The Hermit Club

blondie--sad to hear you're having a rough time.  Hugs your way...  Hope you can feel better.  Frustrating w/dr.  Sometimes it feels like we're all a bit held hostage by dr whims and moods. 

Jazzy, Teka--I envy your swimming.  I love the water, but sink like a rock.  Never learned to swim...  Dd2 lifeguarded, dh did water rescues, and dd1 has been snorkeling.  I am the only wader in the family.  But--I admire those who swim.  Seems like a great exercise for all over...

Camille--Joey sounds like a great guy!  Love his attitude and willingness to be himself.  (Hmm... Just like his grandmother?)

markat--proud of you for making a difference.  Those kids need you.  It's so important for each of them to have someone care and notice.  So many go ignored. 

dog update--decided to call him Cooper (after Sheldon)... He's super smart but socially awkward.  Completely headstrong and convinced he's right about everything.  DH has decided to build a fence for him so my spring break has turned into a construction zone and giant dog training.  (feels like he's training me.)  And, of course, there's a neglected pile of papers waiting to be graded.  (my being lazy and having no concentration for any given time span...)

Have a good Thursday.  

I had a lot of nausea during chemo - not really strong, just persistant.  By number 3 or 4, I was getting emend during the chemo and zofram and compazine for a little over a week afterwards.  I would suddenly feel tons better on day 9 and stop taking the meds.  I swear the anti-nausea meds were making me feel drugged and lethargic though so I was always really happy to be rid of them.  The steroids didn't really affect me much at all other than raise my blood sugar up into the 200s.

I'm doing well right now except for my left foot.  The peeling and blistering has moved from my toes and side of my foot down to the bottom which is making it really painful to walk.  The toe area is looking a lot better at least.  I may have the chemo nurses look at it (MO already saw it and said it didn't look infected) next week when I go in for my herceptin treatment.   I've also got an appt for a MUGA scan next week as well but I won't bother them about my foot.  Bleh, I hate going in for scans.  I'm going to have to step up the water drinking this weekend so I will be well hydrated.  That seems to make my uncooperative veins a little easier to deal with.

Teka, wow you have to be much smarter than me, good for you could never do all that...Jink...what cam said...

thanks guys just checking in....went to sleep at 430am and slept til 930, ate breakfast...am fading now, have to eat lunch or something and then will lay down...can't drink water makes me nauseous, and can't smell or taste, so water is nothing to me...still trying something that will fullfil me, drink me and choc. milk....have tried lots of things....ativan will try that have it....

thanks Cam...trying to figure it out, and it isn't that I don't like it it makes me nauseous...no explaination about smoking, I get it...

will try it....anything to get something to drink...

One thing I learned going throug Chemo was NOT to drink from plastic cups - something about them changed water for me - once I figured that out and just drank from a glass it was all good with water or whatever - lemon in the water was also good.

Although chilly & spitting snow, we went for michigan hamburgs & hot dogs at a local michigan stand.   I would love an Easter vacation in New Mexico.

We had snow last night!--and with everything in bloom.  sigh.

Jazzy... one thing I had to learn from arimidex se's was (via my surgeon) that the calcium and d3 are vital, but so is taking a magnesium supplement.  It has really helped a lot, but then everyone's different.  Here's hoping you have an easy ride on that roller coaster.  Proud of you for persisting through the week.

Blondie... hope you're able to find a solution for hydration.  Grapes can be refreshing.

Happy weekend!  Teka, glad you enjoyed your michigan stand.  There are none here.

Jazzy good thing u made it--now really relax the next ouple of days.

I'm sorry but my memory is crap--cvmarilyn ave u been here before and I missed it? I'm sorry I don't remember.

Blondie here's hoping u find u'r fountain of hydration.

Teka that sounds like a yummy place to go right now especially.

I hope everyone has a great weekend, weather wise too.

Oh and Jazzy good luck with yet another piece to this puzzle and little r better no SE's--keep us posted

Blondie u'r so cute

Hi ladies- really windy here today and dust everywhere. I hate the feeling of the grit in my teeth!

I started the Arimidex last night. The pharm said to take it before bed as sometimes it makes you dizzy (oh yay). I felt a little light headed before bed, but nothing bad. But I woke up a couple hours into sleep with some weird bone pains. I know bone pain is one of the SEs. I joined a thread for Arimidex users too and it seems everyone is different with these meds. Some have little SE's, others really suffer. I hope to be ablet to adjust.

Going to take a nap now. Wishing all you hermits a peaceful rest of the day!

Jazzy hope you have a good night...

Mark...I am so glad that you had a good time, you do whatever it is that makes you feel whole.....good luck with your thought provess.

Active Topics

Topic:   Disappointed About Being Shooed Off the Stage lV Boards

I find it sad when some members send negative private posts.

Welcome!

Sweet Dreams.

Welcome cvmarilyn.

Teka, I looked for the thread you mentioned just after you wrote the post last night and I couldn't find it??  I have only been on a stage IV thread once and it was to try to find out about a girl on my sx thread who had sx the same day as me. A few months later she was dx mets to lungs. I had not seen her post in a while and someone told me she had passed and I wanted to see for myself. (I just read, did not post.) At the time, we weren't even a year out from sx.  It was true and I was very sad. However, I believe she died of a broken heart not from bc. She had lost her husband to cancer and was not coping. They were both so young. May they rest in peace side by side.

Markat, what a wonderful career!  I was a Rehab Therapy Tech and worked with all 3 disciplines; Speech Therapy, Physical Therapy and Occupational Therapy.  I knew 3 SLPs and they all were so passionate about their chosen field.  They were the kindest, most caring people!  Really a joy to work with. I loved that job and really miss it!!! It is the one where the tech positions were eliminated by the therapy company back in Nov, because of Obamacare-Medicare cuts. There will always be a need for SLPs and many avenues for work. When the time is right, you will know, and I wish you great success!!

Jazzy, I have been to the Santa Fe area several time and really, really liked it!  Are you close to there?

Hello and Happy Sunday to all Hermits!