The Hermit Club

camillegal

Teka ick is right ohhhhh-I still didn't get mine done yet--postpones 2x--Fri I get the MRI which is THE TUBE hahaha--Did u get the flavored kind? They gave me 3 flavors to use with the mix--my sister had that last week and she used the lemon-lime and said it was better than usual junk. Good Luck tomorrow and let us know as soon as u can how it went.

camillegal

Oh Markat 6yh graders--WTF that is really scary.

Oh and markat I know what u mean, I admire the ones who can advocate and volunteer and do all these things--but it's not for me--it's not the memories so much, cuz i forgot all the bad ones but just the idea of trying to help someone when I don't even like to talk to people about it really.And the main thing is I'm much to lazy now.

Teka

We're getting to damn old for down & up!

camillegal

U got it Teka.

Teka

I'll stay up until midnight, then pad my bed.

camillegal

LOL--I wear depends anyway so I'll be fine with it.hahahahaha--

OK I want to know word for word how it goes---stretch u'r words for me.

Teka

camillegal

Right save all u'r words.

Jazzygirl

Hi hermits- hoping you are all doing well this morning.

#4  (last one)- your relationships may be strained. The woman said "when I got diagnosed, my husband seemed unconcerned. I felt alone and afraid and wanted him to take care of me, but it looked like that might not be the case." The article says cancer almost always challenges your relationships. People may feel inadequete and not know how to meet the needs of another person. People often pull away. 

What to Do: Find a support group or counselor (Yay for the Hermits Club)

I am not with a partner, but have found some of my support community of friendships has deepened, some have pulled away, and then some relationships are just purely changing. My sister and I have grown closer going through our treatment process simultaneously, even though we live 1000 miles apart. But I have had some challenges with some folks that are long time friends, but far away and who are not as close to what is going on.

I had a sort of fall out with a friend of 20 years who has always been very kind and supportive around many things in my life. But about a month ago, she was asking me how I was feeling and I said I was struggling with fatigue. Upon that I got a diatribe about how I must be depressed, I need a support group, blah blah blah. We all know fatigue goes with cancer treatment, but I guess she felt compeled to diagnose my fatigue as depression and then go on to tell me what I should do. I think the find a support group comment was my signal that "I don't want to hear about it." 

I decided to step back. With that, I sort of had a realization. During this whole thing, she has never picked up the phone to call me. She has sent periodic e-mails, and cards, and put me in a prayer group. All things I appreciated, but she has kept herself distant. I remembered last summer that she had been going to a lot of funerals for people who had died from cancer. So it is her problem, and I freed myself from the need to make her okay with what is going on with me. I don't know if our friendship will continue, but I do feel it has changed.

Time to get moving to my work day. Wishing you all a good day! Livin' for the weekend!

blondiex46

Jazzy it is such a shame that people don't know how to react.....we are here for you...

camillegal

Oh that is a good one and I imagine it can e so true, even with a ood DH who doesn't have a clue what to do for you.

It's funny cuz no one really has to do anythin but be available to u, not physically but emotionally that's it. (for me anyway) When u love someone it just seems so easy to me--but I don't know--My sister and I talk everyday she lives close by --my cousin too.. we're all in the same boat and it's not a yaght-it has some holes in it, but we manage to repair them and go on so maybe we just know what to say at this time.???? But I have to say I've been doubly blessed--my friends are all with me all the time just to talk if needed and of course to laugh--which is important to me--but so many are in the dark.

Jazzygirl

Hi hermits! Almost through my work week. Just need to go in a few hours tomorrow after I see the breast surgeon for my follow up from the rad treatment last week. I am going to see the Moody Blues tomorrow night. Whoo hoo!

Sobering encounter with an colleague from my client site today. He had lymphoma a few years back and kicked it. I heard from someone last year (when I was not working for this particular client) that his cancer was back and contacted him to say hello but we did not talk any details. Today, he told me he had a second kind of cancer and his treatments were not shrinking the tumor. He said if they cannot something that works, he may not make it through the year. He knows nothing of my bc, and I just stood very quietly and listened. Despite all this, he made some jokes with me and has never lost his great sense of humor. I think I am going to ask him out to lunch just to go have some laughs about old times.

It was 73 here today where I live and it feels like spring. Daylight savings on sunday. Spring is coming!

Hope you are all doing okay, and thanks for your feedback on my posts! 

camillegal

Jazzy what a nice thing to do to go out to lunch with him.Well I'm glad u have just a few hrs. tomorrow and u'r weather is so nice--Not her. LOL

Have a good Drs. visit tomorrow----and have fun tomorrow nite.

Hope everyone had a good Friday's eve.--

markat

Teka, hope the down and up went as well as it could.



