Starting Chemo in June 2005

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  • Jenster
    Jenster Member Posts: 267
    edited May 2006
    Hello ladies. Sounds like things are going well!!

    I had my 6 month scans yesterday and they were clear. WHEW! I saw my endocrinologist today and the small nodes on the half a thyroid I have left are still small - not a cancer issue, but still glad to hear it. I see my onc. tomorrow for my 6 month check up.

    I actually got to see my onc today because my mom had an appointment with her. Turns out, my mom's cancer was ER-/PR-, Her2Nu+, which means she will have to have chemo. DRAT! I'm leaving for PA on Friday morning and I hate that I'm leaving her right as all this is getting going. I just hope she handles chemo as well as I did.

    I also have an appointment with a new oncologist in PA next week - just a new patient consultation. Hope I like him as much as I like my onc here.

    I guess that's about all I've got at the moment. I'll probably be checking here a whole lot more after Sunday when I'll have my own computer again.

    Take care!!
    Jen
  • nosurrender
    nosurrender Member Posts: 2,019
    edited June 2006
    Jen your mom and you are both in my prayers. Again, if there is anything you need, please let me know.

    Do you all realize that it is June first.. the junesterettes are a year old! Veterans is more like it!
    I miss all of you and you are never far from my mind. I am so happy to see you all doing so well!

    And thank you for letting me be a part of the box!
  • kimBe
    kimBe Member Posts: 101
    edited June 2006
    Hope everyone is busy doing summer things!!! What a difference a year makes. I am loving spending time in my yard. Jim & I met my parents and my brother just younger for lunch last Saturday...they were in Great Falls for a baseball tourney that got rained out (which in N Montana is a good thing-we welcome moisture). Anyway my brother said "I hate to admit this, but if I saw you walking down the street I don't think I would have recognized you, and I've been told you were blonde and curly numerous times". I thought it was funny...Going to Cheney WA (near Spokane) the end of this week with my parents for a nieces high school graduation so am looking forward to that. Take care and keep us posted.
    KimB
  • rmmom
    rmmom Member Posts: 168
    edited June 2006
    Wow we've become a quiet group!


    Things BUSY here. DD had 8th grade graduation here which was big time because this group has been together for nine years or longer in some cases. Plus it was 22 girls to 40ish boys-wouldn't you have just loved those odds in 8th grade LOL. Lots of first parties, first BF's and first broken hearts! The drama of it all. My 2nd ds asked me why I don't watch soaps-who needs with daughter around
    Has anyone else had swelling? Saw Dr Flake on Monday and I need to have tests. I don't think they will find anything but she was concerned since I don't have high blood pressure-on the lower side if anything. And it greater when I wake up. SOO just wondered.
    Write a note and let us know how everyone is
    Hugs
    Bev
  • NancyM
    NancyM Member Posts: 289
    edited June 2006
    Yes, it is sooooo quiet....

    Bev, what kind of swelling are you talking about? I have noticed swelling in the arm on the surgery side, and I got the diagnosis - lymphedema for sure. I go back every day next week for massage and wrapping, which I will wear for 22 hours every day! UGGGHHHHH I hope your swelling is not serious!!

    So typical me, behind as usual. The box won't go out until next week!

    Did I tell you I will be co-chair of the educational outreach committee for the SLC Komen affiliate? I go to Dallas in July for training. I'm so excited! I'm all grown up now....I was just a b/c toddler last June! Ah, those were the days....

    Thanks to NoSurrender and the rest of you wonderful Junies for helping me get to this point!
  • nosurrender
    nosurrender Member Posts: 2,019
    edited June 2006

    I think that is SO COOL!!!!!!

  • kimBe
    kimBe Member Posts: 101
    edited June 2006
    Nancy...congrats and keep us posted!
    KimB
  • rmmom
    rmmom Member Posts: 168
    edited June 2006
    Nancy That is great news! So exciting.
    No my swelling isn't lymphedema but I do worry about that as I have to fly for five hours at the end of the month. Have my sleeve. My swelling is in my feet and legs. I wake up about three pounds heavier than when I go to sleep-that much water. Plus I had to have a CAT scan because I get sinus migraines(sp?)-I had one the morning I went to see onco so she got exicted. Told her I had them for years so I took to have all kinds of tests. I know they won't find anything but....
    I turned 45 today-much better B-Day last year which I had first chemo and a teenager not talking to me. Queen for the day here. Plus sulky teen was happy because I took them for pizza and games for lunch LOL
    Miss everyone
    bev
  • NancyM
    NancyM Member Posts: 289
    edited June 2006
    HAPPY BIRTHDAY!!!!!!!! I don't know how to do the cute balloons, etc. but I wish I could!

