC Sister out there looking out for me!

    Other news this week -

    BS said that a mastectomy MIGHT help with the pain and he was willing to talk if it comes to that decision. -

    Pain Management doc said Cryosurgery would probably work but he would have to refer me elsewhere (BOOO was hoping he could do it) PM doc and I will go over the options in 2 weeks

    Nutritionist has a new way to help me lose some weight and I see her next week.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Oh and a good night picture for you -

    2012 sunset

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited March 2013

    Esther, I know that Lyrica really helped a guy I used to work with. I know that lots of people are able to get the drug companies to give them drugs for free. Unfortunately, I don't actually know the process. I will be interested to learn more about the cryo therapy, as you learn more about it.

    Gail, I'm moving in with my mother, here in Maryland. Moving to Atlanta (actually Cumming, GA) would have been a grand adventure, but that would have left my mom here alone. And she has been my greatest support (often my only support). 

    Gosh I am really depressed, but hopefully I will pull through this without hospital "help." I'm at mom's. This internet connection is a fluke, so you won't see me on much until I get back to my house. I need to find a way to look at this upcoming move as a good thing and not as a failure. I feel like I have failed at living on my own and must come back here where I have a nursemaid (mom). I have to get rid of sooo much stuff. My house is small (4 rooms), but I'm basically moving into 1 room. I need to be grateful that I have my mom and that she will take me in. And I am grateful. It's just that I feel like such a failure. But really. I don't want to live next to that nasty girl that Dan moved in with him. You should hear the filth she spews. (She talks loudly and we share a wall.) I could maybe get used to the slamming doors and running up and down the stairs, but not her mouth. Besides, there are no rats in mom's neighborhood. This will be a good thing. Tell me, please, all the ways this will be a good thing.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited March 2013

    Oh, Gail . . . when I decide to drive down to GA to visit my brother, I would very much like to schedule a visit with you!

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited March 2013

    Dune, It will be. Just consider it a respite from all the turmoil. Let mom spoil you alittle and help her when you can. Also let her know gently that you are an adult and capable of making your own decisions. Also let her know that it has to be a two way street where you assist each other, otherwise the resentment really builds. Hugs

  • chabba
    chabba Member Posts: 5,065
    edited March 2013

    dune, It is never a failure to seek or accept help when we are  confronted with fears and the changes, challenges, side effects and pain that result from our disease and our treatments.  It sounds like your Mom is the kind of Mom who can and wants to provide just the kind of help you need.  Move on with confidence.

  • kathindc
    kathindc Member Posts: 2,042
    edited March 2013

    Dune, you are leaving the chaos of your neighbor behind for peace of mind.  That is a smart decision.

  • Lily55
    Lily55 Member Posts: 3,534
    edited March 2013

    Dune you are doing waht is right for you now, does not make it a failure or forever, but right for you just now and no rats, human or furry is a good thing!

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Dune - life is change and learning - no matter what you do in life - you are not a failure!!! I have to tell myself that alot -

    Ok, not sure if I ever put this one up - new current landscapes are coming, just haven't downloaded them yet. I didn't name this one, I just like how the sun is shining down on my trees :-)

    sunrays

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2013

    Dune, if your mom is anything like my mom, you will do so much better with her by your side. My mom is coming for 2 weeks to help me out - I also hate asking for help, especially when she is getting older and I feel guilty asking her to drop everything and help me YET AGAIN, but I talked with an older friend yesterday - she is 83 - and she reminded me that "that's what moms do!", forever! Hugs!

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2013

    FOLEY, once again, your last photo, at the end of the last page, is great, has a distinct "Western" feel to it!  And I cannot get over how we're in the same "news biz"!!!  I did dearly love my newspaper work, and later with a graphics department at a very large printing company, I was writer and editor there too, until I started to fall apart.  But you know what, aside from most of us feeling pretty rough around the edges, not all that long ago, we had very little chance at all of survival.   

    DUNE, oh, dah'lin, I feel for you, I do, I do.  As for throwing away even more because of going to one-room living, you know there are really rather inexpensive storage places, altho you may have to rent only, say, three months at a time to afford it.  And a U-Haul is also quite inexpensive for one day, too.  Just an idea. As for your computer, I remember when I first went online, it was before we could afford one, very early 2000s, I used the library computers.  Generally, if you don't already have a library card, I think they cost a couple dollars, you can go in there and sign for, say, 30 mins, and if it's not crowded, the librarian will let you go back for longer.  But I can remember rushing with the thing, even printing my brother's emails that were all so long (sound familiar?) and read them at home, so I could spent the rest of my time "playing."  Just a tip.

