What the heck???
Comments
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Those are words I always love to read "I am feeling better now".
I too hope you get some answers soon...there is nothing worse than waiting. -
Sherry -- It is good to here someone say they are feeling better. And I really hope some answers come soon. As Carrie and Cowgirl can attest, I've been waiting for almost 7 months now. I've had everything from headaches with dizziness and vision changes to sponateous lactation/leakage and breast pain. I've been to my GYN, PCP, Neuro, Ortho, an Onc Surg and Optometrist. No one has any answers. It was either start feeling better or be six feet under -- and I'm sure my DH and boys wouldn't want that.
I feel like I'm falling apart and I'm only 33! Maybe I should ask DH to check my back for an expiration date or a 1-800 number to call for service?
DH keeps looking on the marriage license for an expiration date. Maybe it's on me instead? -
Blu, just a thought because I don't know the whole history of what each doctor has checked with you. Your symptoms sound exactly like something I experienced after my first miscarriage at 4 months back in '83. Pregnancy changes the body, miscarriage and altering the hormonal balance changes the body again and I couldn't figure it out ~ headaches, a kind of woozy feeling rather than dizziness, my left breast ached and when I'd push on it, I'd express milk. My gyn/ob scheduled CTs to check for a pituitary tumour (which I didn't have), blood work, opthamology appointment, all the things you'll have done.
Dx? Galactorrhea, an excess of the hormone prolactin. He prescribed this nasty little pill (!) called parlodel. I started with a quarter of this tablet (and it's tiny to begin with!) and a 1/4 was plenty ~ made me feel so spaced out (thankfully I'd just fall asleep once I realized how it affected me), and I slowly built up to the full tablet. Took that for a few months and it corrected the problem.
If they've checked galactorrhea and ruled it out, I'm glad. If not, it might be worth a mention.
I love your humour (loved it on the thread about rads being er, ahem, "contagious"!! ), and your references to the "best before date..."
And as humourous as you're being and trying to keep a light heart, there is nothing as frustrating as symptoms that present with no resolution to be found. Hang in there girl, I'm confident they'll get this figured out. -
Sherry -
Thanks for the encouragement and the ideas. My PCP did hormone levels (which were normal) so he won't send me to Endo. My calcium levels are unstable, but everything else is normal including blood sugar and thyroid, the head MRI, mammogram and ultrasound, and every other "easy" explanation. Every time I've seen a doc about this, I'm always asked about being pregnant. I've even had 5 pregnancy tests done in the last 6 months -- all negative. I'd hope so as DH is fixed. The only other thing out of the ordinary is I was almost unconsciously drinking 260 fl oz or more of water a day for 4 months (until I got a cold). After the cold, I'm back to "normal" on that. I guess I'm just weird.
As for the attitude, I try to remind myself there are others out there with far more to deal with than myself and things could be worse. Besides, if I didn't try to laugh at the whole situation, I'd be crying! shh! I do that sometimes too. shh!
But, like I said, I'm feeling better. No worries!
MOM'S LAST RAD TREATMENT WAS YESTERDAY!! WOOHOO!! *dancing* -
First of all, congratulations to your mom!! Finishing rads is a huge victory. I did such a dance on my way out of the hospital with my last one...and I practically "ran" out the door, I couldn't wait to get into the sunshine, the air and life away from that part of the journey. She'll be so pleased to be finished. Best of health to her!!
As for you, you are a conundrum!! The medical arena has given you quite the "going over" and have found nothing to cause this. So on one hand, that's a good thing. On the other, the discomfort and the unusual behaviour of your body is annoying and frustrating. I'm glad you aren't pregnant if DH has been fixed ~ otherwise, it's "Lucy, you've got some 'splainin' to do!!" for you!! Always keeping in mind of course that even though the dam has been sealed, there can be hairline cracks!!
