The Hermit Club

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    Good evening Hermits, I just love it when I am home, I did go out today to get chinese food for dinner for me cause twins were out....

    Jazzy - busy, good for you...

    Cam - ??? is it cause you don't want to know anything or you just don't want to talk about it.....I am an only child and my kids don't know anything cause I just don't tell them, and I have a grandson who is 6 who is really the only 1 I want to be around.....

    Mark - I get that especially with a child on the spectrum, they usually have color and texture issues....also you are right there might be something going on in the house, and sometimes that is the only meal kids have a day...good for you.  Not in comparison, I have 5 cats on my deck that I am feeding, it is winter time and I don't want them to die/starve, 1 had babies and 2 have died and she keeps moving them.....people are giving me a hard time about feeding them and where I live you can get a fine for it, will keep doing it....

    Skittle...what is the dogs name....

    have a good night!!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Cami- you have been going through this for six years. I cannot even imagine that after just going through it for six months. I think you have figured out what works for you, who you tell, where you need to have space in your home. So many people don't get it, even those who love us and want to help in some way. I am sorry for your pain and also that you may need some sort of surgery. You share all you need to here any time.

    Markat- sorry about the ringing in the ears and the hearing loss. It's always something, isn't it? I hope your family is feeling better soon. So many children are going hungry too, as the parents have lost their jobs, etc. You were so kind to make sure that boy had something to eat. My guess is it could have been the only food he got that day. 

    Curveball, FL Warrior, Skittle, Teka, Bgirl, Blondie, JLynne, and everyone else, wishing you a good week whatever you will be doing....

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Markat---Oh no I feel so bad too---this poor kid--OOHHH U'r so kind to do that and the hell with what they say---u never know what's going on in their lives and if u can do 1 thing to help--it's wonderful.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    Just checking in....I hate the winte, snow, sleet and rain later, hopefully not that much...

    Oh happy monday!!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Happy Monday hermits: The local news says it is "try to be happy week." I guess I can try!

    East coast hermits, hope the storm is not too bad coming your way. I know you are ready for spring.

  • placid44
    placid44 Member Posts: 497
    edited March 2013

    Hermits,



    I have read many of your posts...they are inspiring, and funny! I typically hang out on the TNBC and stage 2b with nodes threads.



    I go back to work part time one week from today, pretty much just as I am starting radiation. Any advice? I have been ok, with some big exceptions, while hermiting. But I'm nervous about going back to the real world, work pressures, etc.

  • placid44
    placid44 Member Posts: 497
    edited March 2013

    By the way -- Teka, my mom grew up in Lake Placid and I spent a lot of time there as a kid, visiting my grandmother. My family also has a camp on Piseco Lake, built by my great grandfather. It is the highlight of my summer.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Occasionally, husband and I visit The Wild Center in Tupper Lake and the Adirondack Museum in Blue Mountain Lake during the summer.   However, going to visit the Gettsburg area this summer. 

  • markat
    markat Member Posts: 909
    edited March 2013

    Placid, welcome to our group! I don't have any advice about rads, but hopefully your employers are flexible and understanding.



    Thanks all for understanding about how I was upset about the student. DH said that I shouldn't have argued with the teacher but just fed the kid when she left. But like Skittle, I was just shocked that she didn't want him to eat! I understand that school budgets are tight and certain people need to learn responsibility, but the food was there! She said, "these people need to learn that they can't abuse the system". I think that ticked me off the most. All those greedy 10 year olds with special needs abusing the system!



    Skittle I asked my administrator about calls in to children services, and I guess they have already been called. These kids I'm finding out, are really poor. This is pretty much their only therapy unlike people who seek out additional services for their children with different forms of Autism, ADHD, and emotional problems. Sad.



    Hope all are having a great day!

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Markat u have a tough job--good thing u r a caring person.

    Welcome Placid--I think it's hard to go back to work, but maybe the part time will be fine with rads. They usually make u tired, so the weekends u might really want to hermitude u'rself--I don't really know cuz i never went back to work. But a few on the board have--that's why part time sounds better to me anyway.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Hi Placid- I went back to work PT last December after two surgeries (one for bc, one for something else). I had to step away to do rad treatments during my work time too. I work as a consultant and just told my client I had to be away at times and let them know when that would be.

    You will be tired from the rads and if you can do your treatments in such a way you can go home and rest after, it will help. Try to sleep as much as you can.

    I felt very strange after all I went through, going back to work and trying to pretend everything was okay when it was not. But since I am self supporting, I just decided I would try it and get back into the game.  I am glad I did as the routines do help. I also found I was laying around too much obsessing about all the what ifs.

    I made it through two rounds of internal rad treatments out of state and was also able to work remote during those periods. You can find a way to manage this by finding a plan for yourself and just doing it. None of this is easy, but it is do-able. We all have different experiences and energy levels as we go through this so just try some things until you figure out what works.

    Just keep up the boundaries at work and leave when you say you need to. And honor your hermit time needs when you don't have to be there. You will do just fine. We are here to support you as you need us!

  • markat
    markat Member Posts: 909
    edited March 2013

    Camille, it is such a great job if it paid some more money lol. I only see the kids for 20 min and they love me because I give them food haha. One little girl told me she loved me...later my friend told me she was a foster kid. Ugh.



    Anyway hope all our ladies going through treatments are feeling okay tonight.





    I've been feeling sort of negative lately. Which stinks because I hate that! I wish the money tree would sprout in my back yard lol!

  • placid44
    placid44 Member Posts: 497
    edited March 2013

    Jazzy -Thanks so much!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    placid welcome....

