The Hermit Club

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited March 2013

    Jazzy, can you do coconut water?  It is the best for hydration and electrolytes.  Some people insist on drinking it very cold; I like it room temp.

    Feel better!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Bobo- I have drank it before, don't prefer it, but good to know it hydrates. I am doing ginger ale (just to settle the stomach) and vitamin water. Kind of what I have around right now. And of course, good old water too. Got a low grade fever too (99.3) and taking it super easy today.

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  • Jlynn0807
    Jlynn0807 Member Posts: 89
    edited March 2013

    Sissy,

    With ya on this one.....started Perjeta Friday....was doing pretty good til I woke up this morning, and my scalp and tongue actually hurt...not to mention I've realized I am sore to the touch....everywhere!  I've three kids in the house, and three dogs, and a husband, and as much as I love 'em all....wish they'd LEAVE!!

    Hoping for a better attitude tomorrow, but tough!   Comes and goes, and right now....it's gone!

    I guess we are allowed a meltdown now and then!

    Camille....how are you feeling today? Any better I hope?

    Lynn

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  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Jazzy u sound better watch u't temp. and keep drinking lots. And rest with u'r feet up/

    Bobo I didn't know about coconut milk--we used to drink it as kids when we'd buy coconuts but I didn't know it had value. Wow

    JLynn I'm sorry u'r experiencing thes SE--there always seems to be something and it does come and go and it's different isn't it.?

    I hope they're not to bad for u u've got so many people depending on u--and u'r so young too. I hope they stop but tell us everything that happens. OK If we can help on something we will--don't forget u'r water--u too loads of it. Do u have help? I hope so.

    Well my Dr. called NO SPINAL CANCER---just deteriating discs and vertabrae--which normalyl I would be upset but I said everyone gets that. so I'm not seeing a back specialist yet cuz I still have more tests and I just don't want to and she said she'll give me stronger pain meds. And I'm so happy my pain is real not just imaginary (like I think all the time) so I'm really in a lot of pain--YAY Now that sounded stupid but I think u understand me.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Excellent news!!   Bring on the pain meds.Cool

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Cami- I am glad to hear no cancer in the spine, but sorry to hear you have disk deterioration. Back pain is the worst.

    Crud seems to be working it's way out. Temp finally gone. It went up to over 100 yesterday at one point. Sleeping, hydrating, taking care of myself.

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  • Jlynn0807
    Jlynn0807 Member Posts: 89
    edited March 2013

    Camille...

    sooooo happy that your back is c/f!!  Congrats!  I am thrilled for you.  You deserve the good news.

    My husband is pretty darned helpful in the nursing department, so even though he is at work during the day, he helps me quite a bit when he gets home. Now, just lying around, deciding if I should cancel my son's ortho appointment today at 3:30, or attempt to get him there.  Trying to get to the conference in Philly in April.  Hoping that my chemo schedule will work around the dates so I feel well enough to go.  I don't know if the se's get better after each infusion, or worse?

    any thoughts?

    Lynn

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  • markat
    markat Member Posts: 909
    edited March 2013

    Jazzy I hope you get over it quick! There have been some nasty viruses this winter! That norovirus scares me! I feel like spraying the kids at school with lysol, just kidding...kinda.



    Yay Camille! Woohoo! I hope I have the same results :) well maybe not deterioration yet...but you know what I mean.



    Bgirl, I can't get used to the time change! Wah...



    Well, the brothers that had lice at school last month are out with it again as of yesterday (shiver). I want to take a tea tree oil and lysol bath, lol.



    Hugs!

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  • bgirl
    bgirl Member Posts: 538
    edited March 2013

    Took something to sleep last night, and it actually sort of worked for a change ... guess I was exhausted.  Hope it will reset my body clock too.

    Cami, sorry for your pain ... of all the pain I have, hate the back worst.  I do get it.  Because it is not obvious, sometimes others think it is all in your head, especially when you have been chronically ill.  Then you doubt yourself and think is it really that bad.  Maybe they are right and I am crazy.  Nice to have a dr. that believes you AND is willing to treat it appropriately.

    Lynn .. wanting to kill your family or just have them go away is normal ... a couple of others on this thread have expressed those sentiments.  Sometimes just steriods or plain want to crawl in a hole alone for a bit.

    Jazzy ... take care ... the rads will run you down.  Like the back pain ... don't see it but it does a number on your body, including your immune system.

    Teka .. love the attitude.

    To everyone else , happy Tuesday.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Hi ladies- doing better today. The virus has abated and I am going to work just for a few hours for some things I have to do. Going to come home and rest and sleep the rest of the day.

    Bgirl- I was thinking the same thing about the rads. If nothing else they fatigue you but do think they hit your immune system too.

    Hoping everyone has a good day!