    HAPPY 45! HAPPY 45! HAPPY FIRST BIRTHDAY since you-know-what! I'm glad it was a better birthday this year!
    Queen for the day is ALWAYS a good thing!

    I have stage 2 LE in my arm, so I can imagine what your legs feel like. (My arm is wrapped w/foam and the ace-type bandage - makes it look like I have elephantitis....) I hope the CAT scan looks good, I'm thinking good thoughts for you!
  • nosurrender
    nosurrender Member Posts: 2,019
    edited June 2006
    OOH A birthday!!!
    HAPPY BIRTHDAY BABY!!!!
    ya think it is better this year huh????
    Well I hope you celebrated!!!!
  • kimBe
    kimBe Member Posts: 101
    edited June 2006
    Happy belated birthday Bev....
    KimB
  • LizFL
    LizFL Member Posts: 377
    edited June 2006
    Another Happy Belated Birthday to Bev...and good luck with the tests!

    Nancy...I have some lymphedema also...those bandages are a challenge. So far I just wear my sleeve when using my arm a lot and the swelling has been under control.

    Jen...good news on the scans. Sorry to hear your Mom has to do chemo...hope she gets through it without too many side effects.

    NS...it does seem strange to see a June'06 group on the board now!

    Take care all!

    Liz
  • LizFL
    LizFL Member Posts: 377
    edited June 2006
    On a sad note, my dog Shakespeare, a precious shih tsu who was almost 15 crossed the Rainbow Bridge this morning. He was a wonderful dog and a great companion and will be missed terribly. At first I felt like it was the fault of the BC that he got sick, but I know that isn't true. I am grateful that I had so many good years with my fur child, but it is tough to lose them.

    Liz
  • rmmom
    rmmom Member Posts: 168
    edited June 2006
    Liz I am sorry your dog died. It must be hard to lose such a good friend.
    Thanks for all the birthday wishes.
    Hope all is well with the gang
    Bev
  • LizFL
    LizFL Member Posts: 377
    edited June 2006
    Thanks Bev. I am doing a lot better today. There is a thread on the Moving Beyond board about pet loss that was started at the perfect time. It has been a big help to me. It's pretty amazing how this BC board just seems to be the right place to find help with just about anything you need.

    Liz
  • Scout
    Scout Member Posts: 76
    edited July 2006
    My post must have gone into cyberspace....darn it!
    Liz, I'm so sorry to hear of your beloved Shakepeare passing on. Our pets are so precious to us and it's so hard when they leave our world. ((hugs)).
    Happy Belated birthday, Bev!
    Jen, I'm sorry your mother has to go through chemo. You have been such a great support person for your mother, I know she will get through this with flying colors.
    I've been missing in action for a long time! Life has been a challenge for me these past few weeks. I had my implant surgery on June 8th and they look wonderful! I had p/t before the surgery (to build up strength and range of motion) which really helped a lot. Everything was going well until the 19th when I started feeling ill and developed a fever and pain. I saw my Onc the next day (for Herceptin). By this time I was in severe pain and my fever was higher. She had my surgeon come over (the one that did the mast.) and they both sent me right to the p/s's office without getting my Hereceptin. My ps was out of town, but I saw several of her partners and they sent me over to the hospital. Long story short, I stayed in the hospital for a week fighting a staph infection. I am home now and I have to take IV antibiotics for 4 to 6 weeks....nothing like feeling like a nursing home patient...ugh! I STILL have my drains in and between the drains and my port access, I look sooo pretty....not! I am hoping to get my drains out on Monday! The doctors are giving me a 50/50 chance of this working, so lots of prayers would be greatly appreciated. My infectious disease dr. doesn't give me the same hope, but I think he is surprised at the progress I have made so far.
    On a more postive note, my DD gratuated from college and is heading for Chicago for grad school. I'm so proud of her! We haven't had her grad party yet, but I'm hoping by the end of July we will have a family BBQ.
    Gotta run, but I will check in more often. It looks like everyone is doing well....getting on with our lives....moving to new houses...celebrating birthdays...all is well!
  • Watson
    Watson Member Posts: 1,490
    edited July 2006
    Liz, so sorry.

    Scout! You hang tough girl. It seems you've had more problems this past year! But you always seem to come out on top of things and I'm sure you will again.

    I was just checking in to see how everyone was doing. I guess it's good that there aren't so many postings. We're all out busy with 'normal' lives. I just 'passed' my one year check up with onc and surgeon. woo hoo.

    I hope you are all doing well!

    Love,

    Watson
  • Jenster
    Jenster Member Posts: 267
    edited July 2006
    Liz - I'm so sorry about Shakespeare. I know how hard it is to lose a beloved pet.