Maybe it's time to just say "okay" ~ if there's no explanation, all the tests have been done and nothing is showing up, maybe it is an anomoly that will correct itself. With the human body, I am a firm believer that anything is possible and it often takes care of itself. Stress can produce a myriad of ailments, all of them real, but the excess adrenaline that is produced wreaks havoc with the body's finely tuned functioning system. Of this I know what I speak ~ I carried so much stress in my life and I tie every illness/disease/ailment I've had back to that nasty critter.
I'm glad you can laugh, but I'm so glad that you can cry. And it needn't be a secret. Tears cleanse and refresh. Tears are the body's way of healing itself, of letting us know we need to be good to ourselves.
It's lovely of you to say that others have much worse to deal with ~ but you are as important as anyone else. What happens to you matters too. So be good to yourself, be kind to yourself and take time to allow your body to nuture. Maybe all these symptoms you're experiencing is your body saying "hello, slow down a bit please. Slow w-a-y down and give me time to catch up".
((((((((((((((((((hugs))))))))))))))))) just because. -
Doreen, Glad you had family home but I did wonder where you Be at!
Blu I am glad you are feeling better, and you are not PG considering what questions would arise from that scenerio!
Well the Garage Sale of mom's stuff is Friday, the boys and I worked to get most of her stuff done. Today is home day, a day where I work here and not there. My home is a wreck! Yikes, I truly hate to admit the mess I have, and yet there is a huge stack of stuff coming to my house in a few days! Yikes! -
Sherry -- I know all about the "cracks." We have some friends that found out the hard way. They were told they probably wouldn't be able to have children because of her issues and after he had a buffer accident. Then they had Seth. After child number 2 (can't remember her name but it starts with an S ), he got fixed as she's not a good pregnant person. Then Samuel came along. That was all in 5 years! She got fixed and last we heard they still only have 3, but it's been a couple of years.
As for slowing down, I don't have time! I'll share about that more later.
Cowgirl -- I hope the G Sale goes well. It can be hectic just having all the extra stuff to deal with, even if it's not at your place. As far as the mess at your place, you'll get to it after the Sale. Unless you've got company coming, don't let it stress you out. -
Doreen~ I missed you too! Spending time with the sisters is
the best! I have 3 no brothers,I always wanted a brother though. How is the kitchen coming along?
Blu ~ Woohoo on Mom beign done with rads. Give her a kiss over the phone from me ( but don't tell her about my adopted grand boys she may hit me lol! I am glad you are feeling some better Did they check your pitutary gland ? You have had so many dang test (poor sweetie) I can't remember?
Cowgirl~ Good luck on the GS, hope the weather is good
and you sell alot of things. You sure have been busy with Mom, DS being a page and moving Mom. No wonder your house is a mess. I still haven't done the summer clothes thing and that is a big mess and I have no excuse.
Fumi~ I had fun at the party you threw and the guest of honor was much cheered up by it too. You are always so thoughtful and doing such nice things for everyone.
Sherry~ You always have the best advice to give.
I always like to read your post. I'm glad I met you .
Where oh where is Mags ? Maybe she is in chat? I miss you Mags, hope you will be back and posting again with us soon.
Hugs everyone~
Carrie -
Carrie -- Pituitary gland . . . check! Nothing extensive, but bloodwork and MRI were normal. Thanks for asking though.
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Well, I really get the "What The Heck" title now ... and Carrie, I might give good advice, I just wish sometimes I would take my own advice!