    DUNE, also, i agree with everyone else, you have not failed.  Guilt, fear, regret, all that junk is a tricky thing.  Hon, you had CANCER for crying out loud!  You're not supposed to feel particularly good right now.  As for thinking you might need another visit to the hospital thing (thrilling, like mine), instead consider most counties will have a "free clinic" known as the health department, and they always have psychologists, social workers, along with regular health care stuff, and you can usually go in there as a walk-in and see someone right away.  And I have another idea, but I'll send you a little private message instead.

    FUZZ, I always have to put in a little word for my owne true sister FUZZARINA, dear one, we miss you so, but I suspect it will be a loooong time before you will be able to focus on such stuff as we do, at least not with any regularlity.  Remember all the steps of grief, they creep up and bang you up side yo head, so cry and lay around, girl.  We all love you. 

    ANNOUNCEMENT:  I'm going to find out more info, but at almost exactly the same time, I was started on a new medicine, a couple were reduced a little, and then I also bought fresh hulled sesame seeds.  The seeds, I'm sure they're at the health food store, but I got mine in a regular groc store, they had a bunch of herbs stacked in a little rack in fresh vegie/fruit section, with clear plastic containers, about the size of your hand and fingers.  Now, the medicine they gave me really scrambled my brains, I'm SO off-balance probably becuz it worsens my neuropathy, awful side effects, bones hurt like mad, but I did feel better somehow, it's anti-everything.  BUT, as I said, I was ALSO shaking a goodly bit of sesame seeds on my various little meals.  Well, GET THIS, my depression since my car wreck WENT AWAY COMPLETELY.  It was on-again off-again the first bunch of years after, but when I hit my 50s, it was VERY bad, and I had my first panic attack.  All the fear from that accident had piled up and finally just blew up.  Then I become depressed continuously.  It was awful.  And just recently has gotten very bad, which is how come they doubled up on some of my meds.  Not only did I need better pain control, but the depression was total and complete.   But COULD BE it's the medicine, but gosh, it has so many lousy side effects, I'm wanting to get off it.  So, to make sure, I gotta quit either the sesame or the new drug. I'll quit one and see what happenns.  Wouldn't that be just so fine?  Well, bye bye for now, ladies of the lavish and luxurious!!!  Gail 

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Ok ladies I'm sorry today has been busy and I didn't get to the picture. I will put two current ones up tomorrow to make up for it. My iPod doesn't have access to the pictures and my feet hurt so bad I can't move . Happy Easter and check in tomorrow for the pictures

  • Shellshine
    Shellshine Member Posts: 1,039
    edited March 2013

    When I had my BMX / TEs did I come home to my house expecting my husband to look after me? HELL NO....I went to my mom's for a week (and she's 80)!

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2013

    Ohhh, sweet SHELLSHINE, your husband hath failed thee for whatever self-centered male madness hath cometh over his closed eyes.  GEE WHIZ.  Looks like he could give you a break.  I don't know how long ya'll been together, but i'd been with my husband (love him) for about 25 years, and I had been into chemo I guess a couple months, totally wiped out, you know, and all I wanted was an effing hot dog with chili, just a half-mile out of our way, and he would not go up there and get it for me.  Ohhhhh, I whined and dribbled, screeeched  and withered his so-called mighty manliness, until he was stunned into silence.  Finally, it came down to a stand-off next to the kitchen pass-thru, and I 'splained to him I was Number One now, he was Number Two, right down the line until I told him differenent becuz I WAS THE SICK ONE, for crying out loud.  He tried to argue back, and I don't recommend THIS part, but I grabbed the lamp, slammed it against the wood column that holds up pass-thru columns, blasted out the lightbulb, whereupon fire and flaming ensued from the end of my magic laser as the plug came out of the wall.  It burnt his fingers and I cold really have given a shit, he's just lucky he put his hand up so I didn't quite hit him.  And I miss that lamp.

    Well, anyhow, after I went to my sleeping place and peeled the horrible shoes off my chemo-induced foot neuropathy (FOLEY, ANOTHER thing we have in common) and put on my pajamas, and he went into where his closet crap, and I mean CRAP was, we had some time to coool off.  So, after I fixed a soda, flipped on the TV and got all settled in on the couch to suffer yet another day of chemo les miserables, husband came into the living room, sat down, and apologized with all he had, and that it made good sense for me to be number one for a while.  I thanked him profusely, he showed me his finger wounds, I got up and escorted him to the kitchen sink to run cool water over his minor burnage, altho to hear me tell it, it was a very serious injury that I was SO sorry to have vomitused right on him like I done.  Later we both thought it was pretty funny.  Yup, I'm a lamp-swinging fool, becuz let me tell you, like my Dad, my husband is made of wire, can't nothin' intimidate or hurt those guys much.  Six months later, after my rads quit burning, I officially went into here where the computer is, and I sat down and told him he was no No. 1 again, and believe me, he changed pretty rapidly into his regular position. And as i've said many times in this forum and other ones, I suppose, I looked in on him and realized just how depressed he had become.  So, within a month, he was all put back together again.