    Scout - You're in my prayers. I hate that you have to go through this. I hope you'll be back to feeling great and looking HOT in no time!

    Things are going along well here in Pennsylvania. I really do love the area and we're settling in. The only problem is that every time the kids and I head out for an adventure we end up in another state - Delaware, New Jersey, etc. lol. But I think I'm finally getting to know the freeways in Philly!

    I saw my new oncologist within the first week of moving and I really like him. I have to see him once a month for my Zoladex injections - thankfully only two more left. Hopefully that will be all because it's making me retain water and I can't lose a pound for anything. I try to eat healthy and I've been swimming, but I can't lose an ounce. Very frustrating. I'm seeing a plastic surgeon in September about my reconstruction and the way I'm going, he'll have PLENTY to work with if I go the DEIP flap route. lol.

    My mom is doing good with her chemo so far. She has her second treatment tomorrow. She hasn't been sick and has felt well, but her white count plummeted so they may be changing her dosage. She lost her hair late last week and even her eyebrows and eyelashes. But her spirits are good and one of my sisters and her husband are visiting right now. The kids and I are going down to Arkansas for her next treatment.

    I hope you all have a great fourth of July! I'm sure it will be better than last year, eh??

    Jen
  • LizFL
    LizFL Member Posts: 377
    edited July 2006
    Thanks all for the kind words.

    I am sure we all had a better 4th of July this year!

    Jen...really glad you are enjoying your new place and everything is working out well including liking your new doctor. Hugs and prayers to your Mom...hope treatment goes quickly and smoothly for her.

    Scout..you've really had a tough time, but so glad to get an update...sending hugs and prayers your way too!

    Watson...Congrats on the one year checkup. I just had another 3 month one and it went well...don't know why I didn't count it as a year...I'm so used to the 3 month thing now!

    Hope you all had a safe and happy 4th of July!

    Liz
  • rmmom
    rmmom Member Posts: 168
    edited July 2006
    We just got home from seeing MT ST Helen's. DH is so sad lava didn't pour out for him LOL But it was beautiful. It was nice to be able to hike and not feel like I did last year. I have question for everyone. My family is just now freaking out over all this. My mom who was never strong for me anyway refers to last summer as the incident. My DH says it was the summer I was SO lazy-we now have wild rasberry and poison ivy in back where I didn't cut it back last year. And my kids refer to it as the the summer I ruined. I look at the few pictures of me back then and it doesn't feel real. And I think maybe I didn't try hard enough, maybe I should have been stronger. Anyone else feeling like this??
    Hope all is well out there.
    Love
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited July 2006
    Aw Bev. I don't even know what to say, other than you were going through chemo last summer, for heaven's sake! Don't even beat yourself up about it.

    I admit to sometimes thinking maybe I was "lazier" last year than I should have been. But I get over it real quick. I did what I could when I felt like it, but I didn't push it. Our biggest goal last year was getting through chemo. Remind your family of that!

    Glad you had a good time on your vacation. Sorry there was no lava, though. lol

    Jen
  • NancyM
    NancyM Member Posts: 289
    edited July 2006
    Oh Bev! I'm about to go Towanda all over your husband and kids! HOW DARE THEY SPEAK TO YOU LIKE THAT! Ooohhh, they don't get it, they don't get it at all. Which makes me think you were SO strong that they couldn't see how much you were really going through. So don't think for a minute you should have been stronger. Tell them they should be spending THIS summer saying "We are so happy you are well! We are so grateful to have you feeling better!"

    Scout - I've been thinking about you, and I hope you are feeling better. You've gone through so much!

    Jen - I'm glad your mom is keeping her spirits up.

    I hope everyone else is well - gotta run - love ya~
  • LizFL
    LizFL Member Posts: 377
    edited July 2006
    Bev...unfortunately, most people just don't get it. I remember complaining about the fatigue and people would tell me I should get more sleep. You made it through treatments...you are hiking this year! Give yourself a HUGE pat on the back and don't pay attention to what anyone says unless they've been in your shoes.

    Liz
  • rmmom
    rmmom Member Posts: 168
    edited July 2006
    I was sitting outside wondering why in the world I ever married my husband in July-he is so gumpy!! Then it occurred to me he is like this EVERY YEAR in July. And every year I am surprised by it because it is out of character. As for the kids they are just being brats so I don't need to let it bother me anymore.
    Jen I think of your mom all the time. Give her a hug for all of us next time you see her.
    Scout take care of yourself-go easy.
    Thanks Nancy and Liz.
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited July 2006
    Quote:

    Jen I think of your mom all the time. Give her a hug for all of us next time you see her. - Bev




    You're so sweet, Bev. I'll be sure and give her that hug next week. The kids and I are driving down to Arkansas on Saturday for the week. And just so you know, when I tell her "that's from the Junesters," she'll cry. lol

    I'm fairly determined to have a prophylactic right mastectomy and reconstruction this fall. I'm certainly not looking forward to another major surgery and I know that the cancer I had can metastisize to other locations, but not having to worry about getting cancer in the other breast will be a relief to me and my husband.

