To Do or Not To Do Rads? What do you think?

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jenjenl
jenjenl Member Posts: 948

I am about to finish chemo on 4/2...yay and I need some advise on radiation.  I don't "technically" fit the criteria to have radiation - small tumor .7 mm, 1 node that was an intra-mammary node no axilla nodes positive. 

They say it's a soft call and I can in the end make the decsion. In a way I want to do rads to ensure i was as aggressive as possible but at the sametime worried that if I have a local recurrance I can't use rads again and other draw backs of rads.

Can I get some feedback or advise?

Comments

  • Lily55
    Lily55 Member Posts: 3,534
    edited March 2013

    I would save rads in case of a local recurrence - i have a lot of discomfort and fibrosis from rads and if you don't need it now i would save them....

  • Colt45
    Colt45 Member Posts: 771
    edited March 2013

    Look on Breastcancer.org for this article: 'Benefit of Radiation After Mastectomy Isn't Clear'.



    It stratifies women according to nodal involvement (0, 1, 2 or 3 nodes). All 1,019 women in the study had a mastectomy and 0-3 nodes involved.



    This study is unique in that it doesn't lump everyone with 1-3 positive nodes together and say 'some people with 1-3 positive nodes may benefit from post-mastectomy radiation'... It stratifies the subjects according to precise nodal involvement.



    It isn't a be-all and end-all study-----but it's worthy of your consideration.

  • redsox
    redsox Member Posts: 523
    edited March 2013

    Which specialists have you discussed rads with?  I would get an opinion from at least one of each, breast surgeon, medical oncologist, and radiation oncologist, and then second opinions if you still are uncertain.  If they all say it is a soft call, then it is. 

    The issue is really the level of risk from one positive intramammary node.  I think that is pretty unusual so there is not a lot of data to help you decide.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited March 2013

    Certainly its your call, but having had RADS (although in 1995) because it was the norm if I went for lumpectomy - which I did. I worked while I had RADS, and chemo. I went for my rads on my lunch hour and drove the distance fine, it doesn't take long and they gave me a tub of Aloe to slather on liberally every day I went there. I had tubs of Aloe coming out my ear, I had so many - and slather as much as I could, still had leftovers!!! All these years later I never noticed anything negative about my right lumpectomy side. RADS made me tired more easily, but that improved in time.



    Fast forward last Feb, dx other breast with DCIS, aggressive with small invasive, - and the option again: Lumpectomy or Mastectomy - if I chose Lumpectomy it would again be protocol for RADS - I chose not to have RADS again, even though it was not horrible, but because there are side effects that you can't see.



    I had mine all those years ago, who knows if they haven't changed things a bit - but I do know that personally 2 local PS told me that I would have a problem because the skin was radiated (even though I could see no outside problem) with reconstruction after the bmx I chose as my treatment. Then I went to have autologous reconstruction and saw after the surgery that there was a difference in the skin on the right vs the left breast. I have heard of other people in the reconstruction forums who have had problems with the radiated side as well.



    BUT I had no lymph node involvement - either time. This is your choice, a soft call, just giving you what I have experienced and heard about a side effect if you want to go forward with reconstruction. If I had it to do over again, I would have done the exact same thing I did. Lumpectomy, chemo, rads, and again the bmx with natural reconstruction. I chose not to go through continued lumpectomies with rads and would do the same now.



    I did have HBOT (hyperbaric oxygen treatments) for 20 sessions 2 hours a day for 4 weeks to build up the Radiated skin on the right side.



    Hope this helps. There is no easy answer when we ponder these things, but knowing what you may or may not be getting into sometimes helps, or at least I hope so!



    It's all doable, though, and hoping whatever your choice you have support!

  • Colt45
    Colt45 Member Posts: 771
    edited March 2013

    The article that I recommended deals with loco-regional recurrence risk, BTW.



    Does anyone know about decreasing distant recurrence risk with local radiation?

  • redsox
    redsox Member Posts: 523
    edited March 2013

    I think the key issue for jenjen1 is whether the one positive intra-mammary node means treating those nodes would improve her chances in that area.  That is part of the regional treatment.  

    Radiation is a local-regional treatment intended to reduce the risk of local-regional recurrence.  If you can prevent a local-regional recurrence, that might reduce the risk of that recurrence eventually leading to a distant recurrence, but the main treatment aimed at decreasing the distant recurrence risk is chemo.

  • jenjenl
    jenjenl Member Posts: 948
    edited March 2013

    Bingo RedSox and may I say love the screen name - we better have a better season damn it, I'm sick of screaming at the tv. 

    Some other information is that I am BRCA1+. My DH and I are leaning towards moving forward with rads.  We have been aggressive thus far so to keep going.  After rads I am removing the other breast and having a hysterectomy (or just tubes/ovaries meeting with the surgeon next week).

    I hate cancer, it has turned me into a tortured soul. 

  • new_direction
    new_direction Member Posts: 449
    edited March 2013

    I understand your dilemma.
    Was your tumor located in the center (not in the upper left corner of the breast)? The studies Ive come across all deals with positive AXILLARY nodes - where even one no matter tumor size would mean radiation (if larger than 2 mm). Your situation seems unusual, but I wonder if your positive node even though its at a different location wouldnt still mean YES go for it.

    Age under 40 does not in itself give an answer to that question but may point in that same direction.

    If I were you Id try to find out if the doctors agree this is equal to a positive axillary lymph node. If yes, then I think I would go for rads. No matter what do what feels right.

  • new_direction
    new_direction Member Posts: 449
    edited March 2013

    a place to start if you want to search for scientific data: http://www.ncbi.nlm.nih.gov/books/NBK11634/#ch6.s9

  • new_direction
    new_direction Member Posts: 449
    edited March 2013

    do you know the size of the lymph node and if it has extracapsulary extension. Those two things may help you make your decision as well.

  • redsox
    redsox Member Posts: 523
    edited March 2013

    The Red Sox have to be better than last year! No place to go but up. At least they should be less frustrating to watch.

    Since you are 33 and BRCA1+, being aggressive is a good strategy for you.

  • jenjenl
    jenjenl Member Posts: 948
    edited March 2013

    Good questions - love it.

    My tumor was .7cm (9:30 location) and the node was .3cm (10 location) - I don't see extracapsulary extension called out anywhere on either pathology reports.

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