I got so upset at a thread which I've been reading through for a few weeks and right from the first post I just couldn't quite "believe" it. I've got good instincts, I'm pretty good at "reading" things/people. And I trust those instincts. And this thread has continued to "grow" and my cynical nature has grown along with it. Normally I just avoid threads like that. But tonight what was posted offended me and I don't offend easily on this board. And something snapped and I allowed myself to speak from my heart. I was still being supportive but I wasn't being "soft". I was being firm, like I would be with one of my kids. I don't do well with snivelling and whining and attention seeking behaviour. I know I could have ignored it but my concern was that this thread could easily be frightening people who lurk and need/want help; or new people who have already come to the board. I spoke up. I apologized if I was offending anyone because that was not the intent and I'd live with it. This attention seeking has gone so far as to threaten & talk about suicide. And I'm sorry, I can't abide that on a thread like this where women are fighting for their lives and some women are losing that battle. So I replied. And I have a heavy heart. Because it seems to me, and I hope I'm right, because I would never intentionally hurt someone, especially someone going through breast cancer, it seems to me that I fed a troll and I wish I had just left it alone. And the possibility exists that I'm wrong and I've come down "too hard" on someone.
I care too much about people, helping people and making sure information is given correctly.
So what the heck, I have to be a little less hard on myself and realize I can't save the world.
Thanks for listening. -
Sherry --
((((((HUG)))))) -
Sherry,
I know what thread you speak of and I sent you a pm
because I included some personal family info.
Your instincts are on target in my opinion.
And I read your response you were not unkind. Words like suicide are very hard to hear when so many are fighting for their lives.
I have read post that I had to sit on my hands trying not to respond and a couple of times I did anyway and I like you am here to offer support. We are human.
Don't be so hard on yourself Sherry.
And I still think you give good advise and you gave the poster good advise too.
Big hug,
Carrie -
My hair was about 2 inches long till last night. Had to shave it all off again since it started to fall out like crazy 'cause of Taxol.
It's not too traumatic but just the thought that I'll have to stick with this silly wig for another whole year makes me feel so miserable. Just hoping this summer flies by real quick. -
Ladies, thank you from the bottom of my heart. Blu for the hug, which I very much needed. Carrie, for your support and kind words. I believe so strongly in positive reinforcement. A kind word goes so much further than being negative. And yet, balance requires both sometimes. And I suppose we can be "positive" even when we are thinking in "stronger" terms.
There are serious issues discussed on this forum and I take offense when I feel someone is "playing" with this or trifling with it. There are far too many women who want real support, real answers. So in as much as I was being supportive (for any other ears that were listening) I was also trying to make a point. And you walk a fine line when doing that. I so very much appreciate the fact that you agree with my instincts!!
And for Fumi a ((((((((((((((hug)))))))))))))) for going through the hair loss yet again. It's not vanity that makes you feel this way, I know that ~ it's the very visual part of what this journey represents. We don't see what the chemicals are doing "inside" us; when the hair goes it's the visual of what we are dealing with. We tuck bc into a corner to be looked at, dealt with at the times we need to (appointments, txs, etc.) but when the hair is out and we're donning the wig? We cannot help but be reminded.
Tell us how you're doing with the taxol. It's a long one and everyone reacts similarly to it, but differently.
Today is a new day. I hope all of us have some sunshine and something that makes us smile. -
Argggggghhhhhh!!!!! I just wrote a long post and it went poof!!! I really hate it when it happens! Oh well,
Thanks Sherry. Losing hair doesn't really hurt me as I'm such a happy-go-lucky "mini-Godzilla" and I know it's just a "see-you-later" and not a "good-bye". I just hate that I have to wear a wig when hot flashes keep annoying me in this hot and humid weather. Hats or scarves aren't my option since my job is taking care of clients and I have to visit them everyday. I wouldn't want all of them to ask me what's going on with me.
As far as how I'm doing with Taxol is concerned, this isn't the first time they put me on it. I did it before I had a lumpectomy. I didn't have to experience any nasty side effects except for the hair loss and this time is the same. My WBC still stays in the normal range even though I have never taken any drugs like Neulasta.
BTW I guess I know what thread you were referring to. And if I'm not mistaken, I don't even know why you thought you weren't being soft. If it had been me, things must have been much harsher. I would have just said "go back to your pity party you mommy girl and never be back unless you get ready to listen to what we have to say."
There are two types of people on the boards that I don't respect. One is those who never get back to the threads they have made to say thanks for the responses. It's plain rude.
