Starting Chemo February 2013
Comments
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Well I had another allergic reaction to the chemo, thanfully with Benadryl and more steroids I was able to get through it. Next time I am going to have a slow infusion, they think maybe if they slow it down it will work better. Also having my neulasta shot today for the first time and yes I am having a smaller dose 4 mg because my white count sprang back up on its own to 13. I can only imagine what my nadir might look like with the shot but he wants me to have it in case I drop down below 2 again. Good to know my body is doing good things on its own. Are some of you doing 6 treatments with cytoxen/taxotere? I'm only having 4 so I'm curious.
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melody - I am like you -doing 4.. I can't imagine doing more.. the side effects are so difficult...
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Just 4 for me, for that, I am grateful.
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LW: Hang in there. While it very hard and sucks, it is temporary. You won't have to do this for years and years. This board will help and it's the best place to vent. YOu will have good days too. Take those days with all your heart and soul and remember them when you have your bad days. I found my first tx to be the worse. While the ones following have not been great, they have been managable. I start taxol April 3 and that will come with a whole new set of SEs and I am scared all over again....but, I have 4 and then I am done so that's what I try to keep focused on. We are all here for each other. Chin my friend!
TMM: do you show horses? So do I. Did jumpers for years with a French warmblood and then OTTTB, who was the best horse I ever had. Now I have a 5 year old Dutch Warmblood/TB cross. He may become the best horse!
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ywheels22- yes, I showed hunters, jumpers, did some foxhunting and a little eventing in my younger years. I sold my last horse (a TB I got off the track and finished as a hunter) 6 years ago. i never could afford the made-up ones so always got TBs off the track. I'm getting too old to do that anymore, so now I am a volunteer at the local living history museum (1700's PA German Farm life) demostrating farm work with draft horses and driving the wedding carriage. I always wanted to learn to drive, so I did! I still judge hunters and some jumpers at local shows around here.
What are you planning to do with your current horse? Nice to meet a fellow horsewoman!
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TMM: I did one foxhunt years and years ago. Just not alot of that up here in Upstate NY. My guy is young and out of my best friends stallion who was Zone 2 AO champion before she retired him to stud. I got a BFF deal on him. I will do the adult hunters with him and hopefully sell him as children's hunter and buy a fancy AO. He is still pretty green so I have a few years. My trainer will do him in the professional hunter divisions. Not sure if he can do 3"6" or not. Time will tell.
That is awesome you learned to drive! Very cool! Where in PA are you? I am in Binghamton NY, not far from the PA border.
Yes it is nice to have something other than this crap we are going through to talk about. Good luck on your tx's with minimal SE's!
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ywheels22, I'm in the Lancaster, PA area. Showed all over Zone 2 when I showed. Good luck with your boy- hope he turns out nice and has a good brain!
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Hi all. Hope you are all doing well today. Here in infusion room for round 3. Am very thankful I remembered to throw my ear buds in my chemo bag. The folks on either side of me are watching those talk shows where people just get on and scream at each other. If they have a suggestion box, I'm suggesting they configure their equipment with wireless headphones so those who don't want to hear what they're watching don't have to! Hope everybody has a fabulous weekend and Happy Saint Paddy's!
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Good luck DiZZymom, I am a week behind you thanks to my hospital stay!! I will be glad to say round 3 is done next Friday then half way there! Good luck. I hope your side effects are not bad!!
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TMM: Maybe we were at the same shows!!! He has a great brain. Just went to see him today. Still not riding but hope to be back on a school horse to start out in a few weeks then on to my horse. Hope your treatments are going well!
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ywheels22, if you do the Zone 2 A circuit, then I'll betcha we were at the same shows! Small world. Hope you get back in the saddle soon. You'll have to let me know if you make it to St. Christopher's or Blue Rock this spring- it's right in my back yard. Not sure if your boy is far enough along to be doing baby greens. I'd love to meet you and your boy! We'd be the only girls this spring not having to worry about "hat head" LOL!
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Round three for me on Thursday and in already getting nervous but will me glad to be done.
Has anyone had any eye issues with chemo. My eyes are so watery for the last three days. In using those artificial tear drops but not working that much. I also keep getting my period he week after chemo. I was so irregular before chemo now chemo put me on a shedule. Weird !!!! -
Hmm, no eye watering, just nose running all the time.
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Gina, my left eye keeps twitching & watering too. It's making me nuts! I understand it's a SE from the Taxotere. I'll be up for #3 on Wednesday-but that's just half way for me. You'll be 3/4 done! :-)
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Lisamm we are up on the same week. The eye watering is so annoying. I also get my nose running like crazy. It's embarrassing because i always have to have a tissue nearby.
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Thanks Tangles. I ended up in the ER Monday. Nothing serious. I was running 103 fever and my MO wants labs on anything over 100.5 and the lab at her office was closed when I called. I just had a bad cold with fever. All my counts and tests were OK. But I was really afraid this round would be delayed because of the fever. I'm never eager to get to chemo, but very eager to get it over with!