    Mark, no worries, they know they have you and they need a smiling face, I am sure...

    Know I am going out later, I promised, guess I am...chemo tomorrow again.

    have a good day!!

  • Skittle
    Skittle Member Posts: 400
    edited March 2013

    Hard to believe it's Tuesday.  Hoping all is better for each.  Treatments, rads, waiting, families feeling better...  Spring break has brought pollen and a renewed attempt to clean what I've been putting off (a lot).  The "new" dog has no name yet.  We're building a fence for him to have a safe place to run.  Since we're out in the country, there are too many hunters who will shoot at anything, dog fighters who kidnap any dog over 40 pounds, and drivers who think back roads are for drag racing.  To keep him safe, he has been on leash for the past two days, and it's like walking an enthusiastic bulldozer.  (It's hard on him because he doesn't understand all the new expectations, but my arms are not so sympathetic.  Maybe my MO will be proud of my new resistance training...)

    Jazzy...  Don't overdo.  Give yourself time to feel better.

    Placid... hope you aren't battered by yet another storm.  We're supposed to get torrential rains soon, but nothing wintery.

    Camille...  I hope you're able to squeeze in a good day or two.  You've had a rough stretch.

    Bgirl, teka, Fl, curve, blondie and all...  thinking of you.  Hugs to each.

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Hi ladies---Oh who's got chemo tomorrow--Blondie? Hope it goes well.

    This goofy weather wind chill is 5 below--so I'm still dressed for winter, but I don't mind I get to cover my body then.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    So far 6.25 inches of perfect snow for snowmen & snowballs.

    I've been keeping busy doing light housework.

    Please, is anyone able to post spring photos!Kiss

  • Skittle
    Skittle Member Posts: 400
    edited March 2013

        Happy Teka.  Our Bradford pears are in bloom. 

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Thank You!!

    In May, our ornamental Bradford & Cleveland pear trees should bloom.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    This thread so needed your photo.Cool

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Hi hermits- happy spring! I know some of you have been dealing with snow this week.

    I am wading through the week and crazy client site. Going to the gym tonight to swim for the first time in 6 months. 

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    I don't live near an indoor pool, but swimming is a perfect exercise for all ages.   April 2012, was the last time relaxing in an indoor pool.

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Teka that's alot of snow now--we're really cold here (the wind) I've missed here a little---I'm usually on here more.?????

    Blondie I'll share anything about myself, but I honestly never look things up and just go along with most of the Dr things and my Drs. have also said I don't pay attention to them so I close alot out then I feel better. I know I'm weird

    Markat it's so strange cuz Joey came home and said this little girl forgot her lunch money and they wouldn't give her lunch and he sai he felt so bad for her, so he and another girl shared with her. He takes his lunch. But I thought of u and what u did. The lunch people didn't do anything for her not even a piece of fruit. Joey said she usually has her money but she did forget it. Still they could at least do something. It's like let's take it out on the kids that we have a deficit (sp) --I'd better shut up--I get all aggrevated hearing these stories.

    Well Joey wore red for St. Joseph's day--he was the only kid. hahaha--he didn't care.

  • markat
    markat Member Posts: 909
    edited March 2013

    Oh Camille, Joey is such a good boy! I probably wouldn't be able to notice if it weren't such a small school. I genuinely care about all of those kids and expect others to also.



    Blondie, hope you are feeling okay today.



    Teka, the snow will melt and Spring will come. It better!



    Skittle great picture! Hope you are enjoying your week off and the new doggie!



    Jazzy, swimming! I love it. It is the perfect exercise and relaxation tool.



    Happy first day of Spring. It's pretty chilly here!

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Oh skittle I forgot about u'r new doggie---My cat is still getting used to ours--maybe about 2-3 months--she was used to this being her own house now she has to shar. But at least now they'll stay in the same room--it's her not our new dog--he comes to close and she hits him and e walks away--so they'll get used to each other and the cat will win out. hahaha

    Markat I'm so glad u like u'r job and u'r so kind even if it's only a few hrs...it's good.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    I had a gut full of school & college with son & daughter for 20 years.Tongue Out   Enough was Enough!!!

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013
  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    checking in, hope you all are well...read what you wrote and sorry don't have the energy to comment, will later, thanks for being here...

    Chemo actually went well, nothing to report, they even got the port to work on the first time, guess laying down and putting head to right is the ticket....

    Me, ok went to drs. he said he will talk to the radiologiist, didn't he say that last week, oh yea he did and took vacation, told him that he should have mentioned the vacation thing, had to come back early, something about elderly father..showed him nails he said we could take off a week, I said why I have off a week and whatever....chemo was uneventful....and now am up it is 311am, damn steroids....been up since 1030, slept from 5pm til then, now up...and took 2 benedryl...will try again later....am nauseous, why when they give me 2 anti-nausea medications within the chemo regiment, will have to remember to tell the dr. when I go back in 3 weeks....

  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Oh Blondie sorry about tha nauseau, it's worse for some than others--if it's to bad call and I think u can take something with that. And yep the steroids are really an interferance in a way--it gives u this false sense of to much energy than it stops and ick too. It's just not a fun thing to do. and I'm sorry u have this to go thru.

  • markat
    markat Member Posts: 909
    edited March 2013

    Blondie, I was always sick the night of chemo too, even though they gave me the good stuff in the iv. I started taking compazine about 4 hours after I got home. My stomach is really touchy though. Make sure you chug that water. Maybe ask for ativan, that helps with nausea too.

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