The other is those who only look for bad things and never try to find anything positive even when great advice has been offered. Don't get me wrong, I know crying out loud or venting away do help and it's kind of essential to get over all this crap. But what about shutting yourself up in your own tiny world? If you're not ready to listen to our voice, then what's the point in being here?
Sorry I know I'm being too harsh but I just don't want those people to stay here if they only choose to remain negative no matter what is offered. -
Dang I miss all the cat fights! Sherry FYI I never am around when stuff is going down, it is rare from some reason. I think your instincts are on target, and I have no idea which thread!
There are newbies here coming for help and healing, and we need to support them.
Looks like my illegal alien thread is being deleted, well that is my last debate thread! I kill them even when I don't post on them! -
Fumi,
I don't mean to be rude, just still trying to figure out these boards. Slow learning curve for me. I'll try to get back to the threads and say "thanks". But just in case I can't find them all: Thank you to all of you. I do find comfort, entertainment, knowledge, and all kinds of other feelings and emotions on these boards. I especially like the parties. -
Oh Lini, I should have been more specific! I meant those people who only come with questions then leave without getting back to their threads and then come again with different or even the same questions. Those people just throw us a lot of questions and rarely do anything else, like offer someone else support/comfort. I certainly didn't mean people like you!
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Thank you, Fumi. I can be a bit self-conscious, and you can probably also tell, a bit shallow, being such party-person and all.. Sorry about the wig, I felt the same way about the dual prosthesis stuff. At least I got to go back to my little pillows. Way lighter and cooler. They'll do until I get my new boobies. Can't wait for you to get your own "hair-do" back.
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Sherry, I've not been on the boards very long so you won't know me, but I think I, too, know what posting you are referring to. I totally agreed with your post and was happy that someone stood up and said just exactly what you did. I have worked with young people all my life and I got the same "red flags" that I think you got when reading that post. It was careless for someone to talk of suicide in a discussion room where every day, even with all the aches and pains, is precious to us. I thank you are being strong enough to respond and the advice you gave was right on the money.
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Well... I'm also not sure which thread is being referenced... and can only imagine (from past troubles here). I prefer to stay out of them... Sherry you give such wonderful advice .. and sounds like you shouldn't be a bit sorry for what you wrote.
There's so much going on here that its' impossible to keep up unless you spend hours each day ...
Hugs to all... glad we have this "safe" place to come to!
Doreen -
Hi Carrie... you have 3 sisters... I have 4 sisters (no brothers either...) I'm next to the youngest ... there are 9 years difference between the oldest and the youngest .. haven't made any progress on the kitchen ... I think I've got the layout decided ... and think I've finally decided on the door style... still have to decide on flooring, countertop, oven - and hire people to do the work ... so.. I've got a lot more planning and details to work out. I'm going to IKEA this weekend ... maybe I'll be able to finalize some more decisions ...
Blu - I hope they figure out what is wrong with you... that has got to be sooooooo frustrating!!!
Cowgirl - hope the garage sale is not too much work - and that you make lots of $$ - the house mess can always wait ... other things have priority... I keep wanting to hire someone to clean my house. I'm the only one who lives here so I think its' kinda silly ... on the other side though it's not really how I want to spend my free time ...
Fumi - hope you tolerate this round of chemo as well as you did the first time before your lumpectomy - I can totally relate to not wanting your clients to be asking you what's going on - and why you want to wear the wig. I have not told hardly anyone at work about my cancer - I took almost 6 months off of work last year while going through treatments ... every now and then someone asks me a question .. and I don't really give them an answer ... I work from home most of the time though - so they don't see me often ... I wear a sleeve and glove for lymphedema - and that gets quite a bit of reaction and questions... even then I typically tell people that I have a problem with swelling and don't get into the reasons ..
Sherry: I'm also happy that you're here. You really do have a wonderful way of expressing yourself and have such good advice ...