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My left eye started watering today..drove me crazy .. nose runs all the time now... and often when I blow my nose its bloody... sore throat too.. think its so dry
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Ladies, I have the runny nose thing going too. sometimes a tinge of red. Very annoying! I carry tissues everywhere I go and bought boxes for several rooms in my house. Hate it!
Monday I go in for a fill for my expanders. Next Tuesday is my 3rd chemo (out of 6) So I will be half way. Yesssssss! Hope the se are not too bad. Those of you who just had your #3 hope your se are not to bad either.
Does anybody attend Mastectomy or breast cancer support group meetings? I have found a place run by the american cancer society. They have meetings twice a month and are very helpful.
Stay positive as we kick cancers ass together!
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Hi all -
Finished my second round at the chemo bar on Thurs and had my neulasta shot today. So far so good. Runny nose and probably a tinge of red again when the taxotere kicks in. I have the burps this round. But that's better than nausea! I am now 33.3% of the way done!
Keeping fingers crossed I have a better weekend with the bone pain than I did last time.
Gina - I went once but I felt it wasn't for me. I work in pharmaceuticals and ironically have 3 friends in the office that are breast cancer survivors. One is 20 years! I get my support from them when I need to talk. But having someone to relate to is really important.
Have a good weekend everyone.
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chgogemini- I see that you are on the Cytoxan & Taxotere chemo regimen. Taxotere is also known as "Taxo-tears" because one of the side effects of the Taxotere is watery eyes. My eyes started watering after my 4th round of Taxotere ( I had 6 rounds of Cytoxan/Taxotere) and eventually subsided after I was PFC.
LisaMM- I also had the eye twitching which also started around the same time as the watery eyes. It was quite annoying and stopped a few weeks after I was PFC. Just another of those wonderful chemo side effects.
Positivethinking- One of my side effects was the burping. OMG.... I burped more often and louder than I ever did before I had chemo. In fact, it was a running joke between my son and I as to who could burp the loudest!!!
Wishing everyone an easy weekend with minimal side effects.
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Ugh 5am, first experience with the insomnia. Hope everybody else is doing ok!
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DiZZyMom - the insomia is awful.. I take sleeping pills for the first 5-6 days after a treatment now - makes a big difference.. I didn't take them the first time and couldn't figure why I tossed and turned ..it was awful..
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I take Ativan every night to help me sleep, mo says it helps any nausea. It's double whammy!!!
Melrose thanks for the advice on the watery eyes. I might be stuck like this for a while arrggh!!! Ill take this side over and of the more severe ones. Never for twitchy eyes yet.
When I was first diagnosed was in Bad shape. I was spending too much time in my own head!! I was talking to survivors over the phone to help but it didn't really help. I would talk to the social worker and she was pretty helpful and I felt better when I talked to her. I went to the look good feel good before I started chemo. Everyone strarted talking about their cancer. I didn't feel comfortable and decided support groups aren't for me. I get alot of support in here and ciao Bella's in FB its the January chemo group and its amazing how much info I learn from them and everyone on bco.
I'm thankful for all of you sharing all your information with me. We are stronger than we realize (i am) I never realized how strong I can be. I have 3 little ones and I want to do all i can so i can see them grow up.
Gina -
I took melatonin but it didn't help. I'm leary of anything stronger though. However, if it continues I will have to do something! Have a good day everybody, zzzzzz
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DiZZymom- I take ambian and Lorazapam & still sometimes dont get to sleep until 3:00, thank god it is only temporary!
Gina- how are your fills going, or anyone else? I hate getting them. Am I getting too much at once as they hurt for almost 5 days. I have been getting 75cc and I am only at 380 right now. My PS said I need to go to at least 500cc so I have a bit to go. Undressed I feel HUGE and hard but with clothes on I really dont look very big at all so I know he is right I need more. I just hate the thought of these rocks getting bigger and having to have them until mid June! Plus now my PS has the new gummy bear implants in and I am so torn on what to use.........UGH!!!!
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Tangles: did you ask about getting less cc's at a time and going longer in between? That helped me a lot. I had 60 cc's once and said never again! Went to 30 and now I am done with fills at 330. When the permanent implants go in they will be about 300 cc's or a small B. good luck!
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Dear Rdrunner, McKatherine, Lisamm and ywheels22,
Thank you for your reply. I am starting chemo on the week of the 25th, don't know the exact date so that's annoying.
I am really sorry you have to be here, but I am glad to have you to help me through this. Reading all the posts have been a great help. I bought some books so I can read to my children about cancer. Planning on cutting my hair really short before I start chemo. I will definitely have more questions soon. Thanks again for all your help. -
ywheels what kind of implant are you getting? Just curious.
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Tangles: actually not sure yet. It will be saline but my PS has a couple of options in mind. One is a different shape and texture than your typical implant We will probably decide as we get closer to surgery, which will be at least six weeks after my last chemo treatment on May 15.
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Well you all make me feel better about my twitchy, watery eye-it always helps to know I'm not an aberration!
Tho225- glad you feel that way, we're all here to support each other. I felt so much better after I found all of these wonderful ladies and all of their helpful information. It's such a relief to have women to talk to that know exactly what I'm going through & all of the wild emotions & feelings that go ith it all!
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