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  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Jlynn I don't know what to tell u cuz we all can give u our pwn stories--Some have it worse up front and theyir bodies get more used to it (maybe) I'll be honest I worked when I could the first 4 months of xhemo, after that I couldn't work any more even if they doubled my pay--the loner I ot it and thhey were different kinds it was all a new experience and I only had about 2 days a week where I felt OK. But that was me--When I was in my 2nd year of chemo I felt awful most of the time but again that's me. And rads I was so tired all the time But I know women tat did not have all of this so u'll have to take it as it comes--But I'm glad u have a husband that heps out. But I'm much older with girls that are married so they would come and clean and shop for me--so I could be lazy. 

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    Excellent news Cam, my kids are older (well 3 of them are) and I hate asking them to do things for me, so I do it myself, so independent it sucks.....

    Jlynn I live outside Philly am going to the conference and put something on this stage iv thing about it....mine get more pronounced..the neuropathy is starting and I am on round 5 I think, have to look....and steroids sucks

    Mark omg so sorry, hate lice....little creatures..had girls with them never the boys (should shut up now)

    bgirl, actually I took all kinds of meds last night to sleep including pain ones cause I was up from 430am and again woke up at 330am but went back to sleep...

    jazzy, yay feeling better....

    Happy Tuesday!!

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Red-winged blackbirds have returned to the North Country.   Spring has sprung!!!

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  • Skittle
    Skittle Member Posts: 400
    edited March 2013

    Teka--yay!  Red-winged blackbirds hold happy childhood memories for me.  Horseback riding in Virgina.  They were everywhere.  Bright red flash was unmistakeable.

    Camille--I had back surgery several years ago.  One of the best decisions I ever made.  The pain prior was unbelievable.  I hope you aren't having to go through that daily!!

    Jazzy--glad you sound better, on the rebound.  Keep sipping!

    bgirl--hope you're able to store up some zzzzz's.  Sleep well.  Precious energy.

    markat--does your school nurse get in on it and alert other families?  or do the lice-bearers just go home until they're cleared?  Each school is different, it seems.  One conference night down, one to go!  Some grumpy faces tonight.

    Hugs to all.  

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  • markat
    markat Member Posts: 909
    edited March 2013

    Skittle, I'm not sure if they do or not. I know they send them home and they have to be clear until they come back. I don't think our public schools can do that. I've never received a letter from the girls' school. Glad one night is over for conferences for you! DH had back surgery and is probably due for some type of tune-up, it's been over 13years.



    Blondie, the brothers that have lice are students, not my kids. I bought some lice repel stuff and use it on my kids since working in a school, lol. I wouldn't normally worry about myself (lunch lady) but I've been going in the classrooms and helping the kids with breakfast stuff. Bending over them, opening stuff. Honestly, I would should probably worry more about the bedbugs lol. Hope you are feeling okay tonight!



    Jlynn, hope you are feeling okay tonight. I haven't had Perjeta, so I'm not sure about those cycles. I was on a 3 week cycle, so I did have a "good" week.



    Bgirl, glad you got some sleep! I should have taken something tonight but its too late now :( Hopefully tomorrow this straightens out. I sure don't bounce back like I used to! Back pain is so hard, all pain sucks. I've been coming home from work and taking 2 pain pills and my back still burns. I'm almost used to it now.



    Jazzy, glad you are feeling better! I've told you this before, but after my mom had rads she was always so tired. It seemed to completely zap her. It took awhile for her to bounce back. Sending you hugs.



    Teka, yay for the birds!! My youngest loves birds and always watches them, has her own feeder, and reads about them.







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  • Jinkala
    Jinkala Member Posts: 193
    edited March 2013

    I got a call from the doctor's office yesterday afternoon to inform me that my MO reviewed the results from the CT scan and saw nothing of concern and said everything looks good. Yay! :)

    So hard to get up in the mornings with the time change.  I wish they'd just quit changing the time around altogether.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Excellent news!!   What better way to start off spring.

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  • Hhbelle
    Hhbelle Member Posts: 4
    edited March 2013

    Hi everyone!

    I'm new to this site. Just wanted to introduce myself.  Wow, I thought it was just me that just doesn't want to socialize or go out of the house.  It just takes too much energy. Plus I have no hair!!  Putting the wig on takes too much energy also.   A little background about myself. I had double mastectomy 10/2012 and finished my last of 4 chemo rounds on 1/31/2013. I am just so tired all the time. I sleep til about noon and then just putt around the house a little before kids come home from school and hubby gets off work. I'm thinking I need to get back to  my normal schedule (if that's possible), but I don't have a job anymore because they fired me when I went over FMLA time.  I still need one more surgery for exchange of expanders to implants, but that's not for another possibly 6 weeks-don't have a date yet! I feel like my life is in limbo. UGH

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Welcome!   I think you're going through the somewhat normal feeling.Tongue OutWink

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  • FLwarrior
    FLwarrior Member Posts: 977
    edited March 2013

    HI Hermits! *waves* to all!