Hope everyone has a wonderful day!!!
Hugs and kisses...
Doreen -
I feel so much better ladies. You all had such wonderful support and I did laugh ~ poor Cowgirl. I was thinking about the Illegal Aliens topic being deleted and your history of threads ending and now even the ones you start!! Take heart, you were rarely if ever on there, you did try to bring it back to the original question and it was others that killed that poor puppy!!
Carrie, Fumi, Cowgirl, Doreen and Texayn, thank you for all being so supportive and so encouraging. In looking back at that post, I think I could have been even tougher, you're right Fumi. My concern remains with that thread ~ is this someone who is dealing with the possibility of bc or is this person a troll just here "for fun" and to create an emotional response. This person posts primarily in their own thread and maybe 2 or 3 times has gone elsewhere, trying to make it look like they "fit in" as one of us. All those comments about suicide and "how long does it take to die from breast cancer" are meant to manipulate and inflame, to create huge sympathy. And immediately they've been called on it, comes the "I'm so sorry, I was insensitive". All of these are "tools" that a troll uses. So my conflict is in wanting to be sympathetic and honest, without really "feeding the troll". Plan now is to move forward and not post any more on that thread!!
I'm glad I came to this one where it's much warmer, much friendlier and full of good spirit. Much nicer to talk about garage sales and going to IKEA (I love going to IKEA!!), renovating kitchens, Fumi lookin' hot in her wig and just talking about life and the things that make it wonderful & worthwhile. -
Hi Sherri - I agree... poor cowgirl... her thread got deleted... talk about a dead thread! (cowgirl - not your fault - you certainly weren't the one who killed that thread!) And Fumi ... you are a hot lady (and even hotter in your wig.. ). Seriously though... I much prefer the friendly, helpful, supportive threads - and I try to avoid the conflict ... there's too much of that in life... why do some people need that in cyberspace too ? (probably because we make connections with people - and have strong feelings and emotions on things...). I've been reading on the drinking thread .. haven't posted there... but that one looks like great fun and friendliness all around ... :-) I'll join you there when I get some time...
Sherri - it sounds like either way - that person needs some help - if it's real ... she really needs some mental help - and to get through the testing to see if in fact she does or does not have cancer. She needs facts ... If its' not real - and it's a troll... that's pretty sad ... unfortunely there's really no way to determine this from what is written. I agree - she's already been given lots of advice and support - but it doesn't seem to be enough (and probably won't be...)
I'm glad I stumbled upon this thread and am also happy that you found us here...
Hugs,
Doreen -
There are times I just need to laugh Doreen...I think we all do. I stumbled across (I was going to say "stumbled into!") that drinking thread really to help someone else. One of the women had been very angry and irate and I joined in to hopefully calm the waters. And from there it has just been some of the best fun I've had in a long time. There are some very funny women who go on that thread. All in good fun, all harmless and no disscord!
I think you're right that some people just bring that with them. They are like that in "real" life and it carries over. And I think some are still "stuck" in that place of needing to be "right", needing to feel "vindicated", needing to feel that they have a voice.
Every day we need a little something different, just like eating different foods. But some "foods" are staples and some threads are "staples" as well. -
Sherry...I read the post you're talking about yesterday...no worries girl, you said what I wanted to say...just way more eloquently!!
Hugs,
Peggy -
Thanks Peggy. Sometimes you say things and wonder if it was enough, too much, not enough ~ and sometimes I still worry too much!! Sometimes things just need to be said.
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This is for you Fumi our mini godzilla
Kicking Cancer butt !!
Hugs,
Carrie -
I know this is so out of right field for just about everyone, but I had to share . . . I got a 90 on my Thermodynamics exam! *PARTY!* OK. I can go to sleep now.
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woohooo.... congratulations on the high score... on thermodyamics none the less.... !!!! congratulations... that must have felt wonderful... bet you studied a lot .... you have a Big gold star for that score!!!
Doreen
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