Camille, kids are growing up too fast. I hear them talk about stuff everyday that I never would have imagined kids saying. Good luck with the MRI tomorrow! What are they scanning?



Jazzy, so sorry about your friends (the lousy one and the one with cancer).



MO ordered some new tests today. Bone scan, MRI of back and spine, and more xrays. Bloodwork showed some crap I guess Not going there in my head yet. Scans aren't for a couple weeks because I don't want to call off work.



Hugs to all!!

camillegal

I know we haven't heard from Teka.

Markat why do u need all those tests? Is it time or what'? But u know everything little thing now we have to have scans, MRI/s blood work--it's a pain in the ass I think, but we different now.

Teka are u sleepy???/

Jazzygirl

Hi hermits:

Teka- hope you are through the down and up okay, with nothing notable from the tests.

Markat-sorry to hear about the bloodwork. I hope the scans go okay and that there is nothing of concern.

Cami- good luck with your tests too.

TGIF tomorrow. 

Skittle

Whoa.  I can't keep up.

markat--yep.  Sounds like sixth graders.  We had a couple last month who were snorting smashed "Smarties" candy.  They are so eager to be big and bad and like their video games...  They look up to and forward to violent, sexually promiscuous, steroid-altered futures.  It's scary.  What they admire are the least moral and most vulgar. 

teka, camille--wishing you well with up/down procedures and results. 

and I think markat is right.  People don't understand.  When the google news feed reported bc patients may (!!) suffer PTSD, really?? Someone somewhere spent money for a study for that?  Hard to believe.  We all have suffered through dumb comments, over-interested busybodies, dismissal of oh-you-must-be-over-it-by-now, on and on.  Ignorance is everywhere, and I sometimes wonder if that's part of why we seek each other out and treasure each other.  We get it.  Each and every one of us.    I think that's one of the reasons I treasure each of you.  I feel safe here, and that says a lot. 

markat

Camille, I had blood work and my port flushed the other day. I have been complaining about pain in my back, so I got the orders for scans today. She said she was a little concerned with some numbers. I didn't ask which ones. Hopefully just a fluke or something else.



Skittle, nodding my head along with you.

camillegal

Skittle I know what u mean--it's good to feel understood all the time--even on days we're not making much sense (me) I tend to ramble and it's fine if no one reads it but I get it out and no one is saying OHH not this again--cuz with everyone else we're fine, after all how long can we feel sick. Well I wish it was over but it seems to go on and on one way or another.

markat

I wish we all lived in the same town...someplace warm like around jazzy or Fl!



Did I mention that the state education dept is coming in tomorrow to evaluate me and our lunch program? Joy...I might fall off that wagon tomorrow night lol.



I bet Teka went out for a big meal after her procedures.

camillegal

Markat she's really quiet even for Teka.

I wish that too, but if it wasn't for this damn disease we would never have met at all. I was just thinking put us all in a colony and we'd have to see each other. Well that's how some people act toward us.--They even think our SE might be contagious. LOL

Teka

Good Evening,

I just crawled out of the recliner.   I was surprised when the doctor went up then down.   I was sedated but remember watching the up, and telling the doctor no need for more sedative for the down.   We had lunch before I wobbly & exhausted returned home.   Okay results!!

Ladies, we deserve a restful weekend while waiting for time to 'spring ahead'.

camillegal

Good results YYYAAAYYYY He did the up u'r ass first then down u'r throat--not with the same camera I hope.

Teka

Teka

Years ago, I stopped PCP & GYN from doing routine fecal occult blood tests because of repeated false positives. 

markat

Glad everything is good Teka!



Very true Camille, we wouldn't have met!



Has anyone heard from Lizlemon? I'll have to look around the topics. Haven't heard from her in awhile. Winter can be so long.

bgirl

Teka. Glad things went well.

Markat, good luck tomorrow.

Jazzy, hope checkup is good ... thanks for sharing info with us ... all too true.

Sad when insomnia is only time I have had to check up this week.  Happy Friday to all.

blondiex46

CHECKING IN and Mark I agree!!!

markat

Hi blondie!



Hope everyone had a good Friday. The inspection went well. Only a couple little issues. Nothing too bad.



Camille how was your mri?



Why do I stay up so late on Fridays? Lol.

Anonymous

I tend to be a "hybernator" in the winter.  Especially this time of year and more so when I was going thru treatment.  I will be 4 years out and it seems the last year and a half I have had a new reason to hyberate alot.  Lack of mobility and pain from my knee and no finally went and had the knee replacement done in January.  Being mostly pain free and recovering now, i am hopeing to get back out and becoming more active with my daily walks by the ocean with my dogs.  its good to have dogs when you're being a hermit hyberbating all winter.

Barb