    I have an appointment with a surgical oncologist and another appointment with a plastic surgeon in September. MY GOSH! Trying to get all the records and path slides and imagings and mammograms from Little Rock has been like pulling teeth. I think I've gotten all the bases covered and thankfully I have a while to get everything I need, but geesh! What an ordeal!

    I am looking forward to wearing a bathing suit next year without fear of finding my "boobs" at my waist or under my arm! (Did I tell you all about that??)

    And how sad is this? I go tomorrow for my 5th Zoladex injection and the kids and I are all excited. "Why?" I hear you ask. Because my oncologist is in Bryn Mawr. "What's in Bryn Mawr?" Hope Cookies is in Bryn Mawr. YEA!!!! And here I blame the injections themselves on the fact that I can't lose weight.

    Hope you all are staying cool!!

    Love to you all!
    Jen
  • kimBe
    kimBe Member Posts: 101
    edited July 2006
    Scout...take care and keep us posted
    Jen...have a good trip and give your mom lots of hugs
    I can't believe how long it has been since I posted. Am teaching 4 on-line classes this summer so don't do much on the computer outside of work, but yesterday was the last day of summer classes so should have a break.
  • rmmom
    rmmom Member Posts: 168
    edited July 2006
    Jen I can understand about getting your records! way back in the beginning of all this when I had to pick up my first mammo from the hospital the guy didn't want to get them to me. He kept asking where they going, why did I want them, did I understand I had to walk them back to him and hand them back. Some lady sitting near by came to my aid and told him I wanted to paper my wall with it. LOL But when I told him they thought I had cancer he handed my films over without another word. I can only imagine you went through tens times that! Yum the cookies sound good. I would love to hear the bathing suit story. I have not been brave enough to wear one in public this summer. Even though I had a tram I still have my port scar which is leaving me to sigh at all the lovely chams out there now.
    Kim enjoy your break. Just realized our summer is now over-football and soccer begin next week. And DH is going to be away a lot until September. you think he looked at his calendar and thought- drop off and pick off drop off and pick up- think I better go on a trip. LOL next summer I am looking forward to DS driving himself. (maybe)
    Love
    Bev
  • JoMac
    JoMac Member Posts: 192
    edited July 2006
    Glad to hear people are doing well. I have been having a nice summer. My hair is poodle-ish. I look older but I am happy to be here. People keep telling me they have forgotten I ever had cance. Boy, I wish I could.
    I'm painting a great deal and baking cookies almost daily.
    I am not as nice as I used to be. I find peoples problems not very serious.
    I am determined to try to get some more strength back in my arms and legs.
    I walk everyday but my upper body is weak. I tried to do some sit ups last night. That was pathetic.
    Love Jo
  • kimBe
    kimBe Member Posts: 101
    edited July 2006
    great to hear from you JoMac.....Have been wondering about you. Glad you are painting again....and like you I don't tend to sweat the small stuff any more, when it is dealing with other peoples "petty" problems. Is your daughter home for the summer????Mine is working for her aunt in Spokane so we are "trying out" the empty-nest...Pretty quiet and no shoes at the back door!!!
    KimB
  • Scout
    Scout Member Posts: 76
    edited July 2006
    It's good to hear from everyone!
    Bev, I think your DH needs a good kick in the a@%!
    I'm still in "limbo" over my implants. About a week ago both breasts started to turn red and sore. I thought that this was the end, but the redness went away and the infectious disease dr put me on two more weeks of iv antibiotics. I saw my ps and she has cleared her schedule for surgery the week after I stop the antibiotics....not a good sign. My last dose is on the 31st. I know it sounds wierd, but I can "feel" the infection inside of me. I hope I'm very, very wrong, but I just know that it is going to flare up as soon as I stop the iv antibiotics.
    My ps said she will not try the implants again. She said that I could try the tram surgery, but she doesn't do this surgery. She said one of her partners does this.
    Sooooo.....keep your fingers crossed that I can keep the implants. They look great, and I'm not looking forward to more surgery.
    Sometimes I feel that I'm being too vain, wanting to have breast again. I just want to step out of the shower and not be reminded that I had cancer.
    My last Herceptin will be in August, so I'm hoping to have my port out ASAP! I think after my reconstruction is over, and the port is out, I can FINALLY say "it's all over!".

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