    YAY! For the good test results!!! Smile

    Welcome hhbelle.  Teka is right. I felt the same way for quite a while.  I can say that I am 1 year and 9 months PFC and 1 year 8 months out from mx...and I finally feel like I have turned the corner. I do feel better, not the same, but better. I do have some lingering SEs. Yell

    Markat, I'm scratchin' my head just thinkin' about it... I think every kid who goes to public school ends up with them at sometime.

    Jazzy hope you are feeling better. 

    Sweet dreams to all and especially those who need a good full nights rest!!!

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  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Hi all and Welcome Hhbelle. Tho sorry u'r here. But all of this is kind of normal and I'm still hermitting myself--maybe not so normal--but I choose alot of it. LOL

    I don't understand about being fired--did u not have u'r papers in time? I guess they can fire u than but if u'r on FMLA they are not allowed to fire u, Don't o by me--I don't know that much. But u have kids--oh that's a big job in itself. So join in and u'll see u'r not so crazy.

    Now my head is getting itchy. ick

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Hi hermits- doing better from the stomach bug. Went back to work yesterday. Had a not good day at the client site today and preparing for a difficult meeting tomorrow morning. I am evaluating whether I may opt out of this contract in a few more months. Just not fitting with the new me and all I need to these days to take care of Jazzy. Funny how all this changes you and helps you to walk away sooner from things that don't work for you. 

    More soon! Yay for good tests, signs of spring and welcome hhbelle!

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  • markat
    markat Member Posts: 909
    edited March 2013

    Sorry for making everyone itchy. I told DH that I might shave my head again if I ever got them.



    Jinkala great!



    Welcome Hhbelle. I totally went through what you are going through. Sorry to hear about your job.



    Hi FL! Hope the job is going good this week.



    Hey Camille, Teka, Bgirl, Skittle, Jazzy. Hope you all are feeling good!

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  • camillegal
    camillegal Member Posts: 16,882
    edited March 2013

    Jazzy u have been having difficulties and no doubt things have changed but u'll do what's right for u, I'm sure.

    Markat I would shave my head too, it's no big deal now.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    Mark..Well I did get them from my kids and OMG that sucked....

    Welcome

    Jazzy glad you are better....

    Jink congrats.....

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  • Jlynn0807
    Jlynn0807 Member Posts: 89
    edited March 2013

    Fellow Hermits...

    Chemo started this past Friday, so will be a week tomorrow.  Oddly, exhausted today more than the rest of the days.....so I don't know why that is. 

    I ventured "out" yesterday, into the real world.  By "out", I mean I went to the bank, ran to CVS, and picked up my son from school.....that's out to me now I think.  Found myself face-to-face with my face....in the rearview mirror of my car....and there is NOTHING quite like daylight to bring you back around to reality.  Holy crap!  Luckily, I made this startling discovery while waiting to pick up my son, AFTER my errands were done, because I'd of high-tailed it home ASAP.  COVERED in acne.  I never had acne before, sure a few here and there that time of the month, but THIS? Oh no.  I've a newfound sympathy for my now 18yo who went through puberty COVERED in it...was actually on Accutane for it.  I did call my onc, and said I don't mean to complain, but right now looking ugly is NOT the perk I was looking for.  He suggested Clearasil pads?  Really?  I want a prescription strength zit zapper, not Clearasil.  He said if not gone by appointment, he will send me to dermatologist.  Now, I don't know, but I've read plenty a post on here from women whose ONCs gave 'em the medicine.  It's not like I'm suddenly covered in acne and we are all scratching our heads wondering why....so why another bill?  I bought Neutrogena "stuff" and used last night.  Looked worse this am.  I'm not leaving the house again til it goes away.  My husband said I was being ridiculous.  Good.  Point taken, but I'm not going out.  ANYWHERE.

    And, who could perfectly put together a "first time infusion/got your period thought you weren't supposed to" combo?  I guess I did.

    Oh boy.  Enough said!  I am going to find my "half-full" attitude somewhere, though as of right now, I am typing and listening to my otherwise dear love him to death black Labrador who is perched on my son's bed with his head up underneath the shades, BARKING AND BARKING and he won't shut up!!  What could be that interesting?

    I'm whining.  I hate that!

    sending good wishes to all of you!  I won't come back til I stop my whining.  I promise!

    Lynn

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    What you call achne might get worse with continuing chemo treatments.Undecided   I was under the care of a dermatologist while taking chemo treatments.  

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  • Jlynn0807
    Jlynn0807 Member Posts: 89
    edited March 2013

    Hmm...so he wasn't so off the cuff in referring me outside?  That's good to know Teka.  Well, good and bad that it may get worse, but good to know he was right. That's what it looks like anyway....acne.  Maybe it's a rash?

    I did like my son's dermatologist very much, so at least I know someone good!

    Thanks for the heads up!

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Wink

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2013

    Hi ladies- rough week with work this week. Just a few things tomorrow and then on call this weekend as we begin a conversion. Got some home time the next few days. Whew!

    The weather has been great this week, in the 70s, feeling like spring with the temps and evening light. 

    Hope everyone is doing okay! TGIF!

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