    Thatz alll I gots for you'uns gals this morning, it' early becuz we stayed up late watching the next-to-last marathon for "Walking Dead," a truly fabulous TV series, with the grand finale last show tomorrow evening, to close out the season.  Yes, walking corpses with crumbling bodies did immitate the whole world, but no TV, not much to do except procreate and figure out ways to live a fairly normal life with a zombie walking right tru a plate glass window with way too much regularity.  Interesting on several levels, and one we discussed tonight that it's a little like our world today with such a high crime rate and inhuman dastardly deeds outtta nowhere everywhere in these here United States.  Love to all, Gail

  • Shellshine
    Shellshine Member Posts: 1,039
    edited March 2013

    Dear Gail - did you get the damn chili dog after all that?

    I have been married for 24 years and I love my husband dearly, but can not count on him to look after me when I am sick, so strange because I am a nurse and look after him continuously. He's wonderful in many ways but just clueless when it comes to taking care of me when I physically need it. Lucky for me I have a big support network. When I get my Exchange surgery next month I'm staying at my best friend's house on the beach, easier on poor hubby and me - and her husband will be away - YAHOOOO!!! Girl time!!

  • dogeyed
    dogeyed Member Posts: 884
    edited March 2013

    Nope, SHELL, the argument started on the way home, and I asked him to just keep going instead of turning, but hell no....  actualy, it was probably the other way around, with him wanting something from Wendy's, but sho don matter now.  I keep trying to add ina picture I really liked that I saw onto my last post, but have given up.  Bye bye, girl !!!  gg

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2013

    LADIES,                                   AP Photo

    Here is the pic I mentioned to Shell above about how much this Calif sunset pic looks like Richard's and my fav place to vacation together.  This is a lot how it looks in Charleston SC from a pier on the Cooper River side of the peninsula where the historic district is.  If you'll notice, it has a "Rainbow Row" of colorful homes, very similar to San Fran's "Painted Ladies."  About only diff is, if memory serves, there's a wall there instead of a beach, which those are situated more easterly, maybe ten mins or so from Charleston proper.  It's easy to get to from where we live up in NC mtns, and several other states on East Coast.

    Reminds me, DUNE, you was talkin to me I think in a post that you'd like to come see us if and when you drove down to see your bro in Atlanta.  You know, dah'lin, and I've had to tell this to Fuzzy, I'm disabled from getting all skint up and fractured spine, pretty much ruined any abilityt o do much of anything.  WE won't even let our parents in here, except when we FIRST got settled.  No strength, not much motivation, altho since I been eating hulled sesame seeds, i been feeling rather less depressed. 

    But I promise, whenever we get this place cleaned up and put up and unpacked from when we moved a few neighborhoods over from our other house (more than five yrs ago!) so we could downsize to accomodate no money except disability cash, I will let you and a few other people I know that we're "open for business."  Then we can let it get all junked up and dirty again!  Hahahaha..  But, relly, I cannot tell you how frustrating it is to kind of let everything go thatwe used to do.  Husband is in exact same shape as me.  My folks are in their mid-80s, and they get around FAR better than we do, but are extraordinarily understanding, the best folks a girl could have.  At least MY brother comes down here, DUNE, with his family, but since my folks are here, i don't have to let him in here.  SMILE.  Love always, Gail

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Off to Easter Service and lost my camera so here is a good morning picture until I get back.

    Dogeyed - did read everything but I love the pic.!

    April 2012 Morning Sky

    april sky

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited March 2013

    Nevermind I found my camera - 

    The Name of this is Morning Glow - Yesterday's View as leaving the house for work.Moon Glow

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited April 2013

    Misty Rainy morning on the hill.

    misty morning

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2013

    GMA, these make the most beautiful screen-savers, or desk-top pictures!  Thank you for being you, and go give em' hell kid!

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited April 2013

    You all have my permission to use these pictures, however you want to - just give me the credit for them please... You are on your honor.

    Love you ladies - If you all don't know what is going on here please PM me.. I will only be posting these pictures for you all, but leaving my talkiing to a minumum from now on.. I will gladly chat in a PM if you like.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited April 2013

    Ladies - I came to say my goodbyes. I love you all but can't stay..  here is one last picture. I'